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pasayten

HealingWell Forum
>
Member Profile
Display Name
pasayten
Profile Created
3/21/2007 10:11 PM
Last Seen
Yesterday 11:07 AM
Total Posts
524

Last 50 Posts

Who here has been undetectable the longest? (Survey)

Not undetectable, but 14 years out and PSA seems stable at the .2 -> .4 range for the last couple of years. Possible benign tissue left over... pasayten...

Yesterday 11:07 AM

Prostate Cancer
Morning thoughts.

No hummingbirds here in Winthrop with cold temps and 30 inches of snow... But we do have a nice population of Flickers that come and feed on the suet we have out for them... :-) pasayten...

2/21/2021 4:38 PM

Prostate Cancer
Corona vaccine OT

My wife and I have had both our Phizer vaccinations w/o any significant side effects except maybe arm a little sore the next day. Cheers, Pasayten...

2/19/2021 1:27 PM

Prostate Cancer
rash from pads?

I tried for a couple of days... very uncomfortable with a 'backed up" feeling... pasayten...

2/19/2021 6:13 AM

Prostate Cancer
rash from pads?

I found pouches better than pads... https://www.amazon.com/Coloplast-Manhood-Absorbent-Pouch-MEN4200B_pk/dp/B002ZUK2JM Cheers pasayten...

2/18/2021 12:57 PM

Prostate Cancer
Still Hoping its Benign Tissue...

After 2007 RALP for a G6 and 2010 SRT, my PSA started to rise again but has leveled off in the .20 -> .36 range... I really do not worry about it anymore as it is most likely benign tissue or a very...

2/18/2021 12:35 PM

Prostate Cancer
Calling all pT3

pT3a and Gleason 6... 13 years ago in 2007... SRT 2010... PSA has since rose to .20-.30 range but steady last few years Cheers, pasayten...

11/21/2020 8:49 PM

Prostate Cancer
PSA results in less than 24 hours?

At Cancer Care Alliance in Seattle, I have a 7am blood draw and results available for the 9:30 doctor appointment. Pretty good system as I travel 5 hours from Winthrop to Seattle for the appt... :-)...

10/25/2020 7:43 PM

Prostate Cancer
Who here has been undetectable the longest? (Survey)

Not undetectable, but stable at 0.20 to 0.30 and 13 years out... pasayten...

10/9/2020 8:11 PM

Prostate Cancer
Thirteen Year Anniversary

Congrats on successfully still being below detection!!! We do need to hear about more success stories... 13 years for me also... Have had a few setbacks, but PSA now seems to currently remain steady...

10/9/2020 3:32 AM

Prostate Cancer
Seeking info about Seattle doctors

I was happily with Dr. Celestia (Tia) Higano until recently. She has separated ways with Seattle Cancer Care Alliance and is in the process of setting up a new practice. I switched over to Dr. Evan...

8/26/2020 7:35 PM

Prostate Cancer
PSA rising

I was a G6 and when my post 2007 RRP PSA started to rise, the RO recommended SRT w/o ADT in 2010... because of the G6... I also had an AMS 800 installed 7 years after the SRT... The G6 again turned...

8/3/2020 10:48 PM

Prostate Cancer
Latest psa result

Mark... For the particular method/machine used the <0.014 would indicate non-detectable to that level. pasayten...

7/27/2020 10:46 AM

Prostate Cancer
Post RP PSA Rise: Lupron or Not with RT?

I was a G6 and when my post 2007 RRP PSA started to rise, the RO recommended SRT w/o ADT in 2010... because of the G6... The G6 has turned out to be pesky since the SRT also, but PSA has now...

7/19/2020 10:25 PM

Prostate Cancer
0.06 March... 0.09 July @#$%!

TooYoung, Sorry to see your numbers rise... I was in a similar situation, but with a pesky G6... RRP and SRT and then a post SRT rise in PSA after a few year time period... Thought I was going to...

7/12/2020 5:03 AM

Prostate Cancer
Relugolix for ADT

Just saw this on a news feed... Had not heard of it before... "PROSTATE CANCER Men with advanced prostate cancer often are treated with medicines to suppress male hormones that can help the cancer...

