FP, I won't rehash my whole saga here in your thread but check out my "Home from surgery" thread... I've updated it a couple times and will continue to keep you guys up to date as I move along....
Thinking of you FranPro. Thanks for being there for me during the lead up to my surgery. Sending good vibes and best wishes your way. Your friend, BD...
Good advice GG and Djin. I'll make sure i get the full pathology report. Thanks. Update: Feeling really good these days. Almost too good. I'm kinda wearing myself out during the day and hitting the...
Brother, I have a 12 yo boy and a 9 yo girl. For months, I agonized about how to talk to them about what I was going through. I don't have any advice but the following was our mindset and how we...
Update: Just returned home from having my dear catheter removed. Whew! Glad that phase is over. Seem to be pretty dry but don't want to raise any victory flags just yet. One day at a time. My path...
Day 5, post op..... All seems to be going well. Pretty much on my feet all day, either standing walking or leaning. I feel way more comfortable upright than i do sitting or laying down..... I've had...
Update: Feeling quite a bit better today. Up moving and feeling like myself - a really slow, weak, wobbly version of myself. I've had good luck with the bowels and got my first post op shower in. 5...
Hi all, Well, the deed was done this last Wednesday. I'm home and praying for a bowel movement. Feeling pretty ruff but trying to be strong and move around as much as i'm able. This aint no cakewalk....
Hershey, I know you have a lot on your plate so no rush..... but when you can, change your profile so i can see your email and i'll send my contact info. Would love to talk OHSU and maybe cowlitz...
Welcome Hershey, Sorry for the recent news you've received. I'm pulling for you and this site is the right place to be. The real pros around here will be chiming in soon, im sure. I am very...
Wow. As always, the good ppl of this forum have come through with some great info and the moral support i need so bad. Thanks again. I'd like to go through all the posts and thank everyone but i...
Hi all, Well, due to some scheduling conflicts, my surgery date has been moved up from 2/26/20 to 2/12/20. I had the option to push it back until late March but decided against it. I'm dreading this...
Saipan, Thanks for the reply and encouragement. Garyi, Yeah, after a couple years or more of frequent nocturnal urges, I know where you're coming from. Thanks for the kind words and encouragement. I...
Prato, Yes, its true. I do feel better now that I've decided on a path forward. All those same doubts invade my mind from time to time but I know treating this now is the right path forward for me. I...
Halbert, Thanks for the tips. I'll get on the kegels asap. I've watched a couple vids on them and had some trial runs but need to get them into my everyday routine. The fitness stuff is under...
Thanks Mattam and F8. Best to you both. Star, hug your hubby for us and let him know he has a lot of support and good juju being sent his way. This is scary stuff, i hate it for everyone going...
Hi all, Been lurking a bunch but haven't posted in a while. The decision-making process was too intense and confusing and consuming to post anything of value. Well, i'm scheduled for RALP on 2/25/20...
Hi all, Just an update..... I received my Oncotype DX test results today and my score came back at 8. According to my URO and the website that is considered very low risk. I'm happy, i suppose....
Sr Sailor, Thanks for the encouraging words. I hope all the studying i'm doing translates into good decision making when the real tests come... i'm not as optimistic as you but i'm doing my best....
JNF, Yes. Grew up in Eugene, moved away for 20 yrs and back now but in PDX. Island Time, Good advice. I think i'm picking up what you're putting down. I'll let you all know how things proceed. Thanks...
Sr Sailor, Yes, i'm trying to determine if AS, for any length of time, is possible for me. In the meantime, i had a surgery consult 10 days ago and have a RO consult in August. I've had my bx slides...
Whah? BJ, where in any of my posts do i give you the impression that i'm in a rush or concerned about a conspiracy? Btw, just because i'm paranoid doesn't mean they're not out to get me. Good day,...
Great advice re: non-hospital MRI providers. I'll do some googling and call around a bit this week and let you all know what I find. Thanks....
Hi all, After reflecting on my interaction with my Uro re: the denied MRI, your replies are pretty spot on (not surprised). Island Time, The MRI was requested to pursue the wisdom of some length of...
