Ugh Songlady, not what we all hoped to hear. Glad everyone is at least agreeing that it is the "best" type if you are going to have it. Hopefully can be dealt with quickly and smoothly (as possible)...
Thanks Levi! :) I pop in from time to time to see how things are going with the gang. I've had a few bumps along the way --am stable for now, but I usually run into trouble in the spring...so we will...
Hi Levi, Welcome back (although I am so sorry that you have to return) I hope that your GI can shed some light on this and that you will will be feeling better asap. B...
Wow OM! That is amazing...I guess you never know what is going to do it. May it continue..... B...
I agree with CC. Ask for Anucort hc (generic) and get GoodRx. I do this and save a lot of money. Also it isn't thrilling to use, but a supp is fast. Put it in high enough and do your best not to pass...
Great news Sara!! I am in the same camp---rectals daily. Glad the scope is over and the news was good. Interesting to hear how the biopsies go. Also I know it is late, but I was also freezing during...
Whatever you choose to do is totally understood. Feel free to come back here anytime, you are more than welcome. Best wishes as you begin the healing process. B...
Yes! Been doing it for years and need to do it nightly. Totally sick of them but grateful for them at the same time. Glad I can stay on this level and not move up the med latter but still sometimes...
Hello and welcome. I am sorry about your diagnosis but glad you found us. There may be some negative here and there but overall you will find this forum full of supportive, helpful and friendly folks...
I actually keep squeezing as I withdraw the enema to cover the very bottom, but yet still the bottom acts up. I need to use Anucort supps about 2-3/week to keep it under control. I would still love...
That is great news! I am so jealous as we can't get the mesalamine foam in the USA and I would love to try it. I bet it is easier, less messy and no laying down for 30 minutes (ahh, the freedom of...
I am so sorry to hear this. How terrible for you and your family. Please accept my deepest sympathies. B...
Hospital sounds horrid for UC and pretty uncaring too. So sorry you are going through this. Frankly I agree with above and would get the whole darn colon out asap. You can decide what to do next when...
Maybe better and expensive treatments, but I doubt a cure. I hope I am wrong. B...
I am so sorry to hear what you have been going through...such a major ordeal. I don't have advice but I have heard from others that once the colon is removed...you feel better as the diseased organ...
Still excited to hear that UC didn't rear its extremely ugly head. Glad you pop in to keep us updated. Great news! B...
Wishing you well to feel better and better each day. Listen to your women and take it easy!! B...
Glad to hear you are getting some relief. Constipation is terrible as well. For me, I like to use a steroid supp in addition to the enema as it melts at the very bottom where alot of the problem is...
Yup, big jump from Canasa not doing it all the way to pred. Especially if you are at one bm a day-formed. There are so many more benign things to try before the big jump in my opinion. I would think...
Congrats Mrs. Brady!!!!! B...
I'm sorry but I have to call Lame on this doctor. There is no reason I can think of to with hold extra Canasa, Anucort , or Rowasa for now. It could possibly help and then he can re-evaluate once he...
Yup....steroid supps for the very bottom and also Cortifoam is a possibility for a bit stronger yet. Also can add mesalamine enemas to the mix.(which can cover more ground---but for me the supps do...
TT/Stud- So glad it worked out for you!! You always better be checking in here-- we would miss you terribly. Always look forward to your posts! "Brenda/Babette"...
Started after big time stress events. Blood in bowl and the big M along with urgency. Went to Dr, told proctitis after sigmoidoscopy. Struggled....although not too horribly comparative to a lot of...
So glad to hear a good update!!!! Great to hear from you Songlady! B...
Ugh, hate that whole thing. I was going to suggest cortifoam/cortenema to tide you over...maybe alternate with the Rowasa that you have left. Cmon, people, get in stock the enema already! B...
Great 3timechamp!! Glad all is going well!! Hasta Levista UC! B...
Wow I'm so glad they are doing that for you!!! Good to know about April 2nd...thank you for updating us. I'll be starting a thread soon about the SFRowasa. B...
Oh goody. I had to switch to Horizon BCBS and the only enemas they have on their formulary (mesalamine based) is the SFRowasa so I was just going to order them. Ugh, please let us know when they are...
Hi, I just want to comment about the Anucort-hc. I also take them about every 4 days and it just seems to be what I need to stay well. I am also concerned about long term use, but my GI seems to be...
EEK! I guess we will see how I do with Moviprep-- now I am scared. I am still trying to put off the scope as long as safely possible. Ugh, just will hope for the best. Again, yay on your good...
Congrats JimC! Sounds like a very good scope. Just curious...what prep have you taken previously? My new doc wants Moviprep and in the past I have done Miralax/Dulcolex and Miralax/Mag citrate. Keep...
Me, I'm allergic to Canasa (but it is not the mesalamine b/c I use Rowasa and Lialda) It happened in the beginning for me though. Got a rash on my lower back and hips. Discontinued and than tried...
Interesting! Thanks for posting. B...
Thanks Jovana! I'm going to buy some and keep it in my house. My Vicks first defense, didn't really work out too well, but I was hoping. After hearing yours and others feedback, I feel confident...
Wow Connor, that is pretty cool. If it could knock out a cold and help with UC-- it is a double winner!! B...
Thanks Q! I'll have to find the insert for the ingredients when I get home. If you were interested in trying it you can look it up on Amazon it's called Vicks First Defence. The concept is cool but...
Thanks Q---I'll let you know. I am always on a quest to deal with germs (having a little guy around, plenty of germs) The Vicks is actually an antimicrobal gel that coats your nose and supposedly...
Thanks guys, appreciate the input! Q-my symptoms have just started with a very bad sore throat. However my son has this cold so I know it is going to turn into a very nasty cough. I am trying a new...
Got a bad cold and want to try this. It got good reviews. Has anyone tried it and does it affect your UC? If not, give me your best UC safe cold remedy. B...
I agree ipoop --sticking with the enemas and keeping lower on the med latter. I am used to them already after years of using. Annoying but the most helpful for this issue for me. UCMee-- It is...
Stud/Troubed, lol-- Pink fairies sounds awesome! If that was the case, it would be well worth it. The sad reality is the annoying rectal symptoms come back. So I've befriended my enema or as I call...
I can feel for you --as a woman even though it is not a necessity per se... our hair is very important. That being said...I think the flare itself or if you were on pred (although I didn't get the...
Yeah ipoop...the fun never ends with the Rowasa (but it beats the alternative) B...
Yes, the bottom is so hard to heal...I am always on a quest. I would highly recommend to try rectal meds (I also can't use Canasa as I am allergic to something that is in them) So for me, Rowasa...
Yup to the above. I would up the oral mesalamine and do Rowasa at night and add steroid rectal in the morning (after BM's). I have been on nightly Rowasa (generic) for years and years. I would love...
Yes I think it can be related. I was only on steroid enemas a few weeks but by the end I was waking in the middle of night (sleep trouble) and I also had some night sweats (which I haven't had before...
Hi Faithmac, Hope you are well! I also wonder what happened to ConquerUC. She hasn't been on in a long time. B...
So sorry to hear. Hopefully you can get this back under control asap. I would hit it with major rectals--Rowasa (mesalamine enemas) and Cortifoam (especially if Uceris foam is a problem with your...
Yup what Troubled Turds said above. Mesalamine enema would be the first line of defense here. Unless there are details that we don't know--I would save the Pred for the really serious cases or if...