I've seen results literally over night, and I've had times it takes a while on 40. Its individual, and not just by person, but by flare, and probably by tolerance to the drug. Your son, since he's...
That's quite a situation. I think if there's a chance at a jpouch, it may be worth a try. I know CC is a top colorectal facility so is easy to think they are giving you the best information but then...
You will need a scope to get a diagnosis. Hopefully, the blood work helps to guide your physicians in that direction so you can figure out what's going on. What you describe does sound like it could...
This thread is under review by the board admin. Please stay on topic with content that pertains to Lyme disease. This has gone off topic. Thank you....
I've heard other people say they get mouth ulcers, but really, it shouldn't be related to uc since uc is limited to the colon and rectum. Maybe it's related to your overall well being and the fact...
It also said the study highlighted elderly patients with comorbidities. That would certainly make those numbers higher... Living with uncontrolled uc isn't really a long-term possibly for people who...
How did they know you have diversion colitis? Did they do any tests? Have you had an mre? I personally would be worried about crohn's, so I'd want to try to eliminate the possibility of that before...
I am sure there are things you could try. Between newly approved treatments and trials, it seems like attempting to treat could go on for quite a while. On the other hand, I opted for surgery after I...
I've used a lot of migraine treatments while suffering with ibd and one thing you want to avoid is nsaids. The other is anything that has increased risk of blood clots. What's worked for me is...
205 is not a very high result. I think normal is under 150. I've seen people with results in the 1000s. Perhaps you could do a retest in the near future and see if it's improved but I personally...
That is so great countess. I am happy to see this, and I am happy for you and him....
I am so sorry you're concerned about your son. I think a calprotectin is a reasonable place to start. It's noninvasive and it might give you some idea of what's going on... Hopefully, it shows no...
I am so sorry that happened to you. Sounds frightening, but hopefully, it was acid from the oranges and you can continue with the treatment. Keep me updated. Wishing you success with stelara....
Mine definitely showed a lot of signs of inflammation. Maybe things are mild. That's a good thing!...
I've never seen any evidence that food can stop or start a flare....
Oh spring, I am sorry you're going through this. Having to switch meds is a pain in the ass but I hope stelara works well for you. I feel like I've learned over time that if you don't ask, something...
Thankfully, I've never had one. I am so sorry you're dealing with this. I've heard they are painful....
I also wonder where he is. I talk to Sara a lot off of hw. She's doing well....
That really stinks. It's so much to go though and over an error? I wish you could go see someone at one of the major facilities with the most experience with redos for a consultation. Can you video...
I'd definitely try medication before having a redo....
I think the antibiotics might be managing the pouchitis but biologics might work better for daily prevention and treatment. I'd give them a try. I don't think the fact that they didn't help your uc...
Is there a way to find out if that's the case? I think I'd try a biologic and see if it stops the inflammation and decreases symptoms. Better to try that than to have surgery and realize it wasn't a...
I thought you had inflammation in the pouch causing your troubles?...
Maybe biologics...
Who are you dealing with? The original surgeon? I'd definitely get multiple opinions before doing anything surgical, and of course, if you're feeling well, maybe try to use medical options before...
I agree with the others. If you're not comfortable with the doctor, see someone else. I don't think having a family member in the room doing a medical procedure is standard practice, nor do I think...
I am very sorry to hear the news about your mother. It's nice that you got to spend some time with her beforehand. I lost my dad and I hadn't seen him in a while, I still remember the last time we...
I think she mistyped. You can't have a colostomy with uc surgery. A colostomy comes from the colon and uc surgery removes the colon....
I'm soo sorry it's been such a difficult road for you. I hope things start to improve. This year has been pretty bad in general âšī¸ if you had takedown, aren't you closed and free of a stoma?...
The surgeon or gi should be able to do a tiny scope of the pouch in the office. Perhaps it's hemorrhoids, or something along those lines. It could also be pouchitis, but that can be treated with...
I've always been described as a very grounded person. Didn't help me with my immune system unfortunately. Happy to hear others have received benefit......
If you're doing well, I am sure you've responded. Non responders wouldn't have any response at all. That's what happened to me. You wouldn't have antibodies but it also wouldn't work. You might just...
Some people are non responders. You should get your levels checked and see what your gi thinks. A higher dose might be a good solution but it won't help if you're a non responder. It never helped me...
If you're down to one medical option, id personally at least, consult with some surgeons and start getting my head wrapped around what that entails. Even if xeljanz is the magic bullet, it may not,...
I knew I didn't want to take steroids ever again. That made the decision easy for me. I was carrying a lot of extra weight and I hated the way I looked. I didn't want to commit to a life of being...
I'd definitely resign if I were in the financial position to! It's great to have opportunities to get some flexibility through the workplace but it's very different to get a few days paid days off...
Soooooooo true. Sad but true. We aren't lucky enough to get to resign over ibd, even if it's severe and life alerting... I hope he gets better quickly too....
Mine are all over the place. Sometimes pieces, sometimes liquid. Depends what you eat, but you definitely can't expect formed like before surgery. Form happens in the colon. If you retain your...
I think a calprotectin test is a good idea but I'd also probably try steroid s upps for a few days to see if that helps. Seeing the gi is always a good idea when there's blood. Better to get it...
I dont understand it either poopy đ if you find a way to fight it, I am here to stand with you. It's not right. Totally discriminatory actually. It only applies to people of certain ages and...
That is really sad. People used to always act like I was a baby because I would back out of responsibilities due to uc, in fact, they still do when I reiterate how difficult life can be with a...
You may want to try asking on jpouch org. This site isn't very active and there are very few active members here with pouches. I haven't had pouchitis myself but I have heard others say that combo of...
It's hard to say what the options are but I will say that you need to stay calm and not make rash decisions or worry about the worst. You can consult with multiple surgeons and see what they say. If...
it's the same as cyclosporine, which I mentioned earlier. I hope you have luck with it. Often it's used under a doctor's care in a hospital. It can cause a quick turnaround. Let us know how you do....
I think they always leave a cuff to connect to. My cuff was scraped of cells though and I have not had any issues with cuffitis thankfully. I had surgery in Los Angeles....
I tried a lot of herbal, otc and dietary options before restoring to surgery. Nothing helped me personally. At least, after surgery, it really is all I'm the past. No drugs, no steroids, no doctors....
I didn't respond to anything and I had surgery but perhaps you should get some stool tests to see if your battling some type of bacteria on top of uc. Other than that, you could see about a course of...
Thanks for updating! You will pass wind again in time. Do not worry đ it's always great to hear about people being in good spirits. It sounds like you're looking forward to a life without uc. I had...
The first year is definitely the hardest but having recurrent pouchitis puts you in a category where you have had more trouble than the majority. Many people regret not having surgery sooner because...
I can understand that. I hope you find a way to make things work without....