Hi all, Pretty bummed to hear today that my request for a 3T MRI has been denied by insurance. My Uro and I have filed an appeal but the likelihood of success is not high. The price tag, out of...
mattam, So I tried to update my sig but apparently it didn’t save.... Yes, JH graded my 3 cores at 30, 20 and 30. Thanks for the reply....
Just got my bx path report back from JH (2nd opinion) and added some percentages to my signature. Still biding my time until my surgery consult on 7/18 and the scheduling of a mpMRI (hopefully). All...
Sorry for not replying lately. I've read all your posts, since my last, and appreciate the feedback. Hearing all your accounts of the decision making process you went through is amazingly calming and...
Very sorry to hear about your dad's situation. Thinking of you both in this time of struggle. Love and best wishes to him and your family, BD...
Thanks for the recent replies all. bbqdude, my Uro is similar to yours i think. he isn't ruling out AS but he isn't comfortable recommending it either. additionally, he is slightly more as a matter...
Mumbo, Thanks for the kind words and encouragement. I've been reading up on AS and I agree, it seems the 70% could be a disqualifier.... Oh well, one thing at a time.... Best to you. BD...
Michael_T, Thanks for the reply. I don't know enough yet to have a good feeling for where I stand on AS. Deep down, i hope hope hope i can do some length of time on AS. I think i'll know more when my...
Thanks mufjem. I'll be insisting on an mpMRI at my consult with Dr. Amling at Oregon Health Science U on 7/18. I'm bummed they can't get me in sooner, and am going to call to see about cancellations,...
Sincere thanks for the perspective and encouragement, mattam. It's hard to put into words what this forum has meant to me over the last 7-8 months. For a group of people i wish i'd never met, i feel...
Update: Just got results back from Dr. Epstein at Johns Hopkins. They re-affirmed my G6 diagnosis and lowered my cores involved from 4 to 3. They felt like the 5% involvement in that fourth core was...
Congrats! Best to you and yours....
Peter, Thanks for the encouraging words and calming wisdom. I have a lot of balls in the air right now so my plan is to try not to think too much and just respond to the new information that should...
ejc61, Thanks for the reply and time frame. Re: an MRI.... Yes, I am working on getting a consult with a Uro at Oregon Health Science Univ. My current Uro feels this person is the best of the best...
Thanks for the additional info, Andrew. Not sure what means what, but if you say the percentages i added paint a prettier picture, i'll take that any day. Yes, decisions are gut wrenching and not...
Thanks so much all. I'm going to take some deep breaths and get to scheduling the stuff that i mention in my earlier posts. BTW, i updated my signature with some %s. There's more info on my path...
GoBucks, I'm in Portland, OR. Forgot to mention, i'm also gonna schedule a surgery consult at the Knight Cancer Center at Oregon Health Science Univ. as well as a RO consult, to get the ball rolling...
Welp, i got the news i didn't want to hear last week. My signature tells the tale (please let me know what else I can add to help the forum best understand my diagnosis). Needless to say, i'm sad and...
Just caught up on the last day of replies. Great info and perspectives. Thanks so much. Today i was able to change my insurance coverage from KP to Primera Blue Cross and will be starting a new...
More great info and generous, patient replies... Thanks again. halbert - i've had 3 PSA tests. 3.83 on 10/11/18. 2.84 about 2 weeks later. 2.90 on 12/28/18. See my OP for some details related to...
First off, thank you all. I'm so incredibly appreciative of the support and the knowledge you all are passing on to me. I feel lucky to have found the site and such caring people. Blackjack - great...
Thanks Roadranger. Didn't like hearing this but i appreciate you taking the time. Best to you....
Thanks Hero. That means a lot. Best to you....
Thanks so much for the reply and kind words, halbert. I'm resigned to the fact that I need a biopsy. I'd actually prefer one considering my emotional/psychological state at the moment. I want answers...
Hi all, Thanks for the great forum, I've read and learned a lot. You all are amazing. I may be early joining this forum but I decided to jump in anyway, i hope i don't annoy or offend. My head is...