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fruitgirl

HealingWell Forum
>
Member Profile
Display Name
fruitgirl
Profile Created
2/4/2009 11:49 AM
Last Seen
11/2/2016 8:41 AM
Total Posts
7150

Last 50 Posts

Anal abscess with UC?

I had an anal abscess and resulting fistula a few years ago. Because my UC was in complete remission when it happened, my GI and colorectal doc saw no reason to question my diagnosis with UC. The...

2/8/2016 12:56 PM

Ulcerative Colitis
night SWEETS !

I don't think I've ever gotten out of bed and eaten anything in the middle of the night. I have eaten in the middle of the night, but that was more like a "eat some food to sop up all the alcohol"...

2/8/2016 12:16 PM

Ulcerative Colitis
Flare up with 10 weeks pregnancy

I think that at this point, you need to make sure to get the flare under control for your baby's sake. Congrats on the pregnancy, BTW! You may want to ask to see a high-risk OB, or ask your gastro...

2/8/2016 12:14 PM

Ulcerative Colitis
Melatonin

I take 5mg extended release melatonin every night. I stopped taking it in January, and was sleeping fairly well, but then I had a slight uptick in my daily number of BMs (from 1 to 2-3). This was at...

2/8/2016 7:02 AM

Ulcerative Colitis
Diet question - Grains

Yes but look at your signature. If I were on those big gun meds then we could all eat whatever we wanted too.[/quote] I'm fine with grains (and haven't needed to modify my diet at all since being...

2/8/2016 6:55 AM

Ulcerative Colitis
"Prepare to flare after giving birth"

I flared after my first child was born, but that's when I was diagnosed. I did not flare after my second was born, but I had been stable for a couple of years before getting pregnant, was stable...

10/26/2015 6:17 AM

Ulcerative Colitis
What should my expectations be??

I'd try ditching the mesalamine rectals. During the small flare I had a year and a half ago, I became sensitive to mesalamine rectal meds. At first, I thought it was just the sulfate preservative in...

10/20/2015 10:04 AM

Ulcerative Colitis
Cool new faculty position at Purdue - Food and the Human Microbiome

q, thanks. I'm not sure how much I'll post - I just don't feel that I have a ton to contribute. nssg, nope, I won't apply. I'm not qualified (PhD is in horticulture), but I also have decided I don't...

10/2/2015 9:08 AM

Ulcerative Colitis
Cool new faculty position at Purdue - Food and the Human Microbiome

I ran across this today - it's just now being advertised, so it will be a while before someone gets up and running, but this could result in some interesting info for IBDers. Here's some text from...

10/1/2015 7:55 AM

Ulcerative Colitis
GAVIS Mesalamine Enema

I didn't like the tips on the Gavis bottles - I thought they were sort of rough compared to Perrigo....

9/29/2015 11:25 AM

Ulcerative Colitis
rectal med questions

I always just laid on the bathroom floor to do enemas - I was too afraid of drips and the possibility that the enema solution could stain my bedding (and it DOES stain). I'd just do it, get up, wash...

9/29/2015 11:23 AM

Ulcerative Colitis
Would you be gutted if there was a cure, but it was too late for you?

I haven't been here in a long time, but I'll "play." TBH, I really don't know how I'd feel. I think I'd be OK with it, *if* I had a well-functioning j-pouch or were content with my stoma. If that...

9/29/2015 11:20 AM

Ulcerative Colitis
pregnant, living with UC and off medication

Get back on your meds. It's a lot more dangerous to flare than it is it be on mesalamine-based meds during pregnancy. I took Apriso and mesalamine enemas the entire time I was pregnant with my second...

6/20/2015 6:48 PM

Ulcerative Colitis
Somewhat OT - doc in MI to treat systemic yeast/fungal infection

I won't go into too many details because it's a long story and I don't have them all, but my sister in law is certain she has a systemic yeast/fungal infection. She has horrible gi symptoms, has had...

4/6/2015 6:14 PM

Ulcerative Colitis
Question about how colitis works

You can have a flare that involves less, or more, of the colon than what you've had in the past. For instance, I was diagnosed with pancolitis. I had a very mild flare about a year ago, and while I...

