Hope it doesn't cause any major issues. My mother got hers last week and she was fatigued, had chills for a few hours, and vomited at one point but felt completely fine after sleeping for 14 hours!...
That's great news!...
Fingers crossed! Those rapid tests are not as reliable for sure. Hope you are feeling ok and get your next PCR test results quickly!...
I do think a plant based diet can help many folks with health issues, but sadly I was diagnosed with UC while eating a whole-food, plant based diet so while it may heal some folks, it certainly isn’t...
Oh you have had quite a difficult year! My condolences. Between the loss of your father, having a new baby while caring for another child, and having a spouse at work all day it makes sense that you...
I second the suggestion that this could be PPD and that you consider a new therapist if this one is not helping you. Don’t feel bad about looking for someone new, it can take time to find the right...
Merry Christmas and happy holidays to all!...
Did you drop from 20-10 with nothing in between with pred? That could be the problem. When I go below 20 I have to drop by 2.5 mg to keep the blood at bay....
My insurance won’t cover brand name lialda at all anymore. I was fine until my pharmacy switched from the shire generic to NorthStar’s generic. After a few months of ups and downs I switched to...
Congratulations on your new baby! I had c-sections with both of my children (pre-UC) and they really upset my digestion. I didn’t take any pain meds after I left the hospital except Motrin but the...
I take Life Extension super bio curcumin and Jarrow Curcumin 95, for some reason the life extension one gives me heartburn if I take it exclusively so I take one of each brand with every meal....
Me! I had a cecal patch with general inflammation to 24 cm when I was diagnosed and had the same redness near my appendix as well. It wasn’t there in my last scope, just sign of old inflammation to...
We are learning that having had covid doesn’t necessarily protect us from getting it again. My SIL works as a resident physician in a hospital in Georgia and she has now had Covid twice. Once in June...
That’s how all of my flare ups have been, the last being the worst. My last flare up I was passing blood with big clots every evening around 7:30-9 and it was borderline head to the hospital. In...
I would check with your doctor. Are you doing blood work? I would get horribly nauseated if I took it in the morning so I switched to taking mine at night with dinner. If I don’t eat a full meal when...
How much potassium are you eating? Have you had those levels checked? I would try limiting foods high in potassium and up your sodium intake for a few days and see if it levels out. I suggest you...
I had an appointment with my PCP today and she said no live virus in any of the current vaccines in development. The issue with the Pfizer one is that it has to be kept in deep freeze which limits...
I’m so sorry to hear about your mother’s passing. My condolences to you and your family....
I think during Covid it would be very difficult to be allowed in the room during a procedure. My understanding is that hospitals etc aren't even allowing people to wait inside their facilities in...
What are your symptoms and do you have any particular areas that are problematic? When I tapered off of pred in 2019 I was left with pretty severe pain in my Achilles first thing in the morning. It...
I have had different responses over the years. Sometimes it works in a couple of days but with small changes, other times I have felt no change for a week but then suddenly symptoms are gone. I think...
Yes, completely normal for me. I have a lot of food sensitivities that do not seem to bother be when taking prednisone. Although I have never tried any of the foods I am genuinely allergic to while...
Glad the oral meds are working! My doctor’s policy is that you wait to taper recitals until you have had 2 weeks of no bleeding. Then start every other day for at least two more weeks before reducing...
I had horrible insomnia from pred. Are you taking it all at once or are you splitting the dose? What time of day are you taking it? I found that if I took any pred after 10 am I could not sleep or if...
I was diagnosed in June of 2013 after being treated for severe bronchitis, asthma, and a sinus infection with Augmentin and a 2 week course of prednisone. My PCP suspected it was bacterial colitis...
I don't know if it would work, but could you try nicotine patches? My grandfather most likely had UC, he was a heavy smoker and always had terrible IBS and bleeding every time he quit smoking. I...
That’s a tough one. My experience is that healing is never a linear process for me, some days are worse than others. If the bleeding gets worse I would reach out to your doctor or head back to the...
I don't have any real life experiences with your situation but I am glad you found out what is going on. I think the antibiotics would help in this case, but follow up with a probiotic you know your...
I have also been known to pass bloody blobs like jelly fish and it is terrifying. I was able to gain control of that flare up (fall of 2018) with prednisone, rectals, and Imuran as well as Lialda but...
steroids are just about the only thing that help when I get that bad, both oral and rectal. Sorry you are dealing with this, I think this is the worst part of UC....
If you are also potentially dealing with c-diff, that's a whole other ball game. For sure get yourself to a GI who specializes in c-diff and try treating that again. If you have c-diff the steroids...
It will take a couple of weeks at least. How long were you on Pred and what dose did you start at? You might want to switch to hydrocortisone enemas and alternate those with rowasa. Sometimes they...
Sometimes that happens when I am flaring, other times it happens if I have eaten something that disagrees with me, especially spicy food. As long as it isn't on your right side near your appendix I...
That sounds pretty normal to me and I agree with Q’s advice!...
You could try Imodium but you have to be really careful with that. Have you tried taking something like potato starch in water a couple of times a day to had some bulk and slow things down? It can...
I get then when I am stressed. The only time I had them when they were really big and painful was 6 months before my first flare up/diagnosis. My dentist suggest I have a doctor look at one on my gum...
I am not a smoker, but my grandfather had terrible bouts of "IBS" and unexplained rectal bleeding whenever he quit smoking. I'm sure today he would have been diagnosed with UC, but that was not the...
If you can get your hands on the formularies for the different plans, that should tell you who covers remicade and what their process is. I have BCBS and remicade is covered, but conditionally, so I...
I think you need to find a new IBD consultant. How frustrating!...
i think a full scope is a good plan. sorry you have you have to get a covid test, with any luck you can get the mouth swab one instead of the nasal swab, it is a lot less "uncomfortable."...
I have done pred doses both ways. At a higher dose I would rather split but take the doses 4 hours apart. I have taken 40 mg all at once, but when it wears off I feel horrible again. Once i drop to...
I have had 3 flares, my first in 2013, 2015, and most recently 2018. Before my most recent flare up in 2018 I was having mild symptoms for a year before things went downhill and I went on pred. I...
My doctors always say that you have to stay at 40 until your symptoms are basically gone. If you taper too soon you end up yo-yoing and could have to go even higher than 40 mg a day. Hit it with...
I don’t have chronic tinnitus, but I get then occasional ring that lasts for a few hours especially if I forget to wear earplugs and I am sitting in front of percussion or brass. I’m a classical...
I wasn’t diagnosed with UC until my youngest was 3, but I was horribly constipated when pregnant with my first child. I found upping my yogurt consumption was the only thing that helped....
I’m so sorry for your loss. I think it would be hard to say what caused his death, perhaps UC was a contributing factor, but i doesn’t sound like it was severe enough to cause his death. What a...
Cool concept, now to see if they can correct the balance of different t cells and see if that reverses IBD......
I cannot imagine having UC and having such an important job....
It could be that you are not responding to Remi, but it could also be the pregnancy that is aggravating things. I had a lot of hormonal shifts around that stage when I was pregnant, so it could just...