Mumbo, Yeah, i was expecting to stay on the 3 mo plan for another year but they said not necessary. I love OHSU and my surgeon and current uro but i def. feel, now that my surgery is a year passed,...
Thanks again, all. Mumbo, Yes, i got the "see you in a year" speech but i will have a six month PSA test between now and then. Feeling optimistic about year two and glad to say goodbye to year one....
Thanks for replying Tim G. It feels great to get to one year undetectable. Not sure what the numbers say but I hope this bodes well for my long term hopes of being past this.... Thinking about the...
Thanks Djin. I can't take credit for being "on top of things" - the order of events that lead to my diagnosis were very random, circumstantial and mildly bizarre (long story). That said, when i got...
Hi all, One year ago today, I had my RALP. I get really scared to look at my PSA results and often need a few weeks to gather the courage but I am happy to report that I am, and have been,...
Hey k9guy, Check out my profile. I'm happy to answer any ?s or just talk if you need. We can set up a phone convo too, if that would help. I don't come here as much as i used to so please chime in...
Ron, Your story touched me deeply. I can hear the devotion you have to your parents in your writing - may we all feel that level of support and love when our time is near. Thanks for being a great...
Thinking about you, Franpro. You took my call a couple months before my surgery and helped me through a tough time, while you were getting your own tough news. I remember. Thanks again. Keep rocking...
gmoose2, My thoughts and best wishes are on their way to you. I can hear your strength through your post and am pulling for you. FYI, i've done a bit of hospice volunteer work and have had a patient...
Thanks all. Appreciate the kind words and, yes, virtual drinks are on me. Gonna try not to think about this for another 89 days.... Best to you all, BD...
Went in for my first post-op blood draw this morning. I wasn't nervous at all until I actually had to open the page with the test results..... Whew, that was nerve wracking! Looks like things went my...
Hi Bob, Not much to add, considering the expertise offered above.... That said, I wanted to say hi and a show of support from another PDXer. Let me know if i can answer any ?s or just swap People's...
i'd proffer that the guy hesitant to pick up the suspect bill thinks twice for more than viral reasons. that bill has been so debased, and its supply so inflated, that the effort needed to walk over,...
Thanks again for all your input and perspectives. I'm gonna discuss genomic testing and 2nd opinions at my upcoming phone consult. I'm feeling like i'll probably do neither but will combine all your...
Very happy for you, Halbert. Thanks for all your help and guidance over the last year or so. Best wishes for a lifetime of these results. BD...
Thanks for the replies everyone. My doc has set my first PSA test for 3.5 months after surgery (6/1/20). They use a scale that goes down to <0.05. Quick question: Any reason to seek genomic testing...
Just got this today.... Comments, key takeaways, gut feelings appreciated. I haven't updated my signature but will asap. SPECIMEN Procedure: Radical prostatectomy Prostate Size: Prostate Weight (g):...
FP, I won't rehash my whole saga here in your thread but check out my "Home from surgery" thread... I've updated it a couple times and will continue to keep you guys up to date as I move along....
Thinking of you FranPro. Thanks for being there for me during the lead up to my surgery. Sending good vibes and best wishes your way. Your friend, BD...
Good advice GG and Djin. I'll make sure i get the full pathology report. Thanks. Update: Feeling really good these days. Almost too good. I'm kinda wearing myself out during the day and hitting the...
Brother, I have a 12 yo boy and a 9 yo girl. For months, I agonized about how to talk to them about what I was going through. I don't have any advice but the following was our mindset and how we...
Update: Just returned home from having my dear catheter removed. Whew! Glad that phase is over. Seem to be pretty dry but don't want to raise any victory flags just yet. One day at a time. My path...
Day 5, post op..... All seems to be going well. Pretty much on my feet all day, either standing walking or leaning. I feel way more comfortable upright than i do sitting or laying down..... I've had...
Update: Feeling quite a bit better today. Up moving and feeling like myself - a really slow, weak, wobbly version of myself. I've had good luck with the bowels and got my first post op shower in. 5...
Hi all, Well, the deed was done this last Wednesday. I'm home and praying for a bowel movement. Feeling pretty ruff but trying to be strong and move around as much as i'm able. This aint no cakewalk....
