Cathy, you are correct everyone reacts differently to pain and it's the very same way with medications. My husband had back surgery 2 years ago, he was sent home with 10 days of 7.5 hydrocodone....
Welcome to the forum Wayne TX. You have landed at a good place to ask questions. I have crohns & joined HW back in 03. I learned more about crohns here at HW than any dr could have told me. In fact...
Clo, I've been with many different pain mgt drs since 1995! This is when they first started out, lol. None of them has ever told me or said they would become my primary physician. They are not...
Hi Cathy, congrats on getting the knee replacement, in time you will be very glad that you did this. You are still pretty fresh from surgery so the post op pain is still a big factor. Keep doing...
I went to Stelara's website & it states, fatigue, headache & mild itching are possible side effects. From what I've read here at HW feeling tired for a day or two after the injections are fairly...
I was hoping for better news from you. More waiting for testing & getting results back, jeez....
Lila, strictly a guess on my part given your symptoms I think you were in the moderate stage, not mild. With so many different top tier medications available today drs are starting moderate disease...
I looked online & sites stated 500-1500 is considered mild. There a lot of different medical issues that can cause this to be elevated & an IBD is listed as one of them. Let us know what your dr...
Did you get the results of the MRI? I thought I would check on you....
Prednisone causes a lot of water weight gain so try to keep this in mind. I know it's stressful gaining weight, however, you will get the weight off once the steroids leave your system. Do your best...
For constipation add Metamucil, many on here have to take something like this to help out. I haven't read of any members mentioning Stelara helped them out with it. Pushing & straining can lead to...
RS2022, sounds like you need an upper scope done especially with sinus thing going on after eating a meal. You need to let the dr know Prilosec isn't working. Good luck....
Since your increase was recent it's probably just too soon to see a real difference, give it more time. Perhaps give your dr a call & see what he/she recommends. It's positive that you can tell some...
CC, back when I started Remicade (2004) it was done at the hospital. Infusion centers had just started doing Remicade infusions, my dr was not onboard with them back then. The hospital billed my...
I did this a couple of times with Humira but I never got an infection. I got in the habit of rubbing the area a little after giving myself the shot. I just could not inject my stomach, I had a phobia...
Heya, you should be fine, but why is your gi recommending them, what are your issues? UC people often have to use the steroid enemas while on the top tier meds. Good luck & I hope you have remission...
Stelara does not affect iron levels. The sooner you can get off prednisone the better. Stelara is much safer than prednisone....
Yes, but this has been going on since Inflectra came out, it's a biosimilar to Remicade. Several years ago a lot of members in the crohns forum had to switch, most of them did fine. Drs would appeal...
RS2022, it's frustrating when we don't get definitive answers. Do you have a copy of your biopsy reports? If not request them, perhaps post the final results on here. What is the location of the...
Did the dr take biopsies when he did the scope? If so, what did the report state, if you have a copy of the report you can post the results here....
When my pain get bad I take the Tylenol 8 hour Arthritis strength it's extended release with a higher dose (650) of acetaminophen. The massive amounts of antibiotics has destroyed the good flora in...
Pam, what antibiotic were you & for how long? Did you take any probiotics during this time?...
I think it's a draw, you did the right thing by staying on top of things in such a short window of time. Pat yourself on the back for getting this done & you being able to keep your infusion on...
Ruth, I can't help you with a tooth ache. Just a thought, how do you get around for normal activities, do you have a wheel chair? Have you ever tried wearing sneakers? The only ones I have found to...
Ask for a referral to an ENT for a consultation. If the surgeon refuses to do it, ask your pcp to make the referral....
Hi Buttercups, I have crohns, my appendix was removed in an emergency situation, once the surgeon took them out he realized there was nothing wrong with them. He made another incision & found a...
Hi Dinosaur Girl, you've been through the wringer with multiple surgeries & a variety of treatment in an effort to get your pain levels down. What your drs are saying about you being stable is from a...
Hi Cass, I don't have any first hand knowledge about this type of surgery. However, I want to let you know this forum is really, really slow activity wise. Now is a good time to make a list of...
How long have you been having the issues & what are your symptoms? I would not give up on Remicade so fast if it has been working. None of the biologics are 100% bullet proof, sometimes we can hit a...
This is not uncommon at all this soon after surgery. It takes months to heal from this surgery. The fatigue is often associated with anesthesia, not to mention the trauma your body went through from...
Hi James, this forum is really slow. I suggest that you contact your insurance & see what they say about this particular medication. Each policy is different on what they will or will not cover when...
CC, I went through the archives & the members contacted the company at the number I posted for you, plus you have to print off the form that both you & the dr has to fill out. Personally, I would...
Hello, what did your surgeon tell you after seeing the x-ray? Has your swallowing issues gotten worse or stayed the same? Sorry for the questions, just trying to get better idea....
I looked too, one place said there was a form to download, when others said to call them directly on how to apply. Here is the number if you don't already have it, 844-722-6672. They have reps that...
Not sure what treatment you have had in the past or if you are still treating. As I said before you need treatment from a pain mgt dr that is well versed in CRPS....
You have had 2 doses of Remicade if I am reading your post correctly & should have 1 more loading dose to go. It's too soon to know if the Remicade will work, the prednisone is helping no doubt. It...
Stelara is a slow starter, improvement is gradual over time. What may work in your favor is you did have improvement with Inflectra & you are not starting Stelara in a moderate or severe flare...
Not sure what the nurses can do to help you, I would put in a call to your dr tomorrow. The scheduling lady is not a dr. Keep us posted....
Causalgia is CRPS. Not sure what treatment you have had for it, but the dr must be well versed in treating CRPS. How did you injure your arm?...
Orthopedics do not do the ablations, those are done by pain mgt dr....
Bucko, I looked up the city, very small town, less than 7500 people, appears to have a small hospital. As Paul pointed out, it is very cold up there. I did not look to see what the largest city would...
Hello, if in fact you have RA, DMARDS such as methotrexate are prescribed. The only time prednisone is used is for a short term until the methotrexate kicks in. I suggest that you go to your pcp &...
I've used GoodRx for years monthly. I ran through my prescriptions to check the pricing & they are all stayed the same. Not sure why if it's a state to state change or what. I'm happy that mine...
The ablation is called RadioFrequency ablation, this is a procedure used to treat pain & is done by a pain mgt dr. You can search it on the net to see what it entails. I know for necks & backs you do...
I like tea, peppermint was a favorite but tea just doesn't agree with me. How are you doing now, were you able to get a stool test done? I'm thinking that was in the works the last time you posted....
Glad to see you check in, sorry to read you are still having some issues. The few members here in the past that had more surgery were ones that some issues show up on their MRI, it just wasn't bad...
I can't tell for sure either if you are approved for Stelara. Do you have a patient portal, if so give it a day or so & send an email asking if you have been approved. Another thought too, if you...
When you & your dr were discussing this surgery did he indicate how long the recovery would take? I'm assuming you have done physical therapy, how did that go? Perhaps it's time to see if you can get...
Hi HomeBass, I think many of us have had to deal with well meaning spouses, family members & friends all wanting to assess our lives & give input on how we can miraculously become almost normal...
Hi vkj, sorry to read about what you are dealing with. Unfortunately, this forum has pretty much died, very little activity. One thing I will point out, long distance relationships can be very, very...