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Sr Sailor

HealingWell Forum
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Member Profile
Display Name
Sr Sailor
Profile Created
9/23/2015 5:13 PM
Last Seen
Yesterday 6:49 PM
Total Posts
1179

Last 50 Posts

John Hopkin's biospy report

You have done your due diligence on the biopsy (GREAT); now it's time to decide on a treatment plan. Easier said, than done, of course because there are several options for a case such as yours. We...

5/20/2022 10:25 AM

Prostate Cancer
Comparison of relugolix and leuprolide for men with advanced PCa (HERO study)

My memory isn't what it used to be, but as I recall, there's no T flare with the oral drug. Not a big deal, IMHO, because the flare can easily be prevented by taking bicalutamide (Casodex) prior to...

5/20/2022 10:19 AM

Prostate Cancer
The beautiful gifts of A.D.T.

😊...

5/19/2022 2:14 PM

Prostate Cancer
PSA-screening benefits more favorable than previous estimates, especially for Blacks

Sure hope this news/study will get the publicity it deserves....

5/19/2022 2:12 PM

Prostate Cancer
LU-177 - My Next Treatment

ADT represents a totally different approach to prostate cancer control, and I doubt that it will be replaced by PSMA directed therapies. Moreover, I believe that the current FDA guideline for...

5/19/2022 2:04 PM

Prostate Cancer
This SUCKS

As I mentioned in the earlier thread, prostatitis is not always caused by a bacterial infection. Has a causative bacterium been identified in this case?...

5/17/2022 5:40 PM

Prostate Cancer
My father, 77yo, psa 400, gleason 9. Treatment?

For a case such as your Dad's, many oncologists recommend 'triple therapy'. Two kinds of radiation plus ADT. If that is possible and reasonable, and in the absence of comorbidities, I would give him...

5/17/2022 5:37 PM

Prostate Cancer
High risk low PSA

Since you still have a prostate the increase in PSA after stopping ADT is pretty normal. As JNF already wrote, just keep testing. I do hope that your PSA level will stabilize at less than 2.0 (ng/ml)....

5/17/2022 5:32 PM

Prostate Cancer
New study out today.

So little info; what are you wondering about?...

5/17/2022 10:25 AM

Prostate Cancer
Supply Chain Shortage: CONTRAST DYE & LU-177

AND https://www.auntminnie.com/index.aspx?sec=ser&sub=def&pag=dis&ItemID=135731 ...

5/16/2022 5:47 PM

Prostate Cancer
OT: Tragic Details About Al Roker

Djin is correct; that headline is misleading...

5/16/2022 5:41 PM

Prostate Cancer
Prostatitis AntiBiotics - Duration/Efficacy

Prostatitis is not always caused by bacteria. Hence, antibiotics may not work at all....

5/14/2022 5:56 PM

Prostate Cancer
Recurrence or Benign? PSA up, down , up .What The??

Sorry to read that, but benign tissue after surgery? A scan is in your near future, it seems to me....

5/14/2022 5:50 PM

Prostate Cancer
Pylarify scan and BCBS

Great to have someone (JNF) who is familiar with all this......

5/5/2022 2:38 PM

Prostate Cancer
OT: Twitter and Uro

Kind of surprised they do that in an 'open' Twitter thread. I understand they won't name names, but a patient might find out his case being discussed....

5/5/2022 2:36 PM

Prostate Cancer
Brachytherapy HDR

GENERAL: HDR brachy and Stereotactic Body Radiation Therapy (SBRT; Cyberknife is just an instrument) share many similarities and for a Gleason 7 patient, they are equally suitable IMHO. What is most...

5/3/2022 4:48 PM

Prostate Cancer
PET/CT PSMA

I hate to write this, but your physician seems to be an optimist; I hope he is right....

4/28/2022 9:11 AM

Prostate Cancer
SBRT Update - 4 years

You can be a poster child for low-risk SBRT. Great! outcome!...

4/27/2022 6:10 PM

Prostate Cancer
Long Term Sensitive Perineum Issues

I don't think that's 'normal', but I can't offer a solution other than to discuss the issue with your rad oncologist. I hope the problem will be temporary....

4/27/2022 12:52 PM

Prostate Cancer
First post surgery PSA .04?

Wow; you are REALLY doing well!...

4/24/2022 4:46 PM

Prostate Cancer
Lutetium-177-PSMA or LuPSMA

https://www.us.pluvicto.com/ and (without the hype) https://www.nejm.org/doi/full/10.1056/NEJMoa2107322 or (if you don't want to dig into the details): Conclusions Radioligand therapy with...

4/21/2022 1:04 PM

Prostate Cancer
Low grade PC should or should not be called Cancer

Quite some time ago a British wordsmith wondered "What's in a name?"...

4/20/2022 6:19 PM

Prostate Cancer
ADT Hormone Treatments: Our Collective Experiences

Great perspective from Todd! https://www.youtube.com/watch?v=Pbn6a0AFfnM ...

4/18/2022 9:05 AM

Prostate Cancer
Is this a bounce in psa ?

https://www.healingwell.com/community/default.aspx?f=35&m=4286096...

3/25/2022 3:42 PM

Prostate Cancer
Friday fun fact: the odds of picking a perfect March Madness basketball bracket are WHAT???

Pardon my curiosity. Do you speak this way in person too? No; he speaks Hawaiian......

