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theswan

HealingWell Forum
>
Member Profile
Display Name
theswan
Profile Created
11/26/2005 9:05 PM
Last Seen
Yesterday 2:53 PM
Total Posts
1097

Last 50 Posts

Doctor no longer allowed to prescribe combo of certain drugs?

Thank you for the information. I've been on my medication since I participated in a clinical trial of buprenorphine for pain patients in 2008 I took a year off to get to a baseline of my pain but...

Yesterday 2:52 PM

Chronic Pain
No subject (Part 5)

When I was a kid, well I'm still a kid if you count my immaturity, I lived there block's from Yankee stadium and could hear the crowd yelling when there was a home run. A rabid fan I'd go often and...

Yesterday 10:25 AM

Prostate Cancer
the countdown begins

So sorry. I'll pray for you both. We have not met but I believe we here at HW being kindred spirits all feel the pain in our way. Being in the same boat we all face the same fear's in our way. Be...

Yesterday 10:12 AM

Prostate Cancer
Off topic rant

VinceinMT Interesting point. I've read that bee's have been losing population. Heck even mosquitos play a role as I understand it. So there is always another side to things. I suppose maybe a little...

Yesterday 8:22 AM

Prostate Cancer
Doctor no longer allowed to prescribe combo of certain drugs?

To add: My wife has been taking both an opioid medication and diazepam for several years. She will not take a benzodiazpine until several hours since she took her opioid medication. I rarely take a...

Yesterday 8:08 AM

Chronic Pain
Doctor no longer allowed to prescribe combo of certain drugs?

So sorry to hear that. Fact is rarely does a patient die from prescribed medication. They may drink too much or take way too much but the so called crisis is bull. People are dying from Russia...

6/23/2022 3:18 PM

Chronic Pain
Doctor no longer allowed to prescribe combo of certain drugs?

My wife was written both and rarely took her Valium but sad to say her psychiatrist died of cancer after a long battle. She's having a very hard time finding any doctor to prescribe any benzodiazpine...

6/23/2022 1:50 PM

Chronic Pain
Looking for suggestions

I have chronic constipation due to the opioid medication I use. I take four to five senna tablets along with two or three bisacondyl (spelling?) Pills daily or I bind up. The full bladder is another...

6/23/2022 1:43 PM

Prostate Cancer
Off topic rant

I agree that polite society is on the wane. Self centered thinking seems to be taking a dominant role today. I think the internet with YouTube and Facebook has exposed the 15 minutes of fame mindset...

6/23/2022 1:31 PM

Prostate Cancer
OT- Another “Victim” of Supply Chain Shortages

Good example pratoman. I agree about the rant reference and admit that I took this thread beyond it's intended purpose. Heck I just have to rant from time to time. Back to supply chain... I hope. Glen...

6/22/2022 9:32 PM

Prostate Cancer
Oxygen therapy..

Great to hear Sparky. I'm glad it worked. I wish it was around in 1982 it may have helped my mother who lost her foot then leg to diabetes. She died soon after the above the knee amputation. It may...

6/19/2022 4:28 PM

Prostate Cancer
Oxygen therapy..

Can't we all just get along? Just kidding. I think this was an interesting thread. I also think 99.9% of the comments here are positive and always useful to one degree or another. I mean all the...

6/19/2022 11:36 AM

Prostate Cancer
OT- Another “Victim” of Supply Chain Shortages

Maybe it's not relevant to this conversation but it is a cautionary tale about shipping costs. My wife mostly uses Amazon prime but liked bathroom shelves for the shower and didn't notice where they...

6/19/2022 11:21 AM

Prostate Cancer
Heavy ion acceleration

So in a nutshell, it'll be years before it's going to be mainstream. I must have been reading the article incorrectly. Still it's worth noting that there's another bit of ammo coming. Well maybe...

6/18/2022 3:46 PM

Prostate Cancer
OT: Twitter and Uro

Thank you. I'll check it out Glen...

6/18/2022 8:47 AM

Prostate Cancer
OT- Another “Victim” of Supply Chain Shortages

In NYC air conditioner installation must be done by professional installers. This is good because of the sheer number of apartments and the height of these buildings. Anyway right now there's a...

