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alephnull

HealingWell Forum
>
Member Profile
Display Name
alephnull
Profile Created
12/24/2013 8:14 AM
Last Seen
9/29/2023 11:51 AM
Total Posts
2531

Last 50 Posts

No subject (Part 5)

Well, there I go again not stirring this post up so as to not let it die. My Royals dead last, please please put them out of their misery. And spend some money on those poor guys. Last place sucks!!...

9/29/2023 11:50 AM

Prostate Cancer
PC Treatment Update

My PSA never reached 2.0 after CR. But my PSA went from nadir of about 0.18 to 1.41 in a matter of 2 months. My Onco thought it best to have the PSMA scan. I am glad you have it scheduled....

9/29/2023 11:43 AM

Prostate Cancer
When Should I Be Concerned About My PSA

Mumbo, I see that, maybe make in 3 times in a row without going down at all then. Short doubling times are serious things. All I'm saying is, after a set of increases, maybe scans are in order. My...

9/22/2023 6:59 AM

Prostate Cancer
When Should I Be Concerned About My PSA

My MedOnc looked at two consecutive PSADT increases where the doubling increases were less than 6 months each. Your last pair of PSAs are about a 3 month doubling time. If your next PSA is in that...

9/21/2023 12:51 PM

Prostate Cancer
One year Undetectable

Last week I had my most recent PSA test. Two awesome facts about it. I am now ONE YEAR UNDETECTABLE. Yea!!! My Onco says the average time to failure on Xtandi is about 9 months. Next month makes it...

9/18/2023 12:25 PM

Prostate Cancer
Flyfishing retreat for men w/cancer

Hi all, I just got back from a 3 day retreat learning to fly fish. And it's only for men w/cancer. It was totally free except travel. All gear, lodging, and meals were supplied. They have a lot of...

9/14/2023 12:35 PM

Prostate Cancer
No subject (Part 5)

Ramon and Vince, I do actually agree with you both. HS should be about academics. When my daughter was in 4th grade and playing Optimist Club bball, we had HS school coaches watching the games and...

9/3/2023 9:16 AM

Prostate Cancer
No subject (Part 5)

Do you know what time it is?? College football time!!!!!!!! Rock on!! My Cats play SEMO (SE Missouri, yes it's likely a squish game, but at their level they are excellent), hope we don't overlook...

9/1/2023 11:11 AM

Prostate Cancer
OT: getting old sucks

RCS, all that exercise is what is causing all your pain. :wink: :wink:...

9/1/2023 8:12 AM

Prostate Cancer
ADT for 18 months vs 24 months

I'm way late in responding. After 24 months I went on ADT, PSA started going up after 12 months. After that we'd wait until PSA stabilized at my lowest for a couple tests, then go take another...

8/28/2023 1:09 PM

Prostate Cancer
Off Topic, but still cancer related

No, well not in internet free space. I found a couple on Facebook....

8/22/2023 5:59 AM

Prostate Cancer
Does anyone still talk to logoslidat

Logo reminded me of the guy in HS that was cool in a non athletic or non scholarly way, and I seemed to gravitate towards. He was just plain cool! I miss his posts....

8/21/2023 11:16 AM

Prostate Cancer
Should long-time posters make a farewell post when leaving, as a courtesy to the rest of us?

Although I voted Yes. On other forums, some respond to these folks with snide comments. So, maybe not....

8/21/2023 11:13 AM

Prostate Cancer
Off Topic, but still cancer related

Oh a little call out to Seeger, I love it!! With the tan I have acquired this summer, I am amazed at all the scarring I have on my left arm. Dog bites, barbed wire, thorn bushes, angle grinders,...

8/21/2023 5:30 AM

Prostate Cancer
Off Topic, but still cancer related

I'm a little surprised that the central plains states aren't in the top 20. Farmers, ranchers and their workers out in the intense sun all day. I remember making the intentional decision NOT to wear...

