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mattam

HealingWell Forum
>
Member Profile
Display Name
mattam
Profile Created
8/9/2015 12:34 PM
Last Seen
Yesterday 6:02 PM
Total Posts
4128

Last 50 Posts

GREAT REPORT; 1 YEAR OFF MEDS

Gobucks, That's a heck of a deal. Has your T recovered?...

Yesterday 11:43 AM

Prostate Cancer
Recurrence?

Hobo Joe, You don't seem to be panicked, which is good because there is no reason to be panicked even though your PSA is getting higher. However, I believe it is time for you to be directed to a...

6/7/2023 4:22 PM

Prostate Cancer
My Father has moved on....

Tatjana, Sorry for your loss, but you were there every step of the way to help your father have a great run. Thanks for the inspiration!...

6/7/2023 6:32 AM

Prostate Cancer
Xtandi and dental implants

I have never heard of ADT medications causing any sort of dental work problems. The exgeva, zometa, reclast and other such drugs can be a different story, but I have found that a definitive answer is...

6/5/2023 5:14 PM

Prostate Cancer
Men shouldn't stand to pee, but sit like Germans do, urologist says

Not happening here. It's all I have left....

6/4/2023 12:04 PM

Prostate Cancer
newly here, newly diagnosed, with velocity

Nels, You posted this earlier: "I'm a reasonably fit 65 y.o. and I'd rather have the big invasive intervention now, which I slowly recover from (hopefully with a skilled surgeon I'll get right back...

6/4/2023 9:21 AM

Prostate Cancer
Stage 3b - Undetectable 9 Month's Out From RP

I have never really gotten used to the 3 month gig. I've developed skills for jacking down the anxiety, but it gets jacked back up as the years go by. So, I guess the anxiety stays about even for...

6/2/2023 1:03 PM

Prostate Cancer
No subject (Part 5)

Serenity now!...

6/1/2023 4:42 AM

Prostate Cancer
Exhaustion with Xtandi, anyone else?

IMHO there's probably not a whole lot of difference between Lupron alone and the various combination therapies for side-effects. They are all bad and good at the same time. The bottom line is staying...

5/31/2023 4:49 AM

Prostate Cancer
Bolstering Compromised Immunity: Our Collective Experiences

Speaking of vitamins, B12 seems to be often overlooked. My PCP included B12 on a blood panel and mine came back off the chart low. Even if folks have a lot of animal products in the diet it's not...

5/30/2023 6:19 AM

Prostate Cancer
Bolstering Compromised Immunity: Our Collective Experiences

I think Cyclone is right about the walking. Back in the day it seems like walking was pooh-poohed as a poor substitute for jogging/running. As the population aged, maybe running injuries have changed...

5/28/2023 11:38 AM

Prostate Cancer
Pluvicto / LU-177 Chapter 2

Steve, I had trouble deciphering your context, but the Pluvicto evidently is working. That's what matters. I couldn't be more pleased for you! It would be interesting to know how many guys have had a...

5/27/2023 8:15 AM

Prostate Cancer
Burn BELLY FAT Fast (10 Tips + Bonus) 2023

https://www.medscape.com/viewarticle/992211?ecd=WNL_trdalrt_pos1_230525&uac=454069FG&impID=5464122 Or maybe the above link. "Staggering Weight Loss with Tirzepatide"...

5/26/2023 8:44 AM

Prostate Cancer
Treatment Advice

Not necessarily considered low as far as Salvage Radiation is concerned. You clearly have a recurrence based on your steady PSA increase. The sooner you get going on SR the better your likely...

5/26/2023 4:23 AM

Prostate Cancer
Taxotere side effects?

Olmanhunk said: "Went to get my infusion and after trying 5 different places, they couldn’t find a good vein." I've got lousy veins. I have one, and only one, spot where they have been able to get my...

5/24/2023 10:19 AM

Prostate Cancer
Are there search engines better than Google for retrieving prostate information?

