My now 15 yo DS has been chronically ill for 2.5 years. Prior, we was treated for Lyme disease (Western blot positive) when he was 2 and again (Igenex) when he was 10. His symtoms then were primarily...
Hi all -- have had Lyme etc for at least 5 years. Have been off ABX for 9 months and feeling pretty good. Decided to slowly get back to my running routine and BAM! Major herxing. After two weeks I...
Was feeling great (for the most part) and went off my Rifampin/Zith regimen that I've been on since December just 10 days ago. Started with the familiar neck stiffness and joint pains on Saturday,...
6 months and counting for me on Zithromax 600 mg and Mycobutin 500 mg. Really want to get off some meds but am afraid to go from where I am now (5-7) back to where I started (1-2 on a 10 pt scale of...
Consider having your adrenal function checked, too. Thyroid and adrenals often go hand in hand....
I was on narcotics for 2.5 years. Just detoxed from them 4 weeks ago. They not only mess with your liver, but with ALL of your other systems as well. I am hypothyroid and have adrenal fatigue and...
Has anyone ever made the above connection? My son and I both have been taking Zith/Rifampin for about 4 months and we've both had horrible insomnia. Today, his doctor said to stop the Zith for a few...
Does anyone have ligament/tendon pain as a side effect of the above? It' s not the same as the pain caused by Lyme for sure....
Just want your opinions on sleep medications' effect on depression. I can't sleep w/o Ambien or Restoril, but my depression is raging. Suggestions please -- I'm desperate....
Can someone remind me of the doc that recently moved from the NC area to DC? My Lyme Brain can't remember!...
Hi, I hang out at the Lyme forum mostly, but I thought you all may be able to help me here. As you may know, Lyme disease can cause chronic pain. At first, my Lyme doc put me on vicoprofen and then...
I've been on hydrocodone pills for 2 years, and recently my LLMD referred me to a pain management specialist. He added oxycodone 20 mg 2/ day. This helped for a while, but then stopped helping so...
It's an exercise program, not dance though. Google T-Tapp and the website will come up. (I am not affiliated.)...
Hi Merrygirl, I also have Lyme and am hypothyroid (hence the 9 medications). Let me know how the drug combo works for you. I think I will go back on Cymbalta to see if it helps. Can't get worse....
Hi, I have been on Cymbalta 60 mg for about 9 months and my doc recently added Wellbutrin 300 mg. My doc and I tapered my Cymbalta dose down and I have been "clean" for about 2 weeks. At first I...
My sister swears by this type of exercise.. and it's supposed to be good for people with chronic health issues. Just wondering if anyone had tried it and had success stories (or otherwise)? thanks....
Yet another new symptom since starting the Zith/Rifampin combo. Waves of dizziness even when I'm sitting down. And when I close my eyes, I feel like the room is moving. Anyone else have this? Does...
Vit D is very important to the immune system and many with Lyme are deficient. 50,000 ius is a common dose for deficiencies....
I'm on Diflucan right now and have been for a week......
Does anyone use essential oils in their sauna?...
What is stage 3 Lyme? I've never heard of it categorized that way......
Does anybody else have this? It comes on so quickly -- my head feels heavy, like there's something that needs to get out.... and every little thing grates on my nerves. I can't speak without snapping...
I have congestion in the ears where my I hear crackling noises when I blow my nose. I've had allergies all of my life and never experienced anything like this. Maybe the Lyme is just making them...
Very thick mucous in my throat that won't come up but is also hard to get down. It began shortly after beginning Zith/Rifampin combo, so I assumed it was yeast. Treatment with Diflucan has done...
Would love to correspond offline about your treatment/experience there. If you want to, e-mail me at twahler@hotmail.com...
Razzle, I had the same reaction after starting my latest round of antibiotics (Zith/Rifmpin). My left leg especially was very tingly and felt like it was asleep all of the time. It's getting better...
I recently read this: A Herxheimer reaction (herx) is a sign of a poor treatment plan and is unnecessary. A herx greatly increases the toxic load on the body; at its worst it can kill an illness-...
Kitty: Dr M in Rockville?...
Hi all – I received my FIR sauna yesterday and used it for the first time last night. I have to tell you, I felt WONDERFUL when I got out of there; reminded me of when I was a teenager and spent the...
Re: antibodies: my LLMD uses a new test that measures bartonella antibodies. They also culture the blood. My antibodies rose after treatment started. These tests are not approved yet, of course. Here...
There's no pain when I press, and the pain occurs every few minutes for a very short burst...
I have been having this pain for the last three days and wonder if it's related to Lyme or not. Short, stabbing pains -- not awful, just uncomfortable -- near my appendix. Just wondering if I need to...
I just came back from my LLMD. I've been on my (6th???) treatment protocol since being diagnosed 3 years ago. He says my antibody levels are rising, which is a sign the treatment is working! I feel...
For those of you on gluten free diets, why did you decide to go there? Were you diagnosed with gluten sensitivity, or did you decide to try it to give your system a break? My LLMD won't test me for...
My LLMD thinks that Fibro IS Lyme. Don't give up trying to get better. I'm on narcotics for the pain -- I know some are really against it, but it helps me live some semblance of a normal life....
My one-person should arrive next week -- I can't wait!...
You know, the neck, knees, shoulders that all snap, crackle & pop because of the chronic Lyme -- will that get better once the Lyme goes away -- or is it something that I have to live with? My neck...
I hope I can remember them all! I don't recall how long on each, but here goes. In the last 4 years, I've been on some combo oF: Minocyclene/Benicar Mepron Biaxin Samento Colloidal Silver I know...
How can you tell if your symptoms are from yeast overgrowth or Lyme? And how can you tell if your yeast is under control without a stool test?...
Has anyone had their long-gone symptoms return during treatment? I'm in my 6th week of treatment for Bart (Zith + Rifampin) and my feet and legs are going numb and tingling, and my muscles are...
My doc said the same thing about MS. He claims to have cured at least a dozen MS patients through antibiotic treatment....
Wow, that was so inspiring and just what I needed -- thank you!...
I no longer feel hope for getting better. It's the worst feeling in the world. I'm so tired of never feeling good. For living hour-by-hour, just trying to get through and not enjoying anything. New...
Thanks Nicky -- that makes me feel better! Right now it doesn't feel like I'll ever get better. Can I ask how long were you sick before you started treatment?...
It's strange that you write this. The last time I had a blood draw, the blood from my left arm was too thick to draw... but they got some from my right arm. This happened twice that day as I had two...
i've been on treatment for Bart for 6 weeks. (600 mg azithromycin; 300 mg mycobutin (Rifampin). It's making me have NO good days and when I herx (like now), the days are really bad. Is there anyone...
I'm interested in everyone's yeast control plan? Diet, supplements, etc--what do you do to control yeast overgrowth, especially while on antibiotics?...
Ugh. I should have guessed - I have always had a yeast issue. But I'm doing everything I think I can -- high-quality probiotics; low sugar diet; and a yeast cleanse supplement. Any other suggestions...
Can thick, strangling mucus in the back of the throat be related to Lyme? I've had this really badly for the last two weeks -- it's the middle of winter so I don't think it's allergy related. I'm on...
I would suggest a full food sensitivity panel rather than just gluten -- I did one a few years ago, and I had sensitivities to almonds and a few other foods that I would have never guessed. Even if...