Also on another note I just got off the phone with a reporter who is doing a news segment for a major online news magazine about Fecal Microbiota Transplant (FMT.) The reporter is looking for people...
Hi Sharron, A couple of things that can definitely help make the FMTs work. I did about 35 of them. What finally made things work was a combination was going back on Prednisone, protein shakes and /...
Congratulations on the success with fecal transplants. To get such good results after only 10 days is a very good sign, and likely because you have had Ulcerative Colitis for a relatively brief...
By the way here is a news story that was done about my success story and that of another person a few months ago: Many turning to experimental fecal transplant to cure gastrointestinal issues...
I took Remicade (infliximab) along with Wellbutrin (Bupropion) without any adverse effects. You can also check any drug interactions here or at other web sites where you can check drug interactions....
Some good, thought provoking ideas. I think the first two points are the primary reasons. Most of the problems are caused by not doing the FMTs for long enough and not properly controlling...
Amazing! Not long before you reach celebrity status. :smilewinkgrin: They didn't say what the woman suffered from (and it wasn't c. diff). My guess is that it was colitis as well? I love the ominous...
I didn't read it as the original poster being diagnosed as being a hypochodriac, but rather calling themselves a hypochodriac even before being diagnosed with proctitis. Its understandable to be...
My experience and that of another woman in the Washington, DC area using Fecal Microbiota Transplant to cure Ulcerative Colitis aired on Fox 5 TV last night! It is really exciting to see the story...
For healing the ulceration and stopping blood the whey protein shakes that contained L-Glutamine were highly effective for me. I have also heard good things from others who have used just L-Glutamine...
You're welcome Nenuss! As for tapering, it depends on the drugs and how important they are for keeping inflammation in check until the tissue has healed past a certain point. I rapidly tapered off of...
Hi there, It's been awhile since I've been on HealingWell and these threads, I haven't had a chance to wade through all of this yet, but it looks like there is a lot of activity and success stories...
It can be tough sometimes, personally I think depression and more specifically some of the physiological impacts like a weakened immune system and / or IBS related diarrhea might make a person more...
Guardian7, 1) You are right it is true there are other ways to get high amounts of protein in form that require limited digestion including yogurt or Kefir. In fact meal replacement shakes like...
Hi Sharron, Are you asking Max and experience with FTs and wishing him a full recovery? I am fully recovered, the blood stopped 6 weeks after I started the fecal transplants, 8 weeks after that a...
Getting lots of protein is absolutely essential for healing damaged tissue. I know my available protein, albumin levels in blood tests, was very low due to restricted diets and chronic inflammation....
I took Remicade in 2009 and 2010 for about 8 months. It sometimes seemed to help for about a week, one time I had the treatments only two weeks apart and I had a remission for almost 10 days but then...
Probiotic - glad you are happy with your decision. How long ago was it that you tried the fecal transplants before going ahead with surgery? For anyone facing this illness I can understand the desire...
I'm glad you feel comfortable with your decision to have surgery, however I feel any balanced consideration should include a dissenting opinion / experience - that it is possible to beat Colitis...
Sky Kitty, how long have you had Ulcerative Colitis or Crohn's Disease? In addition to pro-biotics and such Also effectively managing your stress levels and your state of mind and avoiding IBS...
The key may have been that you did not receive treatment. The European Cooperative Crohn's Disease Study (ECCDS) demonstrated that patients with no prior drug therapy have a greater likelihood of...
Hi Sharron, I just thought I'd drop in and it looks like you are doing pretty well. Are you taking whey protein shakes? This was a key part of the cure for me and helped me get into something closer...
Have you tried Bupropion (Wellbutrin) instead of Zoloft? It is a more energizing antidepressant. Higher amounts of iron could help boost energy. High protein meal replacement shakes can help with...
Sharron, has you or anyone else tried to email Stacy using the email she provides on her profile. If she is healthy and doing well it is very likely is not participating in any patient forums...
It's tough to deal with this illness and the psychological as well as physical toll. I dealt with it for 12 years until I was ready to give up and have surgery. Over the years I believe the symptoms...
