on remicade for 5 months after a bad flare 2 weeks in hospital, I was within days of losing my colon. It did save the surgery not sure if it is the thing to do. lots of weird feelings and thoughts....
i was a nuisance for 2 weeks in the hospital 4 months ago, just for fun!~...
14 days, went through antibiotics, thinking, long weekend, oops we forgot about you,pred,pred, solumedrol,eventually they said-Man you're in bad shape, what happened?Then remicade-two days later...
I'm in ontario and just started remicade 10 weeks ago, it saved my colon. the trillium plan covers this drug if imuran has failed. the remicade people are very good at taking care of you. as for a...
this year started badly. first week of jan I spent 3 days in hospital for pancreatitis Imuran and alcohol?Then out of hospital I go into a flare, start a round of pred. starts to work for 3 weeks,...
I was on a fairly short run for pred just 12 weeks. last time on pred was 18 weeks. 2 years ago I got messed up when I came off too fast, it was terrible withdraul symptoms. I start at 40 mg and...
yes I get blood work done every 2-3 months, all is well except he wants me to take an iron sup 3 times a day for a low white blood cell count. I find this very hard to do as this causes serious...
I just came off a lovely round of pred, and I'm starting to feel stiff all over, trouble sleeping, and sore feet. I am still on 200mg Imuran( 16 months) does anyone have similar results ? Not sure...
in between. upper inflamation won't go away, usually constipated like this for 2 yrs seems to be getting better. just started pred to see if it will kill the inflamation. also on 200mg imuran,iron...
I tried mezavant, and salofalk, but they didn't work. Doctor thinks it is too far up for rectal meds. I would be more than willing to try the rectal meds....
just back from my colonoscopy, still have inflamation after 2 yrs,however it is greatly reduced. I now have moderate inflamation in the ascending, and transcending colon. 2 years ago it was fully on...
time to take my pico salax, I'm hungry...
Anyone find kefir beneficial?...
yes, rite there, I think they may be friends ,...
external, never used rectal meds, and it never rains, it pours!...
isn,t it lovely when a roid on your flair, is like a cherry on your dessert! :shakehead:...
thanks for the thoughts!...
I am a bit anemic,and have always had low blood pressure. yesterday, before starting the pred,I went for blood work as usual every 8-10 wks. Just got home today, and there were 5 missed calls from...
on imuran for about 13 months, never talked to GI about rectal meds, they sound painful? I am also anemic and on 600 mg iron /day. B12 is fine. Had a dizzy spell at work and sort of collapsed as if...
I,m on imuran 200/day. the pain and cramping have worsened over a six week period, and today there is some blood. thought it may be time to start pred...
anyone have what looks like white veins in well formed stool? I think I'm flaring for 6 wks now may be time to start pred....
I'm on imuran, and have a sore throat and cold. do I need to stop the drugs to improve my immune system?otherwise I fell okay, other than sore back,and cramps...
Carpenter, I have some bad days--porta-potty, not good!...
constipated, but not flaring.time for some milk of magnesia,or anything else that will help.Ouch!...
I just stopped eating bananas I have become non toxic, now just very stinky! I had eaten at least one a day for months, now I can see through the fog. I hope this helps in the long run. They do make...
thanks for the thoughts. I'm not in a flare, but had a mild one mid summer. my symptoms are mainly a feeling of discomfort in the gut, minor dizziness, and feeling tired- possibly from Imuran? No...
how does everyone here deal with nasty gas? I don't just clear a room, I clear the whole building!...
Hi Disneynut66 I'm on azathioprene, I think tis similar to 6MP, Imuran I too have the awfull old man feeling when I rest,and try to get up. So cinnamon you say? How much and what type do you take?...
Barrie, Ontario, Canada....
day two I notice, seems to work well for me...
you don't take a dump anymore, you go in to a small room to read a novel,and keep a spare magazine just in case....
anyone here get messed up if they drink V8, or tomato juice?...
On imuran for 5 months stopped for i week, daughter wrote off my truck ( stressed me out) back on imuram & prednisone. There must be a connection....