Hurts like heck and I regret having the surgery. Hopefully the revision surgery is going to fixed it. Hate going through a second surgery. I should have lived with the pain but I hoped it would be...
I'd add that I'm still having burning and pain upon voiding but my flow is good which is my main concern. G...
Need revision surgery. This stinks Glen...
Good luck finding a doctor who will prescribe. It's a sad state of affairs. DEA told doctor's how to treat because a small percentage will abuse. Now people are dying from hot shots of phony opioid...
I have my yearly echocardiogram next week and will see the cardiologist the week after. I'm going to ask about going back on a statin. The benefits seem such that I suppose it's worth another try....
Still doing well with no hematuria or reduced flow rate. Not getting the new blood thinner yet but it's a long trial of up to thirty months. I realize I'll be saving a lot of money because my copay...
I've withdrawn from SSRI,s and other antidepressant medication and I feel for you. Just hold on to the thought that it's going to be okay. You will feel normal again or at least as normal as you can...
As far as feeding cancer, a very small amount will do that. A cascade of testosterone makes little difference. To understand why I risk taking TRT one would have to live in my mind and experience...
The clinical trial people are sending a nurse to do an EKG and draw blood and soon I'll start the trial of a new blood thinner. Both are supposed to be less harsh as far as bleeding events so it's a...
I'm going to get testosterone because my life suffers without TRT. My libido is the least of my concerns. If it was higher Gleason grade maybe I'd reconsider not being on TRT but I'm not high grade....
I've tried many statins and wish I could find one. I have a few issues of chronic pain and each statin has had the same effect of very bad muscle pain and spasm. I'm not sure why and as said I want...
Thank you I'll post if anything from. I'm focused on my elbow replacement surgery failing. Arm hurts worse than before the surgery and it is unstable. It rock's back and forth. Gotta say I really...
Update. I got on the clinical trial and will begin either Eliquis or the trial medication both have lower incidents of bleeding. Good news is since last report I've had no hematuria and have a good...
My family doctor prescribes it after a urologist said it was okay. My testosterone got as low as 25 Then came Pca and no one would prescribe. I became a mess after around nine months with tearfulness...
I know I've mentioned this already but I think the convenience factor is important. Many of us have issues that make being in certain positions for long periods very uncomfortable. In my case I'd say...
I've read an article by a oncologist and wish I could remember where I found it. It was particularly hard hitting and moving.. The doctor related the horror he has witnessed in his years of treating...
I bleed often. Now it's due to strictures but I bled after Greenlight laser as well for a couple of weeks. In my case it has to do with the fact that I'm on blood thinners. It should clear up but...
Well it was actually only forty miles! Doctor is pleased with how things looked and wants to take a look in about six months to a year. He said the bleeding while not usual may be directly related to...
Oh my gosh! I drove fifty miles to see Dr Joice because for some reason he keeps office hours North of Manhattan in Tarrytown NY I have a place in Wappingers Falls NY and drive to see him. I get to...
I had SBRT at Columbia Presy in Manhattan My specialist is also with Columbia a Dr Joice. I see him tomorrow I am back to bleeding again today but then it stopped! It is just weird how it just does...
See Dr Joice tomorrow and will ask him all about my symptoms. If hematuria is a normal by product of the dilation, I'll be okay with that. Most important to me is the size of the stricture. If it's...
I'm back to near normal with no hematuria but with soreness and some urgency. I'm perplexed at this. How can I bleed and have huge clots then return to normal? Does the scar tissue just decide it is...
Had SBRT over a year and half ago and it was alternate days. My PSA is dropping but after a year I developed strictures. I had dilation and my flow has returned to normal but I have resumed hematuria...
Thanks actually I'm okay. Yes I am worried but as long as I'm able to void, I am not concerned about blood per se other than it may be a harbinger of damage. I'll ask if it's normal to bleed and if...
Off then on again. I guess this is how it's going to be. I think wish I understood stricture. My guess is once irritated it just doesn't heal. Optilume places an anti cancer drug that inhibits tissue...
