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deltaforce

HealingWell Forum
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Member Profile
Display Name
deltaforce
Profile Created
6/5/2010 2:41 AM
Last Seen
2/3/2021 1:07 PM
Total Posts
2372

Last 50 Posts

Whats up with Uceris (tablet) savings program?

That is incorrect information. I used the discount card on 12/10/20 to get 30 tablets for $25....

1/14/2021 1:06 PM

Ulcerative Colitis
Non sexual causes for proctitis

TBH, this is the first time in the last 14 years I noticed anyone connecting UC to sexual activity. I would rather ask, do you have any other autoimmune conditions, esp. Lupus or Rheumatoid...

1/12/2021 2:10 PM

Ulcerative Colitis
Whats up with Uceris (tablet) savings program?

Just curious if anyone has idea about Uceris tablet savings program. They still have 'Pay No More Than $25' on the website but the associated link, https://uceris.copaysavingsprogram.com/ , is dead....

1/12/2021 2:05 PM

Ulcerative Colitis
budesonide 9mg and tapering?

I was told to take every alternate day for 2-3 weeks, then every 3rd day for 2 weeks. After that quit. If you still need it, it should be evident by the tail end of every alternate day regimen....

12/30/2020 6:44 AM

Ulcerative Colitis
Breaking the vicious cycle

I understand @Lanie G. Honestly, I never knew diabetes is such a multifaceted disorder. Her eating habits, she eats small portions, to begin with. She doesn't eat/drink anything white (except...

12/30/2020 3:50 AM

Diabetes
Anyone tried Carnitine?

While going through medical literature, I repeatedly came across the role of oxidative stress in Diabetes exacerbation but conventional treatment doesn't address that (at least I could not find it)....

12/29/2020 9:22 AM

Diabetes
Breaking the vicious cycle

Thank you all. Her diet is not bad at all, but the way her health is, no matter how healthy diet is, it doesn't contribute to much of benefit. Hence, I asked her restricting it even further, if...

12/29/2020 9:12 AM

Diabetes
Did anyone try Citrulline or Arginine and found helpful for UC?

Just came across conflicting information on the usefulness of Citrulline or Arginine in UC. https://doi.org/10.1016/j.jff.2019.103571 The above paper claims - These findings suggest that citrulline...

12/26/2020 1:26 PM

Ulcerative Colitis
Breaking the vicious cycle

Thank you, Lanie. I actually talk to her almost daily. A stationary bike is a good idea. I will look into it. The state that I described is going on for some time. Since she has not followed up with...

12/19/2020 11:09 AM

Diabetes
Breaking the vicious cycle

Hello folks, I am new to the diabetes subsection. I went through a few threads here to get an idea, but I don't find a case similar to my mother. My apologies for the long post. I appreciate any...

12/19/2020 6:13 AM

Diabetes
Remicade + Plant Based Diet led to high remission in severe UC

The funniest part of all these studies do not include the subjects that are/have been on plant-based diets ONLY and compare it with their 'findings'. I gave up meat a LONG time ago and strictly on a...

12/10/2020 5:53 AM

Ulcerative Colitis
Experience with 'Seed' probiotic

I was wondering if anyone tried Seed probiotic seed.com I am considering giving a try for 3-4 months but want to make sure if $50/month is worth spending. In the past, probiotics didn't show any...

11/24/2020 8:20 AM

Ulcerative Colitis
Turmeric

I make DIY turmeric extract using vodka (2tbsp in 7oz of vodka with an inch of grated ginger and tsp of freshly crushed black pepper, soak for a week, stirring daily) and take about 5ml every day. I...

11/3/2020 6:56 AM

Ulcerative Colitis
Vomiting After Mag. Citrate

I am assuming you diluted that. If not, that could be the reason. I usually dilute 1 bottle of Mag citrate laxative with 3 bottles of drinking water and drink that over a period of 2 hours first...

11/3/2020 6:52 AM

Ulcerative Colitis
Allegra and TNF signaling blockade

Just came across ard.bmj.com/content/78/11/1524 . It claims that Allegra blocks TNF signaling. I am sure it is not enough in our case but I wonder if anyone used and noticed even minor benefits along...

8/9/2020 3:57 AM

Ulcerative Colitis
Lack of Sleep causing more symptoms? :(

For me, sleep is of utmost importance. If for any reason, I don't sleep, it definitely gives me abdominal troubles. It can be as simple as just passing gas but that's enough trigger to get out of...

7/30/2020 11:58 AM

Ulcerative Colitis
Have you stopped Azathioprine?

