I'd call your pharmacist and ask. The humira FAQ is pretty absolute, if pens exceed refrigerator temps then use within 14 days and discard of not. Says your pharmacist can help you get replacements...
1.) Symptomatic-remission is confirmed based on patient reported symptoms. 2.) There's inflammation labs that can be run, like Calprotectin stool test or C-Reactive Protein blood test, if you're in...
Many UC patients have gotten tattoos while immunosuppressed, Sherry (red) had gotten some done, and a couple other longtime posters here too. It's fine, get it done at a reputable shop with good...
Moderate too much, too little always a get bonked regardless. Watch it though, forum rules and all. In my opinion COVID, vaccines, complaints about big pharma, and other such things have no place...
GrittyHope, glad you find it helpful. There's some good folks here who care and want to help when we can. Perspective, there'd be multiple pages of new/updated posts each day a decade ago. Agree...
Well there's a large ban of initial diagnosis in the teens and twenties, another ban in 60's. Obviously UC is for life ;-)...
Yeah, things have slowed dramatically since I first joined. Still going thanks to some dedicated/passionate, long term veterans we all know and love who answer questions regularly. Although it's a...
I live in rural Vermont and been getting raw milk from a farmer we know a short distance down the road. It's still got the cream in it, which we separate into heavy cream, and/or make butter from it....
March 2022 - Maltodextrin Consumption Impairs the Intestinal Mucus Barrier and Accelerates Colitis Through Direct Actions on the Epithelium...
The change is tough for sure NCOT! I had a grandmother and an aunt both with Alzheimer's disease (both on my mom's side of the family). Growing up, my grandmother used to be sharp as a tack. If I...
See if you can win the rooster over (or at least distract him) with treats? Like birdseed? I've heard picking up and carrying a rooster lowers the aggressiveness. Provided you know how to safely...
Hang in there NCOT, at least you now have a path forward with the surgery. Waiting and suffering sucks though! Yeah, I see your posts in the Crohn's Disease sub on Reddit, sometimes. Reddit has...
An interesting one, don't read much about us having an abnormal virome it affecting IBD... At a Glance Viruses isolated from people with inflammatory bowel disease, or IBD, triggered inflammation in...
The following looks at systematic absorption of hydrocortisone rectal foam administration. Should be very similar to your budesonide foam. "Only a very small part of the rectal dose (100 mg) was...
A bit off topic. Saw this the other day, thought you might find it interesting. The poster said: "Research finds IBD drugs 5-ASA, methotrexate and 6-MP have anti-MAP activity" "I came across this...
I'd expect a diagnosis of moderate severity, Ulcerative Colitis, with Proctitis extent. Proctitis means rectal only inflammation. The rest of your large intestine (ascending and descending colon) was...
Sorry you're flaring. My vote is coincidence. As hindsight is always perfect, 2/20 vision. We try and find something, anything to pin as the cause of our flare. We're seldom correct. A flare is...
Thanks for checking in. Glad they found it, hope it's easily taken care of and an easy recovery. Cheers!...
Interesting study, results of combo of two biologic-strength meds (tremfya and xeljanz) on UC patients versus those biologics individually. PR Newswire: news distribution, targeting and monitoring...
There's a number of professional athletes with UC or Crohn's, some who've undergone surgery. It's inspiring to perform at that level in their field despite struggling with severe IBD....
Looks awfully expensive. It's just a mix of other common supplements. Maybe it's cheaper to buy them individually?...
Agree a little early to say for certain. Flares are always a mixed message thing, full of contradicting signs, that only more time clarifies. I believe a medical bracelet is only necessary for...
It cannot be avoided. You can limit moonface, bloating and water retention by limiting your salt intake....
My blood work is normal on remicade. The elevated lymphocytes and monocytes could be from active inflammation lingering, or from an infection. Do you have any flare symptoms?...
When the intestines are inflamed, putting pressure on the surface causes pain. Much like it hurts to put pressure on a cut or bruise on your skin. When the intestines are empty, they're like a sock...
False-positive Calprotectin can happen when you're on PPI meds or using NSAIDs as examples....
Well, not sure it's riding out the storm, so much as calming the storm with Prednisone's immunosuppressive affect. If the immune system is essentially in a feedback-loop (like microphone feedback...
It's been tried here before, search the site and you'll get some results on it. Not sure that anybody currently posting is using it now though....
Low residue, low fiber diet is best during flares. You want to decrease that indigestible, stool bulking component of your diet for less pain at exit/pooping. Things like soups, broths, chicken and...
A short history lesson on the meds Natalizumab and vedolizumab/entyvio. The first medicine of this class, Natalizumab, had low odds of causing PML of 7 in 10,000 (or 0.07 percent). Inversely, 99.92...
Yes, imuran is dosed at 2.0 to 2.5 milligrams per kilogram of patient body weight for UC. So, a 70 kilogram patient would be dosed at a daily 140 to 175 mgs of imuran. Imuran pills are typically...
Yes, 6mp is dosed based on your weight, usually 1.0 to 1.5 mgs per kilogram of patient body weight for UC. For example, a 70 kilogram patient would get a 6mp daily dose ranging between 70 to 105 mgs...
I believe everyone needs a cool off period on this subject, as it's getting heated, multiple locks and warnings given, and very soon it'll turn into bans of multiple users if this nonsense continues....
If you want to exchange emails, share it on your healingwell profile. It's only accessible to those who are logged into this forum system. You can share it for a few days then hide it again if it...
Civility please. I don't see how you both arguing and fighting in multiple threads is helpful to the community here....
Civility please. No attacking others or the mods yeesh.......
Fine on my Android with chrome. Fine on my PC with chrome and edge....
An interesting read: Time to clinical response and remission for therapeutics in inflammatory bowel diseases: What should the clinician expect, what should patients be told?...
I do not believe getting breast cancer is a reason to get your large intestine removed. Especially if your UC is well managed on Inflectra. But it's an interesting question: does infliximab/inflectra...
If your colonoscopy is clear and inflammation tests normal then it's unlikely to be unseen inflammation lurking. Being within a remission isn't a pinky-swear promise of no troubles at all. Some of...
Map vaccine has been discussed in length here over the years. I remain cautiously optimistic that maybe they're on to something. Then the pessimistic side of me kicks in. At least they're making...
Steroids gave me terrible acne. Skin complications are a common extra-intestinal manifestation of IBD, with or without meds...
No difference...
Mucus is the most likely culprit. They look very, very similar and I wouldn't try and judge which is which....
Curcumin/tumeric has been discussed and tried here for over a decade. Some, not all, have reported it helping. Just be careful it's a known blood thinner, and we tend to have blood within our stools....
When empty, opposing large intestinal walls collapse and touch and nearly touch each other throughout. The position you're in is entirely irrelevant (whether supine, sleeping or any of the others)....
Possible it's a rare side effect. You could try switching to stelara or entyvio. It's possible psoriasis is an extra-intestinal manifestation of IBD, and will remain an ongoing challenge even if she...
Health insurance vary so much in copays and annual deductibles. Here's a good idea of what you should be paying (total cost of med, excluding copays and deductibles):...
Sister meds are remicade or Simponi. Other biologics are stelara, entyvio. There's similar xeljanz....
A mesalamine intolerance is a dramatic worsening of your bowel symptoms. Like going from before mesalamine 3, formed, not urgent poops to suddenly a very dramatic 6-8 very loose and urgent poops...