I have been on entyvio for 3 years. Every 4 weeks for the last 2. I was very lucky in that I saw results almost right away but didn't have huge success until the infusions were more frequent. It...
Hi! I'm sorry you've been feeling so bad. For what it's worth, I also agree that if you start to feel better you won't know if it's the diet or the Entyvio that's working. I think it would be...
Thanks for the luck:) They wouldn't let me have it when I was really sick. I don't know if it was the fever or the vomiting that was the problem. She said it could be dangerous...that's why it was...
Unfortunately my appointment is tomorrow at 9am. I guess I will go and let them decide if I should get it or not. The problem with delaying is that it's my loading dose number 2. This clinic is very...
I haven't had a bug since I was a kid too. At least I can honestly say that pooping is better then barfing!! Terrible. She did give me a bag of fluids the last time. Hopefully I can have that again....
Hi all, Happy New Year I had my first remicade infusion on December 11. All went great! I even noticed an improvement after the first 3 or 4 days. I was due for my second infusion on December 27....
I've used them a couple of times. 2 weeks is what I'm given....
9 days. They wanted to keep me another day and I BEGGED them to let me go. When I was feeling terrible I didn't mind so much but as soon as I started feeling better I was itching to get home....
Omg! I hope you don't have eczema too! That's a lot of skin issues for one person to deal with:)...
I have just been diagnosed with eczema and have a rash EVERYWHERE!! It's itchy, but not crazy itchy. However, some people who get eczema will get the crazy itch BEFORE the rash. They gave me a...
I haven't been sick since I started back in March I think. I work in retail so I make sure to wash my hands constantly. I use tons of hand sanitizer and use it if I have to touch door handles,...
I've had UC for less then 3 years and just had my 3rd colonoscopy....
One more weird thing about me I guess:)...
Pred is the devil! But it does work. 2 weeks isn't that long. I'm usually on it for 6ish. I don't like to see blood, so if nothing else works I go on the pred....
Yes, they took biopsies but no, they don't phone with results. I'm just getting over a pretty good flare so I'm assuming you're correct. thanks!...
Hi all I just had a colonoscopy and was given a sheet that said, mild inflammation in rectum and scarring in Left colon 30-40 cm. What does this scarring mean? Can it cause bleeding and pain? Should...
We were in Quebec last week. I butchered the language!! I don't have a problem with bilingual signs but I do have a problem with them being bilingual everywhere except Quebec. We went to a hydro dam...
This is my 3rd time starting at 40 off in 6 weeks....
I have a friend from high school who I still talk to and see a couple times a year whose husband was diagnosed a few years ago. Then when I was in the hospital I gave him a call and asked "what was...
Whoot!...
I'm kinda the opposite. I get every side effect imaginable and have a really tough time on Pred. The only reason I will go on it now is if the bleeding starts to get too heavy. Jittery, insomnia,...
Could it be heat blisters? Some people get water blisters from the uv rays or extreme heat. I'm not on remecaid but I have been finding I have a definite low tolerance to the sun since starting...
Mine won't come in if the door is closed but he also has the habit of asking if I'm ok or if I need something. Unless you have a new colon out there, I'm good!...
I was also forced into a fast the same as bananagirl. But I was on an IV so I was still getting fluids. Then they put me on a clear fluid diet. Jello, water, weak tea, broth. The nutritionist...
I started in March. I had some mucous and pain start again when I finished my pred but it mostly went away after a month or so. Unfortunately I started bleeding again 2 weeks ago and was told this...
I get worked up whenever I see blood because I know the pred could be around the corner but working myself up is probably making everything worse. Give the enemas a good go. They have kept me off...
I laughed at the curse myself comment. I was telling everyone how great I was starting to feel and I swear it was no more then out of my mouth and the mucous and blood started again! And then...
Doctors used to prescribe smoking for asthma too...just sayin' :)...
Like bananagirl, pain is now my number one symptom when flaring. I get the sharp jabbing pain that comes and goes as well as an almost constant crampy pain. I have found these have gotten better...
I'm starting to do well UC wise since starting the imuran. The pain has lessened dramatically! However, now I'm getting wicked indigestion! Doesn't seem to matter what I eat:( I'm guessing it's from...
I cut mine short but long enough that I could pull it back into a tight pony tail. It was driving me nuts having hair everywhere. It didn't all come out tho. And it does grow back. Kinda a personal...
My biggest symptom is exactly what you're describing. I get crampy pain continuously and sharp pain periodically....
Night sweats are a symptom of colitis and sweating in general is a side effect of prednisone. I'm not aware of anything that can be done for either. Both will go away. One when your inflammation goes...
I never went back to smoking but my doc did say it does help some people. Have seriously considered it a few times....
I had the same and asked the pharmacist if there was anything I could take. Big negative! Other then what ManhattenMama suggested:(...
I have found that most ppl who post here often repeat the same advice because this is the advice they believe in. The longer you're on the forum the more often you're going to see the same poster...
I've had something similar happen only once and it sucked! The worst is that it's depressing and you feel helpless. I hope that you get a hold of your nurse very soon! paula...
A lot of my pain is in the area just below my ribs. It was confusing for me as well at first but that's just the way it is. The higher the inflammation the higher the pain I guess. Sometimes I can...
Pain is my major symptom. My whole left side and across my middle is continuously crampy and when I have a bm I get sharp shooting pains along the left side. How high the pain seems to indicate how...
@bananagirl "it really dries the crap out of pimples but kind of makes you smell." lol! I love that we'd rather smell then have pimples:)...
Do you have a treadmill at home? I find if I can move around a little bit it can make the gas go and lesson the pain. If you don't maybe try walking around your yard for a bit and see if that helps....
I was hospitalized for 9 days (would have been longer but I BEGGED them to send me home:)) IV fluids and steroids for most. No food except the last two days of clear (broth and jello, barf. Be...
That is a good list. Pain, fever, bloating, vomiting, heart rate, blood pressure. Not a great time....
I'm only on week 2 and I swear I will have to be at deaths door before I take it again. I think because I was so ill the first time I was on it that I didn't realize how many of the side effects were...
I recently took it for 2 weeks along with nightly solofalk. I'm switched to pred now but it did lower the amount of mucous and blood. I found it a lot harder to administer then the regular enemas...
notsosicklygirl: I'm not opposed to taking so many as much as taken aback. I have been lucky in my life not to have to take many things. A tylonal here and there, an antibiotic. Now it feels like I'm...
Thanks guys! I always get a kick out of the screen names ppl have but I must say Gottago! made me laugh:)...
I can totally relate to how crappy it is to be in the hospital. The only good thing is at least you generally start feeling better pretty fast. Good luck to you. paula...
Oh man Gottago! I had one too and it was sooo worth the pain!!...
notsosicklygirl, wow! That is a lot of pills. I am at the maximum dose of 4 pills of Mezavant (and only once a day) it's a new drug. I should only have to take 6 pills when I'm done the pred if...