Thanks. I’m assuming he will schedule some tests. Praying for the doctor to have wisdom and insight to his specific case. Glad you’re doing OK for now....
Thank you. I am looking forward to hearing what the cardiologist says. I am thankful they will let me go in with him. More ears to hear. (-:...
Anyone have a leaking aortic valve or had in the past? My husband has one due to a bicuspid valve. Has had it monitored for about 13 years. Been told it was moderate to severe. This week actually had...
I am going to be trying Lialda. They said it is the same and has the same side effects. I am hoping for no side effects. Thanks again everyone....
Thanks. I will keep you posted...I believe my choices are balsalazide, APRISO, LIALDA, or PENTASA...
I have done my homework and the Dr. has told me they usually don't accept the appeal unless I have tried all other drugs or have allergies to other drugs...It looks lie I am going to switch to a new...
Thanks Quincy, I have been doing well for a long time on ASACOL HD....except for last year....I flared for a few months....I appreciate the advice....I just left a message with my Doctor asking if...
Hi Quincy, Actually, I have no idea what I am talking about....just heard you can get prescriptions from Canada. It is all new to me....
When I was first diagnosed, I tried Lexipro...it did NOT work at all...I went off and never tried anything else. Hope you find something that helps with the anxiety....
Due to insurance dropping coverage of my ASACOL HD, I may have to switch to one of the following drugs: balsalazide, APRISO, LIALDA or PENTASA. Wondering which drug you all might suggest. I know...
My insurance is no longer covering my Asacol HD starting January so I was wondering about ordering from Canada. 1. How do you order from Canada? 2. Is it legal? 3.Do I need to send them a...
Thank you UC prisoner...please keep me posted on what you are doing. I just don't understand why they are doing this to us. )-:...
Thanks everyone, I have Blue Cross Blue Shield PPO and It has been great insurance...My prescriptions come in the mail through Express Scripts....As soon as I can find the time, I will start making...
I have also heard some people get their medicine from other countries like Canada...wondering if it is the same stuff and just as good. I am so upset right now....
Thank you. I am not sure how to file an appeal but will look into it. I suppose I could always pay full price for ASACOL but I know it is expensive. I really hate to gamble with other medications...
Feeling a bit blue and a bit worried as I just got news that my Asacol HD will no longer be covered as of Jan 1st. Asacol HD has helped keep me in remission for the better part of 8 years...not...
Thanks Quincy! (-:...
Thanks Quincy, I will keep that in mind. It is just new to me and I am nervous about it. When I was reading about it it sounded difficult and like a pretty big deal. I do appreciate your knowledge...
Quincy, As soon as I picked up the enemas from the drug store, my symptoms started getting better so I am just holding onto them just in case. I was very anxious about trying them too. I was also...
Hi Kevin, I just read what you wrote about coffee and had to say oops as I treated myself to a cup of decaf yesterday pretending it was real...lol It didn't seem, to bother me. I have been eating a...
Thanks Jim, Hope you are well soon too....
Bleeding again.. )-: I was hoping this was over. Maybe it goes back and forth like this. I'm not used to flaring...and don't want to be. It's not horrible, but I get frustrated and scared at times....
Thanks! Yes, I am relieved. (-:...
Just wanted to share my update. I am finally doing better...not flaring anymore. Was having trouble for 2 and 1/2 months...first flare since diagnosed many years ago. Some things that I think may...
I also have Ulcerative Proctitis and am thankful I do not have it worse. Was diagnosed about eight or none years ago and as soon as I started meds (canasa and asacol, I went into remission. Been in...
Congratulations! So exciting. I know it is easier said than done but try to train yourself to stay calm....Sometimes when I am nervous and I try to calm down it helps my symptoms. That is the only...
I feel your pain and frustration. I don't know what to eat. SO many people say different things...even my doctor...I might try to find a good nutritionist but don't know how to go about finding one...
So, with the advice of some friends on this site, I asked my Dr. to prescribe Rowasa and they did. So, I haven't picked it up yet. Want to know if anyone has any pros and cons to share with me. Also,...
Thank you!...
Thanks for the input. The multi-vitamin I take has 100% of the daily allowance....I am not anemic but when I used to give blood, my iron was always on the low side. My recent blood work showed...
I use canasa...not sure if that is a mesalamine...from what I understand it is the same thing as Asacol, but a suppository. Thanks...I will mention that to my Dr. Office....
A friend of mine asked me if there was iron in the vitamins I take...I checked my multi vitamin and there is. Is it a bad idea to take iron during a flare? She said it is hard on the...
Hi Quincy, Thanks...I'm having a better day today. I think I was upset because I'm not getting better....I thought I was starting to then it hit back a little harder....and then my doctor just is so...
The doctor's office is actually putting in a referral to the dietitian they work with....so someone is suppose to call me...I will ask about insurance when they call....if it is not covered, I...
I hate flying! Recently few to Florida....the way there we had to stop in Maryland...so was on plane for a very long time...they wouldn't let us off....I've been in a flare so was scared...just...
Thank you! My goal is to be as healthy as possible for an Alaskan cruise we might be taking in July. Praying...for us all......
Rough day today, feeling very sad. I recently sent a message to my Dr. office to ask for a nutritionist or dietitian referral to help me get into remission and stay in it...I mentioned that I am a...
Thank you. Actually Skokie is probably just about an hour from me and Chicago is too...but Chicago is more of a hassle to go to. I will look him up. Thanks kiptyn....
Thanks! I honesty am not worried since hearing back from all of you. (-:...
Wow, Thanks Journey! I will have to save this name...He sounds great....sometimes I feel crazy trying to find the right Dr. I feel like I am bouncing around. I tried to go local this past summer and...
Thanks everyone. Quincy, I will ask my Dr. about the retention enemas...(I am always afraid to go on big meds...is this a steroid?) I go back to Dr. in February. I have been in this flare for about...
Thanks. I actually go to Dr. Hanauer. I like him and have confidence that he will give good advice...He is very nice too...however he doesn't share my feelings about vitamins and probiotics, thinks...
Thank you everyone. The medications they first put me on were asacol and canasa...still on them......that is what helped me get into remission right away and stay in it. I didn't use a lot of canasa...
Hi Friends, I am in my first real flare in eight years, basically since I have been diagnosed and started meds. So, in a way I kind of feel like a new patient. I am just not used to flaring and see...
Does anyone have a good Dr. near or in Chicago? I prefer the south suburbs but any advice will help. Want someone who also believes in helping with diet and doesn't dis probiotics and vitamins, etc....
Thank you. That is what I was thinking too....
Hi, I have lower back muscle pain...pretty bad...(probably stemmed from lifting boxes while shopping) went to Dr. and he prescribed flexeril (muscle relaxer) and a steroid pack that is about a week...
Thank you for sharing! It is helpful for me to read these posts and continue to educate myself as much as possible. Glad you are doing well!...
Thanks. (-:...
Thanks everyone. I think I will still get the shot. I get the inactive one. I was just worried that if I was in a flare, the shot would somehow make it worse. This time I will go with my doctors...