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Saipan Paradise

HealingWell Forum
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Member Profile
Display Name
Saipan Paradise
Profile Created
9/21/2017 1:58 AM
Last Seen
Yesterday 7:38 PM
Total Posts
1348

Last 50 Posts

New guy, new case

Glad to hear you don't need our help right now, Paul. Thanks for the update. Happy to see that the final pathology didn't find any 4+4. Best wishes for a continued uneventful recovery and no more...

Yesterday 3:03 AM

Prostate Cancer
Frequency of PSA test

My MO ordered 3 month PSAs for the first 2 years after SRT. After a clean 2 years, he gave me the option to go to 6 month testing, and I accepted. He said as far as he's concerned, there's no...

2/28/2021 4:35 PM

Prostate Cancer
Covid-- difference between shots 1 and 2?

I had Pfizer. First shot: didn't feel anything when it was administered, not even a pinprick. Sore arm later, and body aches/general crappiness as if a flu were coming on the next day. But that...

2/28/2021 4:29 PM

Prostate Cancer
Lymphedema

Lymphedema in a leg after prostatectomy may be caused by the development of a lymphocele in the groin where a lymph node was dissected. It's fairly common and usually resolves in a couple of weeks...

2/28/2021 3:37 AM

Prostate Cancer
Annual PSA test... Results are in for 2021.. .Undetectable !!!!!

Shazzam! Drinks are on you. I'll send you the bill....

2/23/2021 11:48 PM

Prostate Cancer
Welcome New Member Patrickm

Welcome, Patrick, and thanks for the update. I went to a PT to learn exercises for strengthening the pelvic floor and found it quite helpful. Some of the exercises are the same as you can find on the...

2/22/2021 5:47 PM

Prostate Cancer
My 1 yr post-RALP Update

Thanks for the update and the wonderful anniversary news, BD....

2/22/2021 3:58 PM

Prostate Cancer
Welcome new member Dave '68

Dave, Mostly I just want to welcome you, too. In light of the G9 and N1, add my vote in favor of a frank discussion with your doctors about whether to do some sort of adjuvant therapy now, without...

2/21/2021 6:45 PM

Prostate Cancer
Honor & Farewell: We Have Lost A Comrade

Steve, thanks for linking to Mike's last thread. This bit really hit hard: Milestone - Hug my wife and children every day and let them know i love them everyday. This not a retreat from the battle,...

2/20/2021 3:42 PM

Prostate Cancer
Honor & Farewell: We Have Lost A Comrade

Sad news indeed. Cyclone, thank you for posting a beautiful memorial to him....

2/19/2021 11:13 PM

Prostate Cancer
Still Hoping its Benign Tissue...

FWIW, my oncologist has told me that if my PSA ever starts creeping up, don't panic because in some patients the PSA levels off around 0.2 and detectable mets don't develop. Your situation's a bit...

2/18/2021 5:46 PM

Prostate Cancer
Do I still need a uro?

$250 a year is worth it to stay with a doctor/treatment center you're happy with. You're buying peace of mind. It's wonderful that you've had such immense success with treatment. But Gleason 9...

2/15/2021 4:25 PM

Prostate Cancer
I am writing a book

Acceleration rate. When my PSA hit 2.9 my PCP suggested I see a urologist but I blew it off because it was still within the normal range for my age group. One year later it was 7.2 and my PCP...

2/14/2021 2:54 AM

Prostate Cancer
Political Posts

2019Guy, you made my day! I'm gonna tell that one to my golf buddies on Saturday....

1/26/2021 5:08 AM

Prostate Cancer
30 and 22

Congrats, GG!...

1/24/2021 3:38 PM

Prostate Cancer
Where do you get your Lupron/Firmagon shot?(In the tush not the answer)

My PCP. No urologist on Saipan then (2018) or now. In 2019 the Saipan hospital opened an oncology clinic and I see an MO there now. I'm sure if I ever need to go back on ADT the onco clinic will be...

1/18/2021 4:10 PM

Prostate Cancer
Brother Fairwind

Adding my best wishes for Fairwind, a valued member of this forum family. Thanks, MM16, for posting....

1/2/2021 3:58 PM

Prostate Cancer
6 years since diagnosis and treatment

Congrats, halbert! An excellent post, as usual from you. You can stop "hoping" that you've helped one or two of us find our path. Count me as one. Btw, I'm a recent Cialis convert. Whoopee!...

12/20/2020 4:58 PM

Prostate Cancer
Treatment no longer working

Dear Giannat, As Halbert says, you've come to the right place. We welcome you with open arms and with sympathy for the difficulties you and your spouse are facing. If your question is what to expect...

12/13/2020 5:08 PM

Prostate Cancer
I'm an orphan now.

Dear 81GG, I feel your pain and know what you mean about feeling orphaned, even at our advanced age. I lost my dad this past week, under similar circumstances. He was the youngest in his generation...

12/12/2020 4:52 PM

Prostate Cancer
Wishing a happy Thanksgiving for everyone!

I join Tim in expressing my gratitude on this Thanksgiving to all forum members and especially the moderators for fostering such a wonderful community with whom to share our highs and our lows and...

11/25/2020 4:15 PM

Prostate Cancer
Serious Question - When to stop treatments QOL

KM, I was going to make that same suggestion but Halbert beat me to it. The author is Atul Gawande. You might also think about talking with an oncology social worker. They're trained and experienced...

11/16/2020 2:45 PM

Prostate Cancer
Advice on father's journey

Hi, Aliel-- I'm also G8, had surgery and then salvage radiation, and am now on regular PSA monitoring. So far, I'm still undetectable, but my oncologist has warned me not to get overly anxious if a...

