My heart goes out to you, dealing with so much. I agree with mrsbugzy. Sounds like a new doctor is in order. I was forced to start fresh with an insurance change and it turned out to be the best...
First, I'm sorry you have had to deal with these issues for your entire life. I would recommend that you get tested to rule out/in Celiac for sure. Even if the test is negative, it does not mean that...
No, it wouldn't help. I am allergic, and my ex insisted on having a dog anyway. When we split up, I kept the furniture, he kept the dog, and I kept having allergy problems, despite moving to a new...
Sorry you are having anxiety. Maybe you could talk to your doctor about some anxiety medication that you can take short term to see if it resolves as you adjust to the medication? I don't remember...
I'm so sorry you are dealing with this. I do understand the constant pain. I went several months with one before starting on topamax, and it recently started to become less effective. We are...
My blood test was negative as well, yet going gluten free made an immediate difference. I went "cold turkey" off of gluten, and the nausea I had suffered with for 6 months was gone within 48 hours....
I think that the problem with too much internet research is that when people have a bad experience they tell everyone, but when they have a good experience, they don't bother to say much. So you wind...
I'm sorry your sister has to deal with this. Migraines are terrible and debilitating when they aren't treated. It is wonderful that you want to try to help your sister. I recommend getting her to see...
Hi Shannon, I am assuming you are talking about an elimination diet that removes the most common allergens from your diet? (usually milk, eggs, nuts, wheat and soy) I did go on a modified elimination...
Hi Daisy, Constant nausea was a big symptom for me. And it was one of the first things to go away when I stopped eating gluten (within a few days). It took a few weeks for my energy levels to really...
Hi Sara, I have been on Wellbutrin on and off for the past 10 years. I also get the weird taste side effect, and I would describe it similarly to what you did, as a strange metallic kind of flavor....
I have been on it now for 16 months. I take 125mg, split 50mg AM,75mg PM. It did take me a few months at my current dose to get the full effect, but I started seeing some positive results once I hit...
I have been on it for about 16 months now, and take 125mg. I don't specifically remember having any issues with waking up in the middle of the night, but I had terrible sleep problems prior to...
Like Aubgirl, we got ours through Costco. We bought the one with the temperature control foam that is supposed to help keep you cooler because my husband gets hot easily. It has made a world of...
Hi LVL - I take both Wellbutrin XL and topamax. I am on 125mg of topamax. I have been on the wellbutrin for a few months longer than the topamax. I do have issues with some foods causing me problems...
I hope she has spoken to her doctor and is not reducing her dose on her own? I don't know whether or not there are potential withdrawal symptoms, but I do know that since it is one that affects the...
So sorry you had to go to the ER, but very relieved to read that you were treated with respect and compassion! I hope the pain gets better soon, It is scary to have new pains develop....
My back pain has finally settled itself back down to a more manageable level, which is very kind of it. I can sit again, and am not hobbling around by the end of the day looking 3 times my age....
Lousy. 'Nuff said....
I live just north of San Diego....
I read this post the other night and it's taken me until now to find it again. I couldn't remember which forum I found it in. I was forum jumping, just reading different posts when I couldn't sleep....
Very interesting article. It doesn't appear to me that they are saying that the sensitivities are unimportant, just that it is essential to differentiate between allergy and intolerance. Since the...
Hi Kikko, So sorry you are dealing with this. I noticed your post on deltaforce's thread about your topamax so I thought I'd come over to your own thread to comment on it. Since no one here is a...
Good luck, and I hope they help you!...
Mindy, I think you are being very reasonable. It is, after all, YOUR wedding. You have every right to choose the dresses you want in the colors you want and have the beautiful day YOU are dreaming...
I agree completely. I sounds like maybe it's the daughter that needs her Mom to be positive and can't handle thinking that her mother isn't happily embracing the end of her life with open arms. Her...
Oh, I am so sorry. You are all in my thoughts and prayers. Hugs, Melissa...
Oh, I know it isn't pretty. It takes more than one dose for me. Usually 2-3 for me to notice anything. When they found out I was pregnant with my now 7 year old, I was on both zoloft and wellbutrin...
Hi deltaforce, I am glad to hear the topamax has helped. Yes, it is likely the culprit in your decreased appetite, but that should level off. Talk to your doctor about your dose. It may be for you...
My son took it on and off for a couple of years. He is 7. He seemed to be more irritable and developed some heartburn problems on it, and complained a lot about a stomach ache - all listed as side...
I only have occasional ringing, not constant, so I don't know if it is caused by the topamax or not. I'm at 125mg....
I am on 125mg per day and have no majorside effects to speak of - I'm 5'3" and my weight is fine for my height and bone frame. For me, it has been a miracle drug and my current dose is what is needed...
Hi deltaforce, that is exactly how my neurologist had me take topamax when I started. Going up on the dosage in 25mg increments helps minimize the impact of the potential side effects, as opposed to...
So glad you had a positive appointment!! :)...
That is great news! So happy for you!...
Hi Buttercup - So glad to hear that you have a diagnosis and that there is a treatment! :) You have been through so much and I am so happy that you will soon be feeling better. Melissa...
Yes, it can mess with your periods. Some people stop all together with Topamax. It also alters the effectiveness of birth control pills, so please be aware of that if you use pills as birth control....
I had this surgery 3 years ago. I still have my periods, and have from the beginning but they are very light in comparison to what I dealt with prior to the surgery. I have no problem with dealing...
My gastroenterologist recommended miralax - there is no taste or gritty texture and it dissolves completely - I've used it in cold and hot beverages with no problems in either. It can take a few days...
Hi Eva, I have been on Topamax since May of this year. It has given me my life back. I have had no serious side effects, such as memory issues that some people have. That issue seems to be dose...
I am gluten free, but not because of fibro. If you do this, research thoroughly because the only way to know if it is truly working is to eliminate all gluten, and you would be shocked to know how...
Hi Mindy, Hugs to you on a tough day! You did a very nice thing, helping your neighbor yesterday. You have several things going on right now that are out of your immediate control. But giving...
That is why I have an electric blanket. :smilewinkgrin:...
Always a good idea to get checked out as Liz said, but if it is any comfort, mine did change sides on me after many years, and then changed again to encompass both sides at the same time, and nothing...
How large of a dose did they start you on? I did not get the soda effect until 75mg. It did taste AWFUL at first. But now it doesn't taste bad, just flat. I can't sense carbonation at all. I can be...
I've decided I'll wear a hazmat suit the next time one of my kids gets sick, lol. My son gave me his cold, or a version of it anyway. It always seems to head for my sinuses. Pain levels have been...
Thanks to both of you. :) No answers yet of course, but she was nice. They want to do an endoscopy and abdominal ultrasound. Pretty standard stuff. Confirmation that I have likely developed a serious...
I have an appointment at a gastroenterologists office today for my stomach pain. Not looking forward to it, but then again, my recent doctor experiences have been less than positive, so I guess that...
My husband calls me his Cali girl (California girl) , and 2001 is the year we got married....
I think that Frances gave a really good explanation. Some people we meet truly are oblivious. Some are just insensitive. Some think that if you look fine, you must be fine and just making it out to...