Just bumping this up for one more day to see if anyone has had experience....
Anyone ever had a rectocele repair? My doc told me the recovery is just a few days but because of my UC it will take me longer. She said I'll also be slow for several weeks and no lifting. Anyone...
Thanks Rooster and Frances - you guys have been very helpful. Now if I can just wait til Monday!!! I know you guys know how difficult each and every day is when your head is pounding 24/7. On the...
Wow - no, I won't risk it. I see her again Monday so we'll discuss it. She's actually never mentioned the blood patch but the doc she's been consulting who did my lumbar puncture last week told me I...
Thanks Frances - that is good information. That is what I am worried about - getting an infection. What I didn't say is that I am on Remicade for Ulcerative Colitis and that medications takes your...
One more question - I know lifting is out. In fact she told me nothing over 2 lbs (my purse alone was more than that!!!) I've behaved and made changes to accomodate not lifting nor bending over. How...
Thanks to you all for your help - I have a call into my neurologist to discuss the patch. It's got to be a leak - I have no pain when I am lying flat. And it's good to know that the other symptoms...
Yeah I believe they did the CT test that you mention above. Yes, it's very frustrating. My doc's MA asked "did you want to make an appointment to come back in?" Uh, what would that accomplish?...
Here is the shortest version I can do - horrible headaches, every day. Doc put me on migraine medication. Didn't help. Had me take migraine + 1 vicodin - didn't help. Then had me take migraine + 2...
Yeah in fact that very hospital is working on a new patient tower with all private rooms. I was in the respiratory wing so most who were in there were elderly and coughing. Had I just taken the...
Thanks Robin & Katie! Robin - I've actually gone through infertility treatment for three years now so unfortunately I have become accustomed to phsychological trauma with this sort of thing. I had an...
I was hospitalized back in August - the trauma of losing our baby halfway through pregnancy caused me to develop a lung infection and a weird vocal chord condition. I was in the middle of a flare...
I'm in remission but have had pretty noticeable swelling in my lower abdomen. I was on a diet and lost 8lbs but then all of a sudden it stopped and I gained. I fluctuate around 3lbs each day. I've...
Thanks guys, I appreciate your feedback. The problem is that I was put on two antibiotics through IV while in the hospital as well as high doses of steroids and 2 breathing treatments four times a...
A few months ago I spent 8 days in the hospital b/c of a case of really bad bronchitis that would not respond to steroids or breathing treatments. They sent me home with it b/c they did not want me...
I used to take it and it worked ok for me. I still had bleeding and urgency while taking it. Make sure your doc does the proper blood work - I ended up getting pancreatitis and had to stop taking it....
I have hypothyroidism and take medication for it, but I still feel like I can't sleep enough. I have fallen asleep at my desk sitting up a few times, and many days I have to go use our recliner in...
Don't apologize - we all need rants. It's the only way we stay sane! Having gone through infertility for three years now, having an ectopic pregnancy that I had to have surgically removed and having...
My doctor has diagnosed me with Vocal Cord Dysfunction after a long hospital stay and a nasty chest infection that eventually cleared up. I can feel when my vocal cords are tightening - like someone...
I've taken Remicade for a few years and it is the only thing that could help me. I have had some flares here and there due to extreme stress but all in all it has worked. If you get that sick, it is...
Long story short (sort of) - have had issues with anxiety for years. 10 years ago I graduated from college, moved to a big city, broke up with my boyfriend of five years and lost my dad within a few...
Wow, this is very interesting. I have the exact same history you list above. History of frequent strep as a child, extreme anxiety now and some OCD in there. I have developed Ulcerative Colitis...
If you've had this, please tell me what your initial symptoms were and how the doctor responded and how it was treated. Thanks!...
Sorry, it's Vocal Chord Dysfunction. I am lucky in that I got diagnosed early. I read that most people with this get diagnosed with asthma and docs can't figure out why the asthma meds do not work....
