Finally reached the end of the medication train and nothing has put me into remission after being in moderate to severe flare for 5 years. I am going to have 2 surgical consults in the next few weeks...
Like Eva Lou, had I not tried to wean myself off of Lialda I don't think I would have been in this flare for what is now going on three years. Going back on Lialda along with 2 rounds of PRED,...
I am not giving up the taper just yet. I am back up to 15mg of PRED and am going to stay here until things get completely normal (which they seem to be now that I have gone back up in dose). Then I...
That is certainly a slow taper. But if it works.....great....
My other med for UC is Lialda, which I take 3 (1.2g) pills per day and I also take 2 psyllium seed capsule each day. I was on 2 Lialda per day but went up to 3 when I hit 10mg of PRED which was my...
Well, I made it down to 10mg and my symptoms came back. I was doing one week increments, going down 2.5mg each time. (See my above post for original schedule) I am now back up to 15mg and my symptoms...
Let us know what happens if you go. Makes sense to me....
I had the same thing happen to me and split the dose between morning and evening. Worked much better and relieved my symptoms around the clock. I still had some other side effects but for me...
I started my PRED regimen at 40-mg almost 2 months ago. This is my first flare and first time on PRED. 10-days: 40 mg 10-days: 30 mg 10 days: 25 mg 10-days: 20 mg 5-days: 15 mg flare symptoms...
I found Solaray brand Psyllium seed capsules at my local health food store a few weeks ago. So, they do exist....
THe urgency is the worst. Never had urgency before I had my first flare-up. As my flare has begun to subside (currently on 20 mg PRED tapering down from 40) it has lessened, but there are still...
Thanks, Judy2. That is good. I am trying to discern whether my UC is influenced by my diet as well. It is unclear at the moment. I went 10 years with UC, only taking 2 Lialda a day for the last 3...
I have both of these conditions and sometimes it is challenging because what may be good for one may not be good for the other. For the second time I am trying a mostly vegan diet because recent...
I don't usually have much blood, and when I do, it is bright in color and seems to come from the very end of the chain. My understanding is that bright blood, in relatively small amounts, is not so...
I lost 40 pounds in about six months. It was not good and I became very weak. Very nearly put me in the hospital as I did not really have that much to lose. Once my flare began to subside (this is...
Actually, I found the foods you named to be very helpful, but did not try mashed potatoes. Stay away from highly acidic or spicy foods, nuts, foods with seeds, very gassy foods, etc. Stick to the...
I don't have enough experience with fiber supplements to comment with any knowledge or experience but your plan sounds okay give you are already taking some fiber daily....
I switched from Asacol to Lialda 2 years ago. I had been on Asacol for 5 years (6 pills/day). Now I take 2 Lialda per day. The switch was seamless for me and I noticed no difference in the two drugs...
Good topic.....a way of trying to look at the positive in things, which we could all use a bit of I suppose. I have learned volumes about proper diet and nutrition. I have learned about good and bad...
I found some at my local health food/vitamin store. The brand I purchased was "Solaray". There were two different brands of psyillium seed powder capsules that seemed essentially the same. I wanted...
Is this possible? I took the equivalent of 1/2 tsp. yesterday. Today I had one of my first formed stools in months. I also am having much reduced symptoms of the flare I have been in for over one...
I wanted to try this before buying a lot in bulk so I went to my local health food store and found Psyllium seed powder in capsule form. Same stuff, I think? They only had one brand's of this though...
Yes, what is the product exactly? Would you start this while in a flare or wait until flare calms down?...
Thanks to both of you for your insights. I have had diabetes for 10 years and so have had plenty of time to tweak my diet/exorcise/medication regimen. I started keeping a diary for my UC and it helps...
One year into my first flare-up and started PRED on 11/24. I started on 40mg per day. After 10 days I went to 30; another 10 days and I am on 20mg day and my doctor wants me to stay there for two...
I do much better taking it twice a day though there is some sleep-loss for me for about 1 hour in the middle of the night. This has lessened as my dose has gone down though. The reason I went from...
My doctor waited 1 year into a bad flare up to put me on PRED. Frankly, I had to ask for it. Enemas only worked minimally for me even though I was trying different ones for almost one year. I am...
If you are still practicing yoga, then remember to breathe with the poses. Otherwise, you could still be tensing your abdomen, and yoga won't help your UC much if at all. To open energy blocks, you...
Definitely monitor yourself closely as you taper. I was on Asacol for many years and always in complete remission since diagnosis. I switched to Lialda (2/day) at my GI's suggestion because it was a...
Thank you, all. I will employ some of your suggestions. I am halfway through my PRED regimen. Started at 40mg/day and am now at 20mg/day, doing about 10-14 days each step. I am going less and my...
Hello to everyone in this forum. I am a newer member to Healing Well and have been posting almost exclusively in the Ulcerative Colitis forum. I have been a Type II diabetic for 10 years and only in...
The extended release can sometimes be worse for the bowels than the fast acting. I just got taken off the extended release because I also have UC and am in a flare-up....
I have diabetes and ulcerative colitis. My doc just took me off Metformin (extended release) because of it can upset the colon and lead to GI issues. I am starting Prandin and will see how that goes....
I tried ALOE pills (Aloe Elite) for 3 months, did nothing I could discern. I was practicing basic YOGA when I got my first flare up. I had a series of acupuncture treatments which felt good, but did...
Melatonin huh? The sleep agent? You take it at night and it eases morning BM's? Yes, mornings are when most of the action happens. 2-4 times from the early morning hours until 9 am. Seems to be when...
3 month into my first flare up, on nightly hydrocortisone enemas I started to lose a lot of hair. Illness can do it and so can steroids. Best bet is to try and get good nutrition and get out of the...
I mean, over my bowels. I am one year into my first ever flare-up. Started a regimen of PRED 3 weeks ago and it seems to be bringing things under control, slowly. I am not out of the woods yet. But...
My apologies if my questions/comments violated the rules of the forum. Thank you for the additional information. It wasn't you....another member posted copyrighted information without providing a...
There seems to be a lot of people with UC who have problems with dairy. I am one of them. I always thought I was just a gassy person. When I took a suggestion to cut out dairy for a week, all of a...
Mitzo: Interesting that the SNUS did not work. Maybe they don't have enough nicotine. Is regular use of Nicotine gum/patch safe? I am sure it is safer than smoking, but are there other unfortunate...
Doctor finally relented and put me on PRED. I have completed 2 weeks of 40mg per day and am about to go down to 30mg per day. Taking it once per day was really hard for me so I broke my dosage up to...
Will chewing tobacco have a similar effect? Is it the Nicotine or the CO?...
First post here. Hello. Glad to find a place to share my story and hear from others. I was diagnosed with mild UC over ten years ago. Started on Asacol at that time (9 pills per day, then 6 pills per...