I have been on 5 mg of Xeljanz twice a day now for about a year. I started at 10 mg twice a day and then as symptoms improved, went down to 5 mg maintenance dose. I also recently stopped taking...
Has anyone here experienced any issues with creatinine levels going up while on Xeljanz?...
talliecat - how long did it take for your symptoms to return once you dropped to 5 mg? Did you have joint pain on 10 mg?...
I am hoping reducing to 5 mg won't cause a problem. I have been experiencing joint pain as a side effect, and I'm hoping that going down to 5 mg will help with the pain and also manage the disease...
Hugo - I am hoping that reducing it will not impact anything. Stay in touch and let me know how you do, and I will do the same. Started the 5 mg today....
I just finished 2 months on Xeljanz. I will be on a maintenance dose of 5 mg twice daily down from 10 mg twice daily. Has anyone maintained this dose of 5 mg twice daily without recurrence of...
I corresponded with my nurse practitioner who told me I need to stay on Xeljanz indefinitely. If side effects become more of an issue, she will consider switching to something else, but for now I'm...
I get it all covered through my insurance - it's the only time it's ever happened. I don't even know why it's covered in full, but I'll take it for once!!...
I am just pushing through some of the side effects of joint pain and muscle aches and very grateful for the almost 100% remission I've achieved on Xeljanz after months of misery....
I started feeling better and seeing some improvement after 3 weeks. I'm almost 2 months taking Xeljanz, and am probably 95% better. It really is an amazing drug....
iPoop - What does that all mean? If you have antibodies, it will react and manifest itself with side effects like joint pain? If so, what do you do about it other than coming off the medicine?...
I have been on Xeljanz for almost 2 months now. It's working very well for me. I will soon be going from 10 mg twice a day to 5 mg twice a day. My only complaint is joint pain. It is getting pretty...
ipoop - yes, it could be part of that, but my UC symptoms are greatly improved. It could just be aches and pains of arthritis and overuse. Again, I'll take it as long as my UC is under control....
I have been on Xeljanz for almost 7 weeks and seeing great results. My flare has improved by 85%. I just have a question for other Xeljanz users. I have been feeling very achy since last week. My...
Does anyone know if Xeljanz causes weight gain? I have been on it for 5 weeks and tapered off Prednisone a week ago. I feel very bloated and uncomfortable. I was on Prednisone for a total of 6 months...
I have been on Xeljanz for almost 4 weeks now. I started to see improvement around Week 3. I am very happy with it so far. No side effects other than a somewhat dry mouth with a little bit of a funny...
little_bear - I, too, was in an extremely inflamed state when starting Xeljanz. I think time is needed for this to kick in. I am hopeful, and your story gives me hope as well. Thank you and I hope...
Suzy-q - glad to hear of the success of your husband. I need to give it more time. It's been a little over 2 weeks. I am hopeful....
Vicky - I have been on Xeljanz for 15 days now. I started to see a slight improvement the middle of last week. A little l ess blood and less trips to the bathroom. I went to a party and stupidly had...
I would say stay on the Xeljanz and foam. Don't fix what's not broken....
I have been on Peptiva for about 2 months. I take the one with the melatonin. Does help you sleep better. I don't think it has helped with UC though, as I've been dealing with a nonstop, terrible...
What is the difference between curcumin and tumeric?...
For those of you who have had success with Xeljanz, what is the shortest and longest time it took for you to see results. I've heard anywhere from 2 weeks to 2 months. I've been taking it a week, but...
Limey and Jrreys - how long did it take for the Xeljanz to be effective for you?...
Thank you - fingers crossed!...
I have never been on 6mp or Azathioprine or any type of drug in that class. I wish I had taken it instead of prednisone this time around. Do they work better than prednisone to stop the bleeding?...
Sorry to hear this. I truly hope you find a drug soon that will help!...
I see that Vedolizimab is Entyvio. Just looked it up....
VickyUC - I have not heard of vedolizimab. Is it new? My GI said if there is no improvement w/Xeljanz after 8 weeks they will switch to something else. I will keep the Budeofalk in mind. That is good...
VickyUC - is the bleeding all due to UC based on the results of the flexi sig? I had one too and that's what they told me. What is your treatment plan for the future?...
Terrapin, what treatment are they suggesting for you since both Xeljanz and a higher dose of prednisone doesn't seem to be working for you, unfortunately....
I started Xeljanz 5 days ago. I am also tapering off prednisone - 40 mg now down to 30 mg this week. Prednisone does not seem to work at all really. I am still seeing alot of blood and mucous and...
I will be starting Xeljanz soon. I wanted to get some feedback on it from recent uses for people here. I am having a very stubborn and terrible proctitis flare on and off for a year now. Prednisone...
I am currently on day 5 of Budesonide. No improvement at all. GI says to call in 10 days if no improvement and will start me on 6mp and Humira. I am so discouraged. My symptoms don't match my...
Prednisone did not put me in full remission, but helped me alot. The GI does not want to keep me on it too long. It's been 2 months. If Uceris didn't help either of you, I'm guessing prednisone...
I am trying to stop a flare for over 2 months now. Have been on prednisone both orally and rectally. GI wants to try Uceris before trying Humira to see if it might help. Uceris is not covered by my...
I was diagnosed with mild-moderate UC in 1998. I have had flares on and off every couple, three years. As the years go by, the flares are worse and are harder to get rid of. I am on 4800 mg of...
Can anyone recommend a good probiotic that has helped and make a difference for them? I have typically used the Align generic brand at my local drugstore. I know there are more expensive ones out...
Thanks for the reply. I had the sigmoidoscopy this morning. Rectum and part of sigmoid are very inflamed. I need to stay on 20 mg prednisone and also a hydrocortisone enema for a month. He didn't...
I have had UC since my late 30's. I am 59 so almost 20 years. It has been mild-moderate and been mostly controlled. I get a flare up every 2-3 years and it gets worse each time. Had one in Nov 2018....
I have been on Balsalazide for almost 2 months now. I have noticed joint pain and muscle pain and some fatigue since using it. I also have alot of sinus congestion all the time. I used to take...
I think I already know the answer to this, but want to doublecheck. Does Prednisone help with c-diff at all or is the only thing to cure c-diff is with an antibiotic?...
MY GI prescribed Creon for me for the first time. I suffer from UC but also mild chronic pancreatitis. I have been in a flare that the GI thinks is also being affected by the pancreatitis. I was in...
ElpisUnbreakable - what side effects did you get from Remicade? iPoop - very, very helpful info. I am taking a screen shot of what you wrote and will keep it in my purse for my appt next week. The...
I have been posting here lately, trying to get through a terrible flare. Since I was diagnosed with UC in 1998, I have taken Asacol, then switched to Delzicol. These are both mesalamine meds. I have...
Catherine, so glad to hear that things are improving for you. It gives me hope as well. I started to feel a little better yesterday with diet modification. This morning I had 2 cups of coffee which I...
Thank you - that's good to know (I guess) This board is a God Send for me!...
Thanks to everyone here sharing tips and information, I have alot of questions for my GI next week. A couple of you here mentioned c-diff? I wonder why. I thought of that or some type of infection on...
Thanks to everyone for posting their replies and offering their support. I definitely need to change my meds. My GI called in a script for prednisone which I started yesterday. I have an appt with...
Glad to have found this forum. I have had UC since 1998. I am 56 years old and otherwise in very good health. It is my only real health issue. It has been in remission most of the time and I get...