"Good" reasons, i.e. conditions Bupropion is currently prescribed for include: - FDA approved for depression / Seasonal Affective Disorder (SAD) / smoking cessation - often used for side effects...
Hi Guardian7, and you can call me Michael too :) 1) The surgeon told me there was scar tissue there when he was making a last ditch attempt to talk me out of ditching surgery. He told me that why I...
delta30 - Wow! it sounds like you really put a lot into this! Here are some things from my experience which might have made a difference then and might make it work next time. - Protein supplements...
Guardian7, I see your point, and it is duly noted. I know that anything new is always met with resistance and skepticism for some time before finally being accepted. I saw this as a child when my...
Before you try surgery, give the fecal transplants a shot. I was in really bad shape by the end of 2010 when I was referred for surgery. I'd tried every diet, had blood in stool daily for months, 8...
Great advice Guardian7! and to add a little bit to that ... 1) Getting symptoms under control as much as possible can make for an easier experience and for those I have spoken with that started on...
I apologize if you have already included this information in a previous post, however I am curious because I am trying to figure out what is happening with some cases where this is apparently not...
I couldn't have said it better. I can say I understand having doubts or skepticism, because I felt that way myself even after I came to the conclusion that this had a very strong chance of working....
Hi Sharron, You're welcome. I must have missed this buried in the discussion threads somewhere, but saw in the signature for your post that you say you have been doing fecal transplants since January...
Hi, As an update I am still doing well, sometimes diet or emotional stress will cause some loose stool but that is easily changed within a day, however no blood in stool since July 2011. Even if it...
I have taken Clonazepam (Klonopin) on an off for sleep and it does also seem to help make bowel movements more well-formed, it could also help calm muscle spasms and slow diarrhea too, which could...
Haha, next thing I know there will be a show called whey whey don't tell me. :) Even though I was raised on an all natural diet, I now generally don't care as much, I mostly go for least expensive...
Congrats jasherlynch and thank you so much for sharing your story. I was also frustrated with some of the doctors I was dealing with. The surgeon at Mayo Clinic in Jacksonville told me I was crazy...
Congratulations UC_Hater! I can also say I have also been healthy without necessarily having a healthy diet, although my donor also made an effort to eat a higher fiber diet along with fermented...
I believe whey protein shakes actually helped bring me back from the brink of surgery a few years ago. It turns out my blood albumin levels were low, which the colo-rectal surgeon told me meant that...
I don't think it is c. diff since there is no watery diarrhea. However it is possible that the antibiotics have contributed to constipation. As for cramping some things that could help include...
Hi, My case of Ulcerative Colitis mysteriously turned patchy on a colonoscopy. At the time I was starting to get better after my 12 year battle with Ulcerative Colitis brought me to within days of...
For controlling urgency one thing I wish I had known about years ago was the impact of certain antidepressant / anti-anxiety drugs and supplements to calm urgency. Three years ago I was prescribed a...
Hi, No I didn't leave I'm around here and there although I've been working on getting this story more into the mainstream media. While I tried to be pretty thorough in my video and guide book, I'm...
Definitely go with the fecal transplants instead of wasting time with other treatments where even if they work temporarily they don't offer a permanent cure. Unfortunately the elderly father of a...
I tried low dose Naltrexone a few years ago at the same time that I was trying many other things and ended up getting better. However I didn't start the LDN until after I was already getting much...
I couple years ago I dated a woman who worked for NORML who used Marijuana to treat IBS here in DC. It seems to work pretty well for her, I tried it a few times and it did seem to help produce some...
I used Muscle Milk to help me heal a few years ago, I would suggest trying Muscle Milk naturals since they are lactose and casein-free whey protein shakes....
One thing that helped me get my IBD into a sustained remission for a few years now was the addition of certain antidepressant drugs to my treatment regiment, which slowed or even stopped diarrhea and...
Fecal transplants helped me avoid surgery after 12 years of colitis which had become resistant to all other treatments, so I am clearly biased towards that approach since it was successful for my...