Horsewhisper , Thanks so much for the response. It's nice to find support, although it makes me sad to see others here because I know they are having the same problems I am. I think I am going to...
Hi All, I had a seizure almost a month ago after three years of being seizure free, and since then I get the "odd" feelings daily. This never happened after my other seizures. With the other ones, I...
Carla, I am so sorry to hear that! I went three years being seizure free, but I had one about three weeks ago. My doc increased my Lamictal. Anyway, I can totally sympathize with not being able to...
Hi All, I have been tapering down weekly. I am on 10 now and will go down to 5 next Thursday. I really thought when I started tapering down that the side effects would start lessening, but I think...
Thanks for all of the support! I don't know what I would do without this place. Belski - would you mind calling them and yelling at them for me? Maybe I should have my mom call - she's pretty hacked...
Kim, I am so sorry that you are feeling this way! It stinks feeling like there is no other option as far as your treatment. It's almost like having to make a decision of which is worse, and that's...
Beth75, Thank you for the reply! That's a good idea on calling my primary. He actually does LISTEN! I don't know what it is with doctors not wanting to admit that an action they have taken had an...
thatfield, I posted a question about Pred earlier and there is alot of good information from people who have experience with it. It is entitled "I have a stupid question about Pred" I was on 40 mgs...
Hi All, My Gi's office called me back and they are determined that the Pred had nothing to do with the seizure. They want me to stay on the 2 week at a time 10 mgs at a time taper. I told them I...
Thanks for the replies! I really appreciate it. I started the Imuran on 6/21. It's interesting you said that about the Lialda. I noticed my symptoms were better if I took two instead of the...
Hi All, Okay, still haven't heard back from my GI. But, I am calling again as soon as I get off of here. I've got a dumb question about pred and tapering. My GI started me on 40 mgs for two weeks. In...
30 years and he hasn't developed any peripheral vascular issues. [color=orange>...
Hi All, My neurologist called me back today, as he has been out of town until today, and he upped my seizure meds. So, I feel good about that. I called my GI yesterday and asked for a faster taper...
I went once a week for about three months and noticed a slight improvement in my UC. Going once a week got pretty expensive, so I stopped since I wasn't seeing anything drastic. One thing I think it...
Disbooner, I couldn't take Asacol either for the same reasons, it worsened my symptoms. The only 5ASA drugs I have been able to take and see results from are Lialda and Canasa suppositories. The...
Beth, I am so sorry to hear that! My mom cared for both of her elderly parents, and I don't think I have ever seen her under that much stress. It's truly cause for being depressed and stressed. Not...
Hi Quincy, Thank you for the reply - I really appreciate it! I am calling my GI doc this morning and asking for a fast taper on the steroids. I just can't take anymore chances. I had been improving,...
Hi All, So, I had my seizure Saturday morning. Looking back, I had been getting that "weird" feeling since starting the steroids. In my heart, I really think they caused the seizure. I mean, when you...
Thanks Lori and Judy! I did go ahead and call the docs yesterday. Of course, "your" doc is never the one on call! The neurologist said if I wanted I could increase my seizure med by 25 mgs. The GI...
Hi All, Well, I am not having a very good day. I haven't had a seizure since I started my epileptic medication three years ago, but that all changed this morning. When I got the info sheet on the...
Julia, I read your post and just wanted to let you know that you are deep in thoughts and prayers. I am sure that your sister knew how deeply you loved and cared for her. Again, I just wanted to let...
Hi All, I am really sorry as this is a pity post, and it's long. I am really frustrated right now and need somewhere to turn. I had a seizure this morning, it was the first one since I started...
I am glad to hear that all went well! I will keep all of you in my thoughts! Beth...
Lori, I am glad to hear that your FIL's cat scan turned out well. I will keep you guys in my prayers and hope for the same outcome on tomorrow's test! Beth...
Hi All, I have been on the Pred; Imuran; Canasa; and Lialda for almost two weeks now. I think, well somedays, that things are improving slowly but surely. I have one BM a day, there is still bloody...
