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TotesMagotes

HealingWell Forum
>
Member Profile
Display Name
TotesMagotes
Profile Created
3/1/2013 6:34 PM
Last Seen
2/18/2018 12:48 PM
Total Posts
771

Last 15 Posts

update

Thanks for thinking of me countess! I’m doing ok. The last flex sig I had before I got too pregnant was right before Christmas. It showed the stubborn area had gone from a 2 inch ring of moderate...

2/16/2018 12:11 PM

Ulcerative Colitis
update

Countess that’s such great news!! Congrats. Btw I saw the gi you see and really like him. He’s my specialist at penn now. So thank you!! I agree with parts of everyone’s suggestions lol. If it were...

2/16/2018 8:32 AM

Ulcerative Colitis
Surgery a sucess

Awesome to hear! Get some rest!!...

1/10/2018 2:17 PM

Ulcerative Colitis
Thank you God. Surgery set for Tuesday

So happy for you 3time! Been following you through the last couple months. So happy your scheduled and almost on the other side of UC. I wish you nothing but a smooth surgery and healthy 2018. Keep...

1/5/2018 3:37 PM

Ulcerative Colitis
Elevated Liver Enzymes

Hopefully this makes you feel better. I’ve had uc for over 5 years. My liver enzymes fluctuate on occasion. I’m currently on 6 mp and remicade and get bloodwork every 3 months. Depending on...

11/23/2017 12:17 PM

Ulcerative Colitis
Proctitis Flare Up!

There are a bunch of rectal meds you could try and get prescribed. Usually for proctitis you use suppositories- Canasa or hydrocortisone suppositories. Then there’s cortifoam or uceris foam. Then...

11/17/2017 6:05 PM

Ulcerative Colitis
Felt better on Bactrim, doing research Shigella bacteria

It’s great to hear you’re feeling better. Hopefully the stool test reveals something. I’d do the same in your position!! Keep us posted :)...

11/17/2017 6:43 AM

Ulcerative Colitis
Success with remicade but had to move to different biologic?

I started another post but I think this may answer my question better... Has anyone had success with remicade but had to stop it for side effects or lingering inflammation and move on to another...

11/17/2017 5:20 AM

Ulcerative Colitis
Possibly leaving remicade...try entyvio or humira next?

@coffee- are you using rectals as the entyvio takes full effect? Also I’ve seen drs at Jefferson over the years. They have a great ibd team as well I saw DiMarino when I was first diagnosed. I think...

11/17/2017 5:16 AM

Ulcerative Colitis
Possibly leaving remicade...try entyvio or humira next?

Thanks for the input guys!! Casey- were you able to get off the cort enemas??...

11/16/2017 5:46 AM

Ulcerative Colitis
me again-getting cold feet

From what i have read the lymphoma increase is with males in their 20-30s on combo therapy. Again the odds are very low regardless if i remember correctly. Regarding 5 asas yes I think the goal is to...

11/15/2017 7:18 PM

Ulcerative Colitis
Possibly leaving remicade...try entyvio or humira next?

Hey countess. Yes my second opinion gi is Caroline kerner at penn. I’ve met with her once this summer and see her again next month. I meant to email you her name a couple weeks ago...so sorry I’m a...

11/15/2017 7:09 PM

Ulcerative Colitis
Brand new To UC- extreme flare- Remicade question?

I’m on remicade. I’ve been on it almost 3 years. Remicade in conjunction with 6 mp was a game changer for me. I still have bumps that I’m working thru (my uc is bizarre lol). But since starting the...

11/15/2017 6:14 PM

Ulcerative Colitis
Brand new To UC- extreme flare- Remicade question?

I agree with DB that it sounds like you still have c diff. What antibiotic did you use when they diagnosed it? I also agree with her view on starting remicade. Nothing is ever written in stone but...

11/15/2017 4:41 PM

Ulcerative Colitis
Possibly leaving remicade...try entyvio or humira next?

Hey John. I’m currently on 50 mg 6 mp. Been on it since last summer. My gi doesn’t think upping the dose will do much. I’m on the max for my weight but also when i was first diagnosed i tried 75 mg...

11/15/2017 4:34 PM

Ulcerative Colitis



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