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cyclinglady

HealingWell Forum
>
Member Profile
Display Name
cyclinglady
Profile Created
8/1/2015 11:17 AM
Last Seen
7/21/2019 7:41 AM
Total Posts
267

Last 50 Posts

Diclomine and low carb diet for IBS but still need ideas

Have you ever been tested for celiac disease? I was given an IBS diagnosis years ago. Turns out, I actually had celiac disease all along and not IBS “I Be Stumped”. Celiac disease has over 200...

7/21/2019 7:41 AM

Irritable Bowel Syndrome
Lower abdominal cramping and bloating everyday

Did they they biopsy for celiac disease during your endoscopy? Consider asking for a celiac disease blood panel. What was the root cause of your reflux? Did gastric biopsies reveal anything else?...

7/18/2019 5:38 AM

Irritable Bowel Syndrome
Possible Mononucleosis?

Your doctor can check for mono via a lab test. Lab results will indicate if you have ever had it or if it is active....

6/8/2019 8:35 AM

Chronic Fatigue Syndrome
Buspirone (buspar) for IBS?

I was once diagnosed with IBS. Decades later, I was diagnosed with celiac disease. My only symptom at the time was anemia. I had eliminated my GI issues by eliminating some foods, but not gluten....

5/18/2019 10:06 AM

Irritable Bowel Syndrome
And then....

Lynwood, besides checking your blood sugar, consider getting your thyroid checked. When I feel the need to nap (and I do not have an infection), it is usually my thyroid. Often a medication (thyroid...

5/18/2019 10:00 AM

Diabetes
Levofloxacin and Ciprofloxacin increase the risk of peripheral neuropathy by 47%

My medical file for years has shown that I have an “allergy” to this family of antibiotics. I was given Cipro (name brand) via IV after surgery years ago without my knowledge. Afterwards, I developed...

5/14/2019 11:34 AM

Lyme Disease
MEDS

If you are looking to put off medications, consider the Autoimmune Paleo Diet (AIP) which has been reported to help some RA patients (and other AI patients). There have been no large studies, but...

5/1/2019 5:59 AM

Rheumatoid Arthritis
Secondary Progressive MS

Hi! While I do not have MS, I do have three autoimmune disorders. My Mother in Law did have MS and was on copaxane. Since I have celiac disease, I had to change my diet. Gluten free is the only known...

4/17/2019 5:56 AM

Multiple Sclerosis
Need Help with Fasting Levels

You have the right attitude. We all have unique issues and treatment must be modified to accommodate them. It is unfortunate that we must be in charge of our health. It is rare to find a doctor who...

4/16/2019 9:45 AM

Diabetes
Need Help with Fasting Levels

I would suggest that you find a doctor who will test your antibodies for type 1 diabetes (TD1/(autoimmune diabetes). You may very well have LADA which is sometimes referred to as TD1.5 as it is...

4/15/2019 7:43 PM

Diabetes
To colonoscopy or not - more decisions for my kid

I agree that a celiac blood test panel should be done before even thinking about going gluten. Too many people end up in diagnostic limboland when they go gluten free as all celiac tests (even...

4/2/2019 2:06 PM

Ulcerative Colitis
Kappa Lamda Light Chain Blood Test

First, I am not a doctor. I can only speak from my own personal experience. I am kind of in the same boat. I have high Immunoglobulin A (IgA) that was caught each time I have had a celiac disease...

4/2/2019 11:09 AM

Rheumatoid Arthritis
Eating well

No specific ideas, but I can suggest you do food prep and cooking on one or two days, so that you have meals on hand when you are tired and burned out. I like this video series on you tube (no ties...

4/2/2019 10:53 AM

Diabetes
Hashimoto's and skin disorders

True. The same holds for celiac disease and the antibodies associated with it and the severity of intestinal damage....

3/31/2019 8:08 PM

Thyroid Disorders
Hashimoto's and skin disorders

I have not heard of this link. I do have Hashimoto’s, autoimmune Chronic Gastritis and celiac disease. I have experienced bouts of hives (lasting for about six months) after a gluten exposure which...

3/30/2019 6:05 AM

Thyroid Disorders
cured hypothyroidism

@Girlie - Easy to make a mistake. You are so busy helping people on this forum. Just wanted to thank you! 😊...

Yesterday 1:23 PM

Thyroid Disorders
Do Probiotics Really Help With IBS? What kind is best?

I think finding the root cause for your IBS is critical. I went through several GI’s who diagnosed me with abdominal epilepsy to IBS. Turns out I have celiac disease which can develop at anytime....

