Glad you're doing well so far, BBye! I hear 98% good news from non-UCers RE Pfizer #2, including a senior guy age 73 with pacemaker for last 2 yrs. In contrast, I've heard bad news RE Moderna shot 2,...
How are you doing, BBye? Had 1st Pfizer 4/14 & got a quick reaction within 10 minutes of injection. It was similar to what I felt starting an hour after Pneumovax 23 shot last fall: flashpoints of...
BBye, finally got scheduled for tomorrow, too, with Pfizer #1 at location near my main MD. Fingers crossed! We need to stay well-hydrated & hope for the best-- in spite of the constant media hype,...
Try to stick to your usual dosing and keep adequate water supply with you all day-- because doctors say that EVERYONE should be sure to stay well-hydrated when receiving the COVID vaccines....
Did you ask your doctor about the Rx shortage? If it affects other patients you have a better chance of getting pharma attention & remedy for your situation. Sulfasalazine seems to work best for...
Being rushed to hospital emergency room for severe UC is no joke. Make sure family members know which hospital in your area has experienced gastroenterologists on their staff in case it comes to...
10 oz. coffee = caffeine stimulation to bladder. Plus, when taking oral med one should drink at least half a glass of plain water. Rethinking your breakfast options would likely improve your...
Jayce, in 2018-19 I waited 6 months to see a WCM internal med MD who had stellar patient reviews, and had practiced for a dozen+ yrs there. When my appointment finally took place, I felt elated--...
Look at Health Grades recommendations for MDs. I think that's more reliable, at least for northeast U.S. The RateMDs plus Vitals Websites tend to post a lot of "crank" complaints. I know a...
Jayce, there seems to be something required fairly recently at WCM whereby the patient needs to have a PCP or internal med MD prescribe certain lab tests & vaccines. I found out about it due to...
In NYC the major IBD treatment centers are located in Manhattan at Weill Cornell-Jill Roberts IBD Center and at Mt. Sinai Medical Center Fifth Avenue/E. 98th St. complex. At Weill Cornell-Jill...
Deee did mention last year that she contacted her past doctor at Cleveland Clinic, who told her he would put her in hospital if she was still living there. Can you contact him now about her...
You could also ask your doctor to try Colazal instead of Lialda, since your UC is confined to proctosigmoid region. Colazal (brandname) was devised especially to treat left-sided UC. (It now has...
Thanks, Poopydoop. I mainly wanted to tell Jayce that Shingrix is given where her daughter gets UC treatment. In fact, it may already be listed on her personal online medical chart there under...
Hi, Jayce! It could be that Shingrix vaccine got recommended to your daughter. They do give it at WCM. RE age limit: you can look up the specs online. I don't recall reading anything here by...
Thanks for sharing info, Goofyfoot. Here's hoping your tinnitus resolves soon. I did read online shortly after Moderna received FDA emergency use approval that a physician in Boston with known severe...
Interesting! But it doesn't seem like you have to worry if your 2nd shot IS showing seroconverting. Shot #1 is considered to be a "primer", so-to-speak. Apriso should not be a factor in your vaccine...
For Rusty's Q: USA Today reports that the Pfizer vaccine has been found 90% effective in 40,000 trial subjects 6 months after 2nd shot, also effective against South African variant. Pfizer will now...
Did you transition to any maintenance med after tapering off Prednisone? If you don't feel anal discomfort like swelling, pinching, or burning aches, and you're not on another Rx med the bleeding...
RE Rusty's Q as to how long vaccines are supposed to work: according to researchers a "benchmark" for duration will come in early autumn. That will be 1 year since the clinical trial subjects who got...
Back in January our state had 2 categories of priority eligibility for COVID vaccinations, 1-A which was mainly for health care providers & emergency service people, and 1-B, which was mainly for...
I needed a new Windows laptop & finally got one last month. It has 10th gen Intel Core i7 processor so is blazingly fast compared to my 7 yr-old model, an early i7. (Not a techie, but love a solid...
Glad to have your input, Momto2. RE helpful pharmacist: I had a wonderful soul (female from Bengali immigrant family) who managed pharma dept. at a local chain for nearly 10 yrs & always got me...
No, Poopydoop, I've been trying to register for pharmacy injection via dedicated phone link or online since early February-- just got a couple "false leads" thus far. There are 3 pharmacies within...
Congratulations on nabbing a vaccination, Poopydoop!!!!!! Also many thanks for your science insights! I'm in NYC (Manhattan) where the injection rollout continues chaotic, and egomaniac politicians...
