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London Lurker

HealingWell Forum
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Member Profile
Display Name
London Lurker
Profile Created
2/7/2013 6:03 AM
Last Seen
12/12/2020 7:40 AM
Total Posts
1057

Last 50 Posts

58% of IBD biologic patients with positive covid19 serology had no symptoms

Thank you for the link to the calculator. Had to smile at this one. I just put my details through the calculator (I'm in the UK) and then tried it with different country of residence out of interest...

12/11/2020 7:10 AM

Ulcerative Colitis
OT Question about Covid vaccines

as others have said, my understanding of this is that they sent both control group and vaccinated group out to live their lives and are comparing infection, hospital and death rates. There is ongoing...

12/11/2020 6:49 AM

Ulcerative Colitis
Some new info hydrogen peroxide and UC

Hi OM. I saw a news alert about this today and remembered your thread on HP and the Pravda theories. I don't have journal access these days so could only see the abstract too...

12/11/2020 6:42 AM

Ulcerative Colitis
Can ultrasound detect UC?

I saw a piece a few years ago about a special ultrasound in Canada that can detect (but not biopsy) but in most places, not it can't. Agree that calprotectin screening important to monitor...

4/14/2020 3:38 AM

Ulcerative Colitis
I have corona

Glad to hear your Corona has improved. There seems more and more research that if the systemic inflammation can be dampened, you'll avoid the worse, so being on IBD meds could even turn out lucky....

4/14/2020 3:32 AM

Ulcerative Colitis
3/11: Implications of COVID-19 for patients with pre-existing digestive diseases

sorry if this is frightening [please skip over this post if you suffer from anxiety] to some but as someone who works in healthcare, those posters who think this virus focus is overdone have not seen...

3/14/2020 11:56 AM

Ulcerative Colitis
Coronavirus (Covid-19) and Immunosuppressive medication (Imuran)

just looked at that link. No one with IBD should be taking Ibruprofen anyway as it can cause gut inflammation and yes, the advice I've seen for those on steroids is taper off if possible, but not if...

3/14/2020 11:44 AM

Ulcerative Colitis
Coronavirus (Covid-19) and Immunosuppressive medication (Imuran)

It's a frightening time in many countries and frankly annoying when people compare it to flu because we all have the choice to have the flu jab but there is no jab for this. Also upsetting when it's...

2/26/2020 3:27 AM

Ulcerative Colitis
After 38 years the blood has stopped

Haven't been on the forum for a bit as happily have been doing better. Happy for you to see this post. Anti-viral properties of olive leaf perhaps helping? Some of us seem to be helped by anti-virals...

11/8/2018 1:55 AM

Ulcerative Colitis
Technical but interesting mtDNA - scroll to bottom of page for a brief interview

Some new UK sponsored research building on the discoveries about mitochondrial DNA, probably won't lead anywhere for a long time but good to see it all the same...

5/2/2018 12:44 PM

Ulcerative Colitis
Akkermansia muciniphila - kind of OT

Been a while since I posted this. Done a couple of ubiome since and still no AM appearing. Maybe it never will now for me without FMT. However, I've also read more about it since this post and seen...

5/2/2018 12:29 PM

Ulcerative Colitis
Radical Induction Theory-Time to re-visit

saw this and thought of this thread... http://www.nature.com/articles/nrmicro.2017.158 "The germ-organ theory of non-communicable diseases" Recent insights suggest that during homeostasis, epithelial...

4/15/2018 7:39 AM

Ulcerative Colitis
Stopped taking Ulcerative Colitis treatment, no problems at all

You should discuss with your doctor that you have discontinued. You may flare in the next few months or you may not but you are taking a risk. Hopefully they'll agree to regularly monitor your fecal...

11/13/2017 2:03 PM

Ulcerative Colitis
Methylfolate experiences

Yup, as OM says, MF seemed to make me flare more, I am Homoz for MTHFR c677t. Trying to eat folate foods, not always easy with UC. I really don't know how much these gene results matter - what I did...

11/1/2017 4:31 PM

Ulcerative Colitis
Folic acid handling by the human gut: implications for food fortification and supplementation.

think we talked about that too. There has been resistance in the UK to folic acid supplementation to flour which so far has won. There is such a strong lobby to put it in because of the fear of spina...

11/1/2017 4:23 PM

Ulcerative Colitis
Any CPAP (for sleep apnea) users on here?

Thank you KCFLY. I will check out that forum. Glad to hear that your UC has not been affected. Do you feel you are benefiting from CPAP? Are you any less fatigued?...

11/1/2017 4:16 PM

Ulcerative Colitis
Any CPAP (for sleep apnea) users on here?