Just wondering - my docs are trying to determine if I have asthma, VCD, or both. I had the Methacholine challenge test yesterday. The RT said my level dropped +25% at one point but it needed to drop...
Thanks guys. Let me say one thing - on the outside everyone would tell you I'm the strongest person in the world. I'm now wallowing in any of this. The problem is how I internalize it without...
So over the past few years my husband and I have been through a lot between my getting really sick with my UC, trying to get pregnant and rounds and rounds of fertility treatments, my pregnancy loss...
I have hives all over my body. I've been know to get them when stressed and I have been stressed. The problem is I cannot take Benadryl b/c I am having a special asthma test on Tuesday and I cannot...
I've complained constantly b/c of extreme fatigue 24/7 and my doc said chronic inflammation does that. Even while in remission I am tired. I'd make sure your iron levels and potassium levels are OK,...
Well I've known from the start that I'm more likely to get stuff, and I have. I'm 34 years old and I got Shingles and a number of other strange ailments. I wanted to say that I spent 8 days in the...
So I have tried everything since my diagnosis to help with my sore bum. I've had everything from baby creams to every prescript ion available. I just spent 8 days in the hospital and I mentioned to...
Thanks guys, I appreciate it. My mother in law is here (they live in La and had to flee from the hurricane) and my mom is here so no one is letting me do anything. I will have no problem following...
Ya know, it's a long story. I ended up with something close to Pneumonia and was hospitalized for 8 days. Ick. I'm not really much better than I was when admitted but I woke up with an ear infection...
Yep it causes joint pain as well as reduces your calcium and can thin your bones. Most docs do not follow up. A good thing to do is take extra calcium and vitamin D, and also potassium. Most docs...
I'm not sure how related they are but it does make sense. I've always had issues with anxiety and even before I was diagnosed with UC I would get very anxious when in a setting where there was no...
That is great news. Thanks for sharing your inspiration with us - all of us need those words sometimes!...
Yeah sounds like the plebotomist didn't put pressure on it long enough. Don't know if you take fish oil or not, but it does thin the blood. If my Remicade nurse misses a beat we'll both end up bloody...
I'd call the doc. I did hear from a lot of others that they vomitted but I think they said it was b/c they ate dairy and some people cannot do that. I was really sick to my stomach yesterday when I...
Well I haven't bled at all but I know my doc used a method to get them out that doesn't involve cutting. They did tell me some dark bleeding was normal but it never happened. I've always heard that...
My doc always told me 6mp can cause pancreatitis so they tested me every few months. I started having pain in my upper left side and when they tested, I in fact had pancreatitis. The pain does...
Thanks for the advice guys. The surgery went well. I had trouble getting into a good deep sleep yesterday - Vicodin always seems to do that to me. My throat is a little worse today than yesterday. We...
Yes I am on Lialda and I have the same thing. You are not alone!...
I used to get horrific leg cramps also - I try to eat at least one banana a day. I still get them sometimes. They also make some potassium tablets that fizz in water if you ask your doc for them....
I kinda thought the same thing! Interesting......
Yeah it is sounding more and more like it will be 10 days. I will definitely listen to my body and not try to come back here. My husband can just enjoy the quiet as long as he can! Thanks for the...
Thanks everyone for the advice (even Eva Lou's horror story) - it will definitely help. I told our HR manager it might be longer than I originally thought! I can certainly live on ice cream - I've...
Ok - I am getting them out tomorrow and was hoping to be back at work on Monday. I am assuming this is wishful thinking? Thanks for the information guys. I can better plan now. I did buy some...
So I mentioned to you guys that I am having my tonsils out and many of you responded with helpful information about the pain and recovery time - thank you for that! It really helps. Now I am...
I'm so sorry to hear that you are going through such difficult times. Unfortunately, whether it is Prednisone because of a flare or Remicade regularly, my immune system is comprimised and it's done...
I get similar rashes when I am flaring. My doc tells me they are part of the disease and some people get them. They never caused much trouble, just worrisome because they aren't "normal." They always...