3/25/2022 2:46 PM

Prostate Cancer
My PSA Update...

No cause for alarm. Just keep testing at 3-month intervals. You seem to have missed a Dec 2021 test? Hopefully, future test results will 'settle down'. PS: You need to correct the 3/25 date....

3/25/2022 2:35 PM

Prostate Cancer
LU-177 Approved today

The approval applies to patients who have metastasized, castrate-resistant cancer previously treated with androgen receptor pathway inhibitors and taxane chemo. That's a mouthful: I hope I got this...

3/23/2022 7:10 PM

Prostate Cancer
Very interesting E news from cure20

Perhaps a future alternative to the (ultra-sensitive) PSA test that we all love?...

3/23/2022 12:10 PM

Prostate Cancer
LU-177

There are many PSMA directed clinical trials; it might be worth it to see if your husband qualifies for one of them....

3/19/2022 2:23 PM

Prostate Cancer
Active surveillance for 8 years, now have gleason 3+4

Excellent!...

3/18/2022 5:12 PM

Prostate Cancer
Gleason 9

Forget about the 28%, especially because the cancer appears to be contained. Surgery as well as several modes of radiation therapy should be considered. I favored a 'triple play' and so far, so good...

3/17/2022 5:13 PM

Prostate Cancer
Active surveillance for 8 years, now have gleason 3+4

There are some (prostate cancer) centers (in the US) that favor a team approach. The learned among us will come up with some names....

3/16/2022 12:50 PM

Prostate Cancer
Friday fun discussion: How much of a computer person are you?

From a 'beginners' computer class: Punching cards and taking them to the computer center and finding out that my program didn't run wasn't much fun. A little later the class had to write a (very...

3/12/2022 7:09 PM

Prostate Cancer
My PSA jumped from 0.13 to 0.41 HELP

Considering you had radiation therapy, I don't consider 0.13 to 0.41 to be a big jump. Nevertheless, as others have written, a follow up test is justified and keeping track of your PSA at 3-month...

3/12/2022 6:55 PM

Prostate Cancer
I'm Concerned About My PSA

I agree that there is no correlation between 'weak stream' and PSA. More importantly, and as others have already stated, your PSA profile is encouraging. I hope that your next test will confirm this....

3/6/2022 11:33 AM

Prostate Cancer
7 year post RALP PSA

That’s great! I would love a nice wintry beer like Samuel Smith Chocolate Stout....

3/3/2022 10:24 AM

Prostate Cancer
Quit LUPRON?

I agree that there's no need. Someone in the doctor's office didn't count too well......

2/28/2022 6:47 PM

Prostate Cancer
Lupron Side Effects

Agree with Michael's advice. As an aside, I had ADT as well for 18 months and my T has recovered to a value that is reasonable for a (really) old guy. More importantly, I am feeling OK....

2/25/2022 4:35 PM

Prostate Cancer
My first PSA test post RP

All great news!...

2/25/2022 4:07 PM

Prostate Cancer
My PYLARIFY PET Scan was approved today

Glad to read about the approval. I hope that the PET scan will clarify what is going on and help to define future treatment....

2/24/2022 2:06 PM

Prostate Cancer
2nd opinion cost?

I don't think that getting a second read would add meaningful info since you have already undergone therapy (radiation + ADT). Or, to say it another way, if there was some higher Gleason cancer...

2/24/2022 1:54 PM

Prostate Cancer
CyberKnife

Evidence? PS: Proton therapy may well be a good choice for you. It typically requires a lot of sessions and is expensive (either to you or 'the system')....

2/19/2022 12:13 PM

Prostate Cancer
Friday deep thought: I was so much older then, I'm younger than that now...

With respect to Dylan, https://www.youtube.com/watch?v=MMFj8uDubsE ...

2/18/2022 7:32 PM

Prostate Cancer
Info on SpaceOar and your experience

All good points. Let me recap If your RO doesn't think you need SpaceOAR, don't insist. If your RO proposes to use SpaceOAR, go along but make sure he has significant experience with the procedure....

2/17/2022 6:26 PM

Prostate Cancer
CyberKnife

Many on this forum have had SBRT and reported good outcomes. I was in a clinical study where SBRT was one component of the treatment protocol. You can see the fun that I had in my bio below. More in...

2/17/2022 6:14 PM

Prostate Cancer
Free Hand Positioning Device

The transperineal procedure is supposed to minimize the chance of infection compared to the transrectal procedure. I can't judge whether the hand positioning device adds anything with respect to the...

2/16/2022 5:58 PM

Prostate Cancer
Recurrent PCa after Proton Radiation

A Prostate Specific Membrane Antigen (PSMA) scan is, in many cases, the most sensitive PET scan to pick up metastasis. There are two versions; one of them is now available.at multiple locations:...

2/15/2022 5:38 PM

Prostate Cancer
Cancer attorneys: lawyers who specialize in cancer cases, including PCa

Since this is Friday, can we have a few lawyer jokes please?...

2/4/2022 12:38 PM

Prostate Cancer
mpMRI Vs bpMRI

Your kidney is supposed to get rid of the contrast agent. Hence, it's important to know how well your kidney functions in this regard. If my kidney was in poor shape, I would be much more concerned...

1/22/2022 11:59 AM

Prostate Cancer
Saturday night, ER date night

I hope the tide will turn soon!...

1/19/2022 9:25 AM

Prostate Cancer
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