Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

ejc61

HealingWell Forum
>
Member Profile
Display Name
ejc61
Profile Created
12/5/2016 3:11 PM
Last Seen
Yesterday 10:10 AM
Total Posts
153

Last 50 Posts

AS going Forward

I'm told that the trend is to spread out biopsies to every 2 years or so. I'm in kind of the same boat but I am looking at another biopsy since my last in 2018....

Yesterday 10:09 AM

Prostate Cancer
Scheduling an MRI and/or Biopsy during Covid-19?

Being under the care of my uro and my case pretty stable and currently following an AS program, I'm scheduled for my annual MRI in March 2021. I last saw my urologist in person in August 2020. I am...

1/13/2021 2:42 PM

Prostate Cancer
Dr. Epstein Webinar on Active Surveillance

I guess I missed this but I'll try to check it out. One of the few AS guys hanging around....

1/2/2021 3:13 PM

Prostate Cancer
PI-RAD 3

Welcome to the forum. Like some others have said, you may be in the gray area. There are so many factors that go into this. Even as one who has not has the easiest biopsies in terms of SIRS and other...

12/26/2020 10:22 AM

Prostate Cancer
Survey: age at diagnosis

55...

11/26/2020 1:34 PM

Prostate Cancer
PSA density, what is it

As far as PSA Density goes, yes that would be a good number. As the prostate gets bigger, if the PSA stays the same, the Density will get lower. I feel I'm going through that myself....

9/8/2020 8:25 AM

Prostate Cancer
Gleason 6, high volume

Being on AS myself, my concern is the high involvement of the positive cores. I would also wait for Epstein and genomics if you can swing it. Whether a GS 6 can metastasize would be less on my mind....

8/28/2020 2:00 PM

Prostate Cancer
My Update - Now Over Two Years of Active Surveillance

Congratulations Booster. Similar situation for me. On AS for 3 years. Not the biggest meat eater prior, but have gone vegetarian, (no meat) for 3 years. (Grated cheese and occasional fish...

6/25/2020 10:25 AM

Prostate Cancer
To biopsy or not to biopsy

I think a Pi- Rad 4 or 5 definitely requires a biopsy....

6/22/2020 2:07 PM

Prostate Cancer
On AS third biopsy

I've been on AS for close to 3 years. Currently, PSA every 3 months enrolled in PASS Study; DRE at least once a year; MRI annually and biopsy discussion if something dramatically changes. I take it...

6/22/2020 10:09 AM

Prostate Cancer
Active Surveillance

Good for you Toyoung. I'm only closing in on 3 years but taking it one day at a time.PSA staying low and MRI's looking good....

2/29/2020 4:23 PM

Prostate Cancer
? On finding it if I need to a new Uro

I think just go to your GP for PSA and DRE until something indicates that you need to see a uro....

2/28/2020 12:58 PM

Prostate Cancer
Latest PSA & MRI update

Latest PSA result came in at 2.7. MRI came back no peripheral zone and no central gland PI-RADS 3-5 lesions. All other readings none or normal. This report is similar to last year's. No biopsy...

2/26/2020 2:13 PM

Prostate Cancer
Latest PSA somewhat surprising.

My latest PSA taken this week showed a slight drop to 2.7 from the 4ish I’ve been running for the past year or so. Scheduled for my MRI on 2/19/20 which will be more important....

2/15/2020 5:15 PM

Prostate Cancer
Intro, candiate for AS?

I don't think AS with 2 cores 3+4 with high involvements....

2/14/2020 9:44 AM

Prostate Cancer
a friend of mine is on active surveillance.....

I have been on AS almost 3 years. My data is below. My urologists at this point have never pushed surgery and I am being watched closely. Coincidentally, I'm getting my PSA drawn today and have an...

2/12/2020 8:49 AM

Prostate Cancer
Any superstition about where to get an MRI?

