hi NostalgicCowboy, You can see a topic I posted recently about my good experience post-surgery. I'm 8 months out since the last surgery and in really good shape. I had UC for 20 years before my...
I've heard that it's safe. Doctors don't really know how it works but it's great for some medical issues. Last I checked (about 2 years ago) it was not approved for use for Chrohn's/ UC and would...
Thanks for all the replies! Old Hat - You are amazing to remember that! I am actually going to Europe this summer for the first time since that trip many years ago when I stocked up on the asacol...
Hi all, I used to follow this group closely and I thought I'd just report back from the other side of J-pouch surgery. I'd feared surgery for so long and was devastated when I was told that I had to...
These kinds of surgeries can cause hernias even if you are really careful about exerting yourself, so don't feel bad if that's what it is. I know of two people who got hernias from abdominal surgery...
Thanks very much for the helpful info! It's amazing what you don't get told from the surgeon's office. Marianne -- Thanks for saying that the first days after takedown are nutty. I really like that...
Hi. I'm scheduled for my take down surgery in a couple weeks. My surgeon is in a city an hour and a half from where I live. For the last surgery, my spouse and I stayed in a hotel for a couple days...
I just thought I'd follow up to say that I've had the pain again in my upper abdomen/chest/sternum area and Keith was definitely correct -- it was a partial blockage. (Interesting that the surgical...
Thanks so much, Keith! I actually mentioned the pain to the surgeon but it was in the middle of a conversation and he didn't give it much thought. The resident, with whom I spoke at length, didn't...
Hi. I'm two months post-surgery. I have a temporary loop ileostomy and will have my second j-pouch surgery in a month. Three times I have been up in the middle of the night with pain in my sternum...
Kinda surprised that no one has mentioned vulvodynia yet. A very common and often misdiagnosed condition that causes pain and uncomfortableness. Can be caused by inflammation, antibiotic use, vaginal...
Just wanted to say that I had similar problems with my hair really falling out and being thin. I think it was the asacol I was on. Could have also been the periodic doses of prednisone and all the...
Thanks for these replies. The concerns I have are that both drugs increase the risk of lymphoma and play around with your immune system -- maybe increasing risk of infection, illness? -- but I...
I'm wondering if anyone is on both Remicade and 6MP and could tell me about your experience. My doctor says that the two together have good results but I don't like the idea of taking two toxic...
Look up "pressure urticaria" and see if that's what it looks like. I've had that off and on and it doesn't seem to be related to the colitis meds. Dermatologist fixed it with a shot of antihistamine...