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alli sunshine

HealingWell Forum
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Member Profile
Display Name
alli sunshine
Profile Created
5/28/2009 6:24 PM
Last Seen
7/18/2013 6:41 AM
Total Posts
40

Last 50 Posts

So very frustrated

Thanks for your quick reply, tater. :). At this point, though, I am only on the Meloxicam. My PCP did not want to prescribe plaquenil herself and was hoping the rheumy would do it. So, I feel like I...

7/16/2013 8:52 PM

Lupus
So very frustrated

I am 46 years old.Four years ago, I was having numerous health issues. I was extremely anemic, having a lot of joint pain and bone pain, fatigue, etc. During that time, my PCP ordered an ANA test due...

7/16/2013 8:30 PM

Lupus
Going back to the doc

I have had a long history with several issues. Most of it came to a head in 2009 when I was diagnosed with severe anemia. At the time, I was having a lot of joint pain. I also have had Raynauds for...

11/22/2011 6:39 PM

Lupus
Weird blood vessel problem in fingers- Raynaud's

I know that many here have Raynaud's. Just wondered if any of you have had this happen. I have had a weird thing happen a couple of times in the last month, and I wondered if any of you have ever had...

12/20/2010 7:19 PM

Lupus
Vitamin D shots? Should I try gluten free?

I have been having blood issues for about 2 years. I've been very anemic, though that has been helped since I had a hysterectomy this past summer. My hemoglobin is now just above the low end of...

11/13/2010 2:36 PM

Celiac Disease
Vitamin D injections?

Hi all. Haven't been here in a while. I have had a high ANA test (1:640), several symptoms. The DNA lupus tests came back negative, so I have been told I may be brewing an autoimmune issue that...

11/10/2010 7:30 PM

Lupus
Still having issues- please help

Red Rose- The ablation was the best thing I have done in a long, long time. My doc uses general anesthesia to do it, so I was out. Some do not use general, only local. I would not recommend that. I...

6/3/2010 8:42 PM

Lupus
Still having issues- please help

I have been in and out here, and am coming here because I am at the end of my rope. Last year at this time, I had a positive ANA test (1:640), joint pain and swelling, have Raynaud's, and have a...

6/2/2010 6:50 PM

Lupus
Gluten free diet question

I posted this on the celiac board, but have heard nothing, so I am giving this board a try. I have been on an endless journey of doctor visits over the last year and a half, but I still do not have...

4/11/2010 7:35 AM

Lupus
How long to see a difference with gluten free diet?

I have been on a long journey of endless doctor appointments trying to figure out if all the issues I have are related and what might be causing them. I am finishing up a 10 treatment course of iv...

4/10/2010 10:15 AM

Celiac Disease
TEE test and questions (Marfans?)

I am a 43 year old woman. I have a history of back issues. My spine is fused from T3-L2 due to kyphosis. I went to a new orthopedic doctor about a month ago due to severe pain and a worsening of some...

4/8/2010 7:14 PM

Heart & Cardiovascular Disease
Neurological symptoms?

I am still trying to figure out this puzzle of my health stuff. Quick recap- positive ana (1:640), Raynaud's, anemia, joint pain, gastroparesis and chronic stomach inlamation, family history of RA....

3/13/2010 7:43 PM

Lupus
Best prescription strength anemia pills

I just started taking Niferex, and I am having a terrible time with it. I took Repliva last year and had much better luck. Unfortunately, they took it off the market. I am seeing a hematologist next...

2/28/2010 8:05 PM

Celiac Disease
Tips for sun-sensitivity

You can get protective arm sleeves from sun protective clothing companies such as Coolibar. Here is a link to one: http://www.coolibar.com/07003.html I have had melanoma, and I find that I often...

2/21/2010 8:51 PM

Lupus
Extreme anemia- any thoughts

Thank you so much! That was very helpful. I do have many of the issues on the symptom list. I have had stomach problems my whole life. My pcp felt that it was gastroparesis, but I am wondering if...

2/21/2010 7:18 PM

Celiac Disease
nasalady- celiac question

Sorry, nasalady replied to me earlier this week. She has celiac and was pretty helpful, so I just posted here. Sorry if I did something wrong....

2/20/2010 2:55 PM

Lupus
Extreme anemia- any thoughts

I have history of severe anemia and very, very low vitamin D levels. I had a uterine ablation done last year, and have been on 1,000mg daily for over a year. I am reposting this from another board,...

2/20/2010 2:54 PM

Celiac Disease
nasalady- celiac question

I had posted a couple of days ago about celiac disease. I had more blood work done and got the results. My ferritin level was extremely low. Due to this, combined with very low serum iron and very...

2/20/2010 2:24 PM

Lupus
celiac disease?

She is testing me because despite the fact that I had a uterine ablation last summer to end my heavy periods, my blood work is not showing improvement. My iron serum, hemoglobin, etc., have not been...

2/13/2010 9:06 PM

Lupus
celiac disease?

I found this thread that was helpful on this topic. http://www.healingwell.com/community/default.aspx?f=29&m=826889 I'll be curious to see what my test results bring....

