NOOOO....too old. I am 76 and my surgeon said it would be too much of an operation. I use Hydrocortisone Cream. If I used it the way I SHOULD, I probably would be ok, but sometimes I forget. I have a...
Remicade or any other biologic, for that matter, will NOT alleviate rectum/anus problems. Been there, tried that....
Hi Susie! I just returned from a five day trip to the shore with my daughter and little grandsons. I think the salt water helped my sore butt. I cancelled my appointment for the biopsies. If need be,...
Yep, sounds like we are in the same boat! Oh well, things could be worse, a LOT worse. I cannot tell you how much I suffered with UC before my operation. My quality of life was going downhill fast. I...
Geez, it's been so many years since my operation, but, I will try to summarize it. I had my proctocolectomy June 28, 2010 at Pennsylvania Hospital in Philly. I was hospitalized 11 days due to some...
Anyone still have their anus after total proctocolectomy? Any problems? It's been almost 11 yrs since my operation. My surgeon left my anus but took rectum and colon due to my UC. I am having a lot...
I rarely visit this forum anymore, but glad I did today. I am so sorry you are going through all this!! Tracy, I made the big mistake of eating popcorn the day before New Year's Eve...OMG...NEVER...
This is so heartbreaking. I didn't get my permanent ileo until I was 63. I can't imagine a child having to face that challenge. My oldest daughter was bullied in middle school. This mother should...
LOL....I did know better Tom. Now I REALLY know better!!! Man that set me back a few days. After the blockage finally broke through, I had the worse bout of diarrhea ever. The wine would make me...
I don't know whether it was the popcorn I ate last night or the flaxseed I put on top of my cereal this morning, but my stoma is having a rough day today. Maybe a combo of both? Drinking cranberry...
Oh Roy.....I am so very sorry you are having such misery. My colorectal surgeon said I was not a candidate for J Pouch and I got the feeling he was not a big fan of J pouches either. I believe there...
I would hope he would send you for a CT scan. Sounds like something is going on....
Notsosickly, good to hear everything passed through ok. I have been having upper gastric issues for several months. I went to a GI doctor (not my former guy who refused to send me to a surgeon, this...
Tom.....I didn't mention the corn on the cob that I have been eating quite a bit of lately. LOL. I live in Jersey, so corn on the cob and fresh Jersey tomatoes are a summer staple. I am STILL having...
I have had my stoma for over eight years and in all that time experienced on one or two minor blockages. However, a few nights ago, I ate some popcorn. I thought I chewed it thoroughly, but I guess...
Today is Wednesday, the day after your surgery. When you are able, please let us know how you are feeling. We care....
I had a total colectomy with end ileio eight years ago due to severe ulcerative proctitis. Although my issues are different than yours, all of us here had the end result of surgery. My surgeon told...
Hi! It takes time. I believe it took me a good 6 months before I got my full strength back. I had complications after surgery. The resident told me I could eat two days after surgery, and that just...
Mine never went back to normal, but, that's besides the point..lol. Reading these posts makes me so happy I never have to have another colonoscopy. However, before my surgery, my GI doctor always had...
Hi. I usually post over on the Ostomy Forum, but do visit the UC site occasionally. I read your post and I can relate because I suffered with UP for twelve years. First of all, I don't want to scare...
I was 52 when diagnosed, but had symptoms of UC since childhood. When a child, I had constipation problems. There was a time when I would only go once a week and had to strain for that! My mom just...
I was told I most likely passed a kidney stone and didn't even know it! I did have some pain in my back and felt a bit sick to my stomach, but that's about it. I thought I had a UTI, which I do get...
Yes, he is....
I don't know where that last guy came from, but sounds like an old fashioned medicine man from the 1800's who used to sell stuff off his wagon. Anyhoo…...I think you got great advice from the people...
Ditto.....I had UP (ulcerative proctitis) for twelve years. It never traveled further into my colon, but with UC, they stress to remove all of it if removing the rectum. All my colon had wrong with...