Hershey, I know you have a lot on your plate so no rush..... but when you can, change your profile so i can see your email and i'll send my contact info. Would love to talk OHSU and maybe cowlitz...
Welcome Hershey, Sorry for the recent news you've received. I'm pulling for you and this site is the right place to be. The real pros around here will be chiming in soon, im sure. I am very...
Wow. As always, the good ppl of this forum have come through with some great info and the moral support i need so bad. Thanks again. I'd like to go through all the posts and thank everyone but i...
Hi all, Well, due to some scheduling conflicts, my surgery date has been moved up from 2/26/20 to 2/12/20. I had the option to push it back until late March but decided against it. I'm dreading this...
Saipan, Thanks for the reply and encouragement. Garyi, Yeah, after a couple years or more of frequent nocturnal urges, I know where you're coming from. Thanks for the kind words and encouragement. I...
Prato, Yes, its true. I do feel better now that I've decided on a path forward. All those same doubts invade my mind from time to time but I know treating this now is the right path forward for me. I...
Halbert, Thanks for the tips. I'll get on the kegels asap. I've watched a couple vids on them and had some trial runs but need to get them into my everyday routine. The fitness stuff is under...
Thanks Mattam and F8. Best to you both. Star, hug your hubby for us and let him know he has a lot of support and good juju being sent his way. This is scary stuff, i hate it for everyone going...
Hi all, Been lurking a bunch but haven't posted in a while. The decision-making process was too intense and confusing and consuming to post anything of value. Well, i'm scheduled for RALP on 2/25/20...
Hi all, Just an update..... I received my Oncotype DX test results today and my score came back at 8. According to my URO and the website that is considered very low risk. I'm happy, i suppose....
Sr Sailor, Thanks for the encouraging words. I hope all the studying i'm doing translates into good decision making when the real tests come... i'm not as optimistic as you but i'm doing my best....
JNF, Yes. Grew up in Eugene, moved away for 20 yrs and back now but in PDX. Island Time, Good advice. I think i'm picking up what you're putting down. I'll let you all know how things proceed. Thanks...
Sr Sailor, Yes, i'm trying to determine if AS, for any length of time, is possible for me. In the meantime, i had a surgery consult 10 days ago and have a RO consult in August. I've had my bx slides...
Whah? BJ, where in any of my posts do i give you the impression that i'm in a rush or concerned about a conspiracy? Btw, just because i'm paranoid doesn't mean they're not out to get me. Good day,...
Great advice re: non-hospital MRI providers. I'll do some googling and call around a bit this week and let you all know what I find. Thanks....
Hi all, After reflecting on my interaction with my Uro re: the denied MRI, your replies are pretty spot on (not surprised). Island Time, The MRI was requested to pursue the wisdom of some length of...
Hi all, Pretty bummed to hear today that my request for a 3T MRI has been denied by insurance. My Uro and I have filed an appeal but the likelihood of success is not high. The price tag, out of...
mattam, So I tried to update my sig but apparently it didn’t save.... Yes, JH graded my 3 cores at 30, 20 and 30. Thanks for the reply....
Just got my bx path report back from JH (2nd opinion) and added some percentages to my signature. Still biding my time until my surgery consult on 7/18 and the scheduling of a mpMRI (hopefully). All...
Sorry for not replying lately. I've read all your posts, since my last, and appreciate the feedback. Hearing all your accounts of the decision making process you went through is amazingly calming and...
Very sorry to hear about your dad's situation. Thinking of you both in this time of struggle. Love and best wishes to him and your family, BD...
Thanks for the recent replies all. bbqdude, my Uro is similar to yours i think. he isn't ruling out AS but he isn't comfortable recommending it either. additionally, he is slightly more as a matter...
Mumbo, Thanks for the kind words and encouragement. I've been reading up on AS and I agree, it seems the 70% could be a disqualifier.... Oh well, one thing at a time.... Best to you. BD...
Michael_T, Thanks for the reply. I don't know enough yet to have a good feeling for where I stand on AS. Deep down, i hope hope hope i can do some length of time on AS. I think i'll know more when my...
Thanks mufjem. I'll be insisting on an mpMRI at my consult with Dr. Amling at Oregon Health Science U on 7/18. I'm bummed they can't get me in sooner, and am going to call to see about cancellations,...