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The_Swan

HealingWell Forum
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Member Profile
Display Name
The_Swan
Profile Created
1/24/2019 10:54 PM
Last Seen
Today 8:41 AM
Total Posts
126

Last 50 Posts

Chicken pox on stoma?

Try to consult a dermatologist, in person, not over tele-health. I hope you will get better soon!...

1/13/2021 9:01 AM

Ulcerative Colitis
Aimovig helping UC

Interesting! I have migraine too! First time hearing about this injection, two birds with one stone! Good to hear you are doing better! Good luck with your insurance company!...

10/15/2020 4:54 PM

Ulcerative Colitis
Frustrated!!!

For me usually about couple weeks, but I use it twice a day at the beginning of the flare. Hope you will get better soon!...

10/5/2020 3:14 PM

Ulcerative Colitis
I Went into Remission... and the Whole World went to Hell

I have to use the Canasa Supp every night, otherwise Proctitis will flare again In less than in couple weeks. Good to hear you are finally in remission!...

10/5/2020 3:10 PM

Ulcerative Colitis
CT scans results good and bad.

It’s a tough decision! Treatment vs quality of life? My sister had a colon cancer, she went through radiation and chemotherapy, regarding cancer treatments I think all experience the same. Wish you...

8/16/2020 6:07 AM

Ulcerative Colitis
update

Good luck with your final surgery!...

8/2/2020 2:45 PM

Ulcerative Colitis
Steroid foam and doctor in Japan

So, do you have to visit the dr every month in Japan to get the prescription? What suppositories did you try? Canasa supp was the only supp that helped me. But I don’t think it’s available in Japan!...

8/2/2020 2:37 PM

Ulcerative Colitis
CT scans results good and bad.

Sorry about your lung results! I hope you will get better soon, and get everything under control!...

7/29/2020 7:53 PM

Ulcerative Colitis
Can’t Find Someone To Drive Me To/From Colonoscopy. Any options?

I will schedule the appointment for December 2020, and wait until then! Hopefully by the end of the year the situation regarding Covid well be better/ gone and maybe you will find someone to drive...

7/28/2020 1:05 PM

Ulcerative Colitis
I need help from imuran takers

I had Pneumonia too after I started Imuran, and kept getting urinary tract infection and yeast infection....

7/27/2020 11:00 PM

Ulcerative Colitis
Pregnant and suffering

Maybe your GI doesn’t want to take responsibility of prescribing more meds since your are pregnant, consult with your OBYGN, maybe both of them can agree on something!...

7/27/2020 2:16 PM

Ulcerative Colitis
Pregnant and suffering

I hope you will get better soon! My UC symptoms started while I was pregnant, but unfortunately, I was diagnosed after giving birth to my son, and it was too late, the inflammation was spread all...

7/27/2020 1:57 PM

Ulcerative Colitis
UC Medical card

Once I went to a mall, and there was a group of tourists lined up for the restroom , at that moment I wished I had one of these cards! Imagine pulling the card like an FBI agent for a group of...

7/21/2020 10:17 PM

Ulcerative Colitis
Fistula reassurance please

I hope you will get better soon! My sister had a rectovaginal fistula, she needed a surgery and she is doing good now....

7/17/2020 10:07 AM

Ulcerative Colitis
AZ GI Doctors referrals

My husband was laid off because of COVID-19, so we lost our health coverage as a result, both Cobra and market place were very expensive. Currently I have a flare, buying medications using Goodrx,...

7/16/2020 3:15 PM

Ulcerative Colitis
AZ GI Doctors referrals

Thank you so much! I will definitely check them!...

7/16/2020 8:32 AM

Ulcerative Colitis
The 1 month imuran effect(worse than colitis)

Do you use the generic or the brand name? The generic caused me nausea and vomiting, but not the brand name....

7/15/2020 3:55 PM

Ulcerative Colitis
AZ GI Doctors referrals

Hello fellow Arizonan, I hope everyone is doing good! I lost my health insurance coverage last month, and I can’t afford seeing my current GI ($650 copay!) I’m looking for a new good GI that I can...

7/14/2020 7:15 PM

Ulcerative Colitis
Affordable Care Act

I was planning Calling them, Do you think it’s a good idea to tell my doctor that I lost my health insurance coverage , or Should I wait? There office visit copay with insurance was between $400-500,...

7/5/2020 10:14 AM

Ulcerative Colitis
Affordable Care Act

I think they are planing to stop covering medications ( or most of them) under primary health insurance, as they did by separating dental and eye care , to make us paying extra to cover speciality...

7/5/2020 7:59 AM

Ulcerative Colitis
Proctitis Help

I forgot to mention that usually my doctor puts me on enema twice a day untill the bleeding stops then once a day....

6/26/2020 4:26 PM

Ulcerative Colitis
Proctitis Help

For me with the Mesalamine enema it usually takes about two weeks for the bleeding to stop....

6/26/2020 1:51 PM

Ulcerative Colitis
Affordable Care Act

My husband lost his job due to the pandemic, so as a result we lost our health insurance coverage too. It will not be easy to buy a new health insurance and all my medications with nearly no income!...

6/25/2020 10:28 PM

Ulcerative Colitis
Colonoscopoy Prep

I prefer MoviPrep, but unfortunately it’s not covered by my insurance plan this year....

2/25/2020 6:22 PM

Ulcerative Colitis
Imuran -- Is my doctor supposed to be testing my liver?

I have been taking Imuran for about 18 years, every 3 months I do CBC & Liver Function test....