I have suffered with mild sleep apnea for years and controlled it with a mouth splint but the apnea is worse now after weight gain (due to meds and menopause) and I guess just muscles losing tone, so...

10/31/2017 2:33 PM

Ulcerative Colitis
Folic acid handling by the human gut: implications for food fortification and supplementation.

I posted a lot around this on the MTHFR threads. Quite a few of us got worse with any supplementation including methylfolate. I try now to just eat high folate foods....

10/31/2017 2:27 PM

Ulcerative Colitis
Vit D supplementation reduces fecal calprotectin and may alter microbiota composition in UC

Thanks MK. When I first looked into Vit D I remember coming across an explanation that it is not really a vitamin, it is a steroid-like hormone. So it would make sense that it has an effect on the...

9/10/2017 9:40 AM

Ulcerative Colitis
Vit D supplementation reduces fecal calprotectin and may alter microbiota composition in UC

I've seen quite a bit on H Pylori being protective against esophageal cancer too. I was on very high dose vit D for a few months this winter. I went into remission on cyclopsorine so don't know if...

9/10/2017 6:03 AM

Ulcerative Colitis
remission test due to hurricane Irma "evacuation"

Glad you got out and the UC stayed calm enough. I've been watching all of this on the news from far away in England and thinking what a nightmare this must be for all but of course we personalise if...

9/10/2017 5:50 AM

Ulcerative Colitis
UC feels like it's almost in remission after two weeks on Vancomycin

I don't know if this is relevant but I was just reading an article on tryptophan and IBS https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266036/#CIT0054 (having read the recent study that L Reutri...

8/11/2017 4:16 PM

Ulcerative Colitis
Study Finds L. reuteri and Tryptophan Helps Ease Inflammatory Bowel Disease

I've just caught up with this one. I remember an old thread on reuteri where some said it really helped and others not. I wonder if the reuteri is key in helping tryptophan in the production of...

8/11/2017 3:29 PM

Ulcerative Colitis
First Multicenter Study of Modified Release Phosphatidylcholine "LT-02" in Ulcerative Coli

Not sure if this was noted on another thread but I've just noticed that the latest trial began after Nestle and Dr Falk bought into the treatment was terminated early, can't find any page reporting...

7/31/2017 4:44 AM

Ulcerative Colitis
OT kind of - Swindsinski keto diet microbiome in MS research

Thanks MarjieKay There's been a bit of discussion on it here in the threads about mucous :-) At first it seemed it would be bad because it seems to eat mucous for its energy but on the other hand...

7/29/2017 9:01 AM

Ulcerative Colitis
OT kind of - Swindsinski keto diet microbiome in MS research

Swidsinski's research has come up a lot in threads discussing colonic bateria. Just been pointed in the direction of this interesting paper on the effect of a keto diet on the microbiome of MS...

7/29/2017 4:37 AM

Ulcerative Colitis
OT but related - sunscreen product protective against MS? Salycilic acid derivatives

I know I'm not alone on here in having a fist degree relation who had MS. Was fascinated to come across this study that stumbled across compounds in sunscreen which appeared to be protective against...

7/25/2017 3:30 PM

Ulcerative Colitis
SCD Yogurt made me very sick!

For sure SCD yoghurt does not have bifido, Elaine G thought it could overgrow in the UC colon and cause problems. It could also be that some bad bacteria was in there and got grown along with the...

7/23/2017 1:29 PM

Ulcerative Colitis
High levels of B12, and taking vitamin B-50 complex.

I think anyone would be concerned at your results who was not supplementing but as Quincy said, all of those conditions can be tested for with other tests. I hope it all is OK for you. With regards...

7/20/2017 11:23 AM

Ulcerative Colitis
High levels of B12, and taking vitamin B-50 complex.

I got adverse side effects from being on high B12 for a long time, I was supplementing as I felt so much better when I got off my lows which were around 200 but I was hovering around 900 - 1000 for a...

7/19/2017 1:59 PM

Ulcerative Colitis
Radical Induction Theory-Time to re-visit

I've just managed to get access to his clinical poster in the Journal of Inflammatory Bowel Diseases from 2011, Volume 17 Sounds like he had amazing results with a mild/moderate distal UC. Am...

7/16/2017 2:14 AM

Ulcerative Colitis
Radical Induction Theory-Time to re-visit

Strange, I tried it in a different browser and it still worked The link is not adding the https:// for some reason, if that is added at the front it works I got to it via a Google search with terms...

7/15/2017 10:28 AM

Ulcerative Colitis
Radical Induction Theory-Time to re-visit

Just revisiting this thread after having read an article on some probiotics producing excess H2O2 and I see you've covered it already. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4884264/#CIT0018...

