Thanks for the info. I've had my eye on LU-177 for awhile, hoping it would be FDA approved early this year. I'm thinking it's my best next tx, given a PSA rise from 2.0 to over 29 the past year....
Not to rain on this parade, but my experience with PEMF was unsuccessful at best. Before I did anything, my PSA was at 18.6, then quickly went to 35.06 two months later. I was willing to try ALT TX...
This is great news! I've had two C-11 Acetate scans in Phoenix (before and after taxotere- 2017 / 2018), and a recent PSMA Gallion scan at UCLA. While each cost me $3,000, there's nothing like these...
Still no replies to your post? Strange. Hope your dad’s doing okay....
Latest update: Biopsy was not required for Provenge approval. My insurance is Cigna PPO. While everyone's insurance ifs different, this is the info I received: There is no need for a biopsy for...
Quick update on my situation: I Stopped Xtandi and started Nubeqa in September as PSA rise went to 7.2. Nubeqa was a bit of a stretch after both Zytiga and Xtandi stopped working, but we did it with...
One thing that I think convinced my insurance to cover subsequent txs was I had a c-11 acetate scan in AZ which clarified Mets far better than other scans. And that one I had to cover at $3 k....
Go bucks, never had a biopsy. Had a half dozen scans including C-11s and PSMA and the old mri’s. May now have to get one for provenge approval....
Consulted with my docs about stopping Lupron. Yesterday I was supposed to get another 3-month shot at Keck / USC Newport Beach but after consulting with doc there, he agreed with Dr. Lam at POS that...
Didn’t see replies to your post. I’m considering jevtana though I’m awaiting approval for provenge. I hope your dad is doing well....
I’m wondering if when PSA rises with T level <10, can’t we say that Lupron or other T suppression tx is not working? Or do we assume that it would be even worse (higher PSA) without it? The talked...
Thanks very much cyclone. My T has always been near zero, or <10 as I think is often the reading. Checked monthly. As noted my PSA has risen from around 1 in January to 7.2 last month with T sitting...
One of the speakers at the Prostate cancer conference last week suggested that an advanced PC patient staying on Lupron once you have a steep PSA rise (like Ive had after Zytiga and xtandi) May not...
The complete video recordings for both days are posted on the pcri.org site. This is 15 hours of the latest, cutting edge info on all aspects of pc. A must see!!...
I've gone quite a while without a biopsy as it's always been clear I had PC mets from a number of scans and rising PSAs since 2017. While I've just started Nubeqa (after XTANDI didn't work for...
I’m starting Nubeqa tonight after xtandi didn’t work for me after 4-5 months. Got the two-month trial at no charge. Fingers crossed, though doc says chances of it working are around 20% given that...
Cyclone is right (as usual!). I’ve been blessed to have two docs and treatment centers, one at Keck/USC in Newport Beach, CA and another at Prostate Oncology Specialists in Marina del Rey. I do...
I've been on Xtandi for over 4 months, replacing Zytiga which I'd been on for 19 months. Past six months of Zytiga PSA went from nadir of 0.4 to 2.7. In the past 4 months with Xtandi, PSA has gone to...
DeeBee, As they say, Welcome to the club nobody wants to belong to... I was on Zytiga for 19 months, then when PSA started back up (from 0.4 to 2.7) I switched to Xtandi. Still on Lupron and xgeva...
PS; Dr. Lam is at Prostate Oncology Specialists in Marina Del Rey...He's my Quarterback....
Thanks, Cyclone. Always appreciate your insights throughout this site. Early on, perhaps through the "grace" of insurance coverage, I found that the "quarterback" I wished to draft was at Prostate...
Yes, thanks. Did the PSMA scan at UCLA earlier this month and I am a candidate for it. Thanks....
Thanks all. The LU177 sounds like a very expensive short term solution, but I’ll hope it becomes available early in 2021. My docs have only mentioned but not recommended Xofigo and Provenge on my...
Wondering who's had recent experience with LU-177, either on the trials on after treks to Australia or Germany. My brief story (sometimes my profile doesn't appear). My DX was July 2017 at age 62,...
Fairwind, How are you doing? It looks like my Xtandi isn't working as we'd hoped. After Zytiga seemed to have run its course and the PSA got up to 2.7 (from 0.5). After 4 months on Xtandi, PSA has...
