I used the pills on the colonoscopy I had prior to my most recent one, and they worked great. Much easier on me than all that drinking of the prep fluid. This was with old GI. He said nothing...
I’ve been told it really only matters in the event that some day you have to have surgery directly related to it. Then knowing which you have is super important. But other than that, it really does...
How long were you on the Stelara until you were in remission? Since you started it, did you take anything in addition to it? …and can you describe in detail what remission means for you? I’ve read...
When I have had bad pain (like a tooth that needs to get pulled) I take the arthritis version of Tylenol. That has worked well for me....
I’m still taking the 9 mg of budesonide every morning. Had my initial infusion of Stelara on 1/17/23. Just wanted to post a praise report. Yesterday was the best day I have had in a long long time....
Tomorrow will be a week since my infusion of Stelara. Got some slight improvement after a couple of days after the infusion …and it’s kind of holding steady there right now. 1 movement in the middle...
Interesting to see this verbiage in the article: “Roivant Sciences has shown its hand in the red-hot race for a new ulcerative colitis market.” The good news in what I see here…is that comment …is...
I don’t remember. See if you can google and find a Pfizer customer service help line. They can maybe direct you....
I was on Inflectra for about a year and a half. I’m pretty sure Pfizer is the manufacturer that you need to contact about co-pay assistance. Im almost positive I was enrolled in their program. I...
I’m seeing some slight improvement the past couple of days. Nothing major. But praying it continues....
Had infusion Tuesday morning. It’s now Thursday morning. I know it’s early. Not really seeing any improvement yet. Curious as to when most people start to see some benefit? Urgency is low. Thank God....
Hi. Thanks so much! Infusion of Stelara went well. No side effects at all. My copay at the infusion center was $180. They said that was mostly “infusion center administrative fees”. Kind of...
Had my last infusion of Inflectra. 10 mg. On Dec 5th. It’s been 6+ weeks ago. I’m scheduled to get my first Stelara infusion tomorrow morning the 17th. No issues with that, correct?...
Infusion center called today. All set. Stelara infusion appointment Tuesday the 17th. So my Inflectra infusion appointment on the 23rd has been cancelled. New GI is impressive with these prior...
I’m going to start a new thread. The adventure continues…...
I enrolled in the Stelara co-pay program at their website. They said I will be getting a phone call from one of their representatives Monday. The website says it will be a $5 co-pay for the drug (as...
Do I do this through BCBS? How do I do this?...
My only insurance is now Blue Cross Blue Shield….PEBA. I got a short “robot call” yesterday from “Express Scripts”. It said (paraphrase) “the drug that has been requested by your doctor, Stelara, is...
Great information. Thanks. So, Stelara. He’s got his office working on getting me approval with insurance now. I’m scheduled to get a 10 mg 8 week infusion of Inflectra on January 23. He said not to...
Thanks...
Thanks everyone. Question. What are the main treatment differences between UC and Crohn’s?...
Interesting that you say I might have Crohns and not UC. When I had my fistula issue (October 2021) the surgeon told me after the surgery that what he saw tells him that I have Crohns and not UC....
I had my colonoscopy early this morning. Jan 6th. Highly recommend having this done early in the day if you have to have one. They said hey had 90 patients today for 5 doctors. That’s just crazy....
I am doing really well. 3 or 4 movements each day. Usually chunky or stools. Plus one more movement in the night. Usually stools or chicken McNuggets. I was planning on seeing my GI today and discuss...
What’s the longest you’ve ever been on it?...
Thread bump :)...
A good friend of mine sent me YouTube links to some of this guys postings. He claims many people on the carnivore diet with UC are healed by eating this way. Hmmmm...
Had the 10 mg infusion of Inflectra on the 5th. Today is the 17th and I’m still doing well. The mix of the Inflectra, the 9mg of budesonide and the 4 tablets of welchol each day is working for me. I...
