I too had a diagnosis of latent TB before starting Entyvio. I just finished a year of izinosid Tb meds. Was able to start the Entyvio after a month on the meds. Faith...
Had them lasered a few times. Helped a lot with the pain ....
I had a similar diagnosis a year ago. My Gi recommended I see an ibd specialist at the Orlando Hospital in Florida where I live. Had different type of colonoscopy ( blue dye contrast). There was talk...
I have UC, proctitis. Been on Entyvio since October. I’m in remission. Doing really good. Two weeks having a Prometheus test then a colonoscopy a few weeks after that. I tested positive for TB before...
I’ve used it for gas ....
I think it ups the risk. I think flaring weakens the lining of the colon. Having precancerous polyps really upped the risk. If a GI wants to start someone on Entyvio, there must be a reason. You...
Plucky most IBD docs test with the Quantiferon gold these days. I wasn’t doing well on Simponi, so the plan was to go on Simponi. I refused to go on prednisone. I tested positive twice with the...
Blood test took a week. Had it done twice.It is sent away, not done at lab. Saw the entire lab report....
Forgot to say, if you decide to go on the Entyvio you’ll need another TB test. They won’t put you on it till you have one again, my IBD doc does one every year you are on a biologic. I know that’s a...
Yup, I’m the one with TB and on Entyvio now. Just had the second loading dose. I tested positive when doing all the pre testing to start Entyvio. Had the TB blood test and tested abnormal positive....
Have fun at Disney! I live an hour away and hardly ever go . Only when family comes in . That can give you a headache. Thanks Imatrex did help. Going to ask for more....
I think flowerGirl you need to join Facebook. It’s a closed group. Nothing of it goes on Facebook . You ask to be invited. Of course they let you.all posts come to your Facebook messages. No one else...
flowerGirl, I get a lot of info when I joined Entyvio Warriors on Facebook They really only discuss Entyvio. Something to think about if you haven’t already joined....
Hi flowerGal! Wow can’t believe I’m not going crazy. Exact type of headache. Having a cat scan on Thursday. Sounds to me like a vascular type of headache. I thought maybe it was just the loading...
Went to GP doc today. Gave me a script for topamax. Not sure I should take it or wait to see Psyc doc on Monday. So many Meds ! When I just had UC I thought that was much. Look how this mushroomed....
Hey Connor! After being on the Isoniazid for a month the infectious dz doc gave the ok to start the Entyvio. Was thinking really about waiting. My UC was kind of under control with the TB Meds. I was...
Tried that calmag when I tried to come off of Clonazepam. It only made it worse. Nearly had a full breakdown. Between that and UC it was a nightmare. I think this UC and anxiety thing goes hand in...
Not sure what type of headache I’m having. I know it’s a side effect from Entyvio. I was thinking of talking to my psychiatrist on Monday. I’m still having some clenching of my jaw at times. That’s...
Connor, what do you take for the headache? I’m the one with the TB. Everything is hard on the liver or doesn’t work....
Just called Entyvio. That is a side effect. Drink plenty of fluids. I am seeing my GP on Friday. Don’t have one now. They premeditated with medrol and Benadryl. We shall see when that wears off....
I’m having brutal headaches on Entyvio. All frontal and on top of my head. Had 2 loading doses so far. The worst of the headaches happened the last 3 days before second loading dose. That would be 2...
I’m going to start Entyvio hopefully in the next couple of weeks. My symptoms since starting TB Meds have lessened. Have a few remaining. I heard it takes a while for it to work. Afraid not to since...
Will do! Symptoms are not that bad right now. I know Entyvio doesn’t work right away. So maybe this is a good time to start. I guess I’m afraid of that dysplasia I had twice this year. Hope this will...
Thanks everyone! IPoop it was not the gastro. It was the infectious dz doc who mentioned all that! Faith...
Been posting about having Latent TB. Finally after a month of being on Isoniazid drug for TB, infectious doc gave the approval to go on Entyvio. Doing well on the TB drug influenced the go ahead. Not...