8/18/2023 9:28 AM

Prostate Cancer
Off Topic, but still cancer related

Thank you EVERYONE!! Love you brothers and sisters!!!...

8/17/2023 7:25 AM

Prostate Cancer
Off Topic, but still cancer related

Thanks Bohemond!! Yes, depth is everything! Also, any spread to lymph nodes....

8/16/2023 9:35 AM

Prostate Cancer
Does anyone still talk to logoslidat

I went on a search for him. Found an old PC forum, where he commented all of 6 times over 2 years. According to this thread, his name is Jack. Jack Oh, and all of his comments were not in the style...

8/16/2023 8:06 AM

Prostate Cancer
Off Topic, but still cancer related

Does anyone know of a good support forum for skin cancer, specifically melanoma? Dermatologist cut off a mole yesterday that she says looks like it probably is melanoma. Noticed there isn't one on...

8/16/2023 7:39 AM

Prostate Cancer
No subject (Part 5)

Vince, Thank you very much for your service! Anyone that says that, are idi o ts! I will say that when attending a sporting event, the majority of the crowd tends towards pro-country, IE Patriotic....

8/14/2023 7:51 AM

Prostate Cancer
No subject (Part 5)

Exactly right RamonV!! I hate that amateur sports has to respond to big money....

8/9/2023 11:28 AM

Prostate Cancer
No subject (Part 5)

Yes it is!! O'Jays Money ...

8/8/2023 12:46 PM

Prostate Cancer
Never get tired of saying ,STILL undetectable !!!

Wings that is so AWESOME!! So very happy for you!!!!!!!!...

8/8/2023 9:03 AM

Prostate Cancer
No subject (Part 5)

Say something positive about the Royals. At least we're not the A's. Both the ChiSox and Royals have 48 games left in the season. If we play 700 ball like our last 10 games, and if the White Sox...

8/8/2023 9:02 AM

Prostate Cancer
Pelvic floor rehab

DYANK, I went to the Uro to ask about a Sling and/or an AUS. I'll try PT, and hope it does something....

8/8/2023 8:36 AM

Prostate Cancer
No subject (Part 5)

Athletics is already taken, but I'd love that being the A's were the KC Athletics first. Prato, get the Royals above mediocre first....

8/7/2023 7:18 AM

Prostate Cancer
Pelvic floor rehab

THANK ALL OF YOU!! My visit with a Urologist was at KU Medical School. I met un-expectantly with a Urologist specializing in Women's urological issues. I wasn't real happy, I was told after I did PT,...

8/7/2023 6:56 AM

Prostate Cancer
Pelvic floor rehab

Hello all! I am thinking about going to a physical therapy for pelvic floor rehab. Does anyone know, is this more than doing kegals? Thanks in advance!!...

8/4/2023 10:31 AM

Prostate Cancer
No subject (Part 5)

I was thinking just now, I know I shouldn't do that. The Royals would get a name change. One that would completely tick off a certain segment of society. I haven't decided what it would be yet, but...

8/4/2023 10:29 AM

Prostate Cancer
No subject (Part 5)

Note: As my older players retire, assuming the team is doing better. And by better I mean, the winning percentage has gone up significantly. In the Royals case, after the first year, above .400...

8/3/2023 5:43 AM

Prostate Cancer
No subject (Part 5)

I WON'T LET THIS THREAD DIE! It's been a busy summer for me, my job has kept me balls to the walls. Thank you Boss! not........... My Royals continue to suck. They are on track to lose 112 games this...

8/2/2023 12:15 PM

Prostate Cancer
Cardiorespiratory Fitness Lowers Pca Mortality Risk?

I agree with F8! I am obese and sedentary, and I don't do squat. I know I should. , I know it's benefits. I actually used to be a runner, I'd be out there at 5:00AM running 5-8 miles 4 mornings a...

7/13/2023 12:31 PM

Prostate Cancer
What would you do?

Mumbo, Yes, I have a very big bucket list. Alas, the drugs that cost the most, must come from a "Specialty Pharmacy" per insurance policy....