2/13/2010 7:04 PM

Lupus
celiac disease?

I have been popping in here off and on while I try to find out what is wrong with me. Brief history- family history of RA, anemia, gastroparesis, Raynauds, high ANA test, extremely low vitamin D,...

2/13/2010 12:09 PM

Lupus
heated blanket or heated mattress pad?

You all have sold me. Blanket it is! I hadn't thought about lying on the wires, and being able to throw it off if I got too hot. Now to find a good deal on one. Kohl's anyone????...

12/8/2009 8:24 PM

Lupus
heated blanket or heated mattress pad?

I know many of us here suffer from the cold achies. I am looking at either a heated mattress pad or a heated blanket. I wondered if anyone here could recommend one over the other. Wish I had it...

12/7/2009 5:42 PM

Lupus
Sick and tired of being sick and tired

I have posted here on and off for a while. I do not have a diagnosis, but do have family history of RA, high ANA, Raynauds, stomach inflamation and gastroparesis, joint pain, anemia, etc. I think I...

11/22/2009 8:47 PM

Lupus
Please give your thoughts on diagnosis...

I have posted here in the past. Quick review- Raynauds, anemia, gastoparesis, high ANA test, pain in joints, particularly feet, elbows, fingers, strong family history of RA. Sent by primary doc to...

11/1/2009 7:35 PM

Lupus
What are the determining factors for a diagnosis?

I have been having issues with my health for over a year. Last winter, I was found to be extremely anemic. Was treated for that and had a uterine ablation. Also, very, very low vitamin D levels, so...

10/26/2009 6:30 PM

Rheumatoid Arthritis
Vitamin D deficiently, could it be that simple????

It could very well be the deficiency that is causing your pain. I was having horrible pain all over last fall and winter, to the point that I could hardly walk at times. I had blood work done and my...

8/13/2009 8:39 PM

Lupus
Psoriatic Arthritis anyone?

I have been trying to solve my health mystery for about 6 months. Quick background- I was having a lot of trouble with joint pain, general feeling crappy, terrible pain in my feet and elbows, as well...

8/8/2009 2:34 PM

Psoriasis
Psoriatic Arthritis anyone?

I have been trying to solve my health mystery for about 6 months. Quick background- I was having a lot of trouble with joint pain, general feeling crappy, terrible pain in my feet and elbows, as well...

8/8/2009 7:36 AM

Rheumatoid Arthritis
Psoriasis anyone?

I haven't been around for a while. One of my little guys is getting his tonsils out Wed. and other one starts PT tomorrow, so I have put my health stuff on hold for a while. I came here after...

8/2/2009 2:06 PM

Lupus
finally heard from doctor- frustrated

I had to call to get the results of my labs. Spoke to the assistant who said my lupus test was negative, don't know what test that was that told that. (Previous ana was 1:640.) Told me doc wanted me...

7/1/2009 8:40 AM

Lupus
Do you think this affected my appointment?

I had my first rheumatologist appt. last Tuesday. I had had a D&C and a uterine ablation on Monday. I fear that the drugs I got on Monday skewed the things the doctor looked at on Tuesday. I went...

6/27/2009 5:27 PM

Lupus
Had my appt. today

My pcp had ordered the ana test in May. When it came back positive, she sent me to the rheumatologist. He ordered several other tests to get more information. Does it say anything that the numbers...

6/23/2009 6:55 PM

Lupus
Had my appt. today

It was very interesting. He asked lots of questions, did some joint tests. He said that given my family history, it could be an auto-immune disease. I did find out that my ana was (hope I get this...

6/23/2009 4:09 PM

Lupus
Can lupus affect your stomach?

I am having my first rheumy appt. Tuesday. I am getting everything together in terms of paper work and lists of symptoms. My question is, can lupus affect your stomach? I have terrible problems with...

6/21/2009 8:22 PM

Lupus
Is this what it's like?

I am not having a good day. Very tired, joints in my fingers aching, elbows aching, head is foggy, feeling very much like I'm coming down with something. But, I know I'm not, because I get this way...

6/9/2009 4:48 PM

Lupus
Fifth disease

Fifth Disease is a viral disease. In children, it can cause a fever and then a rash on the cheeks that really does look like their cheeks have been slapped. One of my kids had it over Christmas break...

6/9/2009 6:49 AM

Lupus
Another rash question

I have developed a rash on my chest. It is covered with little white-ish bumps. A quick re-cap of me: I am waiting on my first rheumy appt. on the 23rd. I have a positive ana test, raynauds, a...

6/7/2009 6:58 PM

Lupus
Vitamin D?

I was looking through old posts and came across a thread about vitamin D. (First want to say that I am waiting for my first rheumatologist appt., no official diagnosis.) When I had my routine...

5/30/2009 8:33 PM

Lupus
New here with a question or two

Hello! I am so glad to have found this forum. I am a 42 year old mother of 3 boys and a reading teacher at an elementary school. I have had several health issues in the past 5 months, and I wanted to...

5/28/2009 7:19 PM

Lupus
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