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ki-wi

HealingWell Forum
>
Member Profile
Display Name
ki-wi
Profile Created
1/17/2015 12:45 PM
Last Seen
4/8/2018 7:59 PM
Total Posts
427

Last 15 Posts

Total Colectomy in Children

Hi Genius, I had a very similar journey to yours except during my 30s. I'm also from NZ (Wellington), and I recently (3 months ago) completed J-pouch takedown after 4 years of UC and six months with...

4/8/2018 2:48 PM

Ulcerative Colitis
Surgery, finally

Hi guys, 5 days later and the surgery is behind me. What a roller coaster of a week. I'm still in hospital, and they tell me things are going very well. It took 7.5 hours, done laparascopically....

7/14/2017 2:43 PM

Ulcerative Colitis
Surgery, finally

Thanks all, I'm leaving for the hospital now. Yikes! See you in a week...

7/10/2017 10:56 AM

Ulcerative Colitis
Surgery, finally

Well team, my UC problems will soon be ancient history as tomorrow I'm having a total colectomy as step one of a two-step J-pouch procedure. I'll start the prep soon. Can't believe after four years...

7/9/2017 3:45 PM

Ulcerative Colitis
My surgery journey

thanks for the thread, ill be having mine soon, and its great to hear your story...

5/12/2017 7:45 PM

Ulcerative Colitis
Increasing Prednisone to combat flare symptoms

Yes, he recommended going to 40mg. I've since moved to 40 and seeing some improvement, hoping it continues....

5/10/2017 3:52 PM

Ulcerative Colitis
Increasing Prednisone to combat flare symptoms

:-) I wish I wasn't here! I should have had this damn thing out by now, but they keep pushing me back. Day two at 30mg. Doing a bit better I think. Fingers crossed it does the job or it's 40 tomorrow!...

5/9/2017 3:59 PM

Ulcerative Colitis
Increasing Prednisone to combat flare symptoms

Thanks suzy, I'm going to do just that. 30 from today...

5/8/2017 3:35 PM

Ulcerative Colitis
Increasing Prednisone to combat flare symptoms

Thanks Dan...

5/8/2017 5:30 AM

Ulcerative Colitis
Increasing Prednisone to combat flare symptoms

Surgery date still unknown at this stage, but they have told me June. Being down at 10mg was considered acceptable by my surgeon. Thanks for the advice re: C-Diff. Will keep an eye on things. I am...

5/7/2017 7:13 PM

Ulcerative Colitis
Increasing Prednisone to combat flare symptoms

Hi all. I haven't posted in a while as I'd been doing pretty well. I've been taking Prednisone for about a year now while awaiting a surgery date. Started at 40mg and had worked my way down to 10mg...

5/7/2017 6:05 PM

Ulcerative Colitis
How to be happy with UC

I think any benefit or advantage realised through suffering mostly occurs retrospectively, in our case perhaps after achieving remission or having recovered from surgery. In my experience, when...

2/14/2017 12:28 PM

Ulcerative Colitis
Person I'm Dating has UC. How to handle cancellations or when he needs space?

I don't get that impression. She is here looking for insight, after all. Good advice peeps, I have nothing to add....

11/6/2016 10:49 AM

Ulcerative Colitis
Is anyone participating in the current Phase III Stelara (Ustekinumab) study?

Great news for your husband. I wish I could get my hands on that one, though another part of me is looking forward to being med-free....

9/26/2016 3:12 PM

Ulcerative Colitis
Is anyone participating in the current Phase III Stelara (Ustekinumab) study?

Thanks guys. Yup, it's been a long hard road that I'm happy to be nearing the end of. Surgery is scary but I figure I've already been to hell and back a number of times so I'm ready for whatever else...

9/24/2016 2:27 AM

Ulcerative Colitis



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