Well, the Tor browser may best for that. It's what the dark web people use....

5/23/2023 3:18 PM

Prostate Cancer
America's Shortage Of 130 Medications

I have railed against the cost of Xtandi in several posts recently. The cost of Xtandi in 2021 was about $144,000 per year, jumping to about $189,000 last year. I've been on Xtandi for over four...

5/23/2023 10:07 AM

Prostate Cancer
ADT Hormone Treatments: Our Collective Experiences

Sorry to hear about your stroke. I hope the good recovery continues. So, the ED sent you home after the TIA with no medical attention, and has you wait for a full blown stroke. Is that normal...

5/22/2023 9:26 AM

Prostate Cancer
Here we go again: Limit PSA Screening to Men with Symptoms

https://www.medscape.com/viewarticle/992137 Sorry guys but I couldn't help myself from posting this. The article itself reads like Charlie Brown listening to his teacher. More interesting to me were...

5/20/2023 4:33 AM

Prostate Cancer
Anxiety is Relative

Well Prato, Your son has a huge advantage, that being your knowledge and experiences. If he continues with his screenings, your son will be in a perfect position to treat PCa, if needed, should he be...

5/19/2023 7:43 AM

Prostate Cancer
uPSA now 0.013 after undetectable for 5 years

Zzarth, I understand the anxiety, as it's part of our PCa gig. Seeing a detectable PSA result is a gut punch, but I encourage you to keep it in perspective. If we assume your PSA result indicates a...

5/17/2023 1:04 PM

Prostate Cancer
New Diagnosis-March 28, 2023

Tim, If there is a prime directive around here, it would be to also schedule consults with doctors who treat using the several types of radiation treatments available. Remember also,...

5/17/2023 11:38 AM

Prostate Cancer
10 years!

Congratulations!...

5/17/2023 5:41 AM

Prostate Cancer
Pluvicto / LU-177 Chapter 2

> Steve, Thanks for your posts. I'm hoping the Pluvicto gets at it hard!...

5/15/2023 1:29 PM

Prostate Cancer
Help with hot flashes

Absolutely worth posting, Prato. Sorry if I sounded like I was dogging you. 🙂...

5/13/2023 1:08 PM

Prostate Cancer
Help with hot flashes

Prato, I saw the drug on another news site. It's not clear to me that it might work for men, but I don't know. Med cost is about 7,000 dollars per year....

5/13/2023 5:54 AM

Prostate Cancer
Hypoechoic Lesions

Yeah, I think many of us have BB gun stories. I wonder if kids still shoot BB guns. Oh l forgot, kids don't go outside anymore. 😀...

5/12/2023 7:46 AM

Prostate Cancer
Breast Cancer Screening to move back to age 40

https://www.auajournals.org/doi/abs/10.1016/j.juro.2017.08.078#main1 I hate to belabor the Task Force but the more I look around, the more fascinating it becomes, and not in a good way. They seem to...

5/10/2023 1:22 PM

Prostate Cancer
Results from PSA after RP

Great news! Maybe it's getting to the time where you can start letting the emotions get a little more even. Congratulations to you and your husband....

5/10/2023 5:23 AM

Prostate Cancer
Breast Cancer Screening to move back to age 40

Thanks JNF. How interesting. By that description it seems to me the Task Force doesn't really have any specific expertise for making highly important health care recommendations. Why am I not...

5/9/2023 9:42 AM

Prostate Cancer
Breast Cancer Screening to move back to age 40

I have never looked into it, so I wonder how these jokers become a member of the Task Force....

5/9/2023 8:47 AM

Prostate Cancer
OT: Five famous people who died without a will or estate plan: trouble for their heirs

Perhaps not having a Will is sometimes intentional, to cause plenty of grief for the vultures....

5/9/2023 5:58 AM

Prostate Cancer
AI for PCA?