Couldn't agree with you more. I was in the same boat a few years ago and I was offered Humira. As I mentioned, I am against the biologics so I took things in my hand. It takes time and one needs to...

7/2/2020 2:51 PM

Ulcerative Colitis
Have you stopped Azathioprine?

If she thinks its a time to stop it then stop it because if the levels are low at 175mg, it will stop working sooner than later. I used Aza for 4 years until it quit and I ended up in worst flare of...

7/1/2020 4:10 AM

Ulcerative Colitis
Affordable Care Act

I hope you do not lose your insurance but if you do, ACA is not exactly cheap, and worse very few practitioners accept (at least in my neck of the woods). So while the idea of ACA is great, the...

7/1/2020 3:57 AM

Ulcerative Colitis
Doctors in NJ/NYC Metropolitan area

I don't know how north NJ you are but www.marlenegalizi.com near White Plains (just off I-287) or if you are looking for someone affiliated to a large hospital system,...

7/1/2020 3:14 AM

Ulcerative Colitis
Saccharin Supplementation Reduces Experimental Colitis (in mice)

I do not like DDS induced colitis models in rodents, still, this study is interesting. https://www.mdpi.com/2072-6643/12/4/1122 Wonder if anyone uses Saccharin and if it really helps them (from their...

4/21/2020 4:30 AM

Ulcerative Colitis
Itchy skin and funny smelling skin oil

@CCinPA, This is the first time I took Diflucan, so yes, very much a possibility. As I said, I usually take herbs but this time brain fog was so bad that daily functioning became an issue. So needed...

4/20/2020 5:33 AM

Ulcerative Colitis
Itchy skin and funny smelling skin oil

@Uniform Charlie, I have been taking 200mg of Diflucan for 2 weeks now for systemic fungus. I have very distinct systemic fungal symptoms (debilitating brain fog and thick white layer on tongue every...

4/19/2020 6:16 AM

Ulcerative Colitis
Itchy skin and funny smelling skin oil

@iPoop, My exact thoughts. UC has been in remission for a while so the system wants something new, psoriasis? I have never used moisturizer as my skin is extremely oily but lately it has been dry so...

4/19/2020 2:45 AM

Ulcerative Colitis
Other ways or bringing up Iron

Be very careful with iron, it is a double edged sword and esp. with this virus going around. That said, if you don't have obvious symptoms, I would try to follow what @iPoop said. We threw away all...

4/19/2020 2:38 AM

Ulcerative Colitis
Itchy skin and funny smelling skin oil

Thank you both. @C_G_K, I have been taking Sulfasalazine since 2013 so I am not exactly new to it so I doubt it is Sulfa allergy. AFAIK, Sulfa allergies are usually more serious than just an itch. I...

4/17/2020 2:56 PM

Ulcerative Colitis
Itchy skin and funny smelling skin oil

Left-sided colitis, in remission for a few years now with 8gm of Sulfasalazine DR daily. Sometimes, I need to take Ibuprofen to control my migraine and that causes hiccups, never blood, just the...

4/17/2020 8:30 AM

Ulcerative Colitis
mental problem

You are not the only one. Many are reporting this and my guess is stay-at-home is the reason. We are not used to being cooped up inside so I started doing WiiFit with my son....

4/6/2020 4:41 AM

Ulcerative Colitis
one-off food poisoning and effects on colitis

If you are relatively certain that it is food poisoning then nothing beats charcoal. It is one tool in my arsenal that I use often. You don't need a boatload, a couple of capsules away from the food...

4/6/2020 4:38 AM

Ulcerative Colitis
Osteoporosis - Vitamin D

First of all, the possibility of Uceris causing Osteoporosis is very slim, if at all. But you could check the following things - Check urine pH, possibly the first urine of the day, it should be...

3/5/2020 2:47 PM

Ulcerative Colitis
Effect of menopause/HRT on UC?

I know you mentioned the thread is for ladies but let me chime as I am searching exactly this for my mom and her Osteoporosis. HRT will definitely help with menopause (and osteoporosis) but it all...

2/27/2020 7:06 AM

Ulcerative Colitis
Post menopausal Osteoporosis, anyone addressed here?

Thank you, ladies. My mom is just 63 and this is going on for a few years now. She hit menopause in her 40s (almost all ladies in her family hit around the same time) and after that, she started...

2/23/2020 4:59 AM

Ulcerative Colitis
Post menopausal Osteoporosis, anyone addressed here?

My mom has Pancolitis but it is in remission for the last decade without any medications. She is post-menopausal and has severe Osteoporosis. The physicians she is working with are interested in...

