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Tornado6

HealingWell Forum
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Member Profile
Display Name
Tornado6
Profile Created
3/13/2013 3:58 PM
Last Seen
4/18/2015 6:38 AM
Total Posts
1155

Last 15 Posts

The R Word

My sig was way out of date... Remicade Imuran Allopurinol Folic Acid...

4/15/2015 4:27 PM

Ulcerative Colitis
1 year!

Hooray!...

4/15/2015 4:23 PM

Ulcerative Colitis
Infliximab + Azathioprine combination doses

I am on 50 mg of azathioprine M - F, 25 mg on the weekends, along with 100 mg Allopurinol daily. And 7.5 mg/kg Remicade every eight weeks....

4/15/2015 4:19 PM

Ulcerative Colitis
Why is surgery so polarising?

I knew for sure that surgery was not right for me last year. I've rarely been so sure of anything. My inoperable strictures have disappeared and I'm in mucosal remission for the first time since...

4/15/2015 4:15 PM

Ulcerative Colitis
The R Word

Oh, and I got to do the BBPS for the first time. She's collecting data. I had to do Miralax / Mig Citrate split prep. I got an 8. I know for sure GoLytely works better for me....

4/15/2015 4:09 PM

Ulcerative Colitis
The R Word

I had a colonoscopy Friday. "Overall findings are consistent with mucosal remission." The scarified strictures are G O N E. I had Crohn's Colitis for a minute on Friday, but the pathologist still...

4/15/2015 4:05 PM

Ulcerative Colitis
Pain medication?

Gas and bloating are my #1 complaint with my strictures. Have you been tested for SIBO? I was, and took abx twice for it. Then I did a SIBO protocol. From that protocol, the two things I've held on...

6/10/2014 4:24 AM

Ulcerative Colitis
Canker sores!

I have not had one since I've been on Remicade....

6/10/2014 4:15 AM

Ulcerative Colitis
Enema use in close quarters! Lol

My husband had to help me with the first few budesonide enemas......

6/9/2014 7:00 PM

Ulcerative Colitis
Any links to switching from one biologic to another due to side-effects?

Meh, I think it depends on what else is going on. My doctor won't keep me on these meds forever, and is very much encouraging surgery over trying another biologic. 98% of my colon is perfect now....

6/9/2014 6:59 PM

Ulcerative Colitis
SCD Frozen Yogurt - how to keep it soft??

Also, the top and front of your freezer are warmer than the bottom and back. Adjust things so that your 'less frozen' items are in warmer spots. If you aren't doing long term meat storage, you can...

6/9/2014 6:54 PM

Ulcerative Colitis
I hate it here

Whooohoooooooooo! He's graduated! I'm exhausted. I ate all of the BBQ & sides we had for the graduation party, then frozen custard! His deadbeat dad came back to town for graduation. It was awkward,...

6/5/2014 9:23 PM

Ulcerative Colitis
Soda consumers may be drinking more fructose than labels reveal

I have a cane sugar soda once in a while. There is a soda fountain in town that still makes the sodas, and you can get an awesome float there. I've never been a huge fan, and didn't really even like...

6/4/2014 10:49 AM

Ulcerative Colitis
Sore throat etc on Remicade?

Allergies and post nasal drip are a problem for me this time of year. However, if I do get sick, it tends to linger since I'm on Remicade....

6/2/2014 4:20 AM

Ulcerative Colitis
Dramatic and rapid weight loss - Does this happen with UC?

It was really after diagnosis that I gained weight, probably about fifteen pounds. That was the first time I've ever been on steroids, and I found that 'steroid weight' very, very hard to get rid of....

6/1/2014 2:47 PM

Ulcerative Colitis



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