She didn’t want to do a full colonoscopy to irritate my gut more than it is. Now just need to find a way to soften my stool without injuring myself more cause I am having a hard time passing stool. I...
Susie thank you :) My past meds are: Asacol, azathioprine and allopurinol, Remicade and now I am currently on Xeljanz and tapering off pred. I think my GI talked about trying Entyvio next since...
I was diagnosed with UC in 2007. Tried messalamine and it failed. I went on Remicade and it gave me 7 years of remission :) . This year Remicade stopped working. I had started having blood, mucus,...
I was hospitalized this week because of symptoms that simply won’t go away. Blood, mucus, urgency, hard time passing stool. I had a sigmoidoscopy in November and had moderate inflammation. My GI...
Quincy, yes I do have salofalk suppositories at home. I will start using them regularly again....
I spoke to my GI on Monday and she said that Xeljanz might be taking a bit longer to work. Ppl respond to it differently. She did put me back on pred to stop the bleeding. Hopefully I will feel a bit...
Thanks :) I do have a call with my GI this afternoon so will talk to her before going to ER....
Remicade stopped working this year, started with mild flare with a bit of urgency and mucus. They tried upping my Remicade dose and frequency. That didn’t help either. The GI took me off Remicade...
I was diagnosed in 2007 at the age of 22. I had pancolitis from the beginning. the first 4-5 years I took Asacol and Pred for flares. in 2011 I got pregnant and had a great pregnancy no symptoms...
It was a big game changer for me too. After having my daughter I went into this huge flare and got steroid dependent. I started Remicade and it put me in remission for 7 years! I hope you get that...
I just got the call this morning that I will start Xeljanz in the next few days. I was on Remicade before and got 7 years of remission. It stopped working around July. We tried doubling my dose and...
I just spoke to my GI on the phone and we discussed changing my meds. I have been on Remicade, Azathioprine and Allopurinol for 7 years. I have been having symptoms creeping up since September 1999,...
For those of you who are on Remicade, did you ever get a flare up on Remicade and were able to get back into remission? I have been on Remicade for 7 years. 3 weeks ago I started flaring and was...
They did check for antibodies back and may and I was still good. Right now they are thinking at bumping my Remicade to every 4 weeks or to switch me to entyvio. I will find out more when I talk to my...
After 7 great years, I am flairing again :( I don’t think Remicade is working anymore and I am back on the dreaded prednisone. What is next after Remicade? I hope I will be able to have another 7...
Lili, Thanks :) its been 5 days and things are looking up. I’m already having less symptoms. It’s funny we are same age, got diagnosed the same year and live in the same city. Which GI do you have?...
No it says mesalamine on the box. I told my GI I had a hard time retaining the enemas so she told me to Try this. It’s been about 5 days now and I’m having less symptoms already :)...
Hey everyone, I haven’t been much on here these last few years. I was in remission for a good 5 years. Around Sept started getting a few symptoms (major gas, passing some mucus, seeing a bit of...
little update: last few days have been a bit weird. my symptoms are not really getting worse. saw a bit of bloody mucus on Friday and Saturday but never any loose stool. Sunday and today no symptoms...
I haven’t been on here for quite a while because everything was going so well. I’ve been on Remicade and Aza for the last 5 years and no flares. This week my stomach was cramping a bit and lots of...
I have my scope scheduled for Tuesday morning. My prep is Pico-Salax. I was reading the instruction and it says to drink the first package at 17:00 and second one at 22:00. I really don’t want to run...
I've been on Remicade for 5 years and have been symptom free since then :) but these last few weeks have been really stressful for me and when I went to the bathroom this morning there was blood. My...
my daughter was sick with the stomach flu last thursday and it lasted 24 hrs. A good friend of mine caught it too and her symptoms lasted 5 days. I started with very watery Diarhea on monday and I...
Adele1983, that is what I did too. When I got into remission, I gradually added one thing at a time. One of the things I use to love before UC is corn on a cob but when I got UC it was impossible for...
I eat everything I want in remission :)...
I've been on both Remicade and Imuran since 2013 and I've been in remission ever since :) unfortunately Remicade alone isn't enough for me so I have to be on both Remicade and Imuran. I hope your...
a couple of weeks ago we bought 3 little chicks. we are keeping them in a room that is closed off not to let my dog and cats go in and also because we still have snow in our backyard. I am on...
I am curious, a few weeks back I caught the flu. a had a low grade fever for a couple of days and then it went away on its on. I spoke to a nurse on the phone and she told me that if my temperature...
I was scared to use a biologic at the beginning too! But I really don't regret it!! going on 5 years in remission :)...
When I was preggers with my daughter I was on Asacol. I had a great pregnancy, no issues with my UC during the 9 months. about 1 1/2 weeks after I gave birth, I got into a big flare up. I lost the 30...
I started remicade in 2013 or 2014 and it has been great!! unfortunately remicade on it own wasn't enough so I am taking Azathioprine at the same time but no flare since then :) I sometimes even...
I've been on Remicade for 4 years now and I live in the province of Quebec. with my insurance and Bio Advance paying for a good chunk of the remaining amount, it costs me 120$ every two months....
how do you deal with migraines?? i've taken two extra strength tylenol and it isnt going away!! I know i'm not suppose to take Advil but what else can I take. Will taking 1 hurt me that bad?...
thanks iPoop :)...
hey everyone, ive been on remicade and Imuran for about 4 years now and everything is great :) I have a tattoo i would like to be covered by something else. since I am on remicade and Imuran is there...
full remission since 2014 :) the first 7 years of this disease was horrible. I could never fully get into remission. started Remicade and Aza in 2014 and no symptoms since then. I am able to eat just...
here Is what I have in Canada: my insurance pays 80% of my infusions. Bio Advance helps to pay another large chunk of the price. in the end it costs me $120 CDN every 8 weeks....
they give me Picco-Salax. so far that one hasn't given me that many cramps and doesn't make me feel nauseous at all. it is 2 packages that you dilute in water. you take one in the morning and one in...
when I am in a flare I stay away from dairy but right now I am symptom free and eat what I want....
Ipoop is right! the first 5 years are the toughest. I was dignosed at age 22 and today I am 31 yrs old. I remember it took me a long time before we found the right meds for me that put put me in full...
I've been on remicade and azathioprine for 4 years and have been symptom free since then :) I feel like I have my life back!! I know it might not be forever but I am enjoying every moment!...
Nana, I am pretty sure it is the antibiotics they gave you for your sinus infection. When i am given antibiotics i always get D....
I have had a big flare up 2 days after giving birth to my daughter. I became steroid dependant and my GI decided to put me on Remicade. sadly Remicade by itself wasn't enough but with Azathioprine...
i've been on remicade for 3-4 years now and I am also on Azathioprine and allopurinol. no antibodies but righty now we are finding a hard time getting the right dosage of meds. either my platelets...
I was lucky I got an appointment this morning. Doc said I have no sign of infection :) my lungs are clear so it is a virus that should pass on its own. she said that if my symptoms get worse to go...
thanks iPoop I will go see my doc tomorrow :)...
happy new years everyone!!! how long do you guys wait before you go see a doc when you have colds? ive been sick for 2 weeks now with stuffy nose and a cough with a bit of white-small tint of yellow...
a few months ago my dosage had to be dropped a bit due to the fact that my liver toxicity levels had gone up a bit. I just got a call from my doc's office and I will have to drop my dosage again...
I think the only symptom I have experienced is bleeding gums....
Thanks John. It isn't the first time my platelets are low. earlier in the summer my platelets had dropped lower than 96. that is when my GI adjusted my meds. In Aug my platelets were at 106 in Sept...