5/29/2020 9:11 PM

Prostate Cancer
OT: Gilead COVID drug testing showing promise

Some interesting things to consider concerning Gilead from an article that was passed on to me... Curb Your Enthusiasm on Gilead Buying stocks on anecdotal Covid-19 patient data is a bad idea. A...

4/18/2020 12:51 PM

Prostate Cancer
A related rant

Some interesting things to consider concerning Gilead from an article that was pssed on to me... Curb Your Enthusiasm on Gilead Buying stocks on anecdotal Covid-19 patient data is a bad idea. A...

4/18/2020 12:28 PM

Prostate Cancer
0.06 well that's probably not good

I am 13 years out and have had quite a journey with a pesky G6... I always ask for the uPSA as I like to chart and graph... :-) Bouncing between 0.20 and 0.30 right now... actually kind of "stable"...

3/21/2020 2:33 AM

Prostate Cancer
Coronavirus affecting April/May Decisions

Only have U.S. travel plans car camping with our trailer to Utah, so we are not really worried about Covid 19... Not changing going to our local events either... but there are also no confirmed cases...

3/9/2020 4:55 AM

Prostate Cancer
Axumin PET Scan

They used a threshold value of 0.20 out here at the Seattle Cancer Care Alliance to perform the Axumin scan in my case... It came back clear... pasayten...

3/7/2020 8:36 AM

Prostate Cancer
Looks like I finally got my BCR

Billy Bob... The ride can be a roller coaster but hang in there... Technology has improved greatly for treatments and still getting better every day... My ride is now 13 years out with a dang pesky...

2/22/2020 1:59 PM

Prostate Cancer
Up date on PSA

That's a good number... Engage and enjoy life each day... :-) pasayten...

2/15/2020 10:18 AM

Prostate Cancer
a friend of mine is on active surveillance.....

Sounds like my stats at the beginning... Proved to be very pesky after RRP and SRT... pasayten...

2/10/2020 10:06 PM

Prostate Cancer
finished ADT #2

Mal, Great news for the results and break... Like you, I am celebrating 13 years since RRP... :-) pasayten...

2/10/2020 12:44 AM

Prostate Cancer
"T" level

Also watch for the lab "units"... Some labs like mine report as ng/ml (milliliters)... others the more standard ng/dl (deciliters) Example... my typical low base testosterone is reported as 0.8 ng/ml...

2/9/2020 4:42 PM

Prostate Cancer
Bone Scan & CT Scan vs PET Scan?

Yeah... The new Auxium scans are really drilling down to finding metastasis. I had one post SRT when my PSA went back up to over 0.20 which is the level at which they authorize it. Insurance was not...

2/8/2020 4:27 PM

Prostate Cancer
Intro, candiate for AS?

I would have qualified for AS with my original G6 dx... Glad I went the treatment route as it has been a very tough and pesky G6 to corral... :-) pasayten...

2/7/2020 7:52 PM

Prostate Cancer
a friend of mine is on active surveillance.....

Be interesting to know his stats... pasayten...

2/7/2020 2:23 PM

Prostate Cancer
Treatment Costs to Medicare Patients?

Since 2012, I have Medicare plus a federal BCBS plan I pay for... They have paid for everything. $0 costs to me since 2012... pasayten...

2/6/2020 9:04 PM

Prostate Cancer
PSA no longer undetectable - Now What?

Agree with the others... you are a long way from below 2 + Nadir PSA... Hang in there and you will probably end up getting quarterly PSA's to benchmark what's going on. Don't let this detract from...

2/6/2020 8:58 PM

Prostate Cancer
Simple urinary stress incontinence aid for uncircumcised.

I like the lightweight "pouches" to catch the occasional stress drip... Depending on activity, a single pouch can last for a few days... https://mms.mckesson.com/product/670511/Coloplast-4200-B Shop...