Yesterday 1:13 PM

Irritable Bowel Syndrome
weight gain and dm

I am assuming that you are referring Type 1 diabetes (can develop at any age) where excessive thirst, increased urination and losing weight are common symptoms. The only way to know is to get your...

Yesterday 1:03 PM

Diabetes
Do Probiotics Really Help With IBS? What kind is best?

Honestly, no one really knows how they work or if they are really effective: Learn more from this article from University of California, Berkeley:...

3/23/2019 5:03 PM

Irritable Bowel Syndrome
Started with IBS-D and now Constipation

Have you been tested for celiac disease (it damages the small intestine)? Celiac disease can develop at any age. It often goes undiagnosed for years if not decades. Learn more about this disease and...

3/23/2019 4:56 PM

Irritable Bowel Syndrome
Is it IBS os something else? Having multiple symptoms

Consider getting tested for celiac disease. I personally would not accept an “I Be Stumped” diagnosis. Try to find the root cause of your symptoms. Constipation is very common in celiac disease and...

3/23/2019 4:54 PM

Irritable Bowel Syndrome
cured hypothyroidism

A TSH at 8 is out of range. You should insure the rest of your thyroid panel is done. Consider asking for thyroid antibodies testing to find the root cause of your hypothyroidism. Your doctor will...

3/23/2019 4:47 PM

Thyroid Disorders
Microscopic Colitis verses Celiac Disease

I think you might need to consider a new doctor who might be more celiac-savvy. The recommended amount of gluten is about 10 grams or 1 to 2 slices of bread per day for about 6 to 12 weeks (only 2...

3/23/2019 4:40 PM

Celiac Disease
low T3 medication adjustment

Then my comments do not apply to you. If anyone has thyroid panel results out of range or an enlarged thyroid, antibodies should be checked before going on thyroid replacement (or drugs to suppress...

3/17/2019 7:07 AM

Thyroid Disorders
low T3 medication adjustment

All thyroid labs in good range with thyroid hormone replacement? Knowing you have antibodies can help you and your doctor look for two other very common (share same genes) for Type 1 diabetes and...

3/15/2019 3:21 PM

Thyroid Disorders
Nausea

Did they test you for celiac disease? I think Canada even has an OTC test like GB....

3/15/2019 2:42 PM

Sjogren's Syndrome
Perimenopause and gastroparesis, anyone?

Ask your doctor to check you for celiac disease. It can often develop after a life stressor like menopause/perimenopause. It can slow down food because your small intestinal villi is damaged. It also...

3/15/2019 2:39 PM

GERD & Acid Reflux
Not sure if its UC

Be sure to check his lab work. Not all doctor’s order the entire celiac panel. The screening TTG is good but does not catch all celiacs. Also some 10% of celiacs are seronegative. Please have the GI...

3/13/2019 3:02 PM

Ulcerative Colitis
Could this be Crohn's?

Hey there! Before you rule out celiac disease, please make sure the entire celiac panel was given and not just the typical screening TTG tests). Know that some celiacs (about 10%) are seronegative....

3/13/2019 2:54 PM

Crohn's Disease
Nausea

You can have more than one autoimmune disorder. Consider a GI referral....

3/6/2019 8:11 PM

Sjogren's Syndrome
low T3 medication adjustment

Sorry, a bit late responding. When I was diagnosed with Hashimoto’s, it was caught because my doctor felt my thyroid which was enlarged and I had some nodules. All thyroid tests were normal except...

3/6/2019 7:06 AM

Thyroid Disorders
Apps to monitor IBS and bowel movements

Please research celiac disease which can cause GI mobility issues, constipation, SIBO, etc. about 1 in 120 have celiac disease (it is genetic), but only 20% are diagnosed. Why? Doctors think that...

2/28/2019 10:25 PM

Irritable Bowel Syndrome
Just what is irritable bowel syndrome?

IBS could mean......“I be Stumped.” I am not a doctor, but I once settled for an IBS diagnosis and later found out I had celiac disease: https://www.beyondceliac.org/celiac-disease/get-tested/...

2/28/2019 10:20 PM

Irritable Bowel Syndrome
Non functioning gallbladder and motility issues

Have you been tested for celiac disease? It can cause mobility issues, constipation, gallbladder (not functioning) etc. Testing starts with a simple blood test:...

2/28/2019 10:13 PM

Irritable Bowel Syndrome
low T3 medication adjustment

You have been given excellent advice. Why test for antibodies? This will determine the root cause of your thyroid issues. It can explain thyroid swings or changes. It also allows you to monitor for...

