I was on a plant-based diet as a vegetarian when I got UC 19 years ago. It took me a very long while to figure out that high fiber was not helping my UC gut at all. Some veggies are tolerated fine...
Thank you for this information, I never heard of her. Why do the good ones die? They should live to 120 or longer but not in pain or suffering....
Posting this because I have not seen digestive complaints (diarrhea, lack of appetite) as one of CV19 symptoms. Synopsis of link: people who present symptoms of coughing, shortness of breath are...
When I make my own curry my gut is always happy. You can buy fresh turmeric in some specialty grocery stores, be careful because it stains when peeled. I cook with fresh ginger often. The studies...
DBwithUC: where do you get your CBD tincture? Oral CBD is on my list of things to try although my UC symptoms have been doing very well for a long time. Maybe inflammation in other body parts could...
I've tried in the past to mix turmeric powder with milk and boy it is hard to get turmeric to dissolve. Boiling is what I haven't done, prefer microwave. Turmeric never has any taste to me but ginger...
Enemas reach more area than suppositories so if enemas not helping then supps would help less. However if enemas not working why not try supps? I always saw symptom improvement from enema in couple...
In the past I've gotten generic Canasa (salofalk) suppositories from Canada because even with my insurance it was astronomical in US. I had 2 big life changes, am on Medicare now (yay) with an RX...
Years back I did both, opposite times of day, in morning OOO I think and probiotic VSL#3 before bed. These 2 were the very few supplements that were "keepers" for me. Haven't needed them for years...
For non-RX induced psoriasis please read this if you have not yet tried UVB treatments. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3736829/ This is a well-known and effective treatment that wrongly...
VSL#3 is the one that has medical studies done that show that it's specific formulation gave improvement to UC people. There has been some question about whether the current VSL#3 being sold is the...
If it works for you that's what matters. I drink only spring water (make coffee and tea with it, etc), my gut does not like tap water, don't know if it's the chlorine or what but works for me. I wash...
I have never ever been able to tell the difference in symptoms between IBD and IBS except for bleeding (that's IBD). I am in 95% symptomatic UC remission but certain foods and drinks cause symptoms...
There are some elected people who are currently working on allowing Medicare to bargain with manufacturers on drug prices. It needs to be done. People are dying because they cannot afford insulin and...
I'm a gardener haha, and plant native plants that support birds, bees, butterflies, snakes and all kinds of living creatures in my small yard. I converted our lawn from irrigated to non-irrigated by...
I've had UC about 17 years now, diagnosed age 40-something. This article includes that "40% risk of cancer after 35 years with UC" statistic your doctor spoke about but there are more recent studies...
I am so sorry about your brother. Is his GI the same as your GI? If not can you get your GI involved since you have been managing your UC (don't know how long). Getting a GI involved will be your...
In your other post you say you are underweight so water fasting would be a bad idea for you. You need calories. I have done intermittent fasting only but was not underweight. It is not a cure, just...
It could be IBS and that can take some time to determine what foods/drinks are causing it. My one suggestion would be to eliminate fiber foods and see if symptoms cool down. Eat your normal diet with...
If your GI said you can take ANY painkiller they are not really educating you. Dentists may not be fully informed about UC and what meds can cause problems. Good replies above, hope you read them....
Lucky you have a gluten-free bakery. I am not in love with Udi's white bread, it's just the only one I can buy locally that is gut-approved. Been avoiding making my own and eat less bread instead. We...
I'm in remission (symptomatic) and whenever I eat gluten bread (croissants are my weakness) I feel lousy, similar to constipated feeling, which I interpret as my gut having a hard time processing it....
I'm supposed to take 3 pills 3 times a day, 9 pills total Balsalazide. But kept forgetting to take the middle 3 so switched to twice a day, 5 morning 4 at dinner. No problems at all and better than...
Addition to my hurricane history: I grew up in Florida and like many had "no big deal" attitude about hurricanes. But after looking at those childhood years hurricane history turns out that was a...
Serenity What a good memory you have, yes we evacuated 2 years ago, bad decision. Plane loaded with 14 wheelchaired Thyphoid Mary and Bob's seriously close to death, headed to Denver. We never got...