I have a superstition about getting my PSA in the same lab. It seems that's common from what I read on this board. Does anyone have the same superstition about getting a 3T mpMRI in a different...

1/15/2020 3:18 PM

Prostate Cancer
Two Clinical BX reports from different LABs ?

This is interesting and gave me a headache. I remember the 33% of total cores cutoff from the AUA 2017 or 2018 Report that my urology surgeon Dr. Martin Sanda was part of. I'm also enrolled in the...

1/8/2020 1:56 PM

Prostate Cancer
Two Clinical BX reports from different LABs ?

Different place seem to have different guidelines, 2,3,4? Then if they all have less than 50% involvement, that's good. Over 50% in any core then AS probably not likely. Even in my case, I had 2...

1/8/2020 1:16 PM

Prostate Cancer
Two Clinical BX reports from different LABs ?

An MRI and if possible a genomics test can give additional information to determine in borderline cases whether AS is practical or not....

1/8/2020 10:23 AM

Prostate Cancer
Biopsy pathology report question

I had 3 positive cores on the 1st bx and 4 the on 2nd bx a year later. The 4 on the 2nd one were all on the apex side. I work with a medical urologist and a urology surgeon and it doesn't seem to...

10/23/2019 7:36 AM

Prostate Cancer
Just finished biopsy

Good luck and positive thoughts....

9/24/2019 6:22 AM

Prostate Cancer
MRI Results

Thanks for these links. Yes a nationally ranked hospital is a good thing....

8/15/2019 11:26 AM

Prostate Cancer
MRI Results

Hello Vic, How many cores from the 2/21/19 were positive? Also, what were the volume % of each of those positive cores? That MRI looks good....

8/15/2019 11:18 AM

Prostate Cancer
Well, that did not go as well as planned

BBQdude. I like to go 10 days just out of being extra conservative. I wouldn't panic. FWIW, I was also told that unless the MRI showed a Pi Rads 4 or higher, it wouldn't be useful to have an MRI...

8/1/2019 9:05 AM

Prostate Cancer
Advice wanted - newby with Gleason 6 AND Chronic Prostatitis....

I'm currently going to Emory St. Joseph's as well and am presently following AS. I'm glad to hear your case went well....

7/24/2019 8:03 AM

Prostate Cancer
PSA- first timer

Hello Hugo, My PSA is known to bounce around a bit. Definitely keep an eye on it and keep a record....

7/22/2019 9:00 AM

Prostate Cancer
New Diagnostic Test under Investigation

I've been giving a urine sample every uro visit so practically at least twice a year. I also have been giving a post-DRE urine sample twice a year as part of the PASS study I'm in....

7/10/2019 1:16 PM

Prostate Cancer
Just diagnosed

Wow that’s a dramatic improvement I’d say. Good news....

7/2/2019 5:40 PM

Prostate Cancer
New Diagnostic Test under Investigation

I consult with one of the authors listed, Dr. Martin Sanda, as part of my AS program. I'm also part of the PASS Research Study that Emory is involved in. I'm glad that my post-DRE urine samples are...

6/27/2019 6:44 AM

Prostate Cancer
Rising PSA

Welcome 2019 Guy, I would be interested in the Pi-Rad 5. Was your MRI at 3T? I'll guess it was. Other than that, I'd say AS. Of note, I've had 2 MRI's and the results were different although I had no...

6/21/2019 2:20 PM

Prostate Cancer
Just diagnosed

JH confirming a GS 6 is good news. I'm not sure about the 70% however. Regarding the timing of the MRI, I had my MRI 14 weeks after my bx. I know that they wouldn't do a surgery in that period of...

6/21/2019 11:59 AM

Prostate Cancer
1 year AS-what Now

Hello mufjem, In my case, I was able to skip a biopsy this year and than plan is to do an 3TmpMRI annually. There seems to be a slight shift away from biopsies as long as the annual MRI and quarterly...