After 19 months on Zytiga, my PSA is now creeping back up --from 0.6 when I began Zytiga, to 2.7 last week. Recent scan shows bone mets, so I start a new RX chapter with Xtandi. Started Xtandi three...
Thanks for the post! As one on Zytiga with slowly rising PSA now at 1.5 I’ll ask my onco teams. Thanks!...
thanks, Gunner. you were SO young at dx. And now SO much an inspiration to us all. Prayers for your continued success....
Ditto the other brothers—been on generic for over a year. Good luck with yours....
A few years ago when I was diagnosed Stage 4 PC, I gave up chicken, fish & alcohol. Everything else had been vegetarian with those exceptions. Now I've been vegan (all organic)& no alcohol the past...
Bucks, With PSA now at 1.2 -- up from 0.40 in August -- we're sticking with Zytiga for now and replacing 5 mg Prednisone with 0.5 mg Dexamethasone. Fingers crossed... Thanks for the input. (PS Good...
Thanks, yes I’ve discussed with both my docs. Decision on that next week....
Okay, thanks guys. Appreciate it. Ironically the Zytiga may be getting tired of me. PSA now at 0.9 and I’ve had a Guardant 360 test to see what’s next. Xtandi a possibility. Thanks again....
This may not be a big deal, but I've run out of Zytiga due to a DR/Pharmacy/Insurance co debacle. It's getting resolved in 3 days, but I'm without Zytiga for that time. I've taken two tabs / day the...
Hang in there. While I didn’t have a PSA higher than 60, I had a dozen bone and lymph mets 2 1/2 years ago and did the Casodex - lupron - taxotere chemo - Zytega + prednisone path. Mets were reduced...
Thanks, Faustmann. Would love to know more about your situation, like PSA history, mets? Your post didn’t have a signature block so I was wondering. Thanks!...
Thanks Go Bucks, Everton, Fairwind. Fairwind, I've already done Docetaxel (last Feb - June) so if my ADT/Zytiga is unable to maintain PSA, will likely go to Xtandi or the dexamethasone replacing...
Thanks very much -- WOW, well done Xtandi! Happy to hear and appreciate the share....
After bone and lymph mets were discovered in 2017, PSA got to 58, and we began treatments with Casodex, then Lupron, then 6 sessions of Taxotere beginning Feb 2018. In 9/18 (with PSA = 0.60) started...
Thanks guys. Appreciate the feedback. My RD defers to my OD for future scans, etc. My OD ran labs plus a psa when I was there for lupron and xgeva shots, 5 days after last of ten RT sessions. I’m not...
I've had a steady PSA decline the past 18 months (see sig below). Taxotere last year; Currently on Lupron, xgeva and Zytiga/prednisone. The past four months, PSA had settled to 0.4. This month I had...
Great reply Cyclone. Glad you’re doing so well. You’re an inspiration to those in the mets club. Just finished a 10-day RT for the one bone met left after all my treatments of taxotere lupron xgeva...
Thanks for this post. I’ve been on ADT about 16 months and haven’t had a bone test, but I’ve been taking xgeva the past year for bones since I had some bone mets. Anyone else taking xgeva shots and...
Kmac, I had a dozen mets last year, bone and lymph and thankfully no organs. After all my treatments, only a small spot remained on hip according to a C11 scan done last fall. And the one spot left...
Thanks RobLee. I’m blessed to have had great success thus far with my treatments. Everything has worked to eliminate virtually all mets for now. Just opened my seventh bottle of zytega. With a small...
I’m assuming that everyone on this thread has localized PC? I had bone and lymph Mets at dx and though they’ve been virtually eliminated after chemo lupron zytega, I’ve been told I’ll be on ADT until...
Todd, WOW. You were a big inspiration to me after reading your posts the past couple years. Then I read the article. Thank you SO much for sharing. Ditto what the other brothers have said here. And...
Here here! As for waiting on Zytiga, that’s what one of my MOs said: I could wait until lupron failed... two of my MOs said play offense! They want to see my PSA at 0.1 or lower and thought following...
I'm 7 months from last (6th) Docetaxel and I've been on Lupron 13 months. Three months ago stopped Casodex and started Zytiga. So now I'm on 3-month doses of Lupron and xgeva (for bone mets), Zytiga...
Congrats on getting through docetaxel! That is an accomplishment for sure. I’ve often said that whatever SEs come with the lupron and Zytiga, they won’t be anything like docetaxel. Keep up the good...