My husband has had pancolitis for two years and has not gone into remission yet. He has a new doctor that is prescribing him Imuran for 30 days in addition to the Humira he has been on for a year. He...
He has been diagnosed with a fissure, although the doctor never looked at his bum. Which i find a bit strange. He has been given codine for the pain and now the doctor wants him on Imuran. He is...
Thank you so much guys for your help and kind words. My husband is not on any internal rectal meds. (He's dead against taking those). His pain has reduced to half today, thanks to the cream he feels....
My husband has had pancolitis for two years. In his most recent colonoscopy his rectum seemed to be the most affected/inflamed. He has been in severe pain these past two days in his rectal area....
Thank you all for your advice. I think the general consensus is too relax and let him eat whatever he wants. So, i will bite my tongue. I guess I just worry b/c I've seen him at his worst and felt...
My husband usually has a noisy stomach right after dinner and sometimes at bedtime. It sounds like his stomach is really working. It does not matter if he is having a good day or bad day, the stomach...
After a year of suffering from pancolitis and losing 40 pounds within that year, my husband has been feeling better and his last colonoscopy showed he had Proctosigmoiditis, which is a big...
My husband recently had a colonoscopy. This is a year from when he was diagnosed with pancolitis. He has never been in remission, until now...we think. I feel so nervous typing this, b/c I don't want...
My husband is on Humira. Only after three months did we see any improvements. Like you, he experienced those 2-day great reaction. Good luck!...
Thanks guys for the great suggestions! Cruise might not work since I get seasick :eyes: What do you guys think about an all inclusive vacation at Cancun? Anybody know about the bathrooms there? Also,...
Roopkirani and ComedyDork, I am also of Indian origin (and so is my husband)! Yes, Roopkirani, I was referring to Hindi. To answer your question, my husband prefers slightly slouched to bending over....
NachoLover just to prove that this disease is so diff. for everyone. My husband had a few days like that and he noticed that sleeping on his back was causing him to have more gas. Sleeping on his...
Hi SGRUBB, My husband has been on Humira for about 3 months. Usually the first couple of days he sees improvement (i.e. less blood and less bowels), but then his symptoms return. He's not on...
My husband and I are planning a vacation with our one year old. This is our first vacation after my husband was diagnosed with pancolitis. I was wondering do you all have any suggestions for a good...
Thank you for your replies. I didn't realize night sweats were so common, even without the heavy medication. ComedyDork-This also happened to my husband in the beginning of the night. NBT-I know you...
Quick question...last night my husband was sweating profusely. He woke up drenched in his sweat. The A/C was on, he was just sweating like crazy. He felt feverish too. Have any of you experienced...
Roopkirani-if you don't mind me asking where are you from...just curious b/c your name means something in my language....
Judilyn-you made some great points. I can understand why docs. may say that about food. But, this UC specialist said my husband could even eat fried foods/steak!! I guess if he added if it doesn't...
sodbuster19-sorry maybe I should have been more clear. The GI is my husband's regular GI and the specialist is a a UC specialist. GISGuy31-I definitely agree with you about the age of the doc. The UC...
D_A, I totally agree. I cannot imagine a doc. saying that food has nothing to do with UC, or that it doesn't effect the symptoms. I know everyone has diff. experiences with foods effecting/not...
Thanks guys! So far it looks like it's unanimous...the specialist wins! I agree...we need to stick to one doc. to get the best results. That was our dilemma... I had no idea Humira was a maintenance...
Just a little background...my husband was seeing a regular GI for his UC,recently we decided to get another opinion from a UC specialist(associated with a very good research hospital), now we are...
I know I"m late, but I just wanted to thank you all on this thread. You all helped me very much and I really appreciate it! We met with the UC specialist...well, let's just say we're more confused...
Congrats!!! I have a one year old boy...they are a lot of fun, but EXTREMELY active!!! I second that, get plenty rest now and watch a lot of movies!...