Suprep I think it’s called. I just Down it and have a lemon ice pop to get rid of the disgusting taste. It’s the only one that works well for me. Not that much to drink. Miralax didn’t clean me out....
This might be a stupid question. When you go to a specialist for IBD, would tests be done to see if you have a bacteria type infection that would help cure UC or crohns. I had mega tests done when I...
Connor, I joined the Humanpara.org on Facebook. Told them my story. They said that the tb drug Isoniazid is not one of the drugs that helps with the TB germ and crohns. They didn’t say anything that...
Thanks Totes and noodles Some good ideas! Might speak to specialist and go on Entyvio. Been using rectal Meds off and on now. GI threw me to the wolves. Not sure he knows what to do? Thought GIs...
First I made a mistake on the amount of inflammation.it was 30 cm of inflammation starting in the rectum. I don’t see my regular GI at this time. I was referred to a IBD specialist in Florida...
DB, you might be right. I do have contipation now. So is your thought to go on to Entyvio to keep things from getting bad? Still going to the bathroom about 3 to 4 times....
This is quite crazy. Started on the Isoniazid for latent TB approximately 3 weeks ago. For the last 10 days I seem to have no UC symptoms except a little urgency sometimes. Been eating all kinds of...
Don’t macrophages also digest or eat the bad cells? Kind of remember a little from Anatomy and physiology from Massage school. Might be wrong....
Not sure with Entyvio, I did lose effectiveness with Humira and Simponi. Anti-TNF drugs can be different. Entyvio is supposed to work differently. I'm on another site called Entyvio Warriors on...
I now know where to go with my medical questions! 😉 Thanks again! Wish I had you at my Infectious doctor appointment lol!...
Thanks Connor! You seem very knowledgeable on TB. Glad you chimed in. Thanks for you imput. I googled a lot of it. When I was at the doctor I seemed to forget everything I wanted to ask. Going for a...
Quincy, was on 5ASA drugs a while back. My inflammation is more towards the rectal area. GI said they were not helping because of where the inflammation is. He said if it makes me feel better taking...
The infectious Disease doctor only has me on one drug. Was kind of surprised too. I saw one of the blood tests. It read abnormal positive. I wonder what that means? They actually don't know where the...
Thanks Suzy-g Doctor has me on b6. Testing 6 weeks for liver. On my own I'm taking other B's and a multi. I think the blood test is used more often now then the skin test. If you had the skin test...
White plague or consumption were terms used for TB a century or so ago. The word consumption came about because patients with active TB lost a lot of weight. Well that's not my case for sure lol. Not...
Canada Mark, very interesting facts. I sure a lot of people are infected and don't even know it. I'm going to google and take a look. I was told by one of the nurses that leprosy is on the rise now....
Quincy, never noticed anything with first test. I don't ever remember anyone ever looking at it. So who knows if I had it then. With the two blood tests confirmed I have latent TB now. May not ever...
What's funny, maybe not funny to some. Never was tested when changed from Humira to Simponi. I had the skin test when I first went on Humira. That was the first biologic I went on. I remember my...
Well no one is calling me back. Called and e-mailed the IBD doctor. I'm in Florida, not getting back to me because of Irma is their only excuse in my book. So mad!!!...
Started the Meds on Saturday. Have to take with vit B6. Says you can get neuropathy. Liver has to be checked often. It's not effecting my UC. Have to take on an empty stomach. This is such a pain in...
I was so wishing the second test would be negative. Who gets TB these days!...
Had 2 blood tests for TB to start on Entyvio. Both were positive but not infectious. Have to go on Isoniazid for 9 months. Probably had the TB while on Humira and Simponi. Infectious Dz doctor said...
Will do!...
I did well for about 2 years. Little by little it fizzled out. Still better then nothing. Was going to go on Entyvio. Was approved , then tested positive for TB. Miss the Simponi:( if if it wasn't...
Not taking out my colon unless it's an emergency. I know others have. It's just something I can't wrap my head around. Going to a specialist at this time. Having it checked regularly. Going to take...