I have learned that as I get older (65 now), I need to push the fluids throughout the day. Otherwise, I can get mildly dehydrated and set myself up for a blockage that will require an IV that will...
Sorry that GSWED has had such a bad experience. I suffered with UC for years, was devastated by the need for surgery and like most folks on this site, wish I had the procedure years earlier. Got my...
Work often places me in conference room meetings and my colleagues are not aware that I have an ostomy.They do know that I had some vague stomach issues and the noises that I make I generally...
Following my decision to stick with a permanent illeostomy and forgo the J Pouch, I had a proctectomy to remove my anus. Happy to report that 1 1/2 weeks post surgery, I no longer have an itchy...
Quite normal following a blockage to experience lots of gas and higher than normal volume of watery output. I believe it is the bodies natural mechanism to help clear an obstruction and with some...
I have started with Lexapro(10MG) and hope that it help. Good luck....
It seems that many of the RX's for depression are time-release and absorbed through the colon. For those of us who have illeostomies, are there any medications that could be options? Thanks...
Had UC for almost 8 years until I exhausted all the available drug treatments. I am 60 and have had a permanent illeostomy for 5 years. I have had some issues (adhesions and small bowel obstructions)...
My wife and I will be renting in Longboat from mid-January through mid-April, anyone in the area that can make any recommendations. Are there any groups that meet in the area? Thanks, Mike...
Can empathize with the discussion. I came to believe my remission was normal despite all the meds and the constant second guessing about foods to avoid. I even went as long as 2 years with only mild...
I too would like to find a group of folks such as us who are available in meet in Chicago. Good groups exist in the suburbs but tend to draw an older audience. Any others out there interested in...
I guess I have what is called a "high output" illeostomy. For 4 years, I empty between 10-15 times daily. Nightime is no different-I get up every 3 hours. The silver lining-I do not gain weight...
Sounds like an obstruction to me. If you are having trouble keeping fluids down, you need to go to the hospital and get an IV to avoid severe dehydration and possible pbs with your kidneys. I have...
I have travelled often through many of the major US airports since my surgery 2 years ago. Must say I have never had a problem-no questions about the bag, the supplies scissors, tubes, creams,...
I had adult onset UC, exhausted all RX options and elected (was it an election?) to have an illeostomy....
Since my colectomy 2 years ago, I have had a complete blockage caused by an adhesion that required surgical remediation and a second food related blockage earlier this year. Recently, I am noticing...
Anyone consider laser hair removal?...
Just got home from hospital following similar symptoms. Mild stomach ache that progressed to inability to eat and limited to clears. Reluctantly asked the wife to take me to the ER at 400am and...
i had UHC until 12/1> It paid 100% of all items from Edgepark...
Not regrets whatsoever. I was housebound the 6-12 months prior to exhausting all rx options. I had experience arthritis that would only respond to pred. I am now 6 months post op, on no meds, back in...
Paul, I am sorry that your recovery has been so challenging. Just checked in and read about your experience and wanted to offer you some encouragement. I had my surgery on 6/17/08 and was in the...
Allan, I had my surgery in June and was catheterized for almost 2 1/2 wks. As a side result of the surgery I had lots of testicular swelling and was not able to urinate. Prior to surgery I had...
my pharmacist said no problem but the last 2 days i saw intact tablets in my pouch. No wonder I feel depressed!...
I am a former UC patient, tried every RX including Humira and ended with surgery this past June. Opted for a permanent illeo because I was unwilling to commit to multiple surgeries and the...
Does anyone know if Wellbutrin XL will be absorbed if one has an ileostomy? Thanks...
I have been home since Tuesday and it seems like a lifetime ago I was wondering when I would have a functioning small intestine so that I could leave the hospital. The news is very good, everything...
Home at Last! Discharged this am feeling lots of gas but knowing that it means my small intestine is working. Next step is to regain my strength and life. Thanks again for listening and your...
Monday Evening Update- Well my small intestine has finally become active. Yesterday, the gas pain was as bad as any pain I have experienced post-surgery. I thought I was getting obscructed but it...
Thanks to everyone for your encouragement and support. Day went really well-no problem with the clear liquids. Dinner was carnation instant breakfast, crackers and yoghurt. It seems my small...
Saturday Am Update.... Still progressing to the point where I can now consume clear liquids. My first tray is on its way. This was the point I reached last week when I finally was able to consume...
I was on Humira through the loading doses and 2 maintenance doses. When surgery was recommended, it made no sense to continue any meds that had limited to no benefit and the continued risks such as...
CWORYHILL, I decided to become more assertive (not rude) with the medical staff. My surgeon has a wonderful reputation and I believe makes the best decisions possible, yet I think I can best advocate...
The NG tube has been out for 12 hours and I started feeling some presssure increase in my belly. I am not sure whether it is real or imaginary but it worried me. I told my MD and determined it best...
Update- I had another AB series showing the loopy small bowel smaller but still larger than normal. The MD removed the NG and has decided that clear liquids are next. Please keep me in your thougths...
Thanks for everyone's kind thoughts and suggestions. I walk throughout the day/nite. It seems to help me pass the time and keep my mind off the NG. I will ask for hard candy-great suggestion that...
Quick version-I had my colon removed on 6/17 laprascopically and have a permanent ileostomy. I was about to be released on 6/22 but vomited following a tray of modified liquids. A NG tube was...
i am almost 2 weeks post total colonectomy and still in hospital. I too received the recommendation that I had exhausted my medical options and that surgery was my sole choice. For me I have suffered...
i had one several days ago with the dye delivered through my ng tube. The MD had to dilute the barium prep to the point where the contrast was poor and sent me over for a CT instead....
I am sitting in my hospital room 11 days post total colectomomy and have both a ng tube and catheter. I have had the foley reinserted 2 times since my surgery. I was prepared to jump out the window...
I am so sorry to hear about your compilcations. I am in my hospital bed folllowing my illeostomy on 6/17. Was hoping to be sent home by the 22nd but had some more minor complications. ot fu I was put...
I am scheduled for surgery next week. I determined that the permanent ileostomy made most sense for me since the prospect of life with a bag seemed acceptable and was concerned about the the # of...
I was thinking that tape or a cummberbund would also work. http://en.wikipedia.org/wiki/Image:Cummerbund.jpg...
Thanks for all your suggestions. A friend said that I could call Hollister and they would offer some ideas. I am meeting with a second surgeon tomorrow. The first one does not have any open dates...
I visited with my prospective surgeon yesterday and the nurse identified the best spot for the stoma. Unfortunately, it is 2 inches below my belly button and almost 1 1/2 inches ABOVE my beltline. I...
Unfortunately, my MD has concluded that I am not and will not respond to Humira to go back into remission. The tell tale signs included my reaction to reducing the prednisone from 40 to 30mg snd the...
Had my final "loading" dose last Wednesday. Typical 2 day great reaction-no blood or mucous but still 10 bms. My predisone was decreased to 30mg from 40mg. Unfortunately, I have had the most...
I have been on the Humira for 3 weeks. Following each injection day, I have had the best 3-4 days since Thanksgiving and then thing return to the way they have been. Still in a flare but the my...
Just completed my second dose today (2 weeks since the initial injection). I am lucky that I don't feel any pain related to the injection. The first time, I seemed a bit better the next several days...
Just a quick update. Mind over body or reality-I Have just had my first day since Thanksgiving that I have on went 5x (2 for the am enema elimination). I was told that some pts. do have quick...
Just got home from my Humira initiation. Honestly, I did not feel the needle and the humira created a slight tingling sensation. No headache or any of the other possible reactions. I am told it will...