3/27/2015 5:03 AM

Ulcerative Colitis
Darn flu caused UC to act up

I think I found that actual study you reference (not a report about the study), and the parents were the ones recording the amount/severity/ect. of coughing, so perhaps THEY were influenced, and the...

3/26/2015 1:13 PM

Ulcerative Colitis
Darn flu caused UC to act up

I imagine that the conditioning would require many instances of reassuring her that the medicine would "make her all better," sort of like a Pavlov's dogs thing. And, who knows how these studies were...

3/26/2015 12:39 PM

Ulcerative Colitis
Bristol Stool Chart - an easy way to keep it handy

Wouldn't that be fun to put in a guest bathroom? ;)...

3/26/2015 12:19 PM

Ulcerative Colitis
im going to cure my ulcerative colitis

This exactly. Except that oral mesalamine does a lot for me....

3/26/2015 12:15 PM

Ulcerative Colitis
Darn flu caused UC to act up

My daughter had flu last year as an 11 month old. She woke up in the middle of the night with a 104* fever and we took her to the doctor that next morning, where she tested positive for flu. We...

3/26/2015 12:12 PM

Ulcerative Colitis
Remicade update / two questions

My GI told me there's been ONE reported case of diarrhea in an infant whose mother was taking mesalamine. And given what baby poop is like, how accurate might that be, even? I was not at all worried...

3/19/2015 7:19 AM

Ulcerative Colitis
New drug for Crohn's disease shows early promise

Interesting, OM. As for the questions why CD first, I think it's because CD is generally thought to be a much more serious disease. It can affect the entire digestive tract, not just the colon, and...

3/19/2015 6:47 AM

Ulcerative Colitis
OT - this is an interesting little blurb with my son's awesome GI doc !

First, that's awesome that you have such a good feeling/relationship with your son's GI. It makes things more tolerable (not sure if that's the right word, but I hope you know what I mean) when...

3/16/2015 11:52 AM

Ulcerative Colitis
avoiding travellers d?

Ditto to not take imodium if you get traveller's diarrhea. Whatever "bad guy" got in there needs to get OUT, and stopping the diarrhea is not a good idea! Avoid fresh fruits and veggies, as the water...

3/16/2015 10:27 AM

Ulcerative Colitis
Speaking of food

sue, can you share the recipe? I like spicy stuff!...

3/13/2015 9:58 AM

Ulcerative Colitis
What's next

Congrats!!!!...

3/13/2015 7:27 AM

Ulcerative Colitis
Speaking of food

This quinoa pad Thai recipe is REALLY good. I added more sriracha than what the recipe called for and started with leftover roast chicken. http://www.cookingforkeeps.com/2013/12/03/quinoa-pad-thai/...

3/13/2015 6:32 AM

Ulcerative Colitis
Don't eat potatoes, tomatoes, eggplants

And to clarify, I think it's great that people share what food bother them - it can give others ideas of what to try, if they think they need to modify their diet. However, I really do think the idea...

3/13/2015 5:57 AM

Ulcerative Colitis
Don't eat potatoes, tomatoes, eggplants

Sorry, but wrong again. I eat dairy daily. And while I don't eat a lot of processed foods because I like to cook and I like to avoid them for overall health, I do eat some....

3/13/2015 5:46 AM

Ulcerative Colitis
Pregnancy and safety of enemas

I have never seen that enemas aren't safe in the third trimester. Where did you see that? I used them the entire time I was pregnant with my daughter. She was born the day before her due date...

3/13/2015 5:21 AM

Ulcerative Colitis
Don't eat potatoes, tomatoes, eggplants

I'm in remission - I had 5-year very solid remission (zero symptoms), then a very minor flare, and have been back in remission for over 9 months now. I eat all of those things, and especially eat a...

3/13/2015 5:19 AM

Ulcerative Colitis
Melatonin

Papers are absolutely peer-reviewed, if published in "peer-reviewed" journals. They don't have to be presented at a conference to be considered peer-reviewed, either. The journal editors send the...

3/9/2015 9:15 AM

Ulcerative Colitis
Social Security Disability

(Another MSU grad checking in - PhD in horticulture/plant breeding. Go Spartans!)...