2/22/2020 3:12 AM

Ulcerative Colitis
Recommend a psyllium seed powder

Mountain Rose Herbs or Starwest Botanicals. I usually get 5lb once a year from Mountain Rose Herbs and if I finish that within one year, get Starwest Botanicals till I finish the year. I do this to...

2/3/2020 5:15 AM

Ulcerative Colitis
Anyone on Skyrizi for UC ?

UC, Crohn's, Psoriasis, Lupus, RA all intersect at one or the other place in terms of pathophysiology so medication approved for one will work for others too, just not to an extent compared to the...

1/9/2020 5:11 AM

Ulcerative Colitis
Woman, 23, suffers liver failure after taking a $50 herbal supplement

@IamCurious, You hit the nail. A perfect comment I know people think that 'natural supplements' are harmful because there is no oversight. We know all too well that prescription drugs are not safer...

1/6/2020 3:01 PM

Ulcerative Colitis
Smelly loads of gas , last advice !

No, that smell is hydrogen sulfide, which is an indication for me that I am going to flare. It also indicates that the gut flora has shifted for worse. STOP dairy, you can try good probiotic like...

12/21/2019 4:37 AM

Ulcerative Colitis
Safe NSAID?

My headache came with a stiff neck and my neurologist gave me a sample to try on the stiff neck. Good to know that Relafen is not recommended for patients with cardiac issues, do you know why?...

11/20/2019 8:09 AM

Ulcerative Colitis
Safe NSAID?

In the past (when I started taking it in 2013), I needed 4 tablets daily i.e. 1.5g-x-1.5g to survive (could not function with headache) but after 2015, I have been taking as needed. Lately, my need...

11/20/2019 5:28 AM

Ulcerative Colitis
Safe NSAID?

My GI suggests staying away from Celebrex. In her experience, it isn't much better than Ibuprofen. looked at Relafen (Nabumetone)? I have been using it for 6+years now without any problem. 1.5gm is...

11/19/2019 1:09 PM

Ulcerative Colitis
Curcumin, as an adjuvant treatment of mesalamine, was proved to be effective and safe in UC

I really want to know from those criticized the concept (of using turmeric/curcumin), how many have you actually used and are providing N=1 experience? So I suggest, you first try based on science...

11/18/2019 5:28 AM

Ulcerative Colitis
Kidney stones. Little off topic but......

It is a result of messed up gut pH. According to the GI I had a consult with in the ER, he mentioned due to colitis, pH is messed up as in where it needs to be basic, its acidic and vice versa. As a...

11/18/2019 5:11 AM

Ulcerative Colitis
Canadian pharmacy's? which ones

Here is my experience, a bit dated https://www.healingwell.com/community/default.aspx?f=38&m=2751917 If needed, I will order again....

10/22/2019 6:21 AM

Ulcerative Colitis
Could a live vaccine trigger symptoms?

One word answer, yes. The way vaccines are designed, they can very much trigger an immune reaction (isn't that the goal to begin with)? But the adjuvants are added to hyper that immune response. Due...

10/22/2019 6:16 AM

Ulcerative Colitis
How to bulk things up?

I have not read the comments above. Try soluble fibers first and then head on to psyllium seed powder. If you prefer, you could eat loads of chia seeds (in pudding form, soak chia seeds in a liquid...

10/16/2019 7:13 AM

Ulcerative Colitis
Antiviral for steroid resistant UC?

Just came across a study https://clinicaltrials.gov/ct2/show/NCT04064697 that is proposing the use of an antiviral, Valganciclovir, against Cytomegalovirus. Has anyone tried antivirals and...

8/22/2019 10:20 AM

Ulcerative Colitis
Recurring c-diff with no symptoms, has anyone had this ?

Standard treatment is prolonged use of antibiotic but doesn't do any favors on IBDers where the gut flora is already messed up. Ask her to read this paper (or you read it if she is a minor)...

8/12/2019 11:30 AM

Ulcerative Colitis
Miralax alternatives and getting off of Imuran

Long term effect of Miralax can be Pancreatitis. To prevent constipation, - You can try Mag citrate tablets. Ramp up the dose slowly, like 200mg once, then twice and then 3X a day. If it doesn't...

8/12/2019 11:21 AM

Ulcerative Colitis
Budesonide ER 9mg Tablets

or store them well for future use. If you store them well, as in sealed away from heat (not in the fridge exactly), you will not have to worry about the expiry date. Last month, I used Budesonide 3mg...

7/25/2019 2:14 AM

Ulcerative Colitis
Insurance related

Nobody can tell you that. Every plan under the same name is underwritten in a different fashion. I would ask the HR to provide as many details possible and then decide....

7/25/2019 2:11 AM

Ulcerative Colitis
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