Hi all, I've posted a few times but not been on for a while. My husband, who was diagnosed over six years ago with gleason 9 and psa of 17, has advanced considerably. His psa is over 650, abiriterone...
Hi Passages Been reading through your post and thought I'd tell you what has and hasn't worked with my husband (he's at a similar stage to yours, I think) After having been on Xtandi for a mere four...
I'm so sorry for the sadness and pain you must all be feeling right now. I'm sure your Dad knows how much he is loved by you, and will be getting strength from your love and support. Sending you love...
I hate to say it too, but my husband's problems started when he first took Xtandi. Yes, he had a problem with calcium from his bone tumours entering his blood stream, but that is now under control,...
And got everything crossed for you today Zimac xx...
Hubby home from hospital after a intravenous dose of bisphosphanates to lower the calcium in his blood. He is still in such a poor way - can't face more than a tiny bowl of cereal for his entire...
Well, being anaemic would certainly cause fatigue Passages. Let's hope your husband picks up when the transfusion kicks in. Good job they've got us making some noise I reckon - like you say - ever...
Oh, and worryingly, psa gone from 250 to 475 in four weeks :0...
Well, it seems his symptoms had nothing to do with the Xtandi - and everything to do with the tumours in his bones throwing out too much calcium. At least he's in hospital (although still waiting for...
It means having too much calcium in the blood. Not sure what they will do - some sort of transfusion I think. They are admitting him into hospital to treat it, so will report back when I know more...
My husband has never been anaemic - however, we just got a call from his GP to say the blood test taken yesterday showed hypercalcaemia - the symptoms of which match what he is going through,...
Thank you Passages. What an awesome bunch you all are! It does seem that Xtandi is a blessing and a curse - we don't even know yet if it's having the desired effect. Will get latest psa results...
Thank you for your responses. I see there is a long thread regarding this drug so will have a good long read after posting this. Rangertug - my husband has the opposite problem with weight and is...
Hi all My husband has been taking enzalutamide for nearly four weeks now. He has had a terrible time, with fatigue, back pain, loss of appetite, weight loss - you name it etc... he is practically...
Hi, thanks for the above. The trial on the link is for people who haven't had chemo, which rules out my husband :( I am looking into a drug called Ketoconazole, which has never been mentioned to us...