Hey sorry i should have been more clear! I was just responding to the post above, it wasnt that they failed at paying the remicade, its just that the remicade itself stopped working completely on me....
Thats a crazy cost for an infusion! Blue Cross covered my 80% and then remistart or some similar program would immediately pay the rest, I only paid 20 dollars per infusion and cant even remember why...
Just saw here that you were looking at a consultation with Dr. McLeod, i know other people have already recommended Mt. Sinai to you but i just wanted to add in on that, Dr. Mcleod is my current...
I have been suffering extreme insomnia for over a year now and recently started taking melatonin as well, i bought 3 mg easy dissolve tablets that dissolve under my tongue. They take a little bit to...
Hi everyone! Im fairly new to having an ileostomy and everything was going fine for the first while, but the past two weeks or so i keep continually having problems trying to get my wafer to stick. I...
Hey everyone i just had the first step of my two part J-pouch procedure done two weeks ago and had a quick question. My surgeon managed to do the surgery laproscopically so i only had one small...
yah for sure, my email is , feel free to email me whenever you want :) 16. [color=red>Use]This is to protect your security and identity. please put your contact info in your signature instead of...
Hi everyone I've been on this site for some time now but haven't been posting a whole lot lately, however I'm finally saying good bye to Ulcerative Colitis forever and having the J-Pouch surgery...
Im a 22 year old male who was diagnosed when I was 16 with Ulcerative Collitis and by this point I've been through just about everything there is to be through with this disease except...
Just a quick question, I recently ran out of my prescription for percacet which my GI had prescribed for me, i had been taking maybe one every day or two for pain when it was really bad. Instead of...
I know exactly what you mean having to get on here and just vent a bit, feels good to just kinda throw it all out there to people who can understand what your going through. Im on 40 mg of pred at...
Its actually really weird, it might have something to do with what i eat with the alcohol or the food i have in my stomach at the time of drinking. For example last week i went up to my trailer and...
I have drank lots both while in remission and while in a flare, and to be honest it still really confuses me sometimes. I find that while i am in remission alcohol actually did not bother me at all,...
No unfortunately my GI is located in Scarborough, however he talks to the surgeon often and he told me today that while it might take me a week or so to get my initial appointment, i am going to be...
UC runs in my family as well, my uncle had the surgery done over 20 years ago...and it turns out that the surgeon i have been referred to is the same surgeon that actually did his. I have a number of...
Thank you very much that is actually very reassuring to me. To be honest its those three months with the ileostomy im most worried about, I feel like im going to be very self conscious with the bag...
Just out of curiosity how are you a year out of the surgeries? I plan on being able to go back to school and want to be back to normal life as soon as possible but im so worried that even a year...
That is reassuring thank you, im extremely nervous about this surgery, it still wont be for a while yet as i havnt even met with the surgeon, but im anxious to get it done and over with. Im hoping...
Basically here to just rant a little to people who understand i guess. Ive been extremely sick for so long its ridiculous, im currently waiting for a consultation appointment with a surgeon at Mount...
Thanks everyone for the feedback i really appreciate it, im really anxious to get this surgery over and done with it feels like ive been sick forever, I just want to finally be on the road to...
Just out of curiosity do the pouch and stoma not work as well if you are over weight? Im far from over weight im at about 180 pounds and im just barely under 6 foot, but even still im a generally...
Hi this is my first time posting on a forum other then the one for Colitis but I was just recently told last week going to have to go through for J-pouch surgery. I am 100% fine with this and...
Im at currently 26 times since 8 am this morning...its too much. I literally have only been off the couch and fully awake for maybe a total of 3 hours today and am going to bed really soon. I feel im...
My Email is chris_gray_123@hotmail.com, feel free to send me an email about my GI i wouldnt mind knowing what other peoples opinions are on other GI's in the area considering i may be looking for a...
I post my email and then remove it if you would like? or you can also go into the chat function for ulerative colitis...
