Sue and summerstorm, I for one am so glad to hear about your experiences. As of last colonoscopy in February, my UC is limited to the rectum and about a 1 foot up...the rest looks great. As my doctor...
Wishing you the best. Know that you are not the only one who is considering surgery. It is my next step. I have not been successful with any of the drugs. I have been on 6mp, prednisone, Remicade and...
Thank you so much for your reply about Dr. Dahlman.....I really do appreciate the feedback. I have not spent any money with him yet. I prefer to meet with a doctor face to face. I am very excited I...
I can't wait to hear about this! I wish you all the best....
I am on the fence about this. A part of me knows there is no cure and I don't want to waste my money. There is also that part of me that wants to believe that if I changed my diet and took some other...
A friend of mine told me about a website and information on a Dr. Dahlman and what he proposes be done to help treatment of UC and Crohn's. Just wondered if anyone has heard of him or has ever tried...
Wow! This is great to know! I did not know this. So do you go more often but without pain?...
Thanks so much to everyone for your replies. Andy, I have looked into all the good and bad about the surgery. I think I have been really researching this for the past year. I have been in denial...
Oh and by the way, I am not taking any meds currently except for enemas. I am also taking probiotics and multivitamins. I did update my profile but I guess it didn't post yet....
I would love to know if anyone is feeling like me and considering having surgery? I do realize this is my own personal choice however, I would like to know if anyone has recently had it and how they...
I would love to know this too. I have suffered from a mild/moderate case of UC for the past 20 years and it's getting to the point that I am considering surgery because all possible meds don't work...
Glad it all worked out for you! I have done the "chasing" thing before too, but not with apple juice. I just can't remember what it was I used but, anyway, it works great to do that. I have never...
Wow! I experience the same thing. In fact, yesterday after leaving the doctor's I was stuck in traffic and had both of my small kids in the back....scared to death about needing the bathroom. I have...
Thank you for your reply. I did start Humira yesterday. We'll see how it goes. I also had to be bumped up on the Prednisone again because of the flare I was having. It was way to much blood, in my...
Can anyone please tell me if they are on this and if it's working for them? I have been looking through the threads here for as much information as possible. I am due to start this treatment...
I am especially interested in hearing any thoughts on Humira. I am on Remicade now and it's not working....Dr. increased my dosage on the Remicade however, it's still not helping. Dr. is suggesting...
I for one am so glad to read these posts and so very glad to have found this site myself. I am constantly gathering information. It is so true to be able to hear what other people say regarding this...
I was told by my GI to take it on a regular basis. However, I am not totally comfortable with this and so I don't do it. I just take it as needed....
Well, for the next 30 days or so, Virginia Beach, VA but moving to Cape May, NJ....
Thank you so much everyone! I appreciate it....
I have looked on here for this subject but couldn't find it and thought I would see if anyone has had experience with this and if so, what is your feedback? Thanks so much!...
I've been on Remicade for a while now and funny thing is I notice it a bit too. I'm 36 and my husband is 33. We've been married almost 7 years and together though for 10 so, he has known all about...
I wanted to respond to this about probiotics too. I have been taking them regularly and it has helped me so much. I take culturelle. (I think that is how you spell it) Anyway, I also must say that I...
Thank you so much for this reply. Good to know it could take a while...
Thanks to those who replied to this. I really appreciate it. I don't know why they don't offer this in the US...wish I could tell you....
Well, I can retain the Rowasa for about 15 min or so...not bad but still I would hope for longer......
Yes, I did forget to say that part I think. I do take rectal meds now...I do one Rowasa a day and sometimes, but not everyday, a cortenema. The trouble is, I have a hard time holding it in there. I...
So I had a flare about well, 4 weeks ago now. I have been on Prednisone, now down to 40mg a day. I am still not doing as well as I think I should. I am still having mucous and more trips to the...
Hi Mark and welcome! I am currently on prednisone for a flare that I just had. I've been on and off the drug ever since I was diagnosed. I for one don't seem to have any problems with it. I do...
I for one take it very mild. I just had a bad flare myself....I stay away from milk and milk products because It really seems to bother me, even when I don't have a flare going on but, much more so...
This is wonderful news. I am glad to hear about the Humira working. I was supposed to start it but, my dr. wanted to check to see my anti-body levels of Remicade. I am waiting on those results and...
I may have to have my dose of Remicade changed from 5mg to 10mg and then have it moved to 6 weeks instead of 8 weeks. I am going to find out next week depending on the results from my blood test. The...
I have had UC for over 20 years and just started Remicade this past summer. I am not doing well and I just had a colonoscopy last week. She has determined that I might have to have an increased...
Well, I wake up most everyday...especially when flaring and go right to the bathroom. Almost right away. I personally have to plan my day around this. I can't just wake up and be off to go somewhere....
Totally agree with the gym. I have been very active my whole life. Before and now with UC. I find that it totally helps me keep the best shape I can and also, totally helps reduce stress. I find it...
Funny thing....I am back on 60mg of pred due to a bad flare I am having and just last night...after being on this for almost 5 days now, I am having major insomnia! The pred is still not totally...
I wish you all the best with your pregnancy. I did very well with both of my pregnancies...however, after they were born, I flared all over again. Strange how things happen. Please keep us posted. I...
I was on Remicade and well, I'm sure I still have it in my system however it's not working very well on the dosage I have now. I will find out the details Monday on what the doctor would like to do...
That is wonderful news! I'm currently having a flare and it's not very good but, I also realize these things you have said. I have good and bad times. I would say that at this point I personally have...
Dear Hobo, How long have you been on the Humira? Yesterday I talked to my doctor and she is ready for me to try it however she thinks she might try me on a higher dose of Remicade first. We'll see. I...
Thanks so much for all of this. I for one, just can't seem to decide what to do. As of today, after my colonoscopy, the right side looked great, left side terrible. I personally want to exhaust all...
Love this post.....as for me, it never fails that I do this always at the right or shall I say wrong moment! Hey, you have let it loose sometimes...it's so painful to hold it in usually! Thanks for...
Hi there! I for one would love any feedback about this too. I just had a colonoscopy today and my doctor determined that Remicade is no longer working for me. I started in June of 2007...it's now...
I will have to take notice next time I get my infusion. I have noticed weird bumps on my legs but didn't think anything of it....
Hi there! Well, I can say that I just got off Prednisone about a month ago. I was on it for about 3 months. It was a quick dosage for me to help get me back in remission. I have been on and off...
I drink coffee, every morning. Does it bother me? Well, as of this moment, I'm not flaring and it doesn't make any difference for me. Do I go more often? No, I don't drink but a cup or two and at the...
Welcome Carlow and whitey! To respond to your question, whitey on my experience with Remicade, well so far so good. I had no adverse reaction to getting the infusion. I was scared to death but, it...
I think this is great news for you too! I am also on Remicade and so far I am doing ok. Due to the fact that I have been so sick for so long, I am still afraid that I will not make it sometimes. I am...
I just wanted to say that I smoked for about 10 years. During that time I never felt better. My doctor also told me that smoking does help UC....of course, we all know it's not good for us but...
I am also on 6-mp. I started this about 2 months ago now. I am also due to have my 4th infusion of Remicade at the end of September. I also want to mention here that I was advised by my GI that I...