When you told your friends that you have UC, how did they react? Did any of them ask you what is it? IF so, maybe you should just give a brief explanation to them. If they still seem interested then...
waterdog-Good Luck! I just wanted to give you a big hug. From one UC spouse to another. It can be extremely difficult to talk about the disease, b/c I think they suffer enough that they just don't...
Wow,you all seem to have a great understanding of what fruits suit you and what doesn't. How did you figure that out? Some of you even know if you have too much of a fruit, it causes discomfort. If...
Old Hat-You are so sweet for saying that. THanks! But, I hardly think I am...I have my ups and downs too. OldHat, that's exactly why we wanted another opinion. My husband has never been to an IBD...
Hi fitmom00! I was curious to see how you are doing on the Digestive Advantage? I hope it is still working for you. If you don't mind, can you please give us an update. Thank you!...
Judilyn= thank you for the informative site. It was helpful to understand the steps of the surgery. GISGuy31-thanks again for the detailed post about the surgery. I apologize for saying this,...
pb4-I wonder why my husband's GI said no grapes or strawberries or natural fruit juices. This was said to him within the two months after he was diagnosed.He was not doing too well at all. Maybe...
quincy- I think you took my post the wrong way. I was not trying to make a sweeping statement. Unfortunately, I am not a doctor and this IS what my husband's GI told him. So, I guess we are following...
I thought pineapple was forbidden for UCers and mango. Since they aide in digestion, won't they also make you go more and that's not what UCers want. My husband was told to not even have any kind of...
suebear-i didn't realize going to the bathroom after surgery was a whole diff. concept than pre-surgery. You are right, a doctor cannot be blamed if the meds. aren't working. It's not that we're...
#1Cloe-I agree following some kind of plan at least feels you are doing something proactive to combat this disease.Have you guys seen positive results with the low residue diet? My husband is 32....
Well, to give you a different perspective...I am on the same side as your husband. My husband was diagnosed with pancolitis almost a year ago. To be honest, it is an extremely difficult disease for...
Howdy ya'll! Houston, Texas....
My husband has gone through 3 GI's, thinking of looking for the fourth. 1st-was a general GI and didn't have much experience with UC, so referred my husband to a second GI. 2nd-He was waaay too busy....
Sorry, but I need to ask another question...and maybe I should have asked this first.... When does one realize that they need to change doctors? My husband(diagnosed as having pancolitis for almost a...
My husband has been on Humira for about two months. He leaves it out for about 15 min. prior to the shot and that seems to help. He said he doesn't feel much pain. Just a little sting. I noticed some...
Thank you so much for posting this fitmom00! I just saw this in Walgreens two days ago and was debating to buy it for my husband. After standing in front of the box for about 15 min. I decided...
My husband is searching for his fourth doctor. We want to get it right this time. I was wondering, does anybody know a good IBD specialist in Houston, Tx.? Thanks in advance!...
Is anybody taking Humira without predisone and have still seen results?...
Thank you all for your help!:)...
I was on Zofran when I was pregnant, and it did not make me sleepy...that's one of the reasons I took it. Good Luck!...
Thanks midnitenz for your support! pinkyb-Are you living in India? I am from India too, but living in the US. This is suppose to be a rare disease for Indians to get...that's what we've been told....
Thanks Hobo for sharing your experience with Humira. My husband is also on Humira. So, it is interesting to compare notes. I know a few mentioned that they would like to know more about Humira in UC...
My husband has recently started Align(recommended by his GI). Haven't seen much of that probiotic mentioned...has/is anyone taking that? He also has increased gas. How long before one can see results...
My husband averages 10-12 bms a day. When flaring approx. 17-20 times a day. sweetmelody, that's a good question. What counts as a bm? What if it's just gas? Or like you said, what if you go back...
I am so sorry to hear you are going through all of this. I can't imagine the pain and frustration you must be feeling. I really don't know the answers to your questions, but I just wanted to let you...