2/5/2020 4:08 AM

Prostate Cancer
Dilemma for a caretaker

Sunshine, I agree with the previous poster about you having a quiet one on one with your father... That being said, I am 72 and we are now realizing the importance of end of life planning documents...

2/4/2020 5:59 AM

Prostate Cancer
active sureillance-path forward

Just like to mention that even a low indication of G6 can turn out to be very pesky... Biopsy Screening -12 points 3/13/2007 Left Core OK -- Right Core Gleason 3+3 Consisting of a single less than...

2/2/2020 8:42 PM

Prostate Cancer
What are Centers of Excellence?

Seatlle has a great place... Seattle Cancer Care Alliance... Hooked up with the University of Washington pasayten...

1/31/2020 6:19 PM

Prostate Cancer
Friday fun: What is the perfect age to be?

72 is working really good for me... :-) pasayten...

1/31/2020 8:48 AM

Prostate Cancer
Is the risk of BCR 75% for post RP guys with any uPSA of 0.02 as this study suggests?

Hmmm... I was in that category... A pesky G6... pasayten...

1/29/2020 10:45 PM

Prostate Cancer
Miss a few days....

Couldn't agree more Donna... End of life planning is an important step for all to consider. Includes your wills, power of attorney, medical directives, assisted living care, and more. It will make...

1/28/2020 8:33 PM

Prostate Cancer
What are the odds of BCR are for an RP guy when uPSA goes from < 0.006 to 0.012 in 2 years?

Strange how your perspectives change while dealing with PCa... I seem to have a pesky G6 and after RRP I freaked out when my PSA raised to 0.13 and I embarked on the SRT portion of my journey... SRT...

1/27/2020 4:44 AM

Prostate Cancer
No subject (Part 5)

Well we got a new puppy... Is that something to talk about? lol :-)...

1/23/2020 8:23 PM

Prostate Cancer
Returning customer. PSA is back.

Very strange on the to higher values and then to go back to the low values... but PCa can be a very strange beast... as I am dealing with a very pesky G6... Glad you are back in the zero club!...

1/23/2020 7:01 PM

Prostate Cancer
142 passed away last night

Very sad news... Prayers for the comfort of his friends and family... RIP PCa warrior... pasayten...

1/23/2020 6:56 PM

Prostate Cancer
Seven Years. Gunner34 is still kick’n, followups, and new scan activity

Seven years! That is great... Keep it going and it sounds like you are active and on top of this beast! pasayten...

1/22/2020 5:50 AM

Prostate Cancer
Looking for confirmation of my test results

Bosco... All looking good... Enjoy your life... :-) pasayten...

1/18/2020 3:29 PM

Prostate Cancer
Seems as if My RALP Failed

+1 on the vitamin D and calcium citrate is for bone health. Hormone therapy can impact our bones apparently. I was told the same thing in case hormone treatment was going to be required in my...

1/17/2020 9:18 AM

Prostate Cancer
Looking for anyone or anyone that knows someone with a post RP low but rising uPSA level?

I have a pesky G6 and have experienced a long 13 year journey of knocking PSA down and seeing it slowly come back... Seems stabilized at .20-.30 now... Go figure... pasayten...

1/17/2020 8:48 AM

Prostate Cancer
Update - Almost 1 year Post Ralp

Hang in there FranPro... I have a pesky G6 that has taken me on RRP, SRT, and still went up to the .20-.30 level... But it seems to have stabilized and I am 13 years past dx and still living life to...

1/17/2020 8:39 AM

Prostate Cancer
WOW its been a while since I posted- just an update

Good to hear from you Sonny! Been a long tough road, but you are still traveling... That's the main thing... :-) pasayten...

1/15/2020 9:55 PM

Prostate Cancer
Checking In

Congrats on staying in the zero club! pasayten...

1/15/2020 6:08 PM

Prostate Cancer
T - Levels

Never really looked at my T levels as I never had ADT with my SRT... Looking at my blood work, my baseline T level is low at 80... This is probably OK as my pesky G6 has risen and leveled off at...

1/15/2020 4:51 AM

Prostate Cancer



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