Finnman: If you would like help with an insurance appeal contact DHickey@protonbob.com . They have an insurance appeal packet they can send you. Best wishes for finding the treatment best for YOU....
Bob: There are many, many men who have had proton for adjuvant treatment after surgery and alot of them had their treatment paid for by Medicare. Go to protonbob.com and about halfway down home page...
Video below might be of interest to some. Dr Myers has some interesting thoughts. http://askdrmyers.wordpress.com/2011/12/07/is-rp-dangerous-for-localized-pca/ ...
Fairwind: If you could find the investigaional study or article it would be much appreciated. Dutch...
Tony: Great news. You are the poster boy for what can happen with perserverence and a positive attitude! Congrats - way to go. Also good to see the posts from the old crowd (don't mean age, but a...
SkeeterZX22V - I see those trigger "attacks" are coming. Happens every time someone asks for info on proton and where these people come up with some of the "facts" they expouse baffles me. As I...
John: Sorry you have to be making this decision, but getting as much info as you can helps in making a treatment choice. This forum will not be too helpful to you where proton is concerned. The...
I may be mistaken, but believe an enlarged prostate would make you ineligible for both proton and brachy. Dutch...
Biker: Congrats and keep the good news coming!!! Dutch...
Skeeter: Think you will find that the next 42 will be about same as the first 2. I just celebrated my proton 10th anniversary on 8-21 and all is good. Best of luck on your continued journey. Dutch...
You have the correct Dr Bahn - very well known in the area. Know of numerous men who have seen him for the color doppler. His speciality in prostate cancer treatment is cryosurgery....
If anyone is having problems getting insurance approval for proton you can go to protonbob.com, click on "Contact Us" and then email the person shown. She has an insurance file that will help guide...
Best of luck and sure you will do fine. I am 10 yr out from proton at Loma Linda. Have had no side effects and doing good. Dutch...
Leroy & Steve: Haven't stopped by this site in quite awhile. It will be 10 yr in Aug that I completed my proton treatment. I have not had any problems except for occasional ED - I had already...
Steve: Don't post or check in much anymore, but saw your post and had to say congrats. Just to let you know I am a 10 yr veteran of proton, have not had any side effects and doing good. Best of luck....
Barry: Congrats on your good news. Bluebird: I haven't posted frequently but do check in from time to time. Sure happy to see your post today and glad to see all is going well for you and yours. I am...
Berdoo: Haven't seen it mentioned - have you ever had a "free" PSA with your PSAs?? Also, does Berdoo mean you are from San Bernardino? If so, read book by Robert Marckini - "You Can Beat Prostate...
Dbros: You might want to check out protonbob.com, read Marckini's book and possibly contact him. Best of luck. Dutch...
Hi Guys: Haven't been around for a while and just wanted to update my current PSA after 8yr. Sorry, didn't know it would bump to the top when editing. Best wishes to all. Dutch...
Dave: So good to hear you are doing OK and the PSA sounds good. I'm coming up on 8 yr, PSA still at 0.2 and have been very fortunate in not having any side effects. Squirm, if you go to the protonbob...
Leon: It is true that Kaiser will not cover proton - those men who are 65 usually drop Kaiser, go to Medicare and use AARP as their supplemental. While it is true that there may be a few insurance...
As with proton, I believe IMRT is covered by Medicare therefore cannot be expermintal - Medicare does not cover experimental procedures. Dutch...
Just for informational purposes, the balloon is used with proton treatments and I think it has been since the beginning. Hence comes the name of the support group - "The Brotherhood of the Balloon"....
Bob: From my understanding, retrograde ejaculation would occur when the body is still producing semen. With surgery, the prostate is removed so there is no more ejaculate and with radiation the...
Bob: I am a 7 1/2 yr survivor of PCa and had proton treatments at Loma Linda. Have not had any side effects from the treatments - as far as ED, Viagra works for me if needed. I had already been...
Richard: Great to hear of your downward spiral - cotinued good health. Dutch...
Smilin; Some of the previous posts might possibly explain why some of us who have had proton don't do much posting in regards to it. Just my opinion. Dutch...
Smilin: I think the biggest reason is that there are very few proton treatment centers, so patients must be away from home for a couple of months to have the treatment. More and more centers are in...
Have heard presentation at local Pca support group - sounds interesting. Here are a couple of threads that are on this forum: http://www.healingwell.com/community/default.aspx?f=35&m=767343...
Tony: Congrats - so glad to hear all continues to be good for you. Dutch...
Might get a "free" PSA added to your next PSA test. If it is a low percent, that usually indicates cancer is present. Keep us posted. Dutch...
Richard: Hope the blessing of this season will help to ease the burden of waiting for your results. Take care. Dutch...
Keith: Suggest you email RMarckini@protonbob.com . He has contact with many men who have had proton and may be able to give you some answers. Take care and keep us posted. Dutch...
Happened to notice your reference to the "Brotherhood of the Balloon",a support group made up of men who have had proton treatment. It began with a small group of guys who wanted to stay in touch via...
Dave; Good to see your recent PSA is still heading down. Think mine is at its nadir - my 7yr test was 0.2 and it's been there for about 2 yr. Tony, in answer to your question - I have never had one...
Suzy: Don't know of many major insurance companies that do not cover proton. If you would like a packet on how to approach your company regarding proton, go to www.protonbob.com and click on Contact...
This is regarding proton therapy for salvage purposes - I had my proton at Loma Linda over 7yr ago and they have been doing proton for failed surgery even before then. Because the beam can be stopped...
This latest bump in the road is one you certainly did not need, but continue to stay strong and positive. You will be in our thoughts and keep us posted. Dutch...
Gumby: It is suggested that you do not indulge in any activity (DRE, sex, ride bike, heavy exercise, etc.) that might massage the prostate for 72 hr prior to having blood drawn for PSA. Another good...
You can go to the second post from top (Resources) and scroll down to the ED section for some posts about the IPP. Also can type in penile implants or IPP in the search site above and get some of the...
Walt: Welcome back and congrats on the lower PSA - a vacation is definitely in order. Your outlook is to be admired and I wish you well. Dutch...
Richard: Safe trip home and many year free of Pca. Dutch...
CVC: At next testing might have a "free PSA" done also. Best wishes. Dutch...
It most definitely runs in families - you are twice as likely to get Pca if your Dad had it and three times as likely if brothers have had it. Both of my brothers had it - didn't know my Dad, but...
Tony: Good decision - you are more valuable to this forum as a member. Your positive attitude and caring manner can now shine through. Take care. Dutch...
Been there: I too am very sorry to hear of the pain and discomfort you are having to deal with since your treatments and hope with time and healing your condition will improve greatly. Since the...
Biker: Best news today - take it easy and look forward to seeing your positive posts soon. Thoughts are with you and yours. Dutch...
Les &n Walt: No words to convey how lousy this whole mess is, but know you will both be in our thoughts. Take care and stay strong. Dutch...
Richard: What GREAT news!!!!! The proton should be much easier on you. Will continue to keep you in our thoughts. Dutch...
Glad to hear that things are going in a positive direction for Biker - won't be long until he is back giving us all his positive vibes. Our thoughts are sent his way. Dutch...