6/18/2022 8:43 AM

Prostate Cancer
Oxygen therapy..

Nature is strange. Kinda an aside but while oxygen is essential for our life functions, it's really not good for the body as it causes for lack of a better term, rusting. Antioxidants bind easily...

6/18/2022 8:37 AM

Prostate Cancer
Oxygen therapy..

Good for diabetics with sores that don't heal and yes it's under pressure in a device unless it's changed. But can we oxygenate more than 100%? I'm not sure. Glen...

6/17/2022 6:59 PM

Prostate Cancer
SBRT, 66 months out

Well heck Paxton I did Ring the darn bell. In the hallway of the clinic they have a pretty big bell we ring after the last session. Weird but since I was the last patient of the day and I ran late...

6/17/2022 6:54 PM

Prostate Cancer
SBRT, 66 months out

" Not a sprint" great advice! I thought I'd finish the SBRT, Ring the Bell and take a PSA test and Bam! Whoa! Hold the horses this is the only the start of part two. While a big part it's still a...

6/17/2022 8:27 AM

Prostate Cancer
Official Rant Thread - Go for It

NYC is actually having pleasant weather. Spring had essentially disappeared and we had cold followed by it being very hot. Not this year I just hope it continues. Glen...

6/16/2022 5:14 PM

Prostate Cancer
Doctor no longer allowed to prescribe combo of certain drugs?

Yes I agree with you. Darn shame. Maybe the people will rise up and change these guidelines and let doctor's decide. Glen...

6/16/2022 5:10 PM

Chronic Pain
Heavy ion acceleration

Thank you. I've been reading more about the trials they will be having in Irvington NY The focus is on pancreatic cancer but they will expand it to prostate cancer. Glen...

6/16/2022 8:57 AM

Prostate Cancer
On the lookout for logoslidat

Thank you that's helpful and logo's writing exactly what I expect. Really miss his cryptic post's. I had forgotten how much I enjoyed reading the post's. Glen...

6/16/2022 8:46 AM

Prostate Cancer
On the lookout for logoslidat

Largo Florida- My ex mother in law lived in Largo then moved to Seminole.. These places were my cheapo vacation spots. Since my mom in law still liked me she'd invite me and my buddy down each Spring...

6/16/2022 7:52 AM

Prostate Cancer
Heavy ion acceleration

thank you JNF Glen...

6/16/2022 5:37 AM

Prostate Cancer
Heavy ion acceleration

Yes Sr sailor that is true. It may offer hope to some but trials plus time will reveal how much it improves outcome. We are lucky to have so many options compared to past generation's. Who knows what...

6/15/2022 6:22 PM

Prostate Cancer
Heavy ion acceleration

Stephan to add, in April Columbia Presbyterian hospital bought one for it's Branch in Westchester county. It's just North of NYC maybe 30 Miles. Glen...

6/15/2022 6:01 PM

Prostate Cancer
Heavy ion acceleration

Thank you Stephan. That's what I was referring to. It opens another weapon in the arsenal. Glen...

6/15/2022 5:58 PM

Prostate Cancer
Heavy ion acceleration

Paxton I have one upstate and can do a few things like copy and paste but I'm basically self taught. In any case people are smart enough to Google it and find out about the heavy ions. Glen...

6/15/2022 5:56 PM

Prostate Cancer
Heavy ion acceleration

When I get back home next week I will copy and paste if this is of interest. If I we're savvy I might be able to do that from the cellphone but I'm not. G...

6/15/2022 2:52 PM

Prostate Cancer
Heavy ion acceleration

While searching for the name of the SBRT machine that was used by Columbia Presbyterian hospital I came across a recent article (April 2022) about the New Linac machine that is using heavy ion...

6/15/2022 2:50 PM

Prostate Cancer
Cancer is back after Cyber Knife

Yes Seimens. The search sidetracked me and I found out about heavy ion acceleration machine and it holds promise for certain types of cancer. They use carbon ions and other heavy ions. Seems that...

6/15/2022 2:41 PM

Prostate Cancer
Cancer is back after Cyber Knife

The Linac machine is called ARTISTE Also read the hospital just got a heavy ion acceleration machine that uses carbon ions which penetrate deeper. It's in the Irvington branch of Columbia...