I read your comment about your blood work being normal despite massive flare's and was surprised because i was told the exact same thing today. I am in the worst flare i have ever been in, im going...
I have been thinking about deferring my teachers college for a year, but it brings up a few difficult problems. Taking a year off from university means i have to start paying off my school debts and...
Basically just told me i have to go in for more tests tomorrow, he said that my blood work from a little over a week ago is completely normal, and that it is strange that im going 20+ times a day...
When i said diet i meant something really radical such as following the full scd diet, I have been dairy free (for the most part) since February and also have been on a low residue diet that my...
Thank you very much, the support on this site has helped me a lot over the past few months and has helped me get through some very difficult times. I put on an extremely strong face for my family and...
That's reassuring at least, when everything starts to fail on you its kind of hard to keep faith in anything anymore, I know 100% that surgery is somewhere down the road for me, there is no way that...
To be honest i have never even heard of LDN, what is it and how does it work? I have heard of many people using things such as probiotics and fish oils and some really wierd homeopathic therapies but...
Thank you, the pain is worse then i have ever had, last week the emergency doctor offered me pain killers and i turned him down because i dont like adding any more drugs then i absolutely have to...
Im almost at the point where i am ready to tell my colon to pack up its bags and leave. Remicade failed for me after initially working amazing and all i have left to try is immuran and Humira. Im...
After the worst few weeks of my life i am finally seeing my doctor tomorrow. Remicade has failed completely for me just like every other drug ive tried ( ive tried pretty much all of them) and I'm in...
Prednisone worked for me the first time i took it about 5 years ago, this time around we tried it before remicade in february but it didnt work. I was on about 60mg a day for a couple weeks with no...
Unfortunately my GI is very busy i guess, that was the soonest time that they could get me in for an appointment. I was on a similar drug to asacol called salofalk for a while but my GI stopped me...
Soooo remicade has officially failed for me and i am waiting to see my doctor next week hoping he will put me on something new that will work, i have yet to try imuran or humira so maybe one of...
My Doctor originally suggested going on Imuran while i was still on Remicade, however because the first few doses had been working so incredibly well, we decided to leave that for another time if it...
So here is the situation, i have had three doses of remicade so far, after the first two i felt amazing, bleeding and pain fully stopped, fully formed bm's, figured remicade was working as a miracle...
Sooo ive been on remicade now for a month and a half, the first infusion was great, got me out of the hospital and healthy again quite quickly, second infusion same thing i was feeling amazing, just...
Went out and drank heavily last night and no problems again :D....well collitis wise at least....i was supposed to be writing an essay and now have to go to work hungover....still totally worth it...
Thanks everyone, i dont think i can taper any slower im dropping 5 mg every two weeks right now which i believe is pretty slow, im down to 5 mg today and i feel more exhausted then ever. I had a...
So far ive been good with most alcohol as long as im not flaring hard core, started back after most recent flare testing the waters with some rum and fruit juice, then tried beer found it didnt sit...
I find im actually pretty good with food, i watch my fiber and dairy intake and anything overly processed such as microwavable food absolutely kills me. I am fine eating any bread as long as its...
I actually just posted another thread before i saw this, im tapering off prednisone now after being on it since beginning of December. I was started off at 40 mg, then put up to 60, and have been...
Hi everyone just a few questions about tapering off prednisone. I have been on it for a few months now, and after it didnt help me at 60 mg per day or even through iv dosage in the hospital i was put...
I was diagnosed with UC in october of 2006 and after taking prednisone for a while went into remission with maintenance meds for 4 years, this December though i had a massive flare up and prednisone...
I have no idea about the toes, but i know that my first remicade infusion didnt really kick in until about 3 days after the first infusion, since then ive been feeling steadily better, just had my...
I think im in the same situation, except replace dairy queen ice cream cake with buffalo chicken wings and mac and cheese with pitchers of beer....not looking forward to tonight/tomorrow :/...