Hello, is anyone on mesalamine? If so, I am wondering if it is ok to take it prior to receiving the COVID vaccine. I know it is not recommended one take tylenol or advil (anti-inflammatories) before...
Thank you for the feedback!...
Yes I found a couple of references to them, but just wondered if anyone had feedback on their experiences. They are from Germany, and contain Lecithin/Phosphatidylcholine...
Hi, Is anyone taking SpongiCol Collagen Lecithin Capsules from Klinipharm, and if so, please let me know what you think/if it is helping. I am also curious if anyone has tried PC Medicus with any...
I believe some alternative therapies have a place in helping UC, along with pharmaceuticals. It is unfortunate the large amount of scammers out there (criminals, really) that will sell fake...
I was just diagnosed with pneumonia last night. I was given the choice of a Z-pack or Doxycyline to take. I had tried a Z-pack not too long ago for a root canal, and I started to flare; luckily I was...
I think the biologics turn off your immune system so that your body will (hopefully) stop attacking itself ) ie the colon....
Thank you for the responses - I really appreciate it. It is helping some, although the last couple of days I haven't felt as well and am terrified I might be backsliding, as I had some pain and my...
Thank you - it's so disheartening, as I blow up when on pred, and was hoping that would not be the case with Uceris. My Dr. said "no side effects". What a load of crap LOL!...
Has anyone had prednisone-like side effects while on Uceris? My doc said I would not get the same side effects while on Uceris, but I have moon face, fluid retention, racing heart, etc. I guess maybe...
I wonder if it is safe to take the CBD oil along with Uceris and Mesalamine? I googled a little and got the impression it might magnify the effect of some drugs?...
I have been taking Uceris, which seems to be helping some thankfully (I am able to function again), but I am starting to get some steroid type side effects, which really depresses me. I thought this...
It seems each time I flare, Prednisone is less effective and I have to increase it and then I start tapering and then have to go back up again. Plus I have horrible side effects from it - just awful!...
You might look on the site "Upwork" - they list jobs - some are full time, some are part-time, and some are one-time tasks. I am not sure that a college degree is a requirement for all work from home...
I can relate! I would have a terrible flare and actually have to quit my job, and then the bills piled up, which was also incredibly stressful. Now, I work from home. That is the best situation for...
Ugh, I am on mesalamine oral and rectal. I had been doing rPC capsules, but have been so nauseous lately that I stopped. I am going to try to add them back in again. I started the SCD diet on Friday,...
I have ulcerative colitis throughout my whole colon. I have been going downhill quickly. The mesalamine has not helped. I am looking for success stories of what people did to get out of a bad flare...
Thanks - my scope is Tuesday. I am very worried :(...
Yeah the Prepopik sounds good, but my GI was hesitant because he said it doesn't clean out as well :( I also heard it takes a long time to work and you are cramping the whole time...did you have that...
I have to get a dreaded colonoscopy next week, and need to choose a prep. I am NOT good at drinking the preps - my gag reflex is terrible and I barf. The last colonoscopy I had I took Osmoprep pills,...
by the way, i just looked at the book review...nothing was ever given to me/spoken about parasite removal. now that would have been of interest to me......
Yes, I went to him several years ago. I am a proponent of alternative medicine, supplements, etc, but he was of no help. Basically, he sold me a huge bag full of supplements (cha-ching!), did some...
perhaps not such a nice chance to take - getting pregnant and being on those meds...the meds could hurt the baby and/or you could pass on uc to it. not a chance i would want to take/do to another...
i am no whiz at this, it's trial and error it seems, and sometimes what worked once no longer works, and can then work again over time! but here are my ideas: 1. my friend tried slippery elm (before...
disagree...
the fda is compromised, and everything is interconnected. it is similar to what is going on in washington/wallstreet...some of the wall street guys are acting as advisors in washington! it's total bs...
amen to that!...
i have thought this all along. i think it is being ignored by the authorities due to the powerful dairy industry/dept of ag. can u imagine the ramifications to the industry if this were exposed on a...
Tankor - well said! And by the way, I don't believe there is a "conspiracy" going on between researchers, docs, and big pharma. What I do KNOW is that big pharma is in it for profit. The docs and...
thanks for the article alba! i think this is key to ibd and no one seems to be pursuing it aggressively. it would be devastating for the dairy industry, so i am certain that has something to do with...
i do...i thiink they just want us to buy "maintenance" meds because repeat customers are where the $ is at. a cure means they lose business. it's about the bottom line. i believe it is the...
gosh, i'm so sorry to hear all of this you are going through. i sure hope your symptoms improve and you feel better soon. hang in there - at least the scope is over with. maybe it's just taking the...
ok, you may be a researcher, but that is different from being a pharmaceutical company. big pharma DOES NOT WANT A CURE, and YES, YES, YES they ARE in it for money. they are NOT in it for healing...
tmeah7, the only slow release formula on the market that i know of is thru klinipharm in germany. it is compounded, and you do need a prescription from your doc, but they will ship it to you....
i have that too...i have had it over the years since i had uc. when i mentioned it to my ex-doctor, he said "well, you don't have as much padding there anymore" because i'd lost weight. i KNOW that...
yay! that is so awsome! thanks for reporting back. it is good to know there is hope for the rest of us. keep feeling good!...
so rude!...
i know what you mean, as i feel the exact same way. was the sulfasalazine not doing the job on its own? have you tried rectal medications before trying imuran? i held off and avoided imuran for a...
i'm not sure i'm understanding the entire post, but from what i do understand, i would say call your doctor's after hours line or go to the emergency room if you are worsening and having bad...
hi, i am sorry to hear you are flaring :( i agree it would be wise to increase the medicine with your doctor's approval. another thing to try would be rowasa enemas. at one time they helped me escape...
i know other posters have said this, but PLEASE, please, please don't stop prednisone cold turkey...everyone is right in saying you could DIE by doing so. i am concerned for you! very dangerous...
i think they are glad to keep "reinventing" these scary biologics because they are big money makers for the pharmaceutical co's. i don't think big pharma wants anything else less toxic to be found to...
do you think a pharmacist might know...maybe you could call the pharmacy and ask?...
hi, i am so sorry you are having these issues...as if having uc isn't bad enough, having people say these things makes one feel so much worse. your situation sounds very similar to mine when i was...
i only drink bottled water and occassionally tea. would gatorade be an option? i have drank that in the past. i hope she gets better soon....
i agree w/beth75 - a 2nd opinion sounds in order. i would want to try 6mp before remicade/surgery. perhaps you could do the pred/bowel rest AND start the 6mp. my doc said it sometimes works in a...
thanks for all your replies...they have all been very helpful!...
I've been on the lecithin for several months. I was having a very difficult time getting off of prednisone. I feel that the lecithin helped me finally get off the prednisone. i really do think it's...
pumpfast, how are you doing on the lecithin from klinipharm? do you think it is helping? i am taking that as well, and i think it is helping me some. just curious about other's experiences!...
i don't use humira and thus am not familiar with how cold exactly it must be kept, but could you put it in your fridge and keep the door closed until the power comes back on? the fridge will remain...