Hi there! My name is Chris and I usually post over on the ostomy forum, but I did post a lot here when I suffered with UP (my disease was mainly in the rectum). Just a few things. I think your GI...
I suffered with UP (my disease was located in the rectum and NEVER traveled into the colon) for twelve years before seeing a surgeon. Ironically, my colon only had minor diverticulosis! I suppose the...
Just reading this now, so you've probably had the operation already. My surgeon, forever what reason, left just a bit of anus tissue intact after removing my rectum and colon in 2010. Before that, I...
Clo, sorry for the delay, I haven't been on this forum since I last wrote. No, no one told me it could grow larger. My gyn said it was probably the size of a pin hole since it couldn't be seen the...
LOL. Oh, I know it! On top of all this, I went to my gyn last week because still having gunk coming out my vagina and a bit of blood. Long story short, transvaginal ultrasound scheduled for the 18th....
LOL! Update. I spoke with a Medicare associate and Blue Shield. Told them the problems. Today, I received a check for $150 from Medicare!!! How they come to this amount, I have no clue! They said I...
How are you doing Elena?...
Will do clo. I still haven't spoken to an Edgepark associate. I don't have time to hang on the phone forever. I did speak with the billing department of my cardiac doctor who sent me a bill which far...
I remember some of you voicing problems with Edgepark. Have you had the problems resolved? I have Medicare as my primary ins and PA Bl Cross and Blue Shield 65 Special as secondary. Edgepark had me...
I'm Polish! I eat kielbasa and sauerkraut at Christmas and Easter. Also had corned beef and cabbage on St. Patty's Day....no problems. Only thing, and I am sure your surgeon reminded you of this,...
This must be a religious issue? When I was in Pennsylvania Hospital in Philly, my first roommate was Jehovah's Witness and the only reason she came to PA Hospital was because they would honor her...
Marcell, my life is fantastic. I had a little bit of complications following my surgery. I was hospitalized for 11 days. However, I attribute that to my lousy health going into surgery. I was...
Hi UCWhat! I don't have a clue, but was wondering if it could be a hernia? You aren't lifting anything heavy, are you?...
Notbob....how are you now feeling? I had my biopsies done about a month ago. So far, no word from the colorectal surgeon, so guess, no news is good news. It did say on my discharge report that they...
Your problem is the exact opposite of mine. What did your GI doctor tell you as to what is causing this problem? Have you had colonoscopies? Are you under treatment for your problem? I had ulcerative...
Hello all! I had UP, surgeon removed my colon and rectum but left the anus. In his opinion, there were more complications when they sew you up. OK....four years after my operation, I started to feel...
So sorry you are going through this. I saw two surgeons before my operation and both were anti j pouch. I had a permanent ileo right from the get go. I pray you get relief soon....
Hi Eva! I use Edgepark. I've been on Medicare going on seven years now. When I place my orders, Edgepark always asks how many days supplies I have left. I realize it isn't Edgepark, but Medicare who...
Hi! Did you expect to have an ileo or j pouch? Wasn't this discussed with your surgeon beforehand? I had ulcerative proctitis for twelve years before my surgery in 2010. When I went to see a surgeon,...
Hi Clo and Twingirls......so far no word on the biopsies. Today is two weeks. I was told it will take three weeks. I still have "gunk" coming out the vagina, but in the words of my original surgeon,...
I had ulcerative proctitis. My main problem was the rectum, but my surgeon left only a few cm of anus. He removed my rectum and colon. My operation was in 2010. In 2014, I started to flare inside...
Sometimes I feel the output, but only where there is a lot of it. Usually I don't. I have a recto-vaginal fistula, so it is nowhere near the stoma....
DITTO!!! I use Coloplast Sensura. It also has a filter, don't ask me why because it never worked. I like the bags though....
Where did you have your operation? By where, I mean what hospital?...
Yep, still have my anus but not rectum. According to the report, it says proctitis 3 - 4 cm rectal pouch, with defect noted in superior portion. Multiple cold biopsies taken. It also states Rectal...