I'm not aware of anything going on. You using a phone or pc? What web browser? If you have several web browsers, try a different one. Are others having issues with this website too?...
If you guys don't like them, then my laying hens will lol. They love mealworms, crickets, etc....
Certainly work with your doctor's to monitor it and test for explainations. Allergic reactions can also cause swollen lump nodes. My dear wife has no health conditions and takes no meds. She works...
Raised heart rate can also be from dehydration, common during flares with frequent diarrhea. Make sure to drink a lot of water. I'd drink a tall glass of water after every poop. Consider electrolyte...
First I gotta ask why avoid surgery? If you've failed stelara and entyvio (two distinct classes of biologics) then why is that off of the table? Often that's at least when you start considering it....
I just posted this on another thread, but copy/pasting here as it's relevant. Just know those of us on infliximab/remicade or corticosteroids/prednisone might have a weakened immune system response...
I got my 1st Moderna shot last week, normal immediately after and ever since. Just know those of us on infliximab/remicade or corticosteroids/prednisone might have a weakened immune system response...
Yes, mouth ulcers are an extra-intestinal manifestation of IBD. They're more common with crohn's but documented as occurring in UC as well....
How quick your body clearances blood born proteins varies a lot among us. Yours is just faster than average, no issues related to that at all. It's like the same with other blood given medicine that...
Sounds like MAP isn't the only smart, immune and antibiotic resistant strain that could be causational. McMaster-led team unlocks possible Crohn’s disease trigger...
I'd expect their to be prognostic tests in the next 10 or so years that take some of the trial-and-error out of treating us. Run a blood panel at diagnosis, know how aggressive our UC will be, know...
This. You're flaring, two inflammation tests confirm it, and your symptoms confirm it....
Congrats, happy for you. And I do love success stories!...
If you're not fully healed then it makes sense you might still have symptoms....
It's fine to take vaccines a few months apart, both appear to not be "live" vaccines which is the only they don't recommend for us when we're on immunosuppressive meds (not sure if you are or not...
This thread has gone off of the deep end and unfortunately must be locked. Please give the other person the benefit of doubt before going after them like multiple here did. We're all under a lot of...
Never heard of it. Try a forum search to see if anybody here has used it before?...
Values over 200 are considered to be positive for Inflammation in most Calprotectin tests. Yours should have a scale saying what's normal and what's elevated, just in case different units are used in...
Let's please be civil in this discussion. "How long does it take for the lead pipe phenomenon to happen in the average case?". The thing is, that it's not inevitable. If you're in a long term,...
I would give stelara 6-8 weeks for a response if you're going to get one. You're beyond that, so do discuss where you're at and your options with your gasteroenterologist asap. I know how frustrating...
Thanks cheers to good health for us all!...
I'd give humira 6-8 weeks for a response, if you're going to get one. About 65 percent of us respond to any given biologic, odds are good but not a guarantee of success. A few things to know about...
UC large intestinal scars aren't as debilitating as in crohn's disease. UC has no strictures, no partial or complete blockages, and no resection surgeries necessary. I think it has more to do with...
Medicines have a maximum strength. The immune system has multiple pathways to cause the Inflammatory cycle to occur, each biologic/xeljanz target one mechanism only. Possible for your immune system...
Congrats. Hoping to get mine in the coming few weeks as well. As VT is saying ages 16+ with chronic health conditions at high risk like immunosuppressed is opening soon (middle of March). Called and...
Yes, you should have an initial response from stelara within 8 weeks if you're going to. No, sulfasalazine isn't stronger than mesalamine. Sulfasalazine is a protomesalamine, a more complex molecule...
Congrats, so happy for you!...
IBD approved Biologics (remicade, humira, simponi, entyvio, stelara, cimzia) are all biologic monoclonal antibodies. They're large proteins molecule that act on the outside surface of cells. As...
There's no head-to-head studies. Success stories on both. I'm a remicade success story (8 years and counting). Stelara is a lot newer so less have tried it....
Obviously no cure yet, but happy when I see articles talking about pathogenesis. "MicroRNAs overexpressed in Crohn’s disease and their interactions with mechanisms of epigenetic regulation explain...
Lady I knew there was still a copay card for delzicol. https://www.delzicol.com/resources/savings-card/ There's generics of most mesalamine now (lialda, Apriso, asacol hd, delzicol), so the...
I'm still here thanks for checking in. Still in remission, no complaints!...
You should get an initial response in 6 weeks if you're going to. About 65 percent of us respond to any given biologic....
Welcome back! Will remission happen very soon (if I respond well)? Remission can take 3-6 months roughly. Healing is a slow process but steady improvements are a good thing. How long could it last?...
There's affordable options, see the following https://m.goodrx.com/aminosalicylates ...
I'm sure lots of possible things can cause infections like that. You'll probably never know. For now, don't worry and just focus on healing and feeling better....
And that's why I say the mental hurdle is the hardest to jump. Often fear means a misunderstanding of something. Can you horseback ride and be physically active with a temporary ostomy or a completed...
I would not worry. Healing isn't a linear line from flare to remission with daily progress. Rather it's more like a rollercoaster ride full of surprise rises and sharp drops. Look at week-to-week...
Have you tried methotrexate? It's typically a Crohn's med but can be tried for UC patients who have a history of adverse reactions to 6MP. Xeljanz and stelara are both fairly new for UC, so there...
I was in a similar situation, a long term remission on 6mp and remicade simultaneously. Doctor said quit 6mp cold-turkey. I decided to drop my dose more slowly over about 8 months. Taper a bit, hold...
I've been in a remission 8 years on remicade, no side effects and not any more sick than my normal. We've had a few posters who've been on remicade since the initial clinical trials back in 1999,...
That's a tough one. Certainly risky to rock the boat, but also awful to have a limited quality of life with lingering symptoms. A few different options: Continue taking remicade and add a thiopurine...
Sorry to hear that you're struggling. I'm not really sure on that one, many things could cause it. Regarding the poster, Kazbern, that you reference, he/she hasn't posted here since 2017 and no email...
Bumping this back up for more attention. Not sure, a complicated scenario and I'd defer to a colorectal surgeon with more familarity with your case history....
I would assume IVIG is off-label use for UC. Nonstandard treatments are harder to get prescribed by gasteroenterologists and approved by health insurance. You have better luck if you've failed...
The highest dose of mesalamine I've been prescribed by my gasteroenterologist is 4.8 grams orally, and two 4.0 gram enemas daily. That's a grand total of 12.8 grams mesalamine daily. It's very...
Welcome hailey, and I'm very glad you've been doing very well over the long term! Today, are you on any meds, supplements, or diets? Certainly, a big change like going off to college can worry us,...
Remicade and azathiopurine are a common combination used over the last 20 years. I was on remicade and 6-mercaptopurine together for about 6 years without issues or side effects. I too was initially...
There's a blood test for antibodies your immune system can create against remicade which your gasteroenterologist can order. Possible it's not remicade too. Skin conditions can pop up like eczema or...
Most are candidates for a j-pouch and don't have a permanent appliance/bag. Have you got a DEXA bone density scan recently? Pred is bone wasting......