3/4/2015 11:13 AM

Ulcerative Colitis
Do you think coffee is bad for colon

I have a cup or two every morning....

3/4/2015 9:30 AM

Ulcerative Colitis
Social Security Disability

My aunt is on SSD due to severe RA, and she lives with my grandparents. When they pass on, though, she's going to have to go into subsidized housing, because she's impossible to live with (I don't...

3/4/2015 7:04 AM

Ulcerative Colitis
GF-ers, need your support

I still just don't see how the anemia could be due to Celiac since you're already gluten-free. Have you point-blank asked your GI this? I'd want a really good answer for that question before I'd...

3/3/2015 1:11 PM

Ulcerative Colitis
Re: Special opportunity for people with Ulcerative Colitis

That just shows how oblivious I am to the stickies! I sometimes hop in the UC Resources thread to find a link to something I know is there, but otherwise, my eye just skips over them to the first...

3/3/2015 1:08 PM

Ulcerative Colitis
Re: Special opportunity for people with Ulcerative Colitis

Wait, you mean HealingWell?...

3/3/2015 12:14 PM

Ulcerative Colitis
Tapering off pred

Oh yeah, if you aren't currently using rectal meds they can be a huge help as you're tapering pred. You could consider alternating between mesalamine and steroid enemas....

3/3/2015 10:02 AM

Ulcerative Colitis
Your current frequency, flaring, simmering, or in remission

In medical terms, there's no such thing as simmering. I mean, you're either in remission or you're flaring. Sure, there are degrees of flaring, and one can certainly have a mild flare, which is what...

3/3/2015 8:12 AM

Ulcerative Colitis
Couple questions about hydrocortisone enemas

Well, I think that some people have lingering issues with urgency even when in clinical remission, but I think the urgency is more psychological-based instead of inflammation-based. UC can cause some...

3/2/2015 8:52 AM

Ulcerative Colitis
Ever wonder why UC is associated with colon cancer?

Well....UC is associated with higher incidence of colon cancer due to the inflammation and the damage caused by the inflammation. Besides, not all UCers are on immune suppressing drugs - plenty of us...

3/2/2015 8:04 AM

Ulcerative Colitis
My First Post

Burli, here's a link to the page where all of the posts you started begins. http://www.healingwell.com/community/default.aspx?f=38&p=196&x=25&ord=s It's page 196, sorted by "started by." So then you...

3/2/2015 6:44 AM

Ulcerative Colitis
Well that was a blow to my confidence

Poop-fume doesn't sound like a great idea to me, so I'd probably skip that. Sorry this happened, though and I hope you find something that works soon!...

2/27/2015 7:38 AM

Ulcerative Colitis
Preventing UC -- vegetarians and vegans do better

Yes, it drives me nuts how many different ways her name is spelled in that article. It's spelled Clarissie, pronounced Claire-iss-sie, with the emphasis on the first syllable. I thought about having...

2/26/2015 1:21 PM

Ulcerative Colitis
Preventing UC -- vegetarians and vegans do better

Thanks Guardian and stud. She really was quite a lady and I'm thankful that I got to know her - not many people can say they knew their great-grandparents!...

2/26/2015 10:58 AM

Ulcerative Colitis
Preventing UC -- vegetarians and vegans do better

My great-grandma lived to be 102 and she was an omnivore. And she had no chronic illnesses. And she drank a coke pretty much every single day. ::shrug:: She did, however, stay quite active, even in...

2/26/2015 8:23 AM

Ulcerative Colitis
Vaccinations and UC

There's no evidence to suggest that vaccines trigger flares. I got an MMR vaccine a week and a half ago because my titers were low, and I am fine. However because you are on Imuran, it's recommended...

2/25/2015 6:56 AM

Ulcerative Colitis
Why am I so emotional?

I think I'd change up my diet a bit - I mean, since you're still having fairly bad symptoms, it could for sure be causing you GI symptoms other than inflammation. For example, sweet potatoes can give...

2/24/2015 11:10 AM

Ulcerative Colitis
Why am I so emotional?

I think you should try rectal meds, specifically mesalamine enemas. They should really help the feeling that you have to go all the time. Or if those don't help, try steroid rectal meds. Also, the...

2/24/2015 6:25 AM

Ulcerative Colitis



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