6/15/2022 10:34 AM

Prostate Cancer
Cancer is back after Cyber Knife

Oh ok I thought it was a brand. I'll look into it just so I can research the actual brand. Love to Google stuff. Glen...

6/15/2022 10:17 AM

Prostate Cancer
Friday fun: a real-life nurse shares her thoughts on people's naughty nurse fantasies

My ex wife was a nurse and I don't remember any randy home excursions but did appreciate her excellent skills after my back surgery. Sponge bath s and making the bed while I was lying in it came in...

6/14/2022 6:51 PM

Prostate Cancer
How a visit to a Surgical Oncologist went so wrong.

CYA yes much of the canned report is just that. My first consult after biopsy noted that he went over AS as an option. I never even heard about AS until I came here to HW His opinion was to do...

6/14/2022 6:36 PM

Prostate Cancer
SBRT, 66 months out

Thank you Paxton Yes I have been okay with the handling of the side effects. I had the SpaceOar put in and that may have prevented the proctitis. It's good that you are able to be upfront with the...

6/12/2022 2:19 PM

Prostate Cancer
Historical PC life expectancy query

Not sure if this applies but it's a positive view on treatment overall. My brother had non-Hodgkens lymphoma in 1997 it had invaded the entire abdomen. After treatment he survived until 2015 when...

6/12/2022 11:18 AM

Prostate Cancer
Radio frequency ablation

RF worked for me but the nerves grew back and the pain returned Glen...

6/12/2022 10:12 AM

Chronic Pain
Doctor no longer allowed to prescribe combo of certain drugs?

The DEA and politics have created the opiate crisis. How? Dropping pain patients because a slim minority abuse them. They usually do not give an appropriate weaning off or transition to the safer...

6/12/2022 10:09 AM

Chronic Pain
SBRT, 66 months out

Good to hear! I'm going on 7 months and like you, have continued with TRT I recovered quickly but six months post I developed a late onset flare of hematuria and irritation when urinating plus an...

6/11/2022 2:28 PM

Prostate Cancer
Cancer is back after Cyber Knife

Side note: The SBRT machine at Columbia Presbyterian hospital is called "Linac" I'm not sure if it matters. Good luck with whatever treatment you choose. Glen...

6/11/2022 2:22 PM

Prostate Cancer
Catheter removal

Just thought I'd add my worst catheter story. Hopefully it will not cause too much distress to hear. IMRT was not working for me because after the 5th session I developed urinary retention. I had to...

6/9/2022 5:22 PM

Prostate Cancer
OT: Osteo bi flex

Is this similar to glucosamine and chondroitin? I've tried that for my arthritis but not effective at all. Elbow replacement surgery is going to be set up when I see the surgeon on the 30th I've...

6/9/2022 5:04 PM

Prostate Cancer
Cancer is back after Cyber Knife

Thank you Djinn Yes it's cGy so it's higher IMRT cGy 180 6/45 Total 1,080 SBRT cGy 725 5/5 Total 3625 Glen...

6/9/2022 4:57 PM

Prostate Cancer
Cancer is back after Cyber Knife

I'm confused as my dose was 180 of IMRT then I stopped and had SBRT at Gy of 725 And to confuse it even more, he lists the total at 3,625?? Is this a mistake? Or should I be glowing? Glen...

6/9/2022 11:16 AM

Prostate Cancer
GREAT NEWS!!

Understandable. Before diagnosed with PCA infections would cause a jump as high as 7.4 After SBRT I'm 2.2 at first blood draw. I was 2.74 after Greenlight so looking good. Glen...

6/9/2022 11:05 AM

Prostate Cancer
New term that I heard from someone who is Tall

One can add LOF Late onset flare. I have one so I did a little research and found out it's not uncommon after SBRT LUTS is another one but it might be there Lower urinary tract symptoms Glen...

6/9/2022 11:02 AM

Prostate Cancer
On 7th July, 15 years and still going

Yippee' Thank you. It's a good thing to hear. Keep trudging along. Glen...

6/9/2022 10:58 AM

Prostate Cancer
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