6/21/2019 5:53 AM

Prostate Cancer
On AS -- recent PSA

I'm on AS at Emory University/St. Joseph's Hospital in Atlanta. My PSA is known to bounce around as well. Good to hear from you again. My second MRI turned out better than the first. Good luck....

6/6/2019 8:08 AM

Prostate Cancer
Just diagnosed

Hello BD, I was able to get the JH opinion and OncoDX (genomic) in about a month. Any talk about an mpMRI?...

6/5/2019 8:15 AM

Prostate Cancer
Just diagnosed

Welcome beaverduck. Is there a college family feud in your home? You don't show the % in each of your 4 cores. I think you are taking the correct steps with JH opinion, genomics and MRI. That's...

6/4/2019 11:39 AM

Prostate Cancer
On that fateful stormy night, did you take the red pill or the blue pill?

Red....

5/29/2019 8:11 AM

Prostate Cancer
Misconceptions About PC (name changed)

In a way, I feel lucky that my PSA jumped to 5.2 after 15-20 years of under 2. Made it easier to justify the Urolologist visit. Never thought what would be if that jump never happened. As it stands,...

5/25/2019 10:16 AM

Prostate Cancer
5 Month PSA score

I like that the number went back down a bit. Hopeful that is the range you live in. I don't want steady increases. I think the MRI and probable repeat biopsy's are more significant going forward....

4/24/2019 2:00 PM

Prostate Cancer
Where to find real info on oncologists?

Welcome Dazed and Confused. Your data is similar to mine. I agree with a second opinion to Johns Hopkins. Maybe look into an OncoDx genomics test but that can be expensive. Check with your insurance....

4/9/2019 1:57 PM

Prostate Cancer
My First Appointment With My Urologist

Dr. Hershatter is laid back and pretty good at explaining the different treatments so the meeting should be helpful....

3/16/2019 5:58 PM

Prostate Cancer
My First Appointment With My Urologist

Welcome. I have met with both Drs. Sanda and Hershatter multiple times as I continue on my AS journey at least for the moment. I was referred to Dr. Sanda by my regular urologist 2 years ago. What is...

3/15/2019 6:34 PM

Prostate Cancer
Urologist 99% sure of PCA B4 Biopsy

My first abnormal PSA was 5.2. I went to the urologist at that point and he had me retest what amounted to 3 times, (two of these with additional fPSA included) over the next 12 months before...

3/15/2019 1:45 PM

Prostate Cancer
Urologist 99% sure of PCA B4 Biopsy

I would seriously look for another urologist. Your experience does not seem right to me....

3/13/2019 1:37 PM

Prostate Cancer
Time to leave AS behind?

I think you in good shape Hope. See what the MRI shows. See what your medical team thinks. I'll read that new Dr. Scholz myself....

3/8/2019 12:49 PM

Prostate Cancer
"AS" How often should one have biopsy?

My uro was happy with 19. If I recall, he was be more concerned if the number was in around 40 or so. Take it as another good data point....

2/6/2019 2:58 PM

Prostate Cancer
"AS" How often should one have biopsy?

Great news. What was the OncoDX score out of curiosity? I was very low also. Good luck!...

2/6/2019 2:41 PM

Prostate Cancer
PSA Level Concerns

From the age of about 40 to 54, my PSA ranged from 0.9 to 1.9. Always under 2. Then at 55, boom 5.2. You are doing the right things in a good place. Stay calm....

2/6/2019 9:37 AM

Prostate Cancer
Post biopsy infections/not feeling good for a long time

I have had two biopsies. The first one I had oral pre-medication a few days before and spiked a fever less than 12 hours after the procedure sending me to the hospital where i send a few days in...

1/30/2019 3:05 PM

Prostate Cancer
My First Dr. Smith Visit

I agree that sounded like a good visit. The MRI several month's after the first biopsy is similar to my time frame. More information for all. The confirmatory biopsy is usually about 12 months later...

1/28/2019 2:09 PM

Prostate Cancer



HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.