12/8/2019 9:19 PM

Ulcerative Colitis
Gas with Ulcerative colitis

It doesn’t sound like a UC flare to me, maybe you have a food poisoning or something else! Vomiting isn’t a UC symptom,...

12/6/2019 9:58 PM

Ulcerative Colitis
Still flaring badly. Questions about surgery...

Pentasa supp and Asacol supp didn’t help me, but steroids supp and Canasa did. Same for enemas, Mesalamine enemas help me always, give them a try. While taking your current med....

11/29/2019 1:43 PM

Ulcerative Colitis
Your drug coverage will change- BCBS

You asked for opinions: If you need the medication, and it’s not covered buy your insurance, consider buying it using GoodRx or online Canadian Pharmacies. My insurance company doesn’t cover...

11/23/2019 10:21 PM

Ulcerative Colitis
Your drug coverage will change- BCBS

I’m surprised they took Canasa out! It’s the most effective supp for Proctitis ( at least for me)....

11/23/2019 10:03 AM

Ulcerative Colitis
Generic versus Brand Name

Everyone is different, the only way to know is try it by yourself! For example, I experienced bad side effects with the generic of Imuran( Azathioprine) , but not with the brand name, but others have...

11/23/2019 9:56 AM

Ulcerative Colitis
Biologics.

Try the enema as soon as possible before your symptoms become worse....

11/21/2019 1:28 PM

Ulcerative Colitis
Normal or start of something?

For me if I notice increasing in mucus ( colored or foul smell) I know then it’s maybe a flare coming, passing blood pain and diarrhea confirms it. Gas, soft stool, aches, bloating, I think these are...

11/17/2019 4:15 PM

Ulcerative Colitis
Pomegranate Juice and Imuran!

Hello everyone, I would like to share with you my experience of drinking Pomegranate Juice, one glass of organic Pomegranate 100% juice, for about six months: 1) Constipation 2) up normal blood work...

11/16/2019 4:55 PM

Ulcerative Colitis
Latest research and studies on faecal trasplantation?

I know you are looking for a research study support the fecal transplant, but I remember in Jun reading about a man died after receiving a fecal transplant from “a healthy donor “ in trial study at...

11/5/2019 7:41 AM

Ulcerative Colitis
Biologics for mild/moderate uc

Three years with no luck in controlling “mild” flare with normal meds! Don’t waste your time waiting for a sever flare to use biologics! I think the chance for biologics to put you in remission now,...

11/4/2019 9:42 PM

Ulcerative Colitis
Symptoms are back -- Is this normal before infusion?

Wish you well!...

10/31/2019 3:49 PM

Ulcerative Colitis
Article: Climate can explain intestinal trouble

I never had a problem with Vitamin D, and I live in Arizona :)...

10/24/2019 3:50 PM

Ulcerative Colitis
Night time relief

I hope you will get better soon! When the maximum dose of prednisone wasn’t enough to control a very bad flare, and I was already on (Imuran + Mesalamine ), the doctor added Prograf and that helped...

10/24/2019 11:47 AM

Ulcerative Colitis
UC and Kids!

He had the same experience! they are waiting for the insurance approval for the biologic....

10/15/2019 9:54 AM

Ulcerative Colitis
Trulance for Constipation. Any thoughts

Calcium supplements could cause constipation....

10/14/2019 9:04 AM

Ulcerative Colitis
UC and Kids!

I was thinking about the enemas or prednison ,untill his GI or(the insurance!!)decide what do next, but he is just a kid I don’t know how much he will tolerate....

10/14/2019 8:57 AM

Ulcerative Colitis
Prednisone not as effective recently

It looks like it’s common to stop working for us, it happened to me years ago. Since then Enema is my first line of defense....

10/14/2019 8:50 AM

Ulcerative Colitis
UC and Kids!

He is the son of one of my husband’s friends. I talked with his mother over the phone, thats when I heard him crying running to the bathroom. Is this right? Letting a kid with active UC unmedicated?...

10/13/2019 9:13 PM

Ulcerative Colitis
UC and Kids!

A ten years old boy was diagnosed with UC (Pancolitis) three years ago, currently he is not on any medications because he is allergic to 6-MP and Azathioprine, and Mesalamine failed. It looks like...

10/13/2019 2:46 PM

Ulcerative Colitis
worsening colitis or side effect of meds?

If you suspect it spread, try the mesalamine enema....

10/10/2019 6:00 PM

Ulcerative Colitis
Ulcerative Colitis for 15 years

I have had UC for about 18 years. First precancerous polyp was found about 13 years into UC. Since then I do annual colonoscopy, they found precancerous polyps in each one of them! Annual Colonoscopy...

10/5/2019 3:25 PM

Ulcerative Colitis
Generic 5ASA

Wow, why you kept taking these? I think you should talk to the pharmacy about it....

10/3/2019 5:06 PM

Ulcerative Colitis
Trusted online Pharmacies

Thank you all, very helpful informations!...

10/2/2019 9:55 PM

Ulcerative Colitis
Trusted online Pharmacies

One of my friend traveled as a tourist to Turkey, she bought me 4 boxes of Imuran( the brand name from Aspen not the generic ) for about 10$/box (100 pills) from a licensed Pharmacy near the Hotel!...

10/2/2019 7:27 AM

Ulcerative Colitis
Trusted online Pharmacies

Thank you! That was helpful I noticed that there are many of them online!...

9/30/2019 6:54 PM

Ulcerative Colitis



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