COVID-19 is viral; TB is bacterial. Polio is also viral; original polio control via Salk (killed-virus) vaccine required 2 injections delivered a month apart, plus recommended booster shot a yr...
Yup, it's best to stay off Prednisone. One can develop all kinds of unpleasant side effects from using it repeatedly, including cataracts & osteoporosis that damages hip & shoulder joints seriously....
Plain water is the safest liquid. I think the problem with juices is that so many come with additives, for example, vitamin C added to apple juice. That's not a problem for healthy guts, but we need...
While taking oral steroids one may feel increasingly hungry-- so it's important to avoid most fats and salty foods in addition to those FlowersGal already commented on. Excess salt can cause the body...
RE Runner's concern about one's inflammatory response to mRNA vaccines: Over the weekend a scary story came to media from Miami, Florida-- where widow of 56 yr-old (healthy) obstetrician hubby...
Glad to read your good news! Thanks for updating us & sending you continued best wishes. / Old Hat (40 yrs with left-sided UC; in remission taking Colazal)...
Yes, 3TimesChamp posted in another recent thread that his latest COVID antibody test shows a sharp decline from what they were in autumn. (He got COVID & needed hospitalization for several days last...
Try not to freak out because those 2 conditions can now be monitored and treated more effectively than they used to be. (IBD is more commonly associated with iritis.) Just make sure to get regular...
At my 1980 DX I had no choice besides steroids except sulfasalazine, which presents problems due to the sulfa bonding. If you do decide to try it, ask for the enteric-coated tablets; otherwise you'll...
Jujub (Judy2) is a medical professional with yrs of UC experience, who used to post here regularly, and I've missed her valuable input more recently. So, welcome back and I hope you'll stay with us,...
Your gastroenterologist should be able to advise you how to deal with internal hemmies, geez! There are combo foams such as Proctofoam HC, which is 1% hydrocortisone + 1% pramoxine, that used to be...
The bright yellow urine is common to oral mesalamine use. Be sure to drink plenty of water with each dose, and otherwise keep well-hydrated throughout the day. Colazal was my break-through med for...
Steamed yams/sweet potato have been very helpful for me. Overcook slightly to make them extra moist. I recommend eating plain w/o adding anything like butter or spice. Drink plenty of water every day...
CCinPA, try looking for the steroid enemas' info sheet. If it didn't come inside your package, see if the bottle label lists a Website and if so, look for information on use of steroid med there. I...
The itching red Moderna injection site had an article heading on CNN Website about a week ago, which I intended to read, but then another topic distracted me so that I signed out w/o returning to...
Basically, a UCer with continuing problems should not self-medicate. You need an experienced IBD gastroenterologist who will partner with you to find the best regimen and/or alternatives. In general,...
Au contraire, Dr. Fauci has been a distance runner for decades, after playing on basketball teams in H.S. & college. For some reason other than Dr. Fauci, that Moderna vaccine is being foisted off on...
Thanks for heads up RE Janssen, Poopydoop! *** RE Pfizer vaccine for seniors: longtime friend of mine in PA (no IBD, but autumn recurrence of breast cancer & 3rd lumpectomy, plus has 2 knee...
Since when is Johnson & Johnson an experienced vaccine producer? They've been in trouble over talcum powder containing asbestos. / Old Hat...
My longtime gastro, who subspecializes in IBD treatment, would tell you not to take iron pills/tablets. In that form iron can "clump" in the intestines, which can lead to injury of friable tissue...
For Max: puffed rice and plain Cheerios are better (cold) cereal choices in U.S. during flares. 5-minute cooked farina is excellent for people w/o wheat issues, being low-fiber + iron-supplemented....
Yes, urgency is The Pits-- no matter when or where. Besides finding the most helpful med(s) & diet, the next best thing you can do for yourself is to buy a pack or 2 of TENA disposables. Especially...
There are gastroenterologist studies on endocrine effects in IBD, sub-specialist topics that get discussed at medical symposiums. From my own experience of treatment at major medical centers where a...
Did the doctor scope terminal ileum? Inflammation there is indicative of Crohn's disease. The usual inflammatory pattern for UC is contiguous= no breaks of healthy tissue between inflamed sections,...
There is an enteric-coated tablet form of sulfasalazine that might help your husband to avoid stomach pain. I took that decades back and was spared stomach discomfort, but found that med irritating...