So thoughtful of you. I'm west coast Florida, on the "backside" of the hurricane winds (not a good side if too close), gas stations have been emptied of fuel and all gallons of water are gone...
I'm not a very good person and I no longer deserve a doctor's care. You are a good person and you deserve a doctor's care. That's the truth. You need to find a doctor for your UC and one for your...
Pork definitely slows down my gastro complex and is considered red meat AFAIK. It is soooo tasty yummy but lately my love for BBQ is less, dunno why. I eat pork rarely. Pork has caused constipation...
In the past I vacationed for weeks at a time in a diesel camper van with strong vibrations that made my gut behave. I never knew if it was the van itself or the vacation that made my symptoms lower,...
I was a longtime vegetarian when I got UC, like you I drank soda (Diet Coke), ate sugar, etc. My biggest issue why plant-based diet would not have gotten me to remission is that fiber caused gut...
I've had Botox on face and lip filler a couple times 12+ years ago when UC symptoms were not good (way better now). No difference in UC with Botox but ouch they hurt, like the worst needles ever...
Oligadar: I don't claim that "only diet modification" got me to remission, I've always taken RX meds for UC. But "RX meds only" did not get me anywhere near remission. Only when I added strong diet...
That's a big amount to read and I didn't except glancingly. Diet modification is the reason for my remission that 10 years of oral RX did not come anywhere close to helping. My life belongs to me...
Besides what RX is covered I always make sure my GI is "in-network" in the plan under consideration and the hospital I prefer if things go wrong. It sucks to have to be an expert on insurance but...
I'm sorry your daughter and you have to deal with pancolitis. Salofalk is helpful to heal the rectal area, yes it can make BM's happen but as my rectal area healed I was able to retain enemas longer...
Just my opinion but I would approach weed cautiously while you are feeling anxious. Some people have paranoia from weed. It affects me this way, other people I know have no problem with it (and I am...
Talk to your doctor who prescribed your prednisone. Pred. can cause anxiety and if you previously had anxiety the steroid could be making it worse. Internet says: "Anxiety can be triggered by alcohol...
Can you say what conclusions are or what they think are the results please. I cannot read the paper, just the 1st paragraph. Plus even if I read it all am not a scientist to understand results....
Many Canadians spend 6 months every year in Florida (where I live) and they pay for extended travel insurance to cover them while here, Canada has a high incidence of UC so some of them must be...
I feel ya. You have to be the squeaky wheel in many things in life. I spent many days last week trying to get through to a stubborn ass't bank manager who kept telling me "no" on something I knew was...
YES take extra. We recently went out of town for a planned vacay and ended up staying a bit longer. I didn't even think about the fact that I only brought barely enough oral RX and started worrying,...
So sorry your symptoms are so bad, wish you had a good response to FMT. Are you thinking you will go on a antibiotic now? Just wanted to respond to your post to empathize, I've been in the hell of 15...
Different strokes for different folks....
Have you tried mesalamine enemas? Couldn't tell from your post. This was a big benefit to stop bleeding and begin healing, especially since you say your inflammation is at the very bottom. Enemas...
When I was in flare mode I found ways to work around some (not all) symptoms. Leaving the house was a big anxiety so I'd plan my route around available bathrooms that were easy to park and dash in. I...
It took me a long time to stop being on edge about my BM's, a UC version of post-traumatic stress syndrome. Because you got into remission then had a flare in 2009 and 2018 you don't trust that your...
My gut hated Metamucil and many other fiber supps, increased BM's was a symptom of that for me. The only fiber supp it will tolerate is Citrucel which is available now as generic. Citrucel is a...
MarkwithIBD said A lot of the U.S. population is subclinical immune compromised because of the obesity epidemic and how stressful life has become. People eat poorly, don't exercise, and are stressed...
ambling A 77 year old woman died last week north of where I live in Florida from a bacterial infection called vibrio vulnificus that she got walking in the water after tripping on shells and getting...
People on immunosuppressant meds should also be careful about natural bodies of water too, especially when that water is warm. Lots of different bacteria, some deadly, thrives in warm water where you...