7/13/2023 10:38 AM

Prostate Cancer
What would you do?

BTW I love folks!!...

7/12/2023 5:15 PM

Prostate Cancer
What would you do?

Thank you all for the advice. Especially Mr Mattam!! Air biscuit, dude I’ve been laughing for 5 minutes straight!!! Thank you so much for the laugh!!...

7/12/2023 5:14 PM

Prostate Cancer
What would you do?

Good morning all!! I'm 64 and still working with tremendous health insurance. It's so good it pays in full for my two PCa drugs. Xtandi and Orgovyx is about 18K a month, best I could find on Medicare...

7/12/2023 5:32 AM

Prostate Cancer
AUS AMS 800 revision surgery

Question: How hard is it to get use to squeezing a button/switch in your scrotum? That is how it works, right?...

7/5/2023 12:50 PM

Prostate Cancer
Urinary Sling?

This really sucks. I feel like I'm on the downhill side of a cactus filled hill headed over the canyons edge. If this carp gets me, at least let me have dry drawers on....

7/5/2023 11:37 AM

Prostate Cancer
Urinary Sling?

I was told years ago that I would not be a good candidate for a sling because I had radiation to that area. And that the radiation would continue to degrade the bones. Well, it's been 8 years since...

7/5/2023 9:47 AM

Prostate Cancer
Pretty cool cover band (must have login to WSJ)

Immunotherapy Cover Band the Checkpoints ...

6/27/2023 4:44 AM

Prostate Cancer
What makes for a successful thread here on the forum? How should we measure that?

Ooops 81, you said a dangerous combination. Math and Fun. LOL...

6/20/2023 12:15 PM

Prostate Cancer
PSA going up fast after 9 years

Orgovyx for fewer side effects. If that isn't effective in stopping/lowering the PSA then Zytiga or Xtandi, maybe radiation if scans show very few mets....

6/20/2023 9:56 AM

Prostate Cancer
What makes for a successful thread here on the forum? How should we measure that?

S = (R/(2*V))*100 The closer to one you get the more successful. This would be theoretically possible but not probable. The numbers you would get for more successful posts would be probably in the 5...

6/20/2023 9:50 AM

Prostate Cancer
Men shouldn't stand to pee, but sit like Germans do, urologist says

I already answered, but I want to tout how much I have been considerate to my other half. In 32 years of marriage, I have only left the seat up once. Most of those years were pre-PCa, which means I...

6/17/2023 10:56 AM

Prostate Cancer
Zytiga -- Two Very Interesting Developments

Thank you SIR!! I'm 15 months on Xtandi, the last 9 undetectable. SO, another 15 and maybe my Onco will suggest this trial....

6/16/2023 10:38 AM

Prostate Cancer
Bladder training - increase holding capacity - spasms are painful

Although beer makes me pee more, it certainly calms down the spasms. I can actually hold it better without pain....

6/8/2023 12:41 PM

Prostate Cancer
GREAT REPORT; 1 YEAR OFF MEDS

GoBucks, Congratulations, that is so AWESOME!!...

6/8/2023 12:39 PM

Prostate Cancer
Friday joke

I love all three of these!!!!!! Not to be a nuuge, it's not a triangle but a sector, but it's still very funny ...

6/5/2023 8:07 AM

Prostate Cancer
Men shouldn't stand to pee, but sit like Germans do, urologist says

SteelGuy, As Arnold used to say, they are girly men. Just kidding guys!! Overnight I use a Gatorade bottle as an overnight. Otherwise it's 50/50 standing vs sitting, it depends on high tired I am....

6/5/2023 7:57 AM

Prostate Cancer
No subject (Part 5)

mumbo, Both, Thank you!! Has anyone heard from either of them? Vince, We have a professional soccer team in KC(Sporting KC I think) and if it weren't for my daughter I'd know nothing about them. When...

6/1/2023 11:31 AM

Prostate Cancer
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