Seems like there has been near hysteria since the release of chatgpt. If AI really is edging closer to a tipping point, I guess we all will adjust to it just like we have for other major technology...

5/6/2023 12:53 PM

Prostate Cancer
Treatment choice

Davie, A good plan to stay with. Can save you from a lot of trouble down the road....

5/4/2023 4:30 AM

Prostate Cancer
Buffett’s prostate cancer: poor decisions (blast from the past)

I thought Coke Zero was supposed to be the best Coke ever....

5/3/2023 9:58 AM

Prostate Cancer
Pluvicto / LU-177 Chapter 2

Steve, Glad you got it sorted out. I'm hoping for good things!...

5/3/2023 9:56 AM

Prostate Cancer
Opinions on intermittent hormone therapy?

Bill, From your signature I can see that you and your oncologist didn't panic with an increasing PSA, and delayed treatment until a fairly high PSA reached. My PSA went even higher before I started...

4/29/2023 7:13 AM

Prostate Cancer
Opinions on intermittent hormone therapy?

The link provided by Sr Sailor above goes to a very thorough discussion of iADT. It would seem to indicate that there is no advantage at all for increasing the time to castrate resistance compared to...

4/28/2023 4:17 PM

Prostate Cancer
Opinions on intermittent hormone therapy?

I have not looked it up, but I *think* most experiences with IADT may have been observed for guys getting only Lupron. IADT for guys on combination drugs could be a newer and whole different ball...

4/28/2023 8:06 AM

Prostate Cancer
Ten years to the this day

Congratulations! Doesn't the time fly? Good in some ways, maybe disconcerting in other ways. 🙂...

4/26/2023 7:44 AM

Prostate Cancer
10 years - a milestone I once only hoped to see!

Good to hear from you Redwing. Congrats on 10 years! I have two more years to go for 10. I'm thinking I can make too....

4/23/2023 2:12 PM

Prostate Cancer
Another example of why second opinions are important

https://apple.news/Am_pVDIabR8G_hFQOaQJcNA ...

4/23/2023 7:34 AM

Prostate Cancer
Biopsy coming up- looking for some info

Macroman, Man, that was a good aim. Glad they found it and it appears you are doing quite well....

4/22/2023 8:55 AM

Prostate Cancer
High PSA

Hugo, The silence is deafening, isn't it. Probably no one here is willing to say that you likely have PCa, because we just don't know. Such a statement would be an awfully big responsibility. The...

4/22/2023 5:47 AM

Prostate Cancer
uPSA result year 5

Congratulations!...

4/20/2023 5:44 AM

Prostate Cancer
Has PCa been the worst death-scare of your life so far? Or have there been others, even worse?

A few very close calls, the direct result of youthful foolishness. Quickly forgotten until realizing later in life how close the calls were. For me, PCa death has become a nagging shadow that follows...

4/17/2023 9:19 AM

Prostate Cancer
We Have a Horse in this Race

I did a little checking and found an article from 2016 in which Biolyse Pharma approached the NIH saying they could make Enzalutamide at a cost of 3 dollars per pill (dose is 4 pills per day)....

4/16/2023 4:17 PM

Prostate Cancer
We Have a Horse in this Race

Speaking of access and affordability, there have been petitions going on since at least 2016 for the government to use its "march-in" ability to lower the cost of Xtandi (enzalutamide). Enzalutamide...

4/16/2023 9:10 AM

Prostate Cancer
The Value of a Second Opinion

When looking for an unbiased 2nd opinion, maybe a good idea not to reveal the 1st doctor's opinion to the 2nd doctor....

4/15/2023 9:01 AM

Prostate Cancer
Post Prostate Biopsy

I wouldn't think a 6 month stint on Lupron will present much discomfort. At least you will have the light at the end of the 6 month tunnel to focus on. I didn't catch your age, but sometimes guys can...

4/14/2023 3:14 PM

Prostate Cancer
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