Bennie and Bratcat, I will be thinking of you guys and your family tomorrow! Good luck, and I am sure everything will go well! Beth...
HI Nikki, Sorry to hear that you are having to deal with a flare so close to your vacation! That really stinks! I can't offer alot of advice on Pred since this is only my second time around with it....
Kiss520, I found it at the local health food store. Here's their website that's on the bottle. I haven't been to the site, but I assume it tells you more about the product and perhaps you can order...
Thanks for the advice, Quincy. I really appreciate it! I've kind of always had the problem of punishing myself for decisions made, whether they be impulsive or well thoughtout. They can be small...
Hi All, Well, I have been on 40 mgs of Pred for a week now, and I was starting to notice an improvement. I had been working really hard, and doing a pretty good job, on eating right, blah, blah,...
Kiss, I read Listen to Your Gut , by Jini Patel Thompson, a lady who has managed her IBD without drugs. She talks about aloe vera. She recommends George's Roadrunner Aloe Vera because it's supposed...
JrNYC , I am so sorry to hear of your biopsy reports. I would be freaking out as well, as I am sure most people would. Sorry that I don't have any words of wisdom for you. I can just imagine what...
I hear you about the orange jello! I just had a scope last week, and on my clear liquids day I drank lots of white grape juice and sucked on butterscotch candy. Never will either of those pass...
Thanks for all of the replies! I really appreciate your thoughts and advice. I am going into my fourth day of Pred. I "feel" good, but that's never really been an issue for me. The symptoms seem to...
I know that's unique to each person; however, I was just wanting to see how long it took for some of you guys so maybe I will have a ballpark idea as to when I can see some improvement. I am taking...
Well, I was able to guzzle all of the Trylite (sp) except for the last two glassess, which both promptly came back up. Anyway, the doc said that the inflammation had spread up the left side of my...
Thank you, Darren! I greatly appreciate you thoughts! Beth...
Hi Darren, Thank you for replying to my post on the Ulcerative Colitis board. I am the one who is getting freaked out about my upcoming colonoscopy. Anyway, I think some of that stress is due to the...
Hi Tums, My symptoms always worsen around my period. I did a Google search about this a couple of months ago and one expert said the upset to our colons might have something to do with the hormones...
Thank you so much! Your words of encouragement truly mean alot to me. I am just ready to get this over with. I am trying to look on it as a positive thing because maybe I will get somewhere. Anyway,...
Bellski, I am so happy for you! That's great news! Beth...
Hi All, I am getting freaked out about my upcoming colonoscopy. Quick recap: I've had ulcerative proctitis for almost 7 years. For most of those 7 years, I have been flaring. Sometimes just a little...
Hi Beth! I am so happy for you - that is such great news! The things that excite those of us with IBD is crazy isn't it? Hope you keep on the path to good health! Beth...
Hi Lori, I taught PreK last year, and I about lost my mind! It takes a special person to be in a room full of four-year-olds all day long! I got a job in the district I live in for next year, and I...
OMG! That's crazy, especially when he told you to call this week. Like he didn't know he was going on vacation? I don't blame you a bit for being frustrated, I would be feeling exactly the same way....
I most hate pooping in a public restroom when there are other people in there because, well, sometimes my colon can produce some funky noises. Kind of makes me want to hold my legs out straight so...
therearemiracles and Sherry, Thank you both for your kind words of support! I greatly appreciate it. I am really glad that my scope is relatively soon. My mind starts racing and coming up with...
Hi Arlene! I am glad your doctor's visit went well! I hope he is able to provide answers for you, and that he points you towards the right path. Take care, Beth...
Hi All! Well, I went to my new GI today. While I didn't fall in love with him, he's the best I've seen so far. So, I guess he will do. I kind of felt rushed; however, he did answer my questions. I am...
Hi P rincesa , Thank you for your response. I greatly appreciate your thoughts! As posted, I only have UP. I think one of the reasons why it's been hard for me to stay on the diet for very long is...