And with a clean bill of health for your liver, you can now safely toast your good news. Congrats!...
I was on Lupron and Casodex for about a month before adding Zytiga. I had all the typical ADT side effects--hot flashes and a general feeling of creakiness--but didn't really know what to attribute...
Nicely done!...
I don't think the potential issue is that Epstein made a mistake (unfortunate, but understandable), but that he allegedly pressured people to make a specific reading that matched his wife's reading....
Wow, this is interesting. I've always been a big advocate of the second opinion on biopsy slides since I was hanging my treatment decision on it. I was diagnosed a G8 and my thinking was going with...
Did the RO specify why no spot radiation? I'm wondering if it's worth seeing another RO for a second opinion on that. But to answer your question, yes you should be seeing an MO and preferably one...
Other than putting up with 18 months of ADT and daily drives to UCLA for radiation, I'd have to say I have an excellent QOL. And I'm willing to bet that 80%+ of the guys here would say the same thing...
I second the suggestion of a second opinion of your biopsy slides: I was initially diagnosed as a G8 and then was upgraded to a G9. I had the combo external radiation/HDR brachy combo (pretty common...
Stephen S--yep, that did the trick! Thank you!...
I've lost access to the PC forum if I log in via Safari. Yet somehow it works in Chrome....
My wife has diverticulitis and it seems like the issues that arise from it come and go without much ability to predict. I can understand your reluctance to travel since it's caused us to think about...
95% sure sounds scary--glad they caught it and glad you're doing okay!...
I think it depends on the poster to some degree. Can you imagine if Andrew (In The Shop) had just stopped posting one day without letting us know what his plans were? I think a lot of us would have...
Hope the stent procedure went well. Give us an update when you get a chance....
I have learned that the two best words to hear after any medical checkup are: "undetectable," and "unremarkable."...
Stephen...for what it's worth, when my wife and I came down with covid in June (following a trip to Paris), she took Paxlovid and I didn't. And for whatever reason, she tested positive for several...
If you're referring to the side effects from the ADT, yes they went away but I found it a rather slow process. I did 18 months of Lupron/Casodex/Zytiga and while I didn't expect an immediate change...
I definitely had low libido when on ADT. (Probably more accurate to call it *no* libido.) However, I didn't have ED--just no desire to do anything with it. My doc (not the UCLA RO) had me on cialis...
Davie...I'm a "graduate" of the HDR brachy/IMRT program at UCLA as well. Almost 10 years out and I'm doing well. Looks like you'll be able to ring the bell soon when you finish your external beam...
I've never been one that can quote studies, so I'll let the smarter guys here do that. But I can certainly give you an anecdote, given that we had similar diagnoses (including being upgraded to a G9...
I was attracted to this post by both the undetectable part, as well as the fine glass of scotch part. Big time congrats on being undetectable and graduating to having your uro monitor your PSA! And...
Big time congratulations to you!...
Loss of ejaculate is pretty much a given--although for some reason I personally never think of that as a side effect. I've never had any ED issues following treatment--nor did I have it while on 18...
Hello davie1803, this is the treatment that I had and I also was treated at UCLA. The docs in the HDR brachy program have changed since I was treated, but as JNF has said, the program was put...
Congrats Redwing! Keep making us proud....
I had my radiation treatment at UCLA and I'll second JNF's recommendation of it. You can google their SBRT (external radiation) and HDR brachytherapy programs. You can also consider Cedars Sinai...
Thanks all! (And Djin, I was hoping you'd post a link to a relevant study!) Having gone though IMRT as part of my treatment and its daily treatments, I just assumed that the 5 sessions of SBRT were...
I have a friend that will be starting SBRT next month (G7, 3+4 diagnosis). The RO recommended that he have the sessions every other day, as opposed to all 5 sessions all in one week, but the choice...
So sorry to hear this. Was he taking the Zytiga in conjunction with prednisone?...
FWIW, I also take 8 mg of Rapaflo. I've found that I only need to take it about every five days, as opposed to daily. It's possible that you can get relief with less than a daily dose. I've never had...
I remember very well when you first checked in here. Congrats on reaching 8 years and hoping you do have another 8 years times 4....
Based on Gleason score, your husband is still favorable intermediate. Typically, at that risk level you would have either SBRT or HDR brachy as a mono-therapy, but it's certainly something to ask the...
Even though it was 10 years ago, I remember how much I agonized over my treatment decision...and how much better I felt once I made it. When I was first diagnosed, I was on defense, but once I...
I can understand that your Decipher scores weren't what you wanted to hear. But if you flip them around, you have a 90.5% chance of still being around after 15 years, which is really pretty good if...
Eight years! (That's longer than many of organized religions last here in California...) Congrats and here's to another eight! (And eight and eight...)...
I can put in a strong endorsement for Dr Lam of Prostate Oncology Specialists in Marina del Rey, but he's not a Kaiser doctor. Is the Kaiser insurance an Advantage plan? If so, I'm thinking it likely...
I seem to recall that my hot flashes started a week or two in. But not everyone gets them...or for some folks they're not too bad. Glad you're hitting the gym as that can be very helpful in fighting...
81...I do have gizmos that change the time automatically, but are you sure they're factory programmed to do that? What if I bought one of those gizmos and lived in Arizona where it doesn't change...
Congrats on a good PSA right out of the gate!...
.07 is a really good PSA score 15 months after finishing Lupron. It took me three years after ADT to get down that low. If it stays in that range, you're in great shape. Keep up the good work!...
ADT definitely is quite the slog, but it's doable. I also agree that everyone has different results--for me the hot flashes were by far the most bothersome. (The very first one was amusing. But they...
I assume you were listening to Vin Scully in those Brooklyn days. My brother and I were doing the same in the 1960s after the Dodgers had come to LA....
I was treated back in 2013 and I can only find the docs for the IMRT portion of my treatment, not the HDR brachy. For my IMRT, the plan specifically calls out that lymph nodes and seminal vesicles...
Unfortunately, I'm not nearly knowledgeable enough to answer this. If they do think you were under-dosed (that's not clear to me), I don't know if the solution is another fraction of brachy or it's...
Most people I know seem to prefer DST year round. Personally, I would prefer standard time year round since I would rather have an earlier sunrise than a later sunset. BTW, it's struck me as odd that...
Congratulations on making a decision. Now you can go on offense and start beating this thing. Re the HDR brachy, there was a lot of time put into the precise placement of catheters in my prostate....
It's not surprising that the PET scan didn't show anything, but based on your rising PSA it's pretty clear that there are some cancer cells still lurking, most likely in your prostate bed, that could...
I had Zytiga added to my ADT a month or two after I began it. I didn't remember it making me feel any worse than just being on Lupron. I did stop it for a month since my bloodwork suggested I was...
You'll get lots of responses re Lupron since many of us here did our time on it. It's a bit of a slog since it reduces your testosterone to zero (more or less) so that can zap your energy (not to...
When it comes to PSA scores and co-pays, zero is my favorite number. (I also hope it is the number of runs that Clayton Kershaw gives up tonight...)...