God bless Jim. Hoping he gets joy and peace in all he does. My brother was in hospice and I'd travel up to see him often. He let me know how important that was so just be there for him. God bless you...
Darn! Its back and very bloody with clots. Drinking water and taking cranberry pills as well as extra C See doctor next Monday Just tired of this ordeal and of course hope it is normal. I was so...
Twenty four hours and pretty clear again. Hoping it was just some kind of flair up. Hoping that the specialist can ease my mind. The balloon he used to dialate was 4cm so I'm hoping that the...
Too many fingers in the pie of healthcare. DEA , Congress, Courts etc... I could get into it but not worth the fight. I enjoy the singleness of purpose here of each of us helping the other. Glen...
Had SBRT over a year and half ago and developed strictures. I had a long post about this ending with my having a balloon dilation which thus far has opened me up. The procedure was about a month ago...
Not getting better in fact getting worse. My elbow is rocking more and it will rock violently at times. Looks like I have no choice but to live with it or have revision surgery. See doctor next...
Happy Easter thanks Yes I'll just stop posting. It's easy that way Glen...
Well it's been some time now and other than some urgency and mild burning, I'm doing okay! I hate to admit but since I tend to spray, I usually sit to go. Today I used a supermarket restroom and...
I've spoken in several NYS prison's and I was compensated with free coffee and once in a while, snacks. LoL actually I got something much more valuable. Being able to leave afterwards and being able...
Welcome and I too have not a lot to add except to try and relax. You have time to sort out the best options. Ask away and you will get good information here. Best wishes Glen...
Over a week and no blood. I'm pleased about that. Still have irritation, frequency and burning but the hematuria seems to be done. So I'll end my posting unless there's a change. I see the specialist...
Many options are out there. I went with IMRT but for some reason I developed urinary retention and had to have a catheter and that led to a nasty infection called paraphimosis. I opted to change to...
Welcome.. As said active surveillance may not be the way to go. My doctor's office took care of sending the slides or were helpful. Second opinion is always good. I choose SBRT mainly because it was...
"Asundexian" is the clinical trial medication I'm trying to get on. So far I've done the initial question part and signed a release of medical records. At the end I get $1,200 but I'm not in it for...
At least three days maybe four days of clear urine. Happy about that. I've noticed that my underwear are very moist or just short of wet in the morning. I might start wearing the depends pads that...
Still clear! Still have good flow. I'll keep my eye on it and maybe conclude this thread. Still, they say strictures can return but I'll enjoy this now. Glen...
Good news I'm 48 hours of clear urine. Still a little bit sore but no blood so Yea! Glen...
I am trying to contact the doctor and yes they were able to get me in on the 24th Of April and I am still on a list if someone drops out I will come in earlier Very hard to contact this doctor...
I have great respect for doctor's and in no way wanted to suggest that I know more than they do. I am however very knowledgeable about what ailments I have. Having worked in hospitals and worked...
Yes Terry Thanks I will speak to the cardio doctor on April 4th I was on Eliquis but once a day Xaralto seemed easier but I may go back plus I may apply for a new blood thinner trial I've seen...
Lots of blood this morning and last night. I'm also very sore once again. Don't see the specialist until May 9 I had a appointment for today that was a cancellation but my wife needs me for the coop...
I don't want to sound like a know it all because there are a lot of people here who are brilliant. However, when it comes to certain aspects of my own issues, I often do know more than some doctor's....
Island time, Maybe you answered this already but why were you on a blood thinner? If it's because of AFib aren't you scared of the stroke possibly? BTW I'm still having hematuria but it's been off...
Thanks pratoman I came here for advice and the experience of others who have what I have. What I quickly discovered was what I really wanted and that was hope and encouragement. Underneath all is...
Thanks for the kind words of encouragement. I have to see my cardiologist and see what he suggests. Point is that I can live with the small amount of blood that I'm losing. If it begins to clot...