7/15/2017 7:00 AM

Ulcerative Colitis
C Diff and Calcium/Vitamin D levels

Just been reading this one myself. It's no wonder when we are so susceptible when you look at the collection of meds we are often put on - steroids lowering the immune system, calcium supps while on...

7/14/2017 3:55 PM

Ulcerative Colitis
Please Read: Ginger Was My Answer

Haven't visited for a while and funny to see a ginger thread as I was just reading about "ginger bug" as a starter for homemade sodas today and thinking I must give it a try...

7/8/2017 3:29 PM

Ulcerative Colitis
Y'all need to try this > Activated Charcoal

My usual warning. I used this regularly, can't remember for how long, maybe for a couple of months and I ended up with bad D. I think I wiped out too much with it. Thus probably fine as a short...

5/19/2017 4:05 PM

Ulcerative Colitis
A randomized trial of the effects of the no-carrageenan diet on ulcerative colitis disease activity.

Got to say a big thank you to those participants in remission who risked this! Recently I was prescribed some high dose vitamin D tablets, the list of non active-ingredients sounded like a cocktail...

4/30/2017 4:25 AM

Ulcerative Colitis
NLRP12 attenuates colon inflammation by maintaining colonic microbial diversity

This study looks hopeful, very technical though, maybe part of the puzzle as to why dysbiosis not necessarily seen at onset of UC but seems to worsen over time...

3/18/2017 9:06 AM

Ulcerative Colitis
I've been gone a while. Sad to be back but glad to be among friends (m)

Can't say I have great evidence for improving but I did when at my worse cut out all supplements. B vit supplements for instance were a culprit for me which is the last thing I expected. Psyllium...

2/25/2017 9:51 AM

Ulcerative Colitis
New here Boyfriend has UC

A large plate of pasta so hot that you perspire sounds like it has the potential to give many people indigestion. Indigestion is not UC but more stress on the digestive system is noticeable when you...

2/25/2017 9:44 AM

Ulcerative Colitis
Bacteria links Crohn's disease to arthritis

Thanks again OM. From the reading seems it is important to have the seeds and not just the juice. My Ubiome stated I have no detectable Ak Mun. It certainly is confusing that it is listed as a mucin...

2/16/2017 2:44 AM

Ulcerative Colitis
Bacteria links Crohn's disease to arthritis

Thank you OM. Grapefruit is a no no on my current med. I'm on high dose D at the moment too. Pomegranate is a new one on me, will have to look that up....

2/14/2017 3:26 PM

Ulcerative Colitis
Bacteria links Crohn's disease to arthritis

il-23 is what is targeted by Stelara/Ustekinumab I know from my 23andme test that I have that gene implicated, in their outdated list of risk genes for UC it is one. I wish I could afford to try...

2/13/2017 2:28 PM

Ulcerative Colitis
Gene found that protects against IBD

Old thread here with not positive reviews of creatine http://www.healingwell.com/community/default.aspx?f=38&m=1723242 ...

2/3/2017 4:06 PM

Ulcerative Colitis
Accident at work, Time to call doc back?

I would definitely get checked for C Diff again. If you did have it mildly the steroids can make it much worse. Hope you have a better day today....

1/27/2017 4:31 AM

Ulcerative Colitis
5-ASA (Mesalamine, Lialda) caused my kidneys to fail

Some "natural" remedies are just as heavy on the kidneys and/or liver as pharma drugs so they need to be researched for anyone with damage. If it was me I'd wait and see what happens, maybe monitor...

1/26/2017 11:12 AM

Ulcerative Colitis
Anyone just flat out refuse medication and just lived with a flareup?

Back in the day people did die from it. Remember that people had children much much younger on average so a woman may have already reproduced before coming down with it....

1/26/2017 11:05 AM

Ulcerative Colitis
I am so choked! Screwed up lab test

It's not so bad not to have your own personal baseline. There are ranges for these tests and if you go out of range they investigate whether or not you started just below or miles under....

1/26/2017 11:02 AM

Ulcerative Colitis
New mesalamine mechanism found

Thanks for posting OM, really interesting. Going to have to read more when awake but briefly scanned this article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3383012/ Polyphosphate: an ancient...

1/25/2017 5:12 PM

Ulcerative Colitis
Cyrex Labs - Gut Permeability test?

I don't know anything about the test or what is really meant by "leaky gut" but I don't think there is any doubt now that a broken rectal/colon mucous barrier exists in UC and is involved in the...

1/6/2017 4:47 PM

Ulcerative Colitis



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