11/8/2020 4:22 PM

Prostate Cancer
Calling all pT3 Club or "The Horse Has Left The Barn Boys"

HBD, Bobby Mac! Thanks for checking in....

11/7/2020 6:50 PM

Prostate Cancer
November PSA Results

Glad to hear about your < PSA, Ken. Are you on 3 month or 6 month PSA testing regimen now?...

11/5/2020 3:58 PM

Prostate Cancer
Nadir has been achieved

Great news, Denis!...

10/27/2020 3:50 PM

Prostate Cancer
OT-Sleep

I'm sleeping more, and more deeply. I attribute it to 45mg mirtazapine (Remeron) at bedtime. It's been a game changer....

10/26/2020 8:48 PM

Prostate Cancer
PSA results in less than 24 hours?

Congrats on the great result! And let us know when you discover the Fountain of Youth....

10/22/2020 3:37 PM

Prostate Cancer
Diagnosed with Prostate Cancer Yesterday

Phil, I'm sorry to hear you've joined our club. We're here to support you in any way we can. Please post your biopsy results when you're up for it. Richard....

10/22/2020 3:35 PM

Prostate Cancer
One Year Ago Today I Was Waking Up From My Surgery

I'll drink to that. Congrats on your first anniversary! I have no memory of when I first awoke in recovery after surgery. I remember waking up later, after I was already in my hospital room. My wife...

10/14/2020 8:31 PM

Prostate Cancer
Potential new issue

Randy, Your thread since the discovery of the new tumor has been one of the most helpful and informative, as well as alternately heartbreaking and inspiring, that this forum has seen. You've done a...

10/14/2020 4:10 PM

Prostate Cancer
lupron shortage

Sorry to hear it that, mattam. I had four 3-month shots of Eligard and didn't find it worse than a flu shot. Maybe it matters how much experience the nurse has in administering Eligard -- where to...

10/13/2020 3:50 PM

Prostate Cancer
Potential new issue

Hang in there, hero!...

10/12/2020 3:58 PM

Prostate Cancer
Now Joe Morgan

Yeah, this one hits home hard. What a ballplayer. I was so passionate about baseball as a kid -- when "ball" meant "baseball" -- and as late as 20 years ago, but the steroid scandals turned me off...

10/12/2020 3:55 PM

Prostate Cancer
lupron shortage

https://www.fiercepharma.com/manufacturing/takeda-hustles-to-prevent-cancer-drug-shortage-after-fda-warning-letter Wondering if any MO's are switching their patients from Lupron to Eligard....

10/11/2020 8:22 PM

Prostate Cancer
Potential new issue

Randy, Thanks for keeping us updated. I've been reading up on Misha Beltran and watching some of her videos. Sounds like she's cutting edge. I hope the videoconsult goes well and improves your...

10/8/2020 6:45 PM

Prostate Cancer
Thirteen Year Anniversary

Beach Bum, you can pass my cigar along to someone else, but I'm happy to send you my bar tab! Congratulations on the anniversary. Best wishes to all the men in your family....

10/8/2020 6:31 PM

Prostate Cancer
Potential new issue

Randy, if you're asking seriously, email me (address is in my member profile) and I'll try to get recommendations of reputable Atlanta med mal lawyers. A good friend of mine is a personal injury...

9/27/2020 3:08 PM

Prostate Cancer
So many questions re Salvage Radiation

...

9/19/2020 3:51 PM

Prostate Cancer
Potential new issue

Randy, I'm sorry to hear about your situation. I've been on an HW holiday and just saw now what you've been going through. I'm wishing for the best possible outcome for you....

9/16/2020 6:01 PM

Prostate Cancer
Moving on

Andrew, Thank you for giving of yourself to this forum for so many years. Your voice will be sorely missed. Wishing you all the best in your new home and with your retirement vocations. Richard (SP)...

8/31/2020 6:03 PM

Prostate Cancer
Urologist called with a birthday gift

Great news, Jack. Happy birthday indeed!...

8/16/2020 3:53 PM

Prostate Cancer
LEAKING, LEAKING, LEAKING

Grossy-- (1) Patience. The return to continence comes in fits and starts. (2) As Stephen says, a PT who is trained in male pelvic exercises can help a lot. I hope you're able to start therapy soon....

8/15/2020 3:40 AM

Prostate Cancer
UPDATE ON MY JOURNEY

Great news, Steve!...

8/12/2020 11:17 PM

Prostate Cancer
How fast does he need to act?

One more big Thank You to everyone who responded. He's following up on appointments in Guam. As soon as he can get them set up he'll take off....

8/11/2020 3:26 AM

Prostate Cancer
First Non-Detectable

Great news, Stephen! Wishing you many many years of "<" signs....

8/10/2020 5:54 PM

Prostate Cancer
How fast does he need to act?

For this type of situation, the wait time won't be long. If his Saipan MO calls the Guam urology practice and urges them to see my friend asap, they'll make room in their schedule....

8/10/2020 4:15 PM

Prostate Cancer
How fast does he need to act?

Guam can do an old-style MRI, with endorectal coil. For mpMRI he'd need to go to the Philippines or Hawaii....

8/10/2020 4:07 PM

Prostate Cancer
How fast does he need to act?

island time, you describe the situation exactly. I'd like to tell you more, but you never know who's lurking and Saipan's a small community. djin, if you can pinpoint a study, let me know. halbert,...

8/10/2020 4:17 AM

Prostate Cancer
How fast does he need to act?

A friend of mine on Saipan (not shorting you -- I'm really posting for a friend) was diagnosed three years ago with G6 in 1 of 12 cores on biopsy. His PSA at the time was ca. 6 ng/mL. He didn't enter...

8/10/2020 2:28 AM

Prostate Cancer
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