Edited. Deleted more flaming, you're not listening. Rule violations up the waazoo. You've been very rude to all of us here, repeatedly, despite ample warnings given. Temporary ban placed on account....
Edited: Watch it Mark, we're trying to help, attacking all of us is not necessary or appropriate for this forum. I removed the contents of this post as you were attacking pretty much everyone who had...
In other words it's better to hit it hard and fast so you can see improvement sooner and then get off of it sooner, than introduce it very slowly. The slow approach means you won't achieve...
The problem with this approach is that therapeutic value won't be achieved until you get to higher doses. The metabolic equivalent of prednisone that the body releases every day is equal to or less...
Now it seems like you're scaremongering. Surely that poster wasn't the only person in the history of HW who used alternative therapies to get better? One person in how many died? I wouldn't be doing...
I've never had a flare last longer than 7 months. Still, 7 months is a long time. I agree the past does not dictate the future, but the past isn't nothing either. The loss of time is indeed hard to...
The lifetime risk for CRC in the population is 4.5% or 1 in 23 -- that's LIFETIME. The average age for men and women getting CRC is in their late 50's to early 60's and onward. So you have to look at...
Sorry but I trust my doctor's professional medical database more than I trust what some people claim about remission rates. Her database is what the government and the medical network here use to...
I went to my GP yesterday to ask her to prescribe this. She was willing, but checked her pharmacy database first. Xeljanz has 3 black box warnings - for fatal blood clots, cancer, and serious...
It seems like prebiotics are becoming more important than probiotics. If you have any surviving colonies of good bacteria in the bowel, then prebiotic foods can bring them back into balance. I have...
I think herpes and UC is far more of a problem than HPV and herpes....
CRP only starts to rise when there is massive tissue death from inflammation. A lot of inflammation, even with bleeding, may not involve actual tissue death. In my opinion, if inflammation can be...
That's not very supportive....
iPoop, I just had remission for 2 years with no meds, so I'm not ready to consider colectomy. I know it's possible to live freely from this disease with natural means and that's what I'm aiming for....
Just wanted to give an update. On day 4 of this therapy, my bowels started to relapse. I had urgency and frequency that was like 2 months ago when my flare was really bad. The HT group said it's...
Just wanted to correct something. The large intestine does not just absorb water. It houses most of the gut flora which are responsible for so many functions that we don't know them all yet, such as...
How long have you been on pred and at what dose? I'm always scared the same thing will happen to me....
This is the reason why anti-vax proponents suggest not getting the MMR during the initial formation of the immune system, i.e. under 5 years old. You want those memory B cells functioning optimally...
As this is my thread, I just wanted to chime back in. During my remission periods, I pay for a calprotectin test every 6 months, even if I think I'm doing well. Simmering inflammation is the real...
My bleeding got a lot worse when I went from 15mg down to 10mg, but I also got an iron IV around the same time, and those tend to aggravate things. It never seems to be a good time to taper. A life...
Is it normal to have some bowel disturbance as you taper prednisone? I went from 15mg to 10mg yesterday, and today there is more bleeding, frequency and urgency, but in the past it often did this...
Swimming is a great idea...
Perfect! I'm going to give it a try....
I know this topic has been done to death, but this version has a slight nuance to it. We've all heard from vegetarians who developed UC, so it's not like vegetarianism is universally protective...
Thanks for this! Maybe I can describe my situation in a little more detail, so you can help me consider it better. All my life I've been one of those people who can eat like a horse but not gain any...
I never deadlift, even when I'm in remission. I'll start small. My main question is -- is it possible to build body mass while on pred? Or am I going to stay exactly where I am?...
My flare is now in the recovery phase, no longer crazy. I'm gaining weight slowly, but still underweight. Down to 15mg prednisone (from 40mg). I would really like to start going back to the gym to...
Did musicmaker ever return? I wonder how long they were on prednisone before they started having broken bones....
Prednisone is destroying my skeleton. It's the main reason I am forced to consider colectomy in the coming years, if I can't get deep remission happening. I hate these drugs with a passion and I am...
Because he's an idiot, that's why. He just tells me to get a colectomy or accept I'm going to die. My UC isn't even that bad right now, but it is insufferable. The research on helminth therapy in the...
My GI doc won't give me further biologics. He refuses. He will only offer me colectomy. He said past biologics failed so there's no point in trying further ones. I can't get a second opinion because...
NSSG and iPoop, what were some of the side effects you heard about that turned you off? This is a lot of fear mongering. Did you read the wiki link posted? They don't suck the life from you because...
The two main risks with them are mineral and B12 malabsorption, since they affect production of intrinsic factor is suppressed by PPIs. The second risk is lower GI infection because stomach acid...
I started this today after receiving 10 hookworms (necator americanus, or "NA" for short) in the mail. You can read everything about worm therapy at this authoritative Wiki, that was community...
Sorry to veer off topic slightly, but can anyone educate me on the science of precisely why NSAIDS are bad for us?...
Beef has very little iron in it. 100g only contains 14% of the RDA for iron: https://www.google.com/search?client=firefox-b-d&q=beef+nutrtiion You'd have to eat a lot to cover your needs. Shellfish...
Iron pills don't just irritate my bowels, they make me flare. Every single time. It doesn't matter how "gentle" they say the formulation is. I've wondered if it's because it feeds dysbiosis somehow....
I think leaky gut is a huge component in my UC... I can't speak for anyone else. I had repeated food poisoning in my 20's that was severe, and then I developed food allergies and malabsorption. When...
Thank you! :)...
Did I single someone out? No. I was talking in general. If you look at the kinds of discussions happening on social media about vaccines, they are all incredibly polarized and not interested in...
It's really hard. People are so brainwashed by the media. As soon as the media tells people what to think or what to fight about, people just start fighting and taking sides. I'm so tired of it....
This is what's known as bacteriophage therapy. Bacteria can get sick too, from viruses. Knowing which viruses target which bacteria can help with targeted therapy. Viruses can even be engineered to...
I've had it several times. The first time was a total nightmare because I didn't know what was happening until it was too late. The second two times, I had a Chinese medicine doctor and I recovered...
We need to stop tossing around corrosive terms like "anti-vaxxer" anytime someone questions standard practice. Questioning practices is how we refine our institutions to do better. If you aren't...
We don't need "more research", we need a change in research priorities. The research focus with IBD is on immune suppression. They don't care about anything else. There are splinter research groups...
Carageenan a.k.a red algae is used to induce colitis in experimental mice and rats. It's toxic and I can't believe we still add it to food. It's a thickener found in a lot of dairy based products...
Here is the BMJ article I was talking about, although now it is behind a pay wall, unfortunately. I wanted to cite it anyway. "How much of orthodox medicine is evidence based?"...
I don't like Bill Maher because of the way he communicates his ideas. He's very aggressive and ruthlessly partisan. This particular topic is near and dear to me because of my history in medical...
I actually used elderberry syrup to stop a flare that was starting up again during a prednisone taper. It's really high in anthocyanins, much like blueberry, and sometimes that anti-inflammatory is...
Is this another "Medical Medium" thing? Everyone and their dog is talking about drinking celery juice for their diseases online. It's starting to make me worried for people's sanity. It's a really...