2/27/2019 6:14 AM

Thyroid Disorders
low T3 medication adjustment

You have been given excellent advice. Why test for antibodies? This will determine the root cause of your thyroid issues. It can explain thyroid swings or changes. It also allows you to monitor for...

2/27/2019 5:48 AM

Thyroid Disorders
GI Issues

Have you been tested for celiac disease? A damaged small intestine can slow down everything. It can impact your gallbladder (My HIDA scan revealed 0% efficiency). If my celiac disease diagnosis had...

2/14/2019 6:37 PM

Sjogren's Syndrome
Healing naturally from GERD - Is it possible?

@Paulie B. — what was the root cause of your GERD? I saw your previous post indicated thyroid issues. Do you have autoimmune thyroiditis (e.g. elevated thyroid antibodies as seen in Hashimoto’s...

2/10/2019 9:27 AM

GERD & Acid Reflux
Cold sweaty feet?

I am sorry that you are so stressed and are experiencing anxiety. While I do not have UC, I am your age and deal with autoimmmune disorders: celiac disease, Chronic Autoimmune Gastritis, and...

2/9/2019 8:21 AM

Anxiety & Panic Disorders
Crohn's & Children

While they are runnings the tests, have them include a celiac panel as well. Both Crohn’s and celiac disease are autoimmune disorders. https://www.beyondceliac.org/celiac-disease/symptoms/ I suffered...

2/6/2019 8:54 PM

Crohn's Disease
How to get tested to find if I have IBS?

Consider getting tested for celiac disease. Once you have one autoimmune disorder (AI), you can develop more. Celiac disease can cause constipation and bloating as everything can slow down if their...

2/6/2019 8:42 PM

Irritable Bowel Syndrome
IBS flareups while trying to sleep

Consider getting tested for celiac disease. IBS (I was once incorrectly diagnosed with it) usually does not wait you out of sleep. Something is wrong. Celiac disease is systemic and symptoms are like...

2/6/2019 8:29 PM

Irritable Bowel Syndrome
Diabetes and now possibly MS?

Type 1 Diabetes and celiac disease are strongly linked. The symptoms you described could easily be attributed to celiac disease. Celiac disease is systemic. It does not always cause GI symptoms. It...

2/6/2019 7:58 PM

Multiple Sclerosis
Is a biopsy necessary for a celiac diagnosis

Celiac disease is still diagnosed with blood tests (antibodies) and an intestinal biopsy. A CT scan can not diagnose celiac disease because the damage to the villi is microscopic. There are reasons...

1/13/2019 7:39 AM

Celiac Disease
Doc is denying I have active disease

I am so sorry that you are ill! Have other concurrent autoimmune issues like celiac disease been investigated? Autoimmune disorders tend to cluster. This sounds like it is way out there, but diet...

1/5/2019 8:06 AM

Crohn's Disease
Feeling hopeless after surgery didn’t clear up pain/vomiting...

Please make sure they ran a full celiac panel and not just the screening TTG blood test (antibodies) which does not catch all celiacs. Also make sure they take enough biopsies of the small intestine...

1/5/2019 7:38 AM

Crohn's Disease
Keto diet and crohns. Happened by accident but results cannot be denied.

It looks like diet can be very beneficial for IBD patients. This tiny study done at Scripps in San Diego placed IBD patients (Crohn’s and UC) on an AIP diet (Autoimmune Paleo) for six or eight weeks....

1/5/2019 7:30 AM

Crohn's Disease
Gerd/LPR question for anyone that has taken Thyroid meds (Synthroid, Cytomel, Armour etc)

Consider being elvauated for Autoimmune Gastritis which is commonly linked to Hashimoto’s. Also consider getting screened for celiac disease which is also linked to Hashimoto’s. Check your thyroid...

1/4/2019 5:17 PM

GERD & Acid Reflux
UC diagnosis changed to Chrohns

I am sorry about your diagnosis. I do not have IBD (I do have celiac disease), but a friend who is my age (nearing retirement) is doing well. Her focus has been on exercise and diet all these years....

11/30/2018 7:20 AM

Crohn's Disease
Flare and pregnant not on meds

While I do not have Crohn’s (my niece does), I do have autoimmune Gastritis, celiac disease and Hashimoto’s Thyroiditis. When I went Gluten Free for celiac disease (in full remission based on repeat...

11/26/2018 9:31 PM

Crohn's Disease
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