Well, I’m in a real quandary. I’m doing really well the past two or three days. Remission like. 1 or 2 movements each day plus one in the night. Great looking stools. Or chunky. No urgency at all....
I started taking Konsyl at around 8 pm. I think this has helped with the watery movements. Thankful I am on the schedule for a GI appointment Dec 19th. -...
Weird that my middle of the night movement has consistently been watery of late….usually this is around 2 am or 3 am. The movements during the day are more mush or even good looking stools. I wonder...
Not a shock to report. I get the Inflectra 10 mg 8 week dose Monday morning the 5th. And I see immediate improvement. 4 times a day and once in the night. I’ll take it. I’ll stay on the 9 mg of...
Welp. I am Scheduled to get an infusion on Monday Dec 5. Thank God. My 10 mg of Inflectra at 8 weeks. I’ve also got a GI appointment coming up on Dec 19th. On that day, I’m going to beg for a new...
Thanks for posting. Yeah. Pretty sure it did. Also. I got to thinking…(to myself)…”hey dummy. Stop the drinks for a few days and see what happens!” Dah....
I’ve been drinking two Fairlife protein shakes every day of late. The one on the morning has 33 grams of protein. The one in the afternoon has 42. I’ve read on here it’s a good idea to make sure...
Hi. Yeah. No need for me to recap my story here …it’s in the open thread. But, from my experience, I highly recommend you stay on some sort of maintenance drug. Do not try and maintain remission...
Based on reading through a bunch of fantastic posts on this forum. I’m thinking I ask for Stelara next. Humira worked. Inflectra (remicade) didn’t. Thoughts?...
I’m amazed at the huge difference for me (where I am at right now) between 6 mg of budesonide and 9 mg of budesonide. (With The the 14 to 20 (I am guessing) of trough of Inflectra in me and the 4...
Thanks. Bumping back up to 9 mg on the budesonide from (a 4 day trial of 6 mg) has helped for sure. Immediate impact. That says a lot. I’m pretty sure what’s going to happen is, I’m going to have my...
Hard boiled eggs work great for me....
It’s late Tuesday afternoon 11/8. So frustrating. Posting here. It’s a place to vent a bit. Today was a “step back day”. Typing it out makes me feel a little better. Sigh. It was the 4th straight day...
Thanks So. Is this “UC constipation”? Urge to go. Mild pushing. Nothing. Other times. Urge to go. Mild pushing. Feels like a little comes out. Then it feels like I am done. Look down in the bowl and...
Thanks all. The past couple of days I have been taking only 6 mg of the budesonide before bed. Been taking 9 mg of budesonide …started that 8/1). I’ve been taking 2 tablets of Welchol first thing in...
Starting today I have switched around how and when I am taking the Welchol. 11/5/22. I’m now taking 2 tablets at 6:15 am and 2 tablets at noon. Starting this morning. The past weeks I’ve been taking...
Hi Clo. Doing slightly better since I upped to 1 pill at lunch and 1 pill at dinner. A little less urgency during the days and slightly less frequency. I’m probably going one time less in the night...
Hi. Also. For the record. Old GI tried me once on Questran powder. Was supposed to do the same thing as this drug Welchol. Well, old GI was awful with instructions on how to take a drug and I’m...
Thanks. Yeah. I didn’t discuss dosage with him. When I picked it up, he wrote it for 90 days, and I’m not able to look at the bottle right now, on the label, I believe it says, 3 tablets 2 times a...
Don’t know. Good point. But as far IBS? Maybe that’s barking too. On the Wechol. (625 mg tablets). I am taking just 1 pill since Tuesday 10/25/22 at 4 pm and it’s definitely helping me. Not a huge...
So. Had trough and antibodies test right before last infusion. My 3rd infusion of 10 mg of Inflectra every 6 weeks. Saw new GI yesterday morning to review results. Drum roll: Trough was 14 and...
I bought the white tablets so I could break them into pieces. The directions say to take 2 full tablets to start initially then 1 